Tamoxifen-scared to take pills!

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Yeah, I'm scared, big baby, I know. I only have to take 20 days for MRI, but after reading everything.... I'm afraid I'll get a stroke, start having horrific hot flashes, awful joint pain, etc.... I'm even thinking of just taking a half a pill a day (of the whole 20 mg) to start with....???

I've just started to feel good with my hormones after raging perimenopause... and now I'm going to screw it all up! I'm even afraid, that the few weeks of it will stay in my body and cause uterine cancer. Help!

Comments

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited December 2015

    I'm not on Tamoxifen (am on Aromasin), but why not give it a try? Many women have no side effects from Tamoxifen. Why do you only have to take it for 20 days? If it's only 20 days, what's the big deal? I'll be on my hormone therapy for ten years. By the way, some women do ramp up to their hormone therapy by taking partial pills, so that is an option.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2015

    Tamoxifen doesn't shut down your estrogen production, it just keeps it from binding to receptors in your breast. They wouldn't have given it to you if you were a clotting risk and that side effect is very rare. It is aromatase inhibitors that tend to cause joint pain more, not so much tamoxifen

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited December 2015

    I have had no SEs from Tamoxifen. My MO says that only a handful of women in her practice have serious side effects from Tamoxifen. Give it a try, you will most likely tolerate it very well

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited December 2015

    I don't have any side effects either from Tamoxifen other than some warm flashes, but they aren't bad. I have been on it for almost a year now.

    Nancy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2015

    Echoing what the above ladies say. I'd be more afraid of a misdiagnosis of some aspect of breast cancer because you chose not to take this short-term rx of tamoxifen before I'd be worried about all the possible (many rare) side effects listed by the drug companies because they are fearful of possible litigation if they don't tell you about every hairy-scary detail.

    Tamoxifen is one of our drugs that's been time tested--been out there for years--so have some confidence that because it's been used for so long with little side effects overall to the typical healthy user (that's you), you'll 1) be in that vast body of users and 2) get the correct dx you need from taking it so you can move forward with tx and put this all behind you.


    Claire

  • breastquest
    breastquest Member Posts: 52
    edited December 2015

    Thx ladies.... you all made me feel much better! This forum, is super!! I'm still scared, but will give it a good try. Will let everyone know what it did or didn't do....

    Thx again.

  • Gully
    Gully Member Posts: 268
    edited December 2015

    Hello quest,

    Everyone is different. There are many people who do very well on Tamoxifen, in fact I am one who actually feels better on it, I used to get wicked hormone swings that made me feel terrible. Initially I had a lot of hot flashes but gabapentin brought me through them. I have been on Tamoxifen for 2.5 years now and am officially in menopause. My docs asked if I wanted to switch to an AI and I declined to switch because I am afraid the new med would have side affects . Good luck in your decision .

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