Starting Chemo March 2015
Comments
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trvler - post-op is going well, had drains for longer than usual - finally lost the last one just before Christmas Day. The new PS does not remove multiple drains at once, believes in a gradual removal - which makes sense and is cautious. My skin is holding up well, enough that I actually got a small fill (no saline was put in the expander at the time of surgery) yesterday. We will be low and slow, checking skin integrity along the way, but things are looking very good - yay! Maybe 2016 will be the end of my surgical saga - fingers crossed! I am not getting enough sleep due to the kitten, who while very snuggly, is a very early riser. Today is the first day in a while that I am having a quiet, well rested day because the kitten, who is finally named Flynn, slept in after DH went to work.
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Glad to hear it's going well, K.
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Great news! Heard this morning that MIL biopsy was benign fibeoadenoma. Yay!!!! So relieved...
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Oh, wonderful!
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Bekah- such wonderful news!
Specialk- thanks for checking in. So glad to hear the cautiously optimistic thoughts for you going toward. Stay on the mend
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Breathing a collective sigh of relief here, Bekah. Great news!!!!!
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Thanks for letting us know Bekah. Whew.....
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I've been complaining here before how my insurance is not playing nice and keeps denying me an MRI. Back in January my radiologist wanted me to get an MRI in 6 months and here we are, almost a year later. Three specialists, four requests and they kept denying. It's been going on for months and caused me a lot of anguish. My blood pressure has always been low and recently it has been spiking a lot.
On Christmas Eve I got a letter from Aetna - they finally allow an MRI! How about this as a nice Christmas gift?
There was just one more snag in my joy - my deductible is $2,600 (going up again), it's the end of the year and everybody is trying to get all their tests done. I had to beg and plead with three different people and finally they got me in! I'm having an MRI on New Year's Eve. Last year, also on New Year's Eve, I had my biopsy which resulted in my cancer diagnosis. So I'll be very nervous over New Year this time too.
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Ksusan, I miss my grandma too. She was always nice to me, even though she was cheap. But we was a depression kid. I never remember her ever, ever being mean to me. She retired to Florida with my grandpa, and when she got old (like 90) she said she wanted to come home to Illinois, so I flew to Florida and drove her to Illinois. We had the best time, talking the entire time, and she told me all these stories about growing up and what she did when she was young. I will never forget that trip. My other fondest memory was of being puky and sick as a kid and she bathed me and wiped me down with a cold rag. I loved her. She died a few years ago at 92 and I keep her funeral card on my desk. The grandkids think it is a picture of their mommy
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BB- glad you're going to get it done under the wire! Finally! Feeling good the outcome will be positive this time. Wishing you peaceful waiting. Hugs.
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BB that's great news. But how stressful to have to fight for it. Waiting is the worst, but at least your tests will be done this year. Then nothing but good news in 2016
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Got my first haircut today. It was a huge personal moment. It's still pretty short, but it's cleaned up now. The stylist said I should have enough hair to zigzag my part in about 6 weeks. I also got a Fitbit and switched to a new gym with a trainer today. Once I'm cleared by the PS, my goal is to regain the strength and flexibility that I've lost in my upper body.
I'm still anxious and scared about the future, but I feel like I'm trying hard to move forward with life in 2016.
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lee, Yay for the haircut!!!!
BB, Glad you got it in. Hoping for all good news to ring in the new year.
Bekah, great news!!!!!!!
Katy, Senfing you a (((((HUG))))). Because I care.
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BB, good work!
Lee, congrats!
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Great news all around!! Big hug to Katy!! 💜
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Out camping at the beach. Bowie is so hard to look after!
Lee, congrats on the hair cut. I'm still not ready but I can understand the feelings you had.
YAY for a fit bit. I bought one too. I hope it helps.
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Bekah, that's great!
BB: I am glad you got your test approved and got in before the first of the year. Hopefully our group's run of good outcomes will be continued.
Saw my RO yesterday for a follow up. Skin is healing nicely.
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Good morning my sisters. I'm having a really rough morning so far and it's only 7:40. My spine hurts really bad today, my tummy is not happy, and I'm exhausted. I usually work M, W, F but this week I did M, T, W because I have Herceptin tomorrow and Fri is a holiday. 3 days in a row just wipes me out
I don't need any replies. I just know that you all understand and I don't want to keep complaining to my DH. I just needed to vent and have a little pity party. Hopefully my pain med will kick in and my tummy will settle. I had them reschedule my routine patients for the morning so I can try to recoup some energy.
Have I mentioned that I hate Tamoxifen LoL?
Bekah
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Bekah...this is the place to come vent. Sorry you're feeling so bad today. Hope your pain meds kick in soon and you feel better. Sucks that you have to do 3 days in a row this week, but hopefully after today you'll have a few days to rest.
I am hating menopause and these anti-hormonals too!
Hi Katy...thinking of you. Hope the weather is clearing up where you are, that you are feeling a bit better, and you and Jack can get out for a walk.
PB
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We could take a brief moment to hate on tamoxifen. Most of my joint pain is alleviated by the turmeric and magnesium but I still feel creaky after sitting for awhile. My biggest aggravation right now is the night time hot flashes which, now that the temps outside have dropped, include hot flash followed by sweat followed by freezing cold followed by bundling up followed by hot flash, repeat, repeat. I have a whole system worked out now for keeping track of socks and hoody for multiple costume changes every night. I tell myself each morning that this is helping to keep me healthy despite how it feels. I also tell myself my dating days are likely over. I can't imagine anyone new putting up with those nighttime antics. Even my cat is exasperated by it.
Sharon, there's nothing better than a sleepy camping dog. I prefer to go camping alone with my border collie over human companions! I have to get a sitter for my shaggy dog though because she hates camping. She tries to be a good sport for an hour or two then she just wants to wait it out in the car. She's such a princess.
Did one of the Midwesterners say to PM if we want to be included in the April Chicago caper? If so can someone remind me who so I can throw my name in the hat?
Anybody have exciting NYE plans?
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Good morning, all.
I'm glad to hear of the good news people are receiving. Beauty dog shot, Sharon.
Katy, I hope that the weather has cleared. Up here, the grey foggy weather has finally lifted and we have some SUN this morning! Hugs to all.
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Linda: that was my exact night time regimen for awhile. It's mostly tamed down. I'm getting some hot flashing during the day time now. I dress in layers - something's always flinging on or off.
Bekah: vent away. We get it.
Lee: I feel the same way. Excited to move forward. Whatever is on offer has to be better that 2015 (although I did say that about 2014 & here we are). I want the uncertainty and treatments & recon & all to be over. Normalcy to return - new normalcy, old normalcy, just real life instead of this cancer life.
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Let's do some refiguring for Arrowhead. I'm really open in terms of when. Maybe June? Anyone with strong preferences? I want this to happen
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Sloth: My nighttime ritual is similar but includes me going into the guest room to sleep between 12-2 when DH starts snoring. LOL at your exasperated cat.
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My hot flashes have tamed down now too, used to get them a few times a night. Now oddly enough I wake up with one at 4a every morning and after cant get back to sleep. At that point I'm still tired but can't go back to sleep. I do take 3mg timed release melatonin to sleep. Wondering if it's wearing off at 4a. Are you all able to go back to sleep? Any tips?
Avmom...beautiful pics
PB
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Eileen I am up for whenever at Lake Arrowhead. But you know hubby and I go up there anyways a bunch to hike. If we get the rain and snow we are supposed to get, it may be June before the weather is nice enough anyways
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Sharon- yes- what a handful he is! Literally! Loving the warmth looks like. So adorbs.
Avmom- lovely pics! Glad the sun is coming out, literally and maybe figuratively?
Bekah- hugs. I do get it. Hate the stuff. Like Sloth says there was a constant vibrant conversation in my head about being miserable to save my miserable life. Then the liver strepped in. I should have new labs and bone scan results next Monday. Maybe a new plan.
Sloth- so funny about the cat. I have similar SOPs in place for flinging off bedcovers, getting them back when the sweat turns icy. What's funny (in a sick sort of way) is this all must happen on the right side of the bed, which is quite a bit more inconvenient, because Jack sleeps on the left and kind of complains in his sleep when I fuss in that direction. This also includes multiple trips to the bathroom, exiting bed right.
I'm still up for any reunions (yes to Arrowhead still!) and am pretty flexible. I am going to a (free) cancer retreat (not really my kind of thing, but it's free and I feel I MUST DEVELOP better skills for dealing with this) at Harmony Hill near Seattle end of April. I will be coming through Portland, Sloth, maybe the zoo or the Japanese garden finally? I cannot do the Midwest, sadly, it is just too far. And there is talk of an open house here in late July. All are welcome. I have room for several overnight guests but the main issue will be only one bathroom. But there are reasonable alternatives for sleeping nearby, and partying here. There would be many opportunities for beachcombing, cliff walking, lighthouses, whales and seals, good food, good talks and silly games possibly involving drinking and/or twerking.
I am so looking forward to being able to see you all in person.
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Bekah, keep venting.
Sloth, what you need is a woman who's also going through menopause.
Katy, I thought the Harmony Hill retreats looked interesting. Is the one you're going to still open? I was a little unclear on how to register when I looked at their website, but that was earlier this fall and the problem could be my brain, not the site!
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And people with new Fitbits, feel free to join us here if you haven't already. Our motto is "everything counts!"
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I think it is odd that the hot flashes are almost on schedule. I always get one right when I first get in bed. I am getting maybe about 2 or 3 during the night and one or two a day. They really are pretty mild. I think the cold bothers me more. Just getting chills even though I am bundled up. I have this robe that Oprah recommended years ago and it is a synthetic fiber that warms you up very quickly but I can have that thing on me and still be freezing.
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