For the newly diagnosed

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NoWhyToIt
NoWhyToIt Member Posts: 87
edited December 2015 in Just Diagnosed

Hi ladies--

It's been 2 years since I was diagnosed and I don't frequent these boards but I wanted to check in with some words of hope for those of you who are just diagnosed and are frightened of what is to come. I just want you to know I was Stage 3 and I made it through surgery, chemo, radiation, clinical trials that really took me down, and am doing really well today. No, it isn't easy. You will be tested in many ways. But you can do it. You can cross over to the land of the healthy again. Today I'm back to my old self, maybe even better. Take care of yourselves.



Comments

  • Angtee15
    Angtee15 Member Posts: 209
    edited November 2015

    Thanks for that! Diagnosed early stage triple negative last week. Get my chemo port put in tomorrow. I am about to kick off five months of chemo, surgery, then likely radiation. Seems endless.

  • NoWhyToIt
    NoWhyToIt Member Posts: 87
    edited November 2015

    I know it seems endless right now. Try to ready your home with fun things to do, like movies to watch and games to play. Boggle FREE is a good game! There will be days you won't feel like it but chemo is all about predicting the cycles and you do have times when you feel well. Take one step at a time and get rest and drink a lot of water above all. Be good to yourself!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2015

    NoWhyToIt - thanks for letting newbies know that there is light at the end of the tunnel.

  • etnasgrl
    etnasgrl Member Posts: 650
    edited November 2015

    Thank you so much for the encouragement and the light at the end of the tunnel!

    I was diagnosed on 11/05/15 with IDC and am still in the waiting/testing/meeting with countless doctors stage. It is overwhelming, scary, strength-zapping, and insane. My entire world has been flipped upside down and "normal" is a thing of the past.
    I know that I will get through this....one day, one moment at a time....but hearing from someone like yourself, who has broken through to the other side is like a breath of fresh air.
    Thank you so much for posting!

    Smile

  • NoWhyToIt
    NoWhyToIt Member Posts: 87
    edited November 2015

    Just wanted you to know I am thinking about you and sending you good vibes. There is peace in knowing that there really is nothing you can do to affect the outcomes on tests and things of that nature. Just try to live in the moment, be good to yourself and don't be afraid to lean on medications for sleep and anxiety. There is no need to suffer more than you have to.

    xx

  • msphil
    msphil Member Posts: 1,536
    edited November 2015

    yes sweetie u can make it thru to those newly diagnosed i am now a 21 yr Survivor Praise God i always want to reach back n help and Inspire others. msphil(idc stage2 0\3 nodes Lmast chemo m rads n 5 yrs on tamoxifen)

  • msphil
    msphil Member Posts: 1,536
    edited November 2015

    yes sweetie u can make it thru to those newly diagnosed i am now a 21 yr Survivor Praise God i always want to reach back n help and Inspire others. msphil(idc stage2 0\3 nodes Lmast chemo m rads n 5 yrs on tamoxifen)

  • OneLuve
    OneLuve Member Posts: 11
    edited November 2015

    Hello All,

    I was diagnosed with DCIS Stage 0, grade 2 intermediate both er/pr positive. I've had two opinions from two different breast centers, their breast surgeons and plastic surgeons. Plan- Lumpectomy, sentinel node biopsy, reduction and lift all at once now scheduled for the end of next month, followed by 6 weeks of radiation and then tamoxifen for 5-10 years. I am afraid but ready to get it done. I'm worried about the lead surgeon on the team I chose. Both teams seem quite thorough and both centers are well-equipped; both have said the same about my diagnosis. The center that is the farthest away has the most renowned breast surgeon. The center closest to me has a very good plastic surgeon, a very good oncologist. The breast surgeon seems astute and well trained but has only been in the profession for 8 years, including her fellowship time and she has only been with the center since May 2015. It doesn't speak to her capabilities and she certainly laid out a good plan but I can't research her much other than her licensure, which is good and her schooling, which is good. I spoke with one of her patients who gave good reviews but she hasn't had surgery yet, just a care plan and chemo. I know length of time doesn't necessarily determine skill. I'm just wondering if I made the right choice.

  • jg12705
    jg12705 Member Posts: 19
    edited November 2015

    I needed to see this today!! It has been a real downer of a day and I know this is only the beginning for me. Encouraged by your post. Thanks!!!

    Jodi

  • Queen_Sharon
    Queen_Sharon Member Posts: 39
    edited December 2015

    Hello All, Thanks to all those with words of Hope and encouragement. Hugs, prayers and well wishes to those of us who are newly diagnosed, to those who have been fighting the good fight and those who have come out on the other side healthy.

    I understand everyone is different as far as recovery from surgery and radiation treatment. But it would be helpful to me to find out how long the recovery time is before I can go back to work. It's not that I want to rush it. Far from it! I am a disabled Veteran and am currently using the VA healthcare system. Now is open enrollment at my job and I can get short term disability time off and some pay. But then I would have to pay out of pocket expenses which I cannot really afford. If I don't chose the insurance, the VA will pay for everything. But if my recovery takes longer than my 2 weeks vacation, then I don't get paid for being off and I would be forced to rush back to work probably before I am ready, willing or able. At this point I am more worried about the financial toll my cancer will cause in my life and not the actual cancer or treatments. I have the weekend, until Tuesday the 15th to opt in or out of my company insurance, which includes the loss of wages payments. By the way, I work in a grocery store and do a lot of heavy lifting. I'm sure they will let me do something less strenuous. But I'm not sure how much radiation will drain me or how my surgery will affect my range of motion. Any help or advice will be much appreciated. Thanks!

  • NoWhyToIt
    NoWhyToIt Member Posts: 87
    edited December 2015

    Hi there just seeing this now. The most important thing is the get the cancer out not to worry about lifts or anything plastic surgery related. Any doctor that seems too concerned with plastic surgery as the leading issue should be questioned. Try not to second guess your decisions once you have made them. Tell surgeon to take a wide margiin. Check back.

  • NoWhyToIt
    NoWhyToIt Member Posts: 87
    edited December 2015

    How are you doing? Drink a lot of water. Take care of yourself.

  • NoWhyToIt
    NoWhyToIt Member Posts: 87
    edited December 2015

    You will be quick to recover but lifting heavy things will take longer. Let your body be your guide. It is awful that we don't have financial resources for people to recover in peace. Ask your doctors and the hospital for help on this.

  • sakkamj
    sakkamj Member Posts: 1
    edited December 2015

    hi,

    Thank you so much for those good words. My mom is just diagnosed with early stage BC. She is very scared and is thinking its the end of her life. How do i help her and motivate her for the best. I m feeling very helpless, she has always been a strong person and today she has given up. Pleaee tell me what to do?

  • dtad
    dtad Member Posts: 2,323
    edited December 2015

    sakkamj Hi there. You seem like a very supportive daughter. Your mom is lucky to have you. While you didn't give a lot of details the majority of women with stage one breast cancer go onto live normal healthy lives. It is not a death sentence. Give your mom some time to wrap her head around the diagnosis. Its a shock at first. The best thing you can do for her is assist her in seeing the right docs, getting all the facts and helping her make an informed decision about treatment. IMO being treated at a university based teaching hospital is very important. You can private message me if you want to talk more details. Good luck and keep us posted....

  • Planet
    Planet Member Posts: 42
    edited December 2015

    Hi there,everyone. I have just posted over in the December surgery page but want to pop in over here.

    Tomorrow is my surgery: lumpectomy with the sentinel nodes. I am currently recovering from bilateral Lepidus bunionectonies and and a Mohs treatment for a BCC on my cheek. These surgeries were planned months ago and I have 12 weeks of paid medical leave. Needless to say, the BC was NOT planned. LOL. I am squeezing in as much of my BC treatment before January 15 as I can.

    The US tech, who noticed I was a bit shell shocked after the radiology MD and her fellow dropped the news that the US revealed a likely malignancy and to get dressed and schedule a biopsy, helped me onto my knee scooter and said to me, "You are not going to die from this." It's become my mantra.

    A good friend, who is an inspirational speaker, shared this advice today: No Practice Bleeding. Wait for it--you can't make anything better by worrying about something that may or may not happen.

    So, just realized that I might want to wear a shirt tomorrow that buttons up the front. DUH! Do I even have one?

  • hsant
    hsant Member Posts: 790
    edited December 2015

    Hi Planet! Best of luck on your lumpectomy tomorrow. I opted for a BMX when I was diagnosed, but it's to my understanding that there is little pain and discomfort after a lumpectomy. My dad had MOHS after a basal cell carcinoma diagnosis, and it wasn't fun. I think the lumpectomy may have less effects than the MOHS, aka less pain. Hugs and best wishes to you

  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited December 2015

    Planet said: "So, just realized that I might want to wear a shirt tomorrow that buttons up the front. DUH! Do I even have one?"

    Don't know what your surgeon has told you s/he will have you wear post-surgery, but if it is a breast binder, you can treat it as a camisole and just pop a jacket or shirt over it. That's what I did for a couple of weeks post-lumpectomy while I was doing Mammosite radiation.

    Just another thought...

    LisaAlissa



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