Vitamin D range...what is normal?

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2015

    I have used Vitamin Code Raw Calcium, which is a plant based calcium (I believe it is algae based), I get it at a health food store and can use coupons for $5 off, or buy it on the 20% off day twice a month.  It does have natto based vitamin K2, which is soy.  Here is a link:

    http://www.thevitamincode.com/TargetedNutrientFormulas/RawCalcium/tabid/1825/Default.aspx

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited November 2015


    Special, Soy? I thought no soy!

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited November 2015


    The plant based I was referring to above is called AlgaeCal. Sold from the company and on Amazon, but really expensive for Calcium.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2015

    I would imagine the amount is pretty minute - it is a component of one ingredient, and is fermented soy made from clean sources. I included that info in my post for those who might want to avoid it though

  • glennie19
    glennie19 Member Posts: 6,398
    edited November 2015

    As usual, they talk about supplementation being necessary, but not how much.

    Patoo,,, I think the reason that they don't mention a dose is that it is so individual. I was taking 5000 IU daily to get up to where my PCP wanted me to be. Now I'm on 3000 IU daily. Some people absorb certain brands better than others too. I remember one lady on here could not get her levels up,, and then she switched brands and went up! So it does pay to purchase a good quality brand,,, get tested after being on it,, and then stay with that brand and you'll probably keep that level pretty close to the same.

    And FL sun helps,, but not as much as you would think. One of my co-workers tested at 17,, and she walks a mile or more every morning outside.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2015

    Thanks glennie. mysunshine48, yes I just started the Vit D3/K2 liquid combo yesterday. I believe when I checked for a brand I chose a K2 that was not soy, namely no natto (or so I thought). Of course, when I do my research my brain gets so confused so hopefully it is soy-free as I try to stay away from soy (but not to the point of driving myself crazy!)

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited November 2015


    I looked it up after you gave me the name. No soy!

    Are you changing medicare plan?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2015

    Yes, changed it today to United Healthcare/The Villages. Can keep the same endocrinologist/nephrologist (diabetes), opthalmologist (retina) and MO, as my in-network specialists, but will have new PCP which is okay with me.

  • Unbreakable01
    Unbreakable01 Member Posts: 153
    edited December 2015

    Does your oncologist check for your Vitamin D levels?  I had mine checked, but by my general doctor.  I used to be at 7, which was low, and after a few years, I'm at 20.  I'm taking 5,000 IU's a day.

    I asked my breast surgeon if there was a correlation between Vitamin D and breast cancer because I had read some articles on it.  I don't think it's conclusive yet, but she said there is an impact, but talk to my oncologist.  I asked my oncologist and she said no, it only affects your bone density.

    I'm just curious to know what your oncologists say.

    Thanks!


  • snorkeler
    snorkeler Member Posts: 145
    edited December 2015

    My oncologist checks my vitamin D level once a year, even though she does other blood tests every six months. She said the vitamin D level changes slowly. When first diagnosed I was at 11. Now 3+ years later, I'm at around 38. My oncologist thinks that as long as I'm in the 30s, I'm fine. However, my breast surgeon feels that I have room to go higher, so there is a difference of opinion. I've been taking 2000IUs daily for a long time now.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2015

    Lots of different opinions out there. I think MO's are the most clueless! I had to remind my MO to add the test when he ordered bloodwork but I think he just did it because I asked, not because he thinks it's of any value. Anycase, I've moved and have a new MO and she also did not order it and I did not remember to ask but it will be done next time I do bloodwork (about 2 months). Last it was about 38 which I believe is still too low for BC people. (my opinion) I am supplementing with about 5000 iu's/day plus I'm in FL so I'm getting plenty of sunlight. Will be interesting to see if it's gone up any.

  • MagicalBean
    MagicalBean Member Posts: 362
    edited December 2015

    My Vit D was 12 and it has taken 3 years of 50,000 2 times a week to get it up to 30.  My system seems to be pretty resistant to it for some reason. 

  • Unbreakable01
    Unbreakable01 Member Posts: 153
    edited December 2015

    Patoo you made me laugh. I've only had experience with my one MO so far but I doubt some of the things she says.

  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited December 2015

    It has taken me four + years to get my VitD to 46 and that is supplementing with 4000 units a day. My cousin ( a doc) says 50-70 would be better, but my onc is happy with 46. She tests it every month when I get my Xgeva shot so it must be pretty important in the onc's opinion.

    I have a friend who has D levels at 100 which she thinks is because she eats salmon every day. She does not supplement obviously.

    I have another friend who supplements 10,000 units a day and has never had his level tested. Not a good idea, imo.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2015

    Winning, I've heard the 50-70 (or 80 or so) level is what we should aim for.

  • glennie19
    glennie19 Member Posts: 6,398
    edited December 2015

    WinningSoFar,,, 100 is really high. Huh,, wonder if there is some kind of endocrine thing going on, since your friend is not taking supplements. It is a fat soluble vitamin, so it is possible to get too much. I would be concerned with the friend taking 10,000 a day and not getting levels done.

    For those who have trouble getting their levels up, I would suggest trying a different brand. Some brands are better than others,,, or you may absorb one brand better than another.. Just a thought.

  • Kathy044
    Kathy044 Member Posts: 433
    edited December 2015
    Winning is your friend from outside the US or using International measurements for Vit D? I'm in Canada. My result a few months before dx in 2009 when I was supplementing 400 to 800 IU vitamin D3 per day was 90 nmol/L. On the advice of my family doctor I upped this to 2000 IU per day and the result when last tested was up to 137 nmol/L.

    Kathy
  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2015

    So my MO pays close attention to my Vit D. Apparently she does find research that supports higher Vit D levels and less recurrence. I never had it tested before the dx, but she tests once a year now, and since I've been supplementing with appx. 4000 IU a day, via drops, it's always been right around 67. She told me not to take any more than that, because it can interfere with your blood calcium (make it high). She said if that's high, they begin to look for the baddie again, so it can result in more tests and anxiety.

    I do live in No. Az and get regular sun exposure anyway, too. Usually about 30" a day because I was told that sun exposure is the best for increasing Vit D levels. Yes, I know about sunblock and skin cancer, but MO says 30" a day not during 10-2, is fine.

    Claire

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2015

    PS 60-70 is in the "great" range according to my MO.

  • ingersollnic
    ingersollnic Member Posts: 46
    edited December 2015

    My levels were 26 and my oncologist has me on supplements due to the research indicating that those with lower levels of Vit D have a higher rate of recurrence. He said the bone health etc is important but secondary to the concern he has over the influence on recurrence.


  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited December 2015

    Here is the study that caused me to increase my vitamin d, which is probably what Claire and nicevolvr are referring to. My last D levels were 31 even with several weeks of 4000 IUs, so I also supplement with real sun.

    http://www.medicalnewstoday.com/articles/273728.php

  • flaviarose
    flaviarose Member Posts: 442
    edited December 2015

    My nutritionist has said to keep the Vit D level between 40 and 60, not higher. I have read elsewhere that for cancer it should be higher than 60. I need to take a lot of Vit. C. to keep my level above 40. Like 8000 units. I had some genetic testing done and found that I had the VDR gene - I am "vitamin D resistant" meaning that I don't make much of it from sun. (I also live in the north, and have mediterranean skin.) You need to have your levels checked regularly - because it is very individual as to how much you need. My oncologist told me not to take calcium - there are problems associated with calcium supplementation - not sure exactly what they are. Also - it is recommended that you take Vitamin K with the D - the Vitamin K allows calcium to go to your bones, not your arteries.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2015

    As usual it depends on which "expert" is giving the advice and what/who they have learned/researched/believe. My MO was the one who told me to supplement with calcium because of the minor bone loss on anastrozole. I have cut it back because I'm now also doing Fosamax weekly, eating prunes daily, and exercise regularly. I did find, and now take, drops of Vit D with Vit K and now get plenty of sun here in Florida. Who knows what next month will bring with information! Guess we will all just have to keep doing whatever we think best for ourselves (sigh).

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited December 2015

    I think the concern with calcium has been heart and artery related. And I read a study that said supplementing with calcium did not preserve bone mass in women on AIs, nor does it prevent fractures. What are we to do, right? I was never good at taking it anyway so now I don't feel so guilty but I do take my vitamin D especially in the winter.

  • Sunny_Girl
    Sunny_Girl Member Posts: 111
    edited December 2015

    it's good to read that it takes awhile for vit d levels to go up - mine started at 7. Started 50k one a week for a year and a half (creeping up to but not yet in the bottom range). For the last 6 months I've been taking it twice a week and will have labs drawn in January.

    I want to get well into the middle range prior to tapering off or stopping. I had no idea that the level was so low - never gave it a thought.

    Bizarre the things that happen as we age.

    Patty

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2015

    Sunny, I think your 50k/week may be Vit D2 which may work slower than Vit D3 that most of us are on.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2016

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