January 2016 Surgeries

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SVGsurvive
SVGsurvive Member Posts: 87

For those who have scheduled surgery in January, 2016 - here's a thread for us to post our questions, answers, stories, fears and support! This has been done for previous months, but I don't see one for January so here goes.

Let me know your surgery type & date and I'll do my best to edit this original post regularly. Discussion Board acronyms can be found here. Strength and courage to all!

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1/4/16 - Kaybee2545 - BMX w/ TE

1/5/16 - Gemma12 - Lump (left) + SNB

1/6/16 - Neen56 - Lump + SNB

1/6/16 - Vidrine1 - Lump (right) w/ possible MX + SNB

1/7/16 - chambo - Lump w/ wire loc + SNB

1/8/16 - MKTCA - Lump

1/11/16 - scubagirl01 - BMX w/ immed. recon

1/11/16 - 27heart - BMX + silicone implant recon

1/11/16 - Unbreakable01 - Implant Exchange

1/12/16 - JulieAggie03 - BMX w/ TE

1/12/16 - Balthus - BMX + SNB

1/12/16 - snowmagick - Lump + SNB

1/13/16 - grandma3X - MX (left) w/ TE, skin sparing, nipple sparing

1/13/16 - Jr114 - BMX w/ TE, nipple sparing + SNB

1/13/16 - Kessa619 - BMX w/ implants

1/13/16 - bella_16 - Lump (right) + SNB

1/14/16 - PositivePeg - MX (right) w/ recon

1/14/16 - BlueHeron - MX + SNB (no recon)

1/14/16 - JerseyRenee01 - Lump + SNB

1/15/16 - SVGsurvive - BMX w/ TEs skin sparing, nipple sparing + SNB + port removal

1/15/16 - RLM - Lump w/ wire localization

1/15/16 - Moondust - Lump + SNB

1/18/16 - Merymete - Lump w/ IORT + reduction in other breast

1/18/16 - Kar324 - Quadrantectomy, oncoplastic closure

1/18/16 - Mominator - Implant Exchange (silicone)

1/18/16 - chambo - Port placement

1/18/16 - MaryannLS - Lump (wire) + SNB

1/19/16 - 7of9 - AND w/ Laparoscopic Ooph + possible full hysterectomy

1/19/16 - violethope - SNB (left)

1/20/16 - Katja23 - Lump + SNB

1/20/16 - Iwannacookie - Revision surgery

1/21/16 - Gardnergirls - TE replacement (right)

1/21/16 - Wainwright - bilateral Lump + SNBs + oncoplastic reduction/recon

1/21/16 - carjeanne3 - BMX w/ TEs + SNB

1/22/16 - MimiD - BMX + SNB

1/22/16 - goldenbride - DIEP + implant removal

1/22/16 - MLP3 - Lump + SNB w/ radioactive seed and tracer

1/25/16 - Logang - MX (right) + SNB

1/26/16 - robinni - Lump + SNB

1/26/16 - DecisionFreak - Lump + oncoplasty (left & right)

1/27/16 - Shakapuppy - Lump + oncoplasty (left & right)

1/28/16 - edwsmom - BMX w/ implants + ALND

1/28/16 - mama26 - BMX w/ TEs

1/28/16 - curlyt333 - BMX w/ TE & Alloderm + SNB

1/28/16 - virginia123 - Lump (left) + SNB

1/29/16 - SadieSue50 - TRAM Flap

1/29/16 - Melgirl - BMX w/ TEs + SNB

1/29/16 - Harmony2 - Lump + SNB

1/29/16 - Nolagirl1126 - MX

2/3/16 - Maine1965 - BMX w/ TE + SNB

2/8/16 - CoolgrammieNC - BMX w/ DIEP

2/11/16 - stellamaris - Re-excision Lump

2/17/16 - Bjsmiller - UMX (no recon)

TBD - starsarestars - BMX w/ immed recon

TBD - Donnar25 - BMX w/ DIEP

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HELPFUL LINKS...

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Comments

  • grandma3X
    grandma3X Member Posts: 759
    edited December 2015

    My surgery is not scheduled yet but I think it will probably be in Jan. I'm having MX, left side with TEs, skin sparing, nipple sparing surgery.

  • SVGsurvive
    SVGsurvive Member Posts: 87
    edited December 2015

    Welcome grandma3X! Hug I've edited the original post. Once you have a date, feel free to PM me or post here.

  • JulieAggie03
    JulieAggie03 Member Posts: 71
    edited December 2015

    Hi there! Finishing chemo this week and scheduled surgery today. 1/12/16 BMX w/TE

  • Merymete
    Merymete Member Posts: 31
    edited December 2015

    Thank you so much for starting this thread! I'm scheduled for a lumpectomy with intraoperative radiation therapy, and reduction in the other breast on January 18th. Mixed IDC/ILC.If it has clean margins, I may not have to have additional radiation! Keeping my fingers and toes crossed

  • grandma3X
    grandma3X Member Posts: 759
    edited December 2015

    Hi Merymete and JulieAggie! I'm glad to have some more company here :)

    I'm still waiting for a surgery date! The surgeon told me last week that the scheduler would call by early this week so I've been on pins and needles waiting! I had a bit of a meltdown last night thinking that maybe the surgeon had forgotten about me. Hope to find out today.

    By the way, I got a kick out of this web site:

    http://www.mybreastchoiceshow.com/blog/2015/3/15/t...

  • grandma3X
    grandma3X Member Posts: 759
    edited December 2015

    Surgery scheduled (finally) for Jan. 13th. I really don't want to wait that long but that is the soonest they can get me into the schedule for both BS and PS. My goal now is to try to relax a bit and enjoy the holidays.

  • SVGsurvive
    SVGsurvive Member Posts: 87
    edited December 2015

    Welcome Merymete and JulieAggie0! Your dates have been added above.

    JulieAggie0, it looks like we're on very similar timelines! I started chemo 7/29 and last round was yesterday. So today should be your final infusion - congrats!!

    Merymete, very cool you're doing the radiation during the surgery. I read about that and was intrigued. Fingers crossed that that will be it for you! I'm in a situation where I have to wait for the BMX pathology to know if I'll need radiation, so I'm trying to remain hopeful about that.

    grandma3X, I was very aggressive in getting my BS & PS to solidify a date, esp. since their schedules had to coordinate due to immed. recon. Don't feel anxious, but also don't feel bad about reminding them often! Also, thanks for the link & laughs. I added it above as well.


  • JulieAggie03
    JulieAggie03 Member Posts: 71
    edited December 2015

    @SVG-I noticed our timelines were similar too, my last chemo is tomorrow! Moved to Fridays once I got on Taxol since I'm still working full time and the SEs are much less. Glad to be done and moving on! Congrats to you too!

  • grandma3X
    grandma3X Member Posts: 759
    edited December 2015

    Slowly checking things off my list. Today I got my flue shot and made an appointment for my pre-op workup.

  • Queen_Sharon
    Queen_Sharon Member Posts: 39
    edited December 2015

    Good luck ladies! I am still awaiting test results. And do not have a recovery plan yet. But I just wanted to wish you well and send (((HUGS))) your way! Take Care!

  • Queen_Sharon
    Queen_Sharon Member Posts: 39
    edited December 2015

    Thanks SVG for creating this thread :)

  • Neen56
    Neen56 Member Posts: 14
    edited December 2015

    I am brand spanking new to this forum so forgive me for not knowing all the abbreviations. I am having surgery, a left breast lumpectomy and sentinal node removal on January 6th. It seems like I've been waiting forever, it's been a few months. I am stage 1A, both hormones+ and Her2-. After that I will have the oncotype test to determine whether or not I will need chemo. I will have 15 to 19 doses of daily radiation because my hospital hasn't yet been approved by the government to do radiation at the time of surgery.

  • Queen_Sharon
    Queen_Sharon Member Posts: 39
    edited December 2015

    Welcome Neen, I am new here as well. My genetic tests came back negative today! That is great news for me and my 3 sisters! I will FINALLY get to talk to a surgeon about getting a lumpectomy. With the holidays coming up I don't think it will be done until January. Slowly but surely, I am moving forward on this journey. Waiting is so hard! I am having a hard time sleeping. And then when my alarm goes off I bang on the snooze like a drum, over and over. My doc told me to try melotonin. I'll let you know how it works. Have a good evening all.

  • SVGsurvive
    SVGsurvive Member Posts: 87
    edited December 2015

    Welcome sharsand1219 and Neen56.

    sharsand1219, thanks for the kind words & wishes. Let us know if you do end up w/ a lumpectomy date in January and we'll add you to the list. Congrats on your genetic results. Did you and your sisters all get tested together? I ended up being positive for the PALB2 mutation, but my sister has yet to get her testing done. Getting a full night's sleep can be tough at any phase after diagnosis. I hope the melatonin works for you. Once I started chemo I ended up using the Ativan they prescribed me for many restless nights. I still do, in fact.

    Neen56, the cheat sheet of acronyms can be found here (and the "Help with Abbreviations" blue button in upper left corner). I have to check it all the time! Fingers crossed that you won't need chemo. If you do, this web site is chock full of info. and amazing support.

  • grandma3X
    grandma3X Member Posts: 759
    edited December 2015

    sharsand - let me know how the melatonin works. I don't think I have slept through the night since my diagnosis! My BS is sending me a prescrption for Ativan to take before the sentinel node injection. Maybe I should have asked for more :)
    Did you ask your doctor about genetic testing? I don't have a family history but I do have 2 sisters, a daughter and a grand-daughter. I would like to be tested just to give them peace of mind. My doctor did not suggest genetic testing. Maybe I should bring it up after surgery.
  • Queen_Sharon
    Queen_Sharon Member Posts: 39
    edited December 2015

    hello grandma, the melatonin worked great last night. I woke up about an 30 minutes before my alarm went off and had a lot of energy today at work. I also take Trazodone sometimes, a scrip from my doc. But it leaves me not wanting to get out of bed. And I'm always afraid I am going to over sleep. As far as genetic testing, my doc suggested it as soon as I told her that my brother had BC a few months ago in May. I do have a few other relatives who have other types of cancer as well. Had my brother not traveled this road recently and is doing great, I would be a basket case and freaking out BIG TIME! It never hurts to ask your doc about testing.

    Hello SVG, My bro had BC in May. He had genetic testing, not sure what kind he had or I had. His was negative. But the docs just wanted to make sure and had me tested. My sisters have not had testing. But they all recently had negative mammograms.

    Hope everyone if feeling well today. Take Care! :)


  • Queen_Sharon
    Queen_Sharon Member Posts: 39
    edited December 2015

    Good Morning all. Sending well wishes and hugs to you all. Whether you believe in prayer or not, I am praying for all of us travelling down this road to recovery. To those of you who are in pain and/or having a bad day, know that I am thinking of you and sending positive vibes of healing out into the universe especially for you. I wish you peace for one moment at a time and every minute until this day is through. And you can best believe that I wish you the same tomorrow!

    Grandma, just wanted to update you on the Melotonin. I have been having minor stomach cramps for the past few days. The only thing I can think of that I've been doing different is taking the Melotonin. I did some research online and found out that stomach cramping is just one of the many side effects. In addition, I also found out that the 10 mg recommended on the bottle, is way too much according to many websites I visited. "The correct dosage for melotonin for it to be effective is 0.3-1.0 mg." With all we are currently going through and will go through, none of us need additional side effects and added pain. BTW, melotonin was recommended to me by my doc. Good luck with your sleepless nights..

  • grandma3X
    grandma3X Member Posts: 759
    edited December 2015

    Thank you sharsand. I so much appreciate your prayers and well wishes and please know that I am praying for all of you as well. 

    I tried melatonin last night without much success. I took the recommended dose on the bottle (I'll have to go look at the mg dosage) but slept pretty poorly. Yesterday I got results of my abdominal CT showing that all was clear except for "minor inguinal adenopathy". I had to look it up - it's the lymph nodes in my groin. I'm having the CT read again by the radiologist at John Hopkins, where I'm having my surgery. Hoping the swelling is not a sign that the cancer has spread. 

    On the bright side, I've convinced my daughter to start going to the gym with me every morning. I'm determined to build up some muscle in my arms and shoulders before surgery. My BS also sent me an order for PT to get a baseline before surgery, which I will do the first week of January. 

    Wishing you all a wonderful weekend! 

  • Queen_Sharon
    Queen_Sharon Member Posts: 39
    edited December 2015

    Thanks Grandma, I'm hoping for the best for you. Getting a second opinion is smart! Good for you for working out and for including your daughter. Better than sitting around worrying. Feel free to PM me anytime for anything. Have a great weekend as well. :

  • Merymete
    Merymete Member Posts: 31
    edited December 2015

    Thinking of all of you ladies as January approaches.

    About a month ago I ran into an old friend, lady I used to work with. She found a lump. Luckily she was going to the same center as I do for her diagnostic ultrasound. I recommended a doc abs we have been each other's support throughout this.

    Kinda makes you wonder doesn't it??

  • grandma3X
    grandma3X Member Posts: 759
    edited December 2015

    Merymete - I'm sorry your friend is going through this, but it must feel good to have someone to talk to! I'm trying to stay positive on the outside for my family, but it has been hard not having someone to talk to about the anxiety I'm feeling on the inside.

  • Queen_Sharon
    Queen_Sharon Member Posts: 39
    edited December 2015

    Hello Ladies, Sorry Merymete that both you and your friend are going through this but at least you both have someone to talk to.

    Good morning Grandma, I'm sorry for your anxiety. But feel free to PM me if you need to talk. I am like you as far as trying to remain positive and strong on the outside. But I have always been one to stuff the things that bother me until they build up and boil over. Basically, that is what Post Traumatic Stress Disorder (PTSD) is. And that is what I have due to my military service and the events of Desert Shield/Desert Storm.

    My brother found out in May that he had breast cancer. No it is not hereditary. But he had surgery to remove it within a few days of his DX. And he asks me why my doc is taking so long to get this thing out.

    Do you feel like this is taking forever? I was diagnosed about a week before you and I have yet to see anyone to discuss my treatment plan. Because I am a Disabled Veteran, I normally use the VA healthcare system. But they really seem to be dragging their feet on every aspect of this situation. Of course I was taking tests and that was part of the hold up. I am really considering going to MD Anderson to get it done right after my company insurance kicks in, in Jan. Hell that's only 11 days away. And the VA seems to be taking too much of a lackadaisical approach to my healthcare.

    I was waiting for an appointment to see a surgeon to get a treatment plan. After giving them a week, I finally called today and they have not received a referral from the VA.

    Sorry to be ranting like this but I guess the damn blew before I knew what happened.

  • grandma3X
    grandma3X Member Posts: 759
    edited December 2015

    Sharsand, I know what you mean. I'm actually jealous of the women on the discussion boards who are diagnosed one week and then have surgery the next! I keep reminding myself that the cancer has probably been growing there for a decade, and another month won't hurt. But at the same time, I'm thinking that at any moment it will metastasize and then I'm screwed. I guess the waiting is, in a sense, therapeutic - I've had some time to get used to the idea that I have cancer and that I will have surgery.

    I'm sorry about your suffering from PTSD! You have my greatest respect and gratitude for your service to our country. My husband was crew chief on a B52 at Griffiss AFB back in the 70's and 80's, and then flight engineer on C5's out of Dover AFB. My son just finished 6 years as a SEER instructor in the Navy in San Diego. My son was deployed to Iraq during the war but was fortunate that he was never involved in any combat.

    If I were you, I'd go to MD Anderson. I started off with a local surgeon, but I always felt like she was in a rush and I always left with more questions than answers (like if I have a lumpectomy, she said there was only a 10% chance of it coming back in the same breast. But then she told me there was a 50% chance I'd get it in the other breast! How can this be true - that I'm at greater risk of getting the cancer in my good breast than the one that was already cancerous??). So I called Johns Hopkins and got an appointment right away (it was just scheduling the surgery that took forever!) When I met with the surgeon there, it was like night and day compared to the local surgeon. She took time to explain things and when I left I felt much better about the whole thing.

  • Queen_Sharon
    Queen_Sharon Member Posts: 39
    edited December 2015

    Thanks Grandma. It was my honor to serve. My thanks goes out to your Husband and Son for their service to our country and also to you for being the support behind the scenes. I feel that Military families do not get enough credit for all the sacrifices they make. It is those who are left behind to hold down the fort and keep things together while we are gone who deserve all the credit in the world. I am thankful that your son has not seen combat. I compare going to war with childbirth. You cannot imagine how it feels and it is hard to describe to someone who has not gone through it.

    I have been trying all day to get in contact with this VA lady who is the coordinator of my care. It has been an exercise in futility. She does not answer the phone. And in the past, when she does answer the phone, she is scatter brained. I know she is overworked due to the fact that someone in her office is out and she is doing twice the work. I know this is just the administrative part but if they cannot coordinate such simple tasks as appointment scheduling and referals, how can I trust that they are capable of more important details of my treatment and my overall healthcare? I'm just venting. Thanks for listening.

    I guess at this point my concern is the cancer growing and spreading, as you stated.

    I know what I need to do is get busy and stop letting these frustrations get the best of me. I'm off to clean my house and make better use of my time.

    Thanks for listening. I know there are women here with bigger and more serious issues so I will shut up and stop complaining.

  • SVGsurvive
    SVGsurvive Member Posts: 87
    edited December 2015

    sharsand1219, please don't ever apologize for complaining or venting. We are all on this site because we have breast cancer - it doesn't matter what stage or what pain levels or anything - we all are here to support each other! You and grandma3x are experiencing totally natural fears. My surgery will be 5.3 weeks out from my last chemo infusion, and that alone is making me wonder what cancer might be "re-growing" during this time period.

    I can imagine how you must feel waiting to get a plan together. Whether the plan is surgery tomorrow or in a month - you just want to know the plan and be comfortable with it. How frustrating!!

  • grandma3X
    grandma3X Member Posts: 759
    edited December 2015

    Thanks, SVGsurvive - I'm sorry you have to wait so long between chemo and surgery! - but at least it will give you time to get your strength back.
    Over the past 2 months I've thought a lot about why not knowing is more frightening than knowing. I think it's because we are like Schroedinger's poor cat - we are already on a path, but just don't know which one. We live in a state of limbo between multiple realities and it's exhausting because we have to live our lives as if each path is still possible. Once I knew my surgery date, I felt much calmer because I could discard any plans I had made in my head for what to do if the surgery was before the new year, or even before Christmas. I still don't like waiting, but at least now I know my path.
    Wishing you all a very happy Tuesday!
    Kathy
  • woodstock99
    woodstock99 Member Posts: 338
    edited December 2015

    Hi All -

    1/12/16 - SNB & DMX

    3 weeks from today.

    It's been a wild ride since bad mammogram late October.

    4 biopsies.

    1st/2nd/3rd opinions with surgeons & 3 consults with plastic surgeons at 3 different hospitals.

    Have decided to forego reconstruction for a variety of reasons that my husband and I are completely comfortable with and believe the right path for me.

    Right breast - 2 areas of DCIS. One is grade 2-3 solid w/comedo necrosis & calcifications. One is grade 1-2, solid and cribriform w/cancerization of lobules.

    Left breast - 2 areas. 1 invasive ductal cancer w/lobular features, grade 1A less than 2mm & DCIS, grade 1 to 2, solid and cribriform w/cancerization of lobules.

    ER & PR Positive. Her2 Negative.

    Told growth rate is 5%.

    Having my SNB a few hours before surgery as I did not want to do day before.

    Was told based on what they know now no chemo or rads but yes to aromatase inhibitor and see medical oncologist on 1.20 when I go back for post-op check.

    Freaked about the drains.

    Was doing ok until I got surgery date. Now more anxious & in countdown mode.

    Doing a lot of prep though through all the wonderful suggestions on this site and friends who have had surgery before - have my shrine of surgery & post surgery items building up in spare bedroom. Have been fitted for post-surgical camisole with drain pockets, etc.

    I know as the date approaches I will get more frightened.

    Having pre-op tests (labs, EKG & maybe chest X-ray) & meet with anesthetiology next Tuesday, 12/29.

    I am not so afraid of the destination but of the path to get to wellness.

    Have an amazing husband, great friends and supportive boss & coworkers.

    I feel surrounded by light and spirit and power that comes from all f ten and many strangers on this site.

    A very Merry Christmas to many of you and wishing all the joys of the holiday season.

    Will keep checking in to see how everyone is doing.

    "And once the storm is over, you

    won't remember how you made it through, how you managed to

    survive. You won't even be sure, whether the storm is

    really over. But one thing is certain. When you come out of

    the storm, you won't be the same person who walked in.

    That's what this storm's all about."

    ― Haruki Murakami


  • grandma3X
    grandma3X Member Posts: 759
    edited December 2015

    Welcome, Balthus! Looks like our diagnosis was around the same time (my mammogram on Oct. 27th identified ILC in left breast). You are right - it's been a wild ride to say the least!

    My 2nd opinion reading of the CT came back with suspicious spot on my spine (no mention of inguinal nodes this time!). The radiologist said it is most likely age-related degeneration (arthritis) but with my BC it's recommended that I get a bone scan. I'm trying to set that up for next week so that I'll have the results before surgery on the 13th. Another small lesion was seen on my liver, but nobody is concerned about that one.

    Happy Wednesday to all of you!

  • Queen_Sharon
    Queen_Sharon Member Posts: 39
    edited December 2015

    Merry Christmas everyone! Thank you for all the help, support and genuine kindness. I appreciate you all so much! Have a fantastic day. Wishing you lots of happiness and health!

    Shar :)

  • scubagirl01
    scubagirl01 Member Posts: 1
    edited December 2015

    This is my first post, although I've been reading and taking inspiration from all of you for several months now. I want to send holiday greetings and thanks to each of you on this very special Christmas day. I will have a bilateral mastectomy with immediate reconstruction on January 11th and I will post more about my journeyiin a few days after my son, who is dealing with his own cancer diagnosis, returns to his home. I hope you all are surrounded by supportive family and friends at this time. Peace to all!


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