Dark purple burns

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crs003
crs003 Member Posts: 73

Hello,

I have completed 22 of 30 whole breast radiation treatments and my severe symptoms began around week three or four. The worst area is near my underarm at my sentinal node biopsy incision. There is a deep purple burn and bruise under the skin. My breast itself is holding up well, with purplish spots everywhere, but not as severe as underarm. Part of the incision has a small round spot where the skin has come off by a few layers, so I am concerned about infection. I am using Miadern-L with lidocain and that is helping with the pain and tightness. I am also having to take a Norco at night to sleep after the advil was not managing the pain. My question is has anyone experienced burns in the underarm area, I don't understand why this area would get burned more than my breast since that is where the radiation is supposed to be going. I have three more whole breast treatments left, then 5 boosts, which will give my underarm a break, but I don't know if I am going to make it. Should I take a break? Should I stop at 22 and just go to the boosts? Thank you.

Comments

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited January 2016

    Hi there. The area under your arm looks bad because it rubs more than your breast. Did your RO explain what areas you have had radiated? Getting radiation to the axilla is pretty common. Turning purple/black is usually the last stage befor it starts to peel a bit. Hang in there, you are almost done.

  • KBeee
    KBeee Member Posts: 5,109
    edited January 2016

    The axilla dose tend to get the worst. Mine looked as you described before it started sloughing as well. Make sure you ask for Silvadene which will help prevent infection. Sorry you're getting a bad reaction; I know how painful it is.

  • gargengirl09
    gargengirl09 Member Posts: 46
    edited January 2016

    Yes! What I am experiencing the exact same thing! I have completed 23 of 32 sessions. The sentinel node scar is far worse than the tumor scar. The area under my breast is also pretty discolored and is starting to peel like a bad sunburn. The Radiation Oncologist said they could give me a prescription lotion that burn patients get.

    Hope you find some relief!

  • GG27
    GG27 Member Posts: 2,128
    edited January 2016

    Cool saline clothes laid over the worst areas helped with the pain for me. The RN from the Lodge gave me this advice, the CC gives them the supplies to hand out to patients. If it starts to get bad then they will give you silvadene. Within a few weeks my skin was starting to look normal again, and it was bad. The RO told me it wasn't the worst she'd ever seen but almost. GG

  • rainnyc
    rainnyc Member Posts: 1,289
    edited January 2016

    Yes, I also had (and am recovering from) this experience. The area under my arms peeled badly starting the fourth week, as did my chest wall, as well as a couple of other areas, like the tops of my shoulders. Like others, I found that the pain couldn't be managed with OTC meds alone and switched to tylenol with codeine during the day and norco (leftover from surgery) at night. The SEs will keep getting worse for 1-2 weeks after the rads end. The worst of the pain lasted about a week, and then I was able to gradually do away with the codeine, switching to ibuprofen and tylenol.

    My RO's office prescribed silvadene cream for the peeling/open areas, and had me use aquaphor everywhere else. While the rads were still going on and for about a week afterwards, I came in daily so they could see and dress the problem area. They gave me dressings so I could continue at home. The areas that peeled first also were the first to heal, so while my chest wall is still raw (a little over two weeks after radiation ended), my underarm areas are mostly covered with new skin.

    The things that helped most were 1. not being a hero about the pain. I really did need the codeine and had no trouble giving it up when the pain eased. 2. being given a time frame for healing 3. the silvadene.

    I also bought some very cheap tank tops and plan on throwing them out when this is over. It's winter here so going bare isn't an option, but I didn't want to get cream or liquid from the wounds on my regular clothes. Also, I'm still wearing a wig in the wake of chemo. I apply the creams and stuff at home when I'm not wearing the wig, but when they dress it in the hospital, I bring a hat so I can stuff the wig into the hat and the hair doesn't get cream on it.

    The nurses were really helpful, but it was interesting that each one has a slightly different system for dressing/managing the wounds. It took a bit of experimentation to find the methods and supplies that worked for me.

    I also found that chocolate therapy was a help and recommend it highly. :)

    Good luck--I'm sorry you have to go through this.

  • crs003
    crs003 Member Posts: 73
    edited January 2016

    Thank you guys for your help and advice, I asked about the silvadene, but I am allergic to sulfa and they were hesitant to let me use it. Fortunately, you are right, and it did improve once it started peeling. And I can see nice skin underneath, so I can see the end of the tunnel. The peeling skin reminded me a beef jerky, but they told me, oh it looks good. If thats good I don't want to know what bad looks like. One good thing about it was it seemed to make my sentinel node biopsy scare almost invisible. I'm still having to take norco in the evening from nerve pain from surgery that radiation angered. Its like a boob freeze pain. I am hoping that the nerves will calm down after a few weeks. I was told to rub it to retrain the nerves. Rainnyc I agree with chocolate therapy. Tomorrow is my last treatment and I am going to get a ice mocha to celebrate. Thank you again.

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