Diagnosed with Atypical Hyperplasia

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Gardengirl72
Gardengirl72 Member Posts: 14
edited March 2016 in High Risk for Breast Cancer

Hi Everyone,


New here and although I never said or thought I'd never be in this situation, I'm a bit shocked and of course concerned. Had a Core Needle Biopsy on Dec. 18th after a Mammagram and Ultrasound detected microcalcifications. Just got off the phone with the nurse at the Breast Clinic and it's confirmed as an Atypia. Scheduled to see the breast surgeon this Thursday to schedule removal. I'm only 43 with extremely dense breasts but no history of BC in immidate family. Will find out if Dr wants me to go on Tamoxifen. Nurse did mention that there is a possibility that there could be BCIS hiding in the Atypia, but slight (still makes me nervous).

Any advice on ways to stay positive and stress free? This is all still sinking in for me.

Thanks.

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  • alicki
    alicki Member Posts: 661
    edited December 2015

    Hello,


    There see quite a few people in this site with atypia so i hope They Will be à Long ro help.

    Best

    Alicki

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2015

    gardengirl---about 15-30% of cases are upgraded upon excision, but that means you have a 70-85% chance of nothing more being found. Hang onto those #s. they're huge!

    In the event that they find DCIS, it is very treatable

    anne.

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  • 614
    614 Member Posts: 851
    edited December 2015

    Atypias are benign but they increase your chances for breast cancer.  No one knows whether an atypia will develop into bc.  Speak to your doctor regarding whether they want to remove the atypia and whether they want to put you on medication.  Every doctor is different and may have a different recommendation.  I would go for a second opinion just to be sure of the best tx plan. 

    I was dx with atypical lobular hyperplasia last month.  I have also been diagnosed with many other atypias prior to my bc dx.  I understand your concern and worry.  Luckily for me, I am already taking arimidex/anastrazole so I do not need to do anything about my ALH.  I will continue my 6 month surveillance which gives me peace of mind. 

    Good luck and hopefully, there will not be any DCIS or LCIS along with the Aytpia.  I hope that your biopsy will be easy for you. 

     

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2015

    Excisional biopsy of the area with diagnosed atypia to confirm that there is no DCIS or invasive cancer lurking in the area, and then, if nothing worse is found, stepped up monitoring and perhaps Tamoxifen to reduce risk is standard of care. That appears to be what has been discussed with her.

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  • Ddw79
    Ddw79 Member Posts: 533
    edited December 2015

    I

    Am in the same boat Gardengirl. Very shocking and scary. I agree. I just want to say for possible immediate reassurance that two of my docs including surgeon gave the statistic of 15-20% upgrade possibility upon excisional biopsy. That is a better number to think about. Mine was not upgraded... Yet. I hope yours will not be either

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  • lmnSeattle
    lmnSeattle Member Posts: 13
    edited February 2016

    I'm interested in what happened after you were diagnosed with the atypical cells. My first biopsy identified ADH and because I have multiple clusters of calcifications the surgeon now wants two more core biopsies before attempting excisional biopsy. Is anyone else in this situation?

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  • cookiegal
    cookiegal Member Posts: 3,296
    edited March 2016

    I'm in Seattle, my friend is in that situation. (I had stage 2 BC). She is going to have a second biopsy before having a excision for ADH.

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  • lmnSeattle
    lmnSeattle Member Posts: 13
    edited March 2016

    Thanks Cookie :). When did you get treated for stage 2 BC? That's my current diagnosis and I have a bunch of doc appointments note, including surgery, ahead of me.

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