Androgen Receptor Testing & Treatment

Options
1…567911

Comments

  • MusicLover
    MusicLover Member Posts: 4,225
    edited December 2015

    We all have been thinking of you and your family daily. I hope that you have a peaceful holiday.

    · Share on FacebookShare on Twitter
  • dlb823
    dlb823 Member Posts: 9,430
    edited December 2015

    Hope, I will pray that you find peace with your decision, but I am also strongly hoping there are some additional tx options out there that WILL work for you. I hope taking a break from meds will make the holiday season everything you want it to be with your family, as well as give you some renewed energy. Please take extra good care of yourself, and know that you are in my thoughts and prayers more often than you probably realize, and I'm sure that's true for all of those you've touched here on BCO. Deanna

    · Share on FacebookShare on Twitter
  • Hummingbird4
    Hummingbird4 Member Posts: 331
    edited December 2015

    Hope, I am so glad to hear from you but very sad to hear of all you are going through. Can certainly understand how you needed to take a break and just enjoy good times with your family. It's so nice to be "normal" even for just a few hours and not thinking about cancer. I think of you often, many of us here do. I always felt a connection to you with our similar profiles - ILC and treatments, and you have helped me so much. I pray that there is something that can help you. As you are making decisions, I hope that you have a nice holiday season with good times with your family and friends.

    · Share on FacebookShare on Twitter
  • 208sandy
    208sandy Member Posts: 2,610
    edited December 2015

    Hope - good to see you. I know you'll make the right decisions for you and your family and want you to know that as much as you say we've helped you, you've helped so many more of us especially when there is a change of tx - you've made it all seem so doable. Sending love and hugs your way and a wish for a peaceful holiday with your family.

    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited December 2015

    Me as well Hope, you have been a great help to me as well. I hope you are at peace with whatever decision you come to and we will continue to think positive thoughts for you. A blessed Christmas to you.

    · Share on FacebookShare on Twitter
  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited December 2015

    No apologies necessary, Hope. You need to do what helps you most in during this time, and if this discussion board is not what you need right now, we will understand. You have reached a place with a very difficult decision, and only you can know what is best for you. I'm so glad you have been having quality time with your family. (If you do decide to consider chemo, I will say that it did work well for my ILC.)

    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited December 2015

    That is good to know Shetland as I hear so many negative reports about chemo and ILC. I've already been told since Letrozole apparently failed me that the 2 other ai's will as well. Hate blazing through options already.....

    · Share on FacebookShare on Twitter
  • MusicLover
    MusicLover Member Posts: 4,225
    edited December 2015

    Hope, Thinking of you tonight and praying that you are with your loved ones.

    · Share on FacebookShare on Twitter
  • Bestbird
    Bestbird Member Posts: 2,818
    edited December 2015

    Joining many others in wishing you peace and comfort now and throughout the coming year...

    · Share on FacebookShare on Twitter
  • Woodylb
    Woodylb Member Posts: 1,454
    edited January 2016


    For those of you who were worried about Hope and respected her wish for privacy at this time , i have some news and update about her.

    Hope's marrow is completely infiltrated throught her body, her blood numbers are very low, she has an invasion in the epidural lumbar and the beginning of leptiomenengial mets with no neurological symptoms yet thank God.

    She will be seeing her doctor today to decide which option she has. Due to her body's inability to withstand harsh treatments , options are not many and have to be chosen carefully.

    She may go on halavin to try and get back some of her bone marrow. She is doing her best to spend some time with her family and is unable to post at this time. Join me, in prayers and good wishes for her and her lovely family as she was always the first to help , inpire and encourage each and everyone of us. Lovely lady in and out .


    · Share on FacebookShare on Twitter
  • MusicLover
    MusicLover Member Posts: 4,225
    edited January 2016

    Woody, Thank you for updating us with this difficult news and I will absolutely keep Hope and her family in my prayers. She is absolutely a lovely lady.

    · Share on FacebookShare on Twitter
  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2016

    Thank you for the update, Woody. Couldn't agree more about how special Hope is. She is often in my thoughts and prayers, and will be even more so now. Deanna

    · Share on FacebookShare on Twitter
  • 208sandy
    208sandy Member Posts: 2,610
    edited January 2016

    Thank you Woody. Hope has been special to so many of us - being the pioneer for many treatments and taking the time to guide us through them - keeping her close. S.

    · Share on FacebookShare on Twitter
  • Bestbird
    Bestbird Member Posts: 2,818
    edited January 2016

    Woodylb, thank you for writing to let us know about Hope. Whatever Hope decides upon as a next step, I hope she knows how much she means to us and that we are sending hugs her way. She's very special to so many here.

    · Share on FacebookShare on Twitter
  • annieoakley
    annieoakley Member Posts: 870
    edited January 2016

    Woody, thank you for the update about Hope, I think of her daily and will continue to pray for her as she decides how to proceed with treatment. She has been such an inspiration to all of us here and indeed a very special lady. Sending her love and hugs.

    · Share on FacebookShare on Twitter
  • Hummingbird4
    Hummingbird4 Member Posts: 331
    edited January 2016

    Woody, thank you for letting us know how Hope is doing. So many ladies here have been supported and encouraged by Hope. I think of her every day. I pray that as she proceeds with whatever treatment she decides is best for her, that she will be able to continue to spend time with her family. Sending good wishes and hugs.

    · Share on FacebookShare on Twitter
  • oriole
    oriole Member Posts: 72
    edited January 2016

    Thank you for letting us know about Hope.

    Hope, you are just a very special person and you have given so much to so many of us with your posts on so many of the threads. You have guided me through this past year with all your advice and support on the AA and Ibrance threads. You have shown me that we can and must try to live each day to its fullest. My thoughts and prayers are with you and your family. I hope that you are spending time with your family and loved ones (including your wonderful labs). Sending much love to you and your family.

    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited January 2016

    Thank you Woody, I too had been wondering about Hope. This makes me so very sad. Hope's are some of the first posts I started reading on here when I was new. She is truly a gracious and lovely woman. Praying Hope that the next step is gentle on you and you can spend more quality time with your family.

    · Share on FacebookShare on Twitter
  • LindaE54
    LindaE54 Member Posts: 2,054
    edited January 2016

    Thank you Woody. Yep Hope is certainly quite a lady! I join you and others in prayers for love, peace and comfort. Whatever she decides will be right for her. Love you Hope!

    · Share on FacebookShare on Twitter
  • Woodylb
    Woodylb Member Posts: 1,454
    edited January 2016

    Hello ladies,

    Updates on Hope. She started Halavin last week and tomorrow if all is well she gets her second dose.wednesday she will get prepped for radiation. Her pain is increasing and she is tired. She wants you to know taht you are very appreciated. She is mainly fighting for her 11 years old. God be with her and each and everyone of you. Bless you all

    · Share on FacebookShare on Twitter
  • LindaE54
    LindaE54 Member Posts: 2,054
    edited January 2016

    Woody, thanks so much for the update. Wishing Hope the very, very best.

    · Share on FacebookShare on Twitter
  • Woodylb
    Woodylb Member Posts: 1,454
    edited January 2016

    Thank you Linda on behalf of Hope.

    · Share on FacebookShare on Twitter
  • Hummingbird4
    Hummingbird4 Member Posts: 331
    edited January 2016

    Thanks Woody.

    Hope, I'm thinking of you and praying for you. Wishing you the best with this new treatment.

    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited January 2016

    Me too Hope, praying that this will help alleviate pain and help the marrow get back where it belongs. I wish you pain free days and time with your lovely family. You are in all of our hearts tonight!

    · Share on FacebookShare on Twitter
  • steelrose
    steelrose Member Posts: 3,798
    edited January 2016

    Thank you, Woody.

    Thinking of Hope, and sending love…

    Rose.

    · Share on FacebookShare on Twitter
  • oriole
    oriole Member Posts: 72
    edited January 2016

    Hope,

    Thinking of you and your wonderful family and wishing you comfort and peace...You are in my daily thoughts and prayers...

    Thank you for the update, Woody, and please let Hope know that we are all sending her our love...

    · Share on FacebookShare on Twitter
  • annieoakley
    annieoakley Member Posts: 870
    edited January 2016

    Woody, thanks for the update. Hope there is not a day that goes by where I don't think about you. Sending you healing energy and prayers for comfort and pain free days ahead.

    · Share on FacebookShare on Twitter
  • jobur
    jobur Member Posts: 726
    edited January 2016

    Thanks for the update Woody. I'm sure you will let Hope know we are all thinking of her and hoping Halavin will be good to her and allow her less pain and more time with her family.

    · Share on FacebookShare on Twitter
  • starbrightlyshines
    starbrightlyshines Member Posts: 344
    edited January 2016

    Thank you for the updates Woody. I have been thinking of Hope often and wondering how she is doing. Please let her know we are thinking of her and sending our love and prayers her way.

    · Share on FacebookShare on Twitter
  • Woodylb
    Woodylb Member Posts: 1,454
    edited January 2016


    I will, i am updating her daily. Her Halaven got postponed today due to pain which was increasing for the past few days. She is getting steroid instead to control it. She told me as soon as she feels better, she will take time to read all your messages. She is going through rough times and is very appreciative for your heartfelt concern.

    · Share on FacebookShare on Twitter

Categories