I'm here
I'm barely keeping it together. Actually, I'm not keeping it together. I lost it completely in front of my kids today, and I felt so bad. I was diagnosed 12/10. I'm now in the particularly gruesome hell that is attempting to decide between Lx and Mx. This decision has me sick. I'm not sleeping not eating, I go around and around and then just cry.
My path report says this: "Left breast mass," core biopsy: Invasive carcinoma with mixed cribriform and tubular features, preliminary modified Bloom-Richardson grade 1 (of 3), with associated calcifications. Ductal carcinoma in-situ, intermediate nuclear grade, with comedo-type necrosis.
I barely understand all of what that really means. I know it's ER+ 98%, and PR+ 96%. HER2 was equivocal so now we are pending a FISH test. The tumor is 6mm.
One of the things driving completely crazy is a cluster of suspicious appearing calcs that biopsied negative (fibrocystic), but nobody can promise they are all benign cuz they can't biopsy everything, it's a hard read.
Oh, and I'm severely needle phobic and already having panic attacks about the sentinel node injection thing. Serious panic like I'm not gonna make it.
So ladies, I look forward to meeting you all. Though I can say I'd rather have met you elsewhere.
Comments
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Hi Blue Heron! (We'd rather you were meeting us elsewhere too...)
There are so many things to consider when you're making your decision. "Here" is a post from one of our most articulate members (Beesie) about things you might want to consider when making such a decision. Many people have found it very helpful...and you might too!
Increasingly, your medical oncologist (MO) might want to talk to you about neo-adjuvent (before surgery) therapies. I have no idea if anything of the sort would be suggested for you. But making an appointment to interview one or more MOs before surgery might not be a bad idea, so if they want to suggest such a thing they can...
The thing to remember is that your docs wouldn't be offering you a choice of "this or that" if there were a truly "wrong" decision between the ones they have described to you. Each choice has different ramifications. And it's up to you to sort out what you will be able to best live with. We'll be glad to help you, but the decision really has to be yours.
But you say the decision (and need to make it) is making you sick. Not sleeping? not eating? So read Beesie's post (and re-read later). But you may want to ask for help now. No one can operate at best capacity without sleep or food. Your primary care doc (or possibly a MO if you get one soon) should be able to prescribe some anti-anxiety meds, and perhaps recommend a therapist, nurse navigator or a support group who can help you get your hands around the decision you need to make.
HTH (and please come back and talk with us),
LisaAlissa
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Dear Blueheron,
Welcome to our warm and compassionate community.
We're really sorry that you had to join us but we hope you know that you're not alone in your journey.
Your pathology results can be overwhelming and confusing but you might find the pdf booklet here on your Pathology Report Explained helpful in explaining it all.
We're here for you!
(( Sending Virtual Hugs ))
From the Moderators.
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That particular decision drove me nuts too! i just could not decide. I did know, absolutely, that I wanted the bugger out asap. Ultimately, I decided I would have a lumpectomy, then take my time to decide whether I wanted to deal with mastectomy/reconstruction. As it turned out, I was happy with the lumpectomy (even though rads came as part of the package), and grateful that I had not had to deal with the recovery and possible complications of mastectomy with or without reconstruction.
I guess my point is you do not have to decide right now. It is perfectly logical to have the lumpectomy, then see how you feel. I'd check first, but it is my understanding that insurance has to cover a second surgery.
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Hi Blue Heron - sorry for the bad news. It is quite a shock. I needed anti anxiety meds for the first time in my life when I was diagnosed. Many of us do, so ask your docs about it if you need to. Right now is about just getting through one day, hour, or minute at a time. As far as lx or mx, listen to your gut. You'll know what is right for you. So far your news looksfavorable, under a cm is good, er+ pr+ is good too. I'm glad you found us. Take care!
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LisaAlissa, thank you so much for all of that. I read Beesies link and all the studies in there, so helpful. I have the feeling that once I make this decision, I'm going to feel so much better. And you are probably right about my docs not offering me either if one was clearly better for me. It's just hard for me to not second guess everything. Right now, I'm leaning toward going with the current plan for Lx and sentinel node biopsy. Then I can find out about the margins, especially in the area facing the suspicious calcs. If the margins were tricky, then I can make a different decision. But truth is, tomorrow, or in an hour, I could feel differently!
I asked my PCP for some Ativan when I went for my biopsies so I have it to rescue me when in panic. I've never had or needed anything like this before.
Thanks for your help. These boards are wonderful, and I'm gaining great insight reading through them.
Xxoo
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just read everyone's responses, thank you! I thought I was crazy and defective in being unable to make this decision. It's good to know that I'm not alone.
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BlueHeron ~ I'm right there with you. Since last week I've run the gamut of "do the mastectomy", "no, do the lumpectomy". I believe I'm leaning more towards starting with the lumpectomy and hoping for the best.
*holding your hand as you travel this road*
~Snowy
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Snowy, your post brought tears to my eyes. I will hold your hand right back.
I'm feeling less panicked now. I just couldn't understand what I was being told, what it all meant, when my emotions were so out of control. How anyone can make medical decisions in that state is beyond me. I'm going to have a lumpectomy and SNB on 1/14. After that, I should have more info about margins, final pathology reports, lymph nodes, etc. And then I will go from there. If it all looks sketchy, I can choose mastectomy, in a second surgery.
Waiting is so hard. I'm waiting for FISH test results, waiting for genetic testing that could change everything, waiting for the surgery, waiting for final pathology, waiting to know, ultimately, what the plan is going to be, and the prognosis. I'm practicing diaphragmatic breathing and trying meditation. And Ativan as needed. Never had it before, but when it's needed wow is it needed.
Heading off now to genetic counseling meeting. I'm so happy to have found you all.
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Hi, I got diagnosed in November, I went to see a psychiatrist this morning, I never thought I will see myself going to one but I need help because my anxiety is so high I can not think clear. He was great, made me feel very conformable, I felt better just talking to him
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Konakona, that is so important to go for help. Many think it is a sign of weakness but it is actually a sign of courage that you are willing to admit you can't do it alone and there is no reason we should have to. Thanks for sharing so others may also know and take action to preserve sanity along this brutal journey.
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The best thing about breast cancer for me was getting rid of my droopy old middle-aged ta-tas. I had a 2.3 cm. tumor in my left breast which was surrounded by a "field" (for lack of a better word) of tissue that was benign, but of dubious character, and would have provided me with years of worry and suspicion had I chosen to keep it. Instead I chose to dump the lot, and now I have perky little cuties that match my weight (I am thin) rather than making me look top-heavy the way every other woman in my family looks. They aren't real, and they don't feel real, but they sure look better than what I had before. All I can say about my real boobs is: good riddance!
Edited to add: My sentinel node biopsy tracer injection experience felt like a shot. They gave me one injection of lidocaine and one injection of radioactive tracer. The only interesting thing about it was that it created a weird radioactive bubble in my nipple which freaked the plastic surgeon out until he figured out what it was.
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Konakona, good to know the psychiatrist was helpful.
And Diabetic, ha! I hope someday I can feel good about something, anything, that comes out of this.
Today -- such a roller coaster!
Sat in the genetic counselors office where I learned myBRCA risk is not all that low, now have another thing to wait on (and anxiety about my 10 and 13 year old daughters).
But then got home to the news that my HER2 was negative by FISH test, and that pulled me back up out of a plunge into the abyss once again. My heart may not recover from all this.
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BlueHeron, your heart will recover. It's still new and seems like everything is falling apart but I promise you will get through it. Do something nice for yourself and hug those 2 lovely daughters.
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