January 2016 Chemo!

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  • robyn31024
    robyn31024 Member Posts: 51
    edited December 2015

    Hi thundergal. Welcome to group. I see I will be having same chemo routine as you. I am also just going to use my veins. So hopefully will work out ok for us both. I asked my onc if we can just see how it goes without neulasta. So will just monitor labs. I'm sure I will have to get at some point :( Sorry you had a problem with tissue expander and had to remove. Have a merry christmas!!!

  • Cancerpickedthewrongone
    Cancerpickedthewrongone Member Posts: 33
    edited December 2015

    Miss Bee! I am so sorry you have to do chemo again! I can barely wrap my head around starting chemo!!! 

    This is my first post, but I have been here since I found the dreaded lump back on Labor Day, I don't know what I would have done without this site to give me honest and realistic information. I too will unfortunately be joining this group. I had a BMX on 12/01 & will begin chemo on 1/14/2016 (what a way to start the year) :-( 

    Again thank you all for the tips tricks etc those of us coming behind you would be lost without them.

    Hugs Allie 

  • Judy6
    Judy6 Member Posts: 54
    edited December 2015

    Hello everyone,

    I am starting chemo on Wednesday December 30th. I am scared. I told myself not to think about it until after Christmas. It's Christmas night and everyone is in bed and the reality is sinking in. I know this will pass and I will get through this but it is so overwhelming. Anyway, thanks for letting me vent. And thanks for the support. Now that Christmas is over I will be checking in more frequently. Love and pink hugs to all of you:)

    Judy💞

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited December 2015

    Who has had their port put in so far? How did it go?

    Hope everyone had a nice relaxing holiday. I got some new photography gear, so I'm hoping to get out tomorrow and shoot.

  • Smurfette26
    Smurfette26 Member Posts: 730
    edited December 2015

    Welcome and good luck with it Judy6. Chemo is far from pleasant but it's doable. Wishing you minimal side effects. Hugs, Donna.

    Enjoy that new gear LoveMyVizsla. Wonderful gift.

  • teacher30plus
    teacher30plus Member Posts: 13
    edited December 2015

    I am joining this group, too. I will start on Jan. 11, with no port. Hoping my veins stay healthy...Thanking you all for the advice and support. Not a group we wanted to be a part of, but at least we can share well. (With four young grand children, sharing is not always easy!) Now that Christmas is over, and the busyness that goes with it, I am back to concentrating on this unwelcome subject! Thank you, Miss Bee for starting this thread. Just wondering and learning.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited December 2015

    Hi all. I'm Jill. Starting fec-d (fluorouracil,epirubisin, cyclophosphamide x3, docetaxil x3) on January 6. I too am going with veins. I don't want a port because I don't want another surgery, and I don't want to picc line because they are a pain in the butt!! In one month, today, out from lumpectomy and sentinel node biopsy.

    I definitely plan to keep my nails painted dark! (I usually do anyways)

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited December 2015

    A friend had breast cancer years ago, and is now doing chemo for lung cancer. She recommended a book called "Eating Well Through Cancer" by Holly Clegg and Gerald Miletello, MD. It has recipes for each stage/symptom during chemo. This page should help all of us. If it isn't cool to post a book page, feel free to delete, Mods.

    image

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited December 2015

    I am actually very very worried about what I'm going to eat. I'm gluten intolerant and vegan, and I also work hard to eat healthy and maintain a healthy weight. I really really like the way I eat, I am so worried that I am going to have food aversions and not be able to eat what I normally eat, and not really know what to eat instead I don't want to eat so little that I lose weight and I'm not healthy, but I don't so don't want to start eating junk all the time because that's all that I can tolerate, and gain weight and be unhealthy

  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    I had no food aversions. I finished every chemo treatment (and now every visit to my MO) with Thai food.

  • Smurfette26
    Smurfette26 Member Posts: 730
    edited December 2015

    Good to "meet" you LovesToFly. My nails are doing great. Very strong.

    Ask your infusion centre about icing your fingers (and toes) during the Docetaxol infusion to help prevent neuropathy. Wishing you well.

    Thanks for that list LoveMyVizsla. Funnily enough many of them are foods that I felt I could "get down". Found I am eating foods I never normally eat like ice cream. I have never liked ice cream my whole life. I did ask my Oncologist whether or not I should avoid certain foods. He said, "While you are having chemo, eat whatever you can get down. Eat anything, it's better than nothing". Glad he said that as I have had huge issues with taste and nutrition from my first infusion but certainly understand your concerns LovesToFly as we all want to maintain a healthy diet. Thai, chilli, spice seem to work quite well for me too.

  • Char1110
    Char1110 Member Posts: 61
    edited December 2015

    Hi there,

    I am very new to this, but I am scheduled to start chemo on 1/18/16. TCH.

  • Jinx27
    Jinx27 Member Posts: 238
    edited December 2015

    I cut my hair low today, not bald yet but I have a little afro now . I chose to not do cold caps. I'm soo scared and anxious for next week ( I start on 1/4/2015 @ 1pm), I wish chemo was over already 😣 getting butterflies in my tummy....


  • Char1110
    Char1110 Member Posts: 61
    edited December 2015

    I was thinking of cutting my hair too jinx27. Maybe a short bob so I don't have so much to wash or get tangled (thinking of trying the cold caps. I will start two weeks after you so I am starting to get nervous too. I heard that chemo is tough but definitely doable. So sorry you are on this road. You are not alone

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited December 2015

    I start on the sixth, I am also quite nervous. I cut my hair from shoulderlength to chin to ear. I don't think I'm going to cut it again, I'm just going to buzz it. I was planning to do it the night before chemo started, but it turns out I have to do a CAT scan that night! I guess I'm going to do it shortly after chemo, I just want to do it before it starts falling out.

  • fightergirl711
    fightergirl711 Member Posts: 300
    edited December 2015

    I have my first oncology appt today, and my second opinion on 1/4. So I don't know the specific schedule, but highly likely I'll start this month. Reality of the situation set in early this morning, and got a bit anxious but I am ready to get this all going. Also going to cut my hair short in the next few weeks before jumping the the shaved head right away. Actually looking forward to it a bit, now I have to try out something new!

  • JEBA
    JEBA Member Posts: 15
    edited December 2015

    HI, Miss Bee,

    Appreciate like everyone else you starting this thread. It is so sad you have to go thru it once again. I may start chemo in January as soon as MRI results are in. Expected date is Jan 18th. Have to say I am bit overwhelmed by the diagnosis and the fact that will start chemo right away.

  • stotamom
    stotamom Member Posts: 41
    edited December 2015

    Hi ladies, I was suppose to start in January but anxiety got the better of me and I started Dec 15th. I had me second infusion of AC yesterday. I buzzed and shaved my hair before my first in fusion. Right now it looks like a very short buzz. My infusion nurse told me it would start to fall out after yesterdays infusion. My 3rd infusion is scheduled for the 12th of January. I'm thankful to have my port as i have terrible veins. Was not fond of it the first week but as with all thing it got better.

    Thinking of you all.

  • robyn31024
    robyn31024 Member Posts: 51
    edited December 2015

    So smurfette just wondering how exactly you did the ice to fingers and toes? Also wondering what things I should buy and have on hand before first treatment? I have a ton zofran, phenergan and zantac my onc called in for me to have on hand. I also have wig, scarfs and hats. Just trying to get ready. thanks!

  • Smurfette26
    Smurfette26 Member Posts: 730
    edited December 2015

    robyn31024 My treatment centre here in Australia provides them as standard during Taxotere infusions to help prevent neuropathy. On my first infusion they gave me a pair of cotton gloves to wear under the frozen mitts. (Asked me to bring them along each time to re-use but doesn't really matter if I don't. They would give me new ones) I also take some cotton socks and the nurses make up ice packs from ice cubes to drape over my toes. Because I have sweaty little hands I normally change my mittens mid infusion as I find they don't stay cold enough. I have had no issues.

    My breast nurse also advised me to paint my nails a very dark colour for the Taxotere infusion to help protect the nail bed. I have no idea on the science behind it but it's working for me. No cracked or lifting nails, no ridges, no discolouration. My nails are super strong and I've had 3 treatments.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited December 2015

    I also got Biotene mouthwash and toothpaste as recommended. Mild sensitive skin facial cleanser and moisturizer because I normally use antiaging ones with retinolthat I heard might be too harsh on my skin during chemo. Eyebrow pencil and stencils. Lots of dark nail polish!

    I was supposed to have my head shaved January 5, the night before my first infusion, but it turns out I need a CAT scan that night so I won't make it. My hairdresser was going to do it for free, because I don't have clippers, so I'm going to have to reschedule. I might just do it right after New Year's, days (weeks?) earlier that I need to, but I just want it gone already. I'm so upset to be losing my hair, I just want to be done with it and move on :(

  • Judy6
    Judy6 Member Posts: 54
    edited December 2015

    Hello everyone, I had my first infusion today. I was so nervous. I have to say that it was a non-event. The only thing that was a bit hard was the needle in the port. That hurt. I wasn't looking, but hubby said it was a pretty big needle. The chemo nurse is asking onc to write a script for emla cream.

    The rest of the day was weird. Not bad but weird. My voice started to feel raspy, I took 2 tums and felt much better. I also had a ringing in the ears, it went away. Weird. Later in the night my tummy was bothering me and I was tired. I took zofran and laid down. I never fell asleep but the zofran was awesome! I feel good now. No problems at all.

    I wish you all a good first day!!! Pink hugs to you all! We got this!!

  • zinny
    zinny Member Posts: 281
    edited December 2015

    Hello fellow warriors!

    Miss Bee, thanks for starting this page - I have also been watching for a Jan thread and missed it!

    Starting Jan 4 with dense dose AC every two weeks x4 followed by Taxol every two weeks x4.

    Planning to cold cap - nervous about that.

    Had my port put in on the 17th - we did the awake version- not a big fan! Healed well, though, have been skiing every day since the 27th :) big hurrah prior to chemo.

    Thanks for all of the tips on ice and nails and tucks and stuff:)

    I found a great cookbook called "the cancer fighting kitchen" for those worried about food.

    http://www.rebeccakatz.com/the-cancer-fighting-kitchen/

  • Kdettwiller
    Kdettwiller Member Posts: 12
    edited December 2015

    I am seeing a surgeon today. Im sure treatment will be starting soon. Just diagnosed a couple of days ago. I'll let you know what he says.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited December 2015

    kdettwiller good luck! Also, don't be surprised if things don't move as quick as you're anticipating. I found my lump at the end of September, got diagnosed at the end of October, had surgery at the end of November, and I'm starting chemo at the beginning of January. There were a few little delays but for the most part this can be a pretty typical timeline I'm learning!

    At the beginning I expected to things to go much faster, it was a bit of a disappointment to realize that I would have to wait a bit between each step, but I tried to make the most of those times and enjoy my friends and family and having a normal life before becoming a cancer patient! Not that being a cancer patient can't include a normal life, but let's face it there's lots of times where we just don't feel so normal! In that time I took my daughter to a Taylor swift concert, went to zip lining, hosted a couple events, and spent as much time as I could having fun with all the people in my life. Tried to turn all that waiting from a curse into a blessing!

  • fightergirl711
    fightergirl711 Member Posts: 300
    edited December 2015

    Made first chemo appt for Thursday 1/7 yesterday, mediport and echocardiogram Tuesday. Still have the second opinion Monday, so depending on that the schedule might change. Even if the treatment recommended is the same, still considering changing docs, I'll have a lot more options at the larger center.

  • MB12
    MB12 Member Posts: 79
    edited December 2015

    Hello,

    Im starting chemo the end of January or beginning of February. I had a 2nd surgery on the 29th to remove the rest of my nodes, my right nipple and port placement. Thought the pain wouldn't be as bad as dm, but these nerves n ligaments are soooo sore.

    Can anybody tell me what this snap on my hip is for? I cannot remember what it's for and offices are closed. I'm going to cold cap and want to research treatments and need a 2nd MO in LA. I'm in StL, now. Also, fighting cancer w a healthy diet and supplements. Love sharing info on that. Is there a thread for that? We should creat one, if not.

    Have a Happy New Year's Eve🎉💗🎉


    image


  • KimmieM
    KimmieM Member Posts: 9
    edited January 2016

    Hello everyone. I will be joining this group. I am scheduled for 4 rounds of TC startinf 1/05/16. I am super nervous.

  • MissBee123
    MissBee123 Member Posts: 186
    edited January 2016

    Hi Allie, welcome to the group! How are you getting along healing? Have you started PT yet?

    Judy6: checking in to see how you are hanging in there after your first chemo! Hope all is well with you.

    teacher30plus, make sure you drink a TON of water before each chemo if you have to use your veins. When you wake up the day of treatment you should have 24oz straight off. Try and get in another 24 before treatment starts, and then another 24 before the day is out. I know it sounds like a crazy amount of water but your veins need it to stay full and not collapse, and your body will tolerate treatment better. A small tip, I pour the first 24 oz of water the night before and leave it on my nightstand. That way when I wake up it's there already so I don't forget, plus room temperature water is much easier to drink quickly. If you use a straw, it's even faster/easier!

    Welcome LovesToFly! I've never heard of your treatment before. Please keep us posted on how you are doing.

    Char110, welcome! We are all here to help each other so please always reach out if you need anything at all. I've been through your treatment already so I can offer advice if you have any questions.

    Welcome JEBA! We all feel overwhelmed at the beginning, it's very normal. With time, though, it will all sink in, you'll learn the lingo, and begin to have a "new" normal. We are here for you!

    MB12, I can't say for sure, but I think that the snap is actually for equipment attachment during surgery. I've seen them for different types of monitoring equipment and whatnot. It's probably safe to remove.

    kdettwiller, I second LovesToFly's statement that getting this whole process started can take some time. I was diagnosed in the beginning of May and did not begin chemotherapy until the end of July. There are a lot of tests (genetic, blood), scans (echocardiogram, MRI, ultrasound, PET, CAT, etc) and even further biopsies that may be needed before you begin. I had all of the above (except a CAT scan) before I started chemo, and some more than once!

    Welcome KimmieM! The first time is always scary, but a big part of that is just the unknown factor. Once you start, it truly will become more of a routine and the fear/anxiety begins to decrease.

    HAPPY NEW YEAR EVERYONE!!! We are kicking off the year kicking cancer's butt. Let's keep it that way. Here's to us!

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    imagethanks! It seems to be a very popular protocol in Canada, I believe Australia as well. Is a screenshot I took of it, maybe it explains it better than me. It is three cycles of one chemo combination, and then three cycles of a separate chemo. Six cycles in total, every three weeks apart

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