December 2015 Surgery Sisters Part Deux (with list)

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  • BethL
    BethL Member Posts: 286
    edited December 2015

    Duzy- so glad you're feeling well. I didn't have a block but did have an epidural to help with pain the first night.

    Queen - I'm sorry you have to have more surgery. I had my tumor removed in a ductal excision last August but margins were positive for dcis. So I had to pick between re-excision or mx. Lots of us in the same situation. Stinks but I know you'll do great. Sounds like you're making a good decision. Hugs.


  • Musosgirl
    Musosgirl Member Posts: 387
    edited December 2015
    Here we are at the end! Today's ladies have been on my mind all day. Praying all goes well. Even though we still have lots more ahead--for some chemo, others more surgery, and, like me, rads--this is one step closer to being done. And for that we are awesome!

    Warrior On!
  • KateB79
    KateB79 Member Posts: 747
    edited December 2015

    I'm home and resting! Feeling pretty good, all told. Like many of us, my next phase is radiation. Right now I'm grateful for many things and happy to be lounging on my own bed.

  • MissV123
    MissV123 Member Posts: 79
    edited December 2015

    For everyone that had their surgeries yesterday, Im praying for a quick recovery......

    For everyone recovering, hope you are all doing better....have a Blessed New Year....

  • JerseyGirl22
    JerseyGirl22 Member Posts: 342
    edited December 2015

    Kate, so glad you are home and resting in your own bed, doesn't it feel wonderful!!!??? I'm praying over all of my warrior sisters today!

    Like musogirl said, we're all one step closer to the end of this part of the journey!

    Stay out here encouraging each other!!!

    Warrior On, into the new year and beyond!


  • Duzy
    Duzy Member Posts: 134
    edited January 2016

    Kate glad you are home and resting. To the others who had surgery this week sending positive thoughts that your surgeries went well. It is a New Year and I like everyone hope to leave most of this behind us and move on to a better year.

    3 days after surgery and my doctor called me today to give me the news that between what was left of my breast tissue and the lymph nodes removed there was ZERO CANCER detected any where. There was no residue or anything. She figured I would want to hear that before the year end instead of waiting until next week when she return from vacation. Made my day. Still will probably have radiation since the sentinel nodes removed last summer did have cancer cells. So either it had not spread any further or the chemo took care of everything. Either way I will take it.

    As for my surgery I have been doing pretty good but the drains are a pain. How long do they usually stay in? Also no one said anything to me about exercise for my arm so do I have to wait until the drains are out?

    HAPPY NEW YEARS EVERYONE AND HOPE EVERYONE CONTINUES TO GET STRONGER EACH DAY

  • NJ-Jen
    NJ-Jen Member Posts: 64
    edited January 2016

    Happy New Year everyone!

    I have one drain left, and on antibiotics trying to keep my fevers down... I am down from 102.8 to running around 101 or less but the fevers are annoying and I wake in a puddle every morning. My hip where the drain is is tender and red but just can't tell if the stuff coming out is pus or the the thick fluid... But I can't want to see the doc on Monday so they can decide.

    Waiting for my oncotyping and genetic testing and hope this goes well...

    Duzy the drains are a pain but you will be so happy once they come out!

  • BethL
    BethL Member Posts: 286
    edited January 2016

    Kate- so glad you're feeling well and was able to get home to your own. Bed so fast. Rest and heal now.

    Duzy- great news on your path!!! Yes, drains are a pain. I've seen some get them out within a week, others 3 or more weeks. Mine were in 2 1/2 weeks and probably shold have staped in longer. Take your time, they will come out eventually, I promise!

    Jen- glad your fever is down. You're a tough girl. I hit 100 and am toast. Wishes that you continue to get better. I too am waiting on genetics results. Think it takes about 3 weeks. I registered so I can see the progress of the testing. Do you have that option?

    Happy New Year everyone!!! On to a more healthy year.

  • grandma3X
    grandma3X Member Posts: 759
    edited January 2016

    hi December surgery sisters! My UMX with TE is scheduled for Jan. 13. I have been reading about paravertebral blocks and wondered if anyone in this surgery thread went this route. My BS said it works very well for some women (pain control) but not so much for others. Any advice? Thanks and Happy New Year!
  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2016

    I asked my surgeon about the regional block and she said they don't do that where I had my surgery.

  • Deaconlady
    Deaconlady Member Posts: 158
    edited January 2016

    Happy New Year! I got the news yesterday that the lymph nodes removed were negative.


    I go back in 2 weeks now that all the puzzle pieces are together to see what's next.

  • BethL
    BethL Member Posts: 286
    edited January 2016

    grandma3x- I was offered the block but declined it. It wasn't that I felt it wouldn't work, but they didn't bring it up until right before surgery and I didn't have time to think, so I said no. I did agree on an epidural though. Worked great during the first night. I was itching from it though so kept scooting my back against the bed in an attempt to scratch and at some point it fell out. I knew something was up because I started hurting more, so clearly it was helping. Is that an option?

    Deaconlady- great news!

  • JerseyGirl22
    JerseyGirl22 Member Posts: 342
    edited January 2016

    Duzy!!! Great news! Happy New Year Everyone!!!

  • KateB79
    KateB79 Member Posts: 747
    edited January 2016

    I feel like writing a haiku for the JP drain, but I'll restrain myself.

    Feeling pretty good overall. Just made the mistake of looking at my pre-surgery labs, which show moderate neutropenia (thanks, chemo!), so I'm trying not to worry. One of my plans for the new year was to do less worrying, so we'll see how it goes.

    Other than the drain, I feel great. I'm compressing my chest with an ace bandage (over the dressing, which I changed two days ago), and draining very little. I wish I could get this sucker out of me before my post-op on Thursday!

    Sending hugs to all.

  • songbird72
    songbird72 Member Posts: 68
    edited January 2016

    Duzy---I would ask about the exercises. I have ended up with cording (AWS) and the exercises will help prevent against that. I babied my arm too much as well because I had my lymph drain four weeks and thought the tightness was due to that.

    I had a pec block during surgery to help with the pain (it wore off in approximately 18 hours). The pain wasn't really that bad for me, except for the drains. (or at least I thought it was the drain. It could've been like the tightness--caused by surgery but I attributed it to the drain.)

  • Duzy
    Duzy Member Posts: 134
    edited January 2016

    Deaconlady congrats on your results.

    Grandma3X I had some type of nerve block but I am not sure what it was called because they surprised me with it about an hour before surgery. It was a shot they gave me in the back and would help with the pain for about 24 hours.

    KateB79 glad to hear you are resting. I was given a compression in the hospital that has Velcro and was told to wear for the first 3-4 days. Rest all you can

    Songbird72 I go for a follow up appt a week from Monday. I am still draining quite a bit but it has not been a week yet. It sounds like maybe we had the same type of block during surgery. I don't necessarily have a lot of pain but I have a lot of tingling/numbness around my armpit and on the under side of my arm. I wasn't sure if that was normal and just takes time to heal so I don't want to do to much. The BS said to do as much as normal as possible but nothing repetitive or over my head.

    Hope everyone else is getting stronger and healing well.

  • NJ-Jen
    NJ-Jen Member Posts: 64
    edited January 2016

    Found the reason for my fever, I have a heavy staph infection on my last jp drain. It is hot and sore and even after oral antibiotics, I still can't touch it. It hurts to wear anything or even move my leg, although I am trying to move around as much as I can. I am still anemic. Still fevers. I feel like I am whining but I feel miserable. I have had so many surgeries but this recovery is kicking my butt

  • BethL
    BethL Member Posts: 286
    edited January 2016

    Jen- so sorry you're dealing with that. I had a staph infection after my excisiona biopsy in september and remember how bad I felt. My fever didn't get that high, but I've only had one adult fever in my life. They didn't realize how bad it was because of the lack of fever, buy I felt terrible all over. Ended up in the hospital for 4 days for iv abx so I can relate a little. I was so worried about it after my mx, stayed on oral abx for 4 weeks. The 1st infection didn't happen until 2 weeks post op, so I'm still not confident my risk is over. It's been 2 days since stopping abx. I'm hopeful but cautious!

    Since you were on abx, are they gonna switch you? Did they do a sensitivity on it to make sure what you're thing works with what you have?

  • NJ-Jen
    NJ-Jen Member Posts: 64
    edited January 2016

    I hope the surgeon switches me over tomorrow, but he seems very conservative and acts like I don't feel well because of something I have done, but I feel run down into the ground. I have existing conditions that are not well understood by most doctors in that my pituitary does not function and most of my endocrine glands are gone or do not work notably my adrenal glands are gone. I have to take steroids, high dose ones, to live. I had Cushing's disease so I am overweight (although way down from my peak) so the docs feel I don't try but between the steroids, the replacements and the lousy immune system, I run on fumes most of the time anyway. This was surgery 14 but I never had this happen before.

    They did run a sensitivity on the test so it will clear up with anything but penicillin. Yeah

  • BethL
    BethL Member Posts: 286
    edited January 2016

    of course you feel run down! You've been through so much, stinks. A friend of mine suffered with Cushing symptoms for years before being diagnosed, that process alone was draining, im sorry youve been through so much. Hoping the next med works better at getting rid of the infection. Does your doc consult with your other providers? Seems with your other medical concerns, this may require a team approach.

    And you are NOT whining! !!!

  • JerseyGirl22
    JerseyGirl22 Member Posts: 342
    edited January 2016

    NJ-Jen, so sorry to hear you are going through this infection! Praying for relief and healing!!!!

  • NJ-Jen
    NJ-Jen Member Posts: 64
    edited January 2016

    The ps said since the drain is the source, he opted to remove even though it is dumping 200 a day. So it is gone and they took a sample. They added levaquin and I have to take both antibiotics for a while. I will see an infectious disease doc tomorrow. It is one painful, red hole in my side. On the plus side everything else looks normal.

    It is sadly typical for Cushing's to take years. I had a known pituitary tumor for 12 years and was sick before, still it took so long. Doctors are taught it is rare, and if you don't have one symptom or some want 2x ranges (!!!) and even now when I was in the hospital with a covering doctor he ran literally 2 blood tests (tsh and t4) and said in my records he did not think I was panhypopituitary... Like I am supposed to explain to him years of medical history in the icu after I wake up from a 12 hour surgery and all the data is in the office, he chooses not to read... Or believe after all, tests when I am sick are so accurate.

  • BethL
    BethL Member Posts: 286
    edited January 2016

    Jen- sounds terrible. But if the drain is the source, it must go! Putting out 200 per day....will it need to be replaced?

    I sure hope this med does the trick for you, will be thinking of you.

  • JerseyGirl22
    JerseyGirl22 Member Posts: 342
    edited January 2016

    Warrior Women!

    I just wanted to drop in and see how all of you are doing! The month of December was life changing for all of us! We've seen it through and we are looking to Warrior On to the next hurdle... some of us have chemo, some have rads, some have both, just different time frames...

    Know that all of you are conquerors! You will rise above! You will kick this thing to the curb and rise up more woman than you were before!

    Let's continue to be out here and encourage each other, especially in this group! I feel connected to all of you as we've shared so much through the surgery journey. We'll pop up on other boards, but I hope all of you will continue to check in here. Or we can start another board for our group, now that surgery is over... maybe a Warrior On board? Hmmm, there's a thought... lmk what you think...

    Warrior On!

  • Musosgirl
    Musosgirl Member Posts: 387
    edited January 2016
    I posted this in the Lumpectomy Lounge but it applies here too. Last night around 9:00 my lumpy incision started bleeding. And would not stop. We called my BS (she thought it was just blood tinged fluid--clean the area and apply pressure) and she said to come in this morning:

    Well, today did not go as planned. Woke up soaked in blood. The hole in my boob had seeped through the surgerical pad, four layers of a hand towel, and my jammies. I was wringing blood out of the towel--so gross. DH called the BS and we went straight in. She looked me over and decided it WAS blood. Old blood that was starting to separate. It was still just oozing away. She wanted to defer to my PS, but said if he couldn't, she would do surgery tomorrow morning. Well, we went straight to the PS's office and he sent me straight to surgery. He opened up the lumpy incision, drained the hematoma, washed out the lumpy cavity, and closed it back up. I have a drain now--but so far it is empty. Back to sponge baths, no driving, no lifting over 5 lbs., etc.

    And...no Star Wars. I sent DH home to take the boys since we had already paid for the tickets. My sis and mom came up to stay with me. My men were all in the theater during surgery and recovery. Glad DH had that distraction though. The rushed surgery kinda knocked us both off our feet. Oh, and rads is delayed a couple more weeks.

    I am very groggy, but the pain meds are doing their job. Hoping I bounce back quicker with this little SX. I was JUST starting to feel like I was in the clear--no pain, incisions feeling good, more energy/stamina each day. Expect the unexpected, I guess.
  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2016

    ((Musosgirl)) You've been through the wringer today! My day was a piece of cake compared to yours. Hope you are done with surgery now.

    I woke up with my heart racing, and I freaked out. Gave myself a headache crying. I told DH that I was taking my dog and running away. LOL. We talked to the nurse and Doctor and convinced them to give me a baby dose of drugs for the port placement. They also tracked down a scopolamine patch for me. I was awake for the whole procedure and it was no big deal. And NO nausea! Whew! Hope I can get some better sleep tonight.

  • Live4them
    Live4them Member Posts: 65
    edited January 2016

    Elizabeth I had both ductal and lobular cancer in my left breast. I had a double masectomy in November . I thought I was the only rare one out there lol ... You'll do fine :) will keep,you in my prayers

  • BethL
    BethL Member Posts: 286
    edited January 2016

    Got sutures removed today. Was not fun, they have been in almost 5 weeks. Ps wanted to go slow because of my lack of skin. Chest is still very tight. He said first fill would be in 2 weeks. Worried now reconstruction may not go well. The nurse who removed the sutures Said she had never seen them so tight before and had difficulty getting them out. Thankfully incision is numb. I asked if that was a bad sign, and she assured me I'd have good results. Guess time will tell.

    Musogirl - so sorry you're dealing with a complication, just a bump in the road to full recovery. Feel better-star wars isn't going anywhere, maybe they'll want to see it twice.

  • MissV123
    MissV123 Member Posts: 79
    edited January 2016

    Oh Musogirl ! Im so sorry to read that you are having such a hard time of it...it's like a nightmare.....and Lovemyvizsl, , that's just terrible...Im praying for you to have relief....like NOW !!! Bethl, Im glad sutures are gone.....hoping you get some relief too.....I had my first appt with Oncologist( I still cant get the abbreviations right) and it went wonderful.....Radiation for 7 weeks..every day....than pills....for 5 years...still alot of blood work to do...but I am on cloud 9....Of course my sister arrived today with a Bullet Juicer, and all the books with all the info .....for when I start radiation....she is the best.....I had not slept in two night freaking about today...and it went so well....all Your Prayers helped and Jerseygirl2 ....I think the Warrior On Board is a fab idea....I cant thank you all enough for the info and support I have found on these boards.....and I check everyday to see how everyone is doing.....Everyone have a good night.....and may you rest ........rest.....rest......

  • Duzy
    Duzy Member Posts: 134
    edited January 2016

    NJJen I hope you are starting to feel better with the drain removed and taking antibiotics. That must be so difficult to go through.

    Musogirl so sorry about all of your problems. It makes it seem like it will never end but it will get better. Get lots of rest.

    LovemyVizsla sorry for the worries but glad everything turned out well. I am assuming the port was for chemo treatment? If so I hope that goes well for you. I had treatment before surgery so I am still gaining my strength back from that. And watchfully looking for my hair to grow back (Ha HA).

    BethL glad you got your sutures out today and I am sure everything will turn out great with your reconstruction.

    MisV123 So great to hear positive results from your doctor. I understand radiation is not suppose to be as difficult. I think they originally told me before my last surgery 5 weeks but I go for another consult the end of this month. You had quite a few lymph nodes removed. I had my auxiliary removal and the path report said 6 were removed and tested.

    Jerseygirl22 Great idea on the warrior board. I have not posted a lot on any of the boards but being in the same group as everyone having surgery it would be nice to see how everyone is doing as we each move on to other treatments.

    For anyone else who had surgery I hope you are feeling better and getting stronger every day. I feel like I go try to go back to work but I think it is too much of a hassle with the drains still in. I go for my follow up on Monday so I hope she removes them. One the output has gone down before 20 a day but the other is still around 50 a day.

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