Just Diagnosed Lumpectomy scheduled December 30
Hello everyone,
I was diagnosed with DCIS right before thanksgiving and will be having a lumpectomy and Lymph nodes removed on December 30. Then I will start radiation in February. I am extremely scared. So I thought that talking to others that have gone through or going through any type of breast cancer would be helpful. My daughters and family knows about the diagnosis but I do not know how to tell my grandchildren. Their ages range from 3 years to 11 years old. I have always been the strong one in my family but right now I just feel so overwhelmed. Any thoughts would be greatly appreciated.
Mzb64
Comments
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You will come out the other end. Trust me/us. But the beginning is the worst, emotionally.
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Hi, please take a deep breath and try to relax. Rads are very easy for most. Those having problems will be the ones to post (for support/ideas) and that will be what you see and can frighten the strongest among us. You have told your daughters and other family members. Can you leave it up to them to tell the grands, if indeed they need to be told anything at this time?
You will get through this, believe me.
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((((Hugs))))
The beginning is really the hardest. There is so much waiting, which can be scary and it's very easy to feel overwhelmed!
One thing you need to know is that you CAN do this! One step at a time, you WILL get through this.
Cancer is scary and the treatments can be scary too, but you're not alone. Coming here, to these boards, is a great help! You will find a lot of support and friendship here. -
Hi mzb64, yes telling family and friends can be difficult because we don't want them to be upset or see our fear. Talk to your daughters about how much and exactly what to say to the grandkids, I'm sure they will want to be part of that. Let honesty and love guide you.
The beginning is the hardest part of this journey. Once you have the plan and can start healing it does get better. I spent a lot of time leading up to my surgery getting organized, grocery shopping, laundry, freezing meals, cleaning litter boxes, that occupied my mind and also in practical terms was a big plus for when I got home from surgery, it made the recovery so much easier!
The ladies here are wonderful support, we are with you every step
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Hi Mbz64:
Sorry about your diagnosis. You've received some good advice already.
Have you obtained copies of the radiologist's written reports from all imaging, and a copy of the pathology report from the biopsy for your records? It is important to review these documents, understand the features of the disease, and how your treatment plan is suited to treat it.
I have a question about the treatment plan. I am wondering if you were diagnosed with pure DCIS or if you had some invasive disease, such as a small area of micro-invasion?
If you had some invasive disease present (e.g., micro-invasion), then a sentinel node biopsy is definitely indicated.
In contrast, if you have pure DCIS (which is by definition "non-invasive"), then a sentinel node biopsy is not usually indicated for pure DCIS. Under current treatment guidelines from the National Comprehensive Cancer Network (NCCN), Version 1.2016, the recommendation for lumpectomy plus whole breast radiation therapy does not include sentinel node biopsy (emphasis added by me):
"Lumpectomy without lymph node surgery + whole breast radiation therapy (category 1)"
This is because the sentinel node biopsy procedure carries a risk of lymphedema.
There are some exceptions to this, for example:
"However, a small proportion of women with seemingly pure DCIS on initial biopsy will have invasive breast cancer at the time of the definitive surgical procedure and thus will ultimately require ALN staging [sentinel node biopsy]. In patients with seemingly pure DCIS to be treated . . . with excision in an anatomic location (eg, tail of the breast), which could compromise the performance of a future sentinel lymph node (SLN) procedure, an SLN procedure [sentinel node biopsy] may be considered."
Sometimes with very extensive, high grade (Grade 3) pure DCIS, patients and their doctors together decide to proceed with lumpectomy plus sentinel node biospy in the first instance.
However, with pure DCIS, and no specific contraindication based on the excision location or otherwise, it is possible that one has the option to defer sentinel node biopsy until the surgical pathology from the lumpectomy is reviewed. If the surgical pathology confirms pure DCIS, then no sentinel node biopsy would be required at all and one can avoid the possible side effects.
If you are not sure about your pathology, or not sure why sentinel node biopsy is being recommended to you, or would simply like to discuss the option of deferring and possibly avoiding it, please do not hesitate to follow up with your surgeon.
I have posted on this subject before, if anyone wants to read more:
https://community.breastcancer.org/forum/68/topics...
BarredOwl
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Mzb64-
We want to welcome you to our community here at BCO. We're so sorry you find yourself here, but we're glad you've joined us. We know it's a scary and confusing time, but as you can see from the responses you've gotten here, you are not alone! This community is a place of support and encouragement, and we are here for you every step of the way!
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