Starting Chemo in October 2015

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  • homeschool4us
    homeschool4us Member Posts: 255
    edited December 2015

    Wow, Durhamgirl! Are they replacing it with anything?

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  • MamaBexar
    MamaBexar Member Posts: 102
    edited December 2015

    Wow. I made the decision to forgo carboplatin when I started my chemo and I ask for only Taxol weekly. My MO assured me that that it was a good decision but I kept wondering if it was. You can imagine how great your post made me feel.

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  • MaggieMae123
    MaggieMae123 Member Posts: 38
    edited December 2015

    Hi DurhamGirl, I am Her+ too. I am supposed to get my 4th treatment on the 21st and will have to talk to my Dr. about that. I wound up in the hospital after Thanksgiving because I passed out. I had been having that horrible diarrhea and I know we talked about that before. Turned out I had C Diff infection, so it was a blessing that I went to the hospital and they found out about it so were able to treat it with antibiotics. Seems to be gone now (knock on wood). Anyway thanks for the information about the carboplatin. Maggie

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  • homeschool4us
    homeschool4us Member Posts: 255
    edited December 2015

    Today was my first perjeta, herceptin, and taxol. I had no reactions at all. I did ask for compazine as I felt slightly nauseous. Otherwise, so far so good! My dose is 147 mg. Now to see what if any SE'S I experience. Fun!

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  • ncsue927
    ncsue927 Member Posts: 57
    edited December 2015

    Durhamgirl....for some reason, I don't have the crappy days just after infusion. My crappy days are the week after infusion. I had my last AC last Tuesday and I am just now feeling crappy. And I haven't found any tricks to make it easier. I'm glad they have dropped the carboplatin...perhaps that will cut down on the crappy days!


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  • BellaV
    BellaV Member Posts: 27
    edited December 2015

    not much helps with the crappy days. I write down my symptoms and what time I take any medicine. It's too easy to forget. Be proactive with stool softener.

    I keep the lights low and the sound down. Keep trying to drink your fluids.

    Just started taxol and symptoms differ. Still figuring it out

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  • DurhamGirl
    DurhamGirl Member Posts: 100
    edited December 2015

    mamaBexar...your post makes me feel better so about stopping he carboplatin! We get in such a place of doing everything we can to beat this, but "everything" doesn't always make sense.

    Homeschool, they are not replacing the carboplatin with anything. I guess the latest research shows that the Perjeta and Herceptin are so much more effective for HER2+ cancer anyway.

    MaggieMae...yes I would definitely talk to your MO about whether the carboplatin makes sense. And the diarrhea has been my worst SE so fat...I just dread it!

    Good luck everyone!

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  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited December 2015

    Durhamgirl, the only thing that works for me on those days the week after chemo is to just give in to the fatigue. Really. I don't have any tricks. But I've found that when that crushing fatigue comes on, there's no good in trying to power through--I end up feeling worse in the long run. I'm fortunate that I can work from home, so on those days I'm basically working an hour, resting an hour, for about 3-5 days.

    I also have had a lot of diarrhea, for which I'm taking Bentyl 3 times a day, and Immodium as needed (especially the first week after chemo.)

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  • Andraxo
    Andraxo Member Posts: 410
    edited December 2015

    Durhamgirl - My only totally crappy days were when I had Neulasta that first round....days 4-7. Since no more neulasta, no more totally crappy days, but round 3 hit me hard. Round 4 was today. The last 3 rounds also felt terrible for 6 hrs after chemo - tired and antsy at the same time...which make me miserable. My brain doesn't work in that situation. I thankfully have not had any overwhelming fatigue yet, or at least not enough fatigue to keep me from exercising daily...some days at pretty hard intensity, but I find that when I feel the worst, the exercise oddly helps me the most (I start to feel better).

    Hope everyone's side effects this week are minimal and we all function very well. hugs to all!

    Andra xo

    .

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  • TinaB71
    TinaB71 Member Posts: 17
    edited December 2015

    I hope my last EC chemo 4from 4 is monday 21. December. I am the fist 6 day very very tired. And I have not hungry and thirsty.

    All taste like, bäääää. 😯

    I hope to Christmas day it' s are better. Good luck at all.

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  • MamaBexar
    MamaBexar Member Posts: 102
    edited December 2015

    I had #11 of my weekly taxol yesterday. My MO decided it would also be my last. I will see her again on Dec.30 and have herceptine that day. I am so looking forward to feeling normal again. I will let you know how long it takes.

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  • homeschool4us
    homeschool4us Member Posts: 255
    edited December 2015

    econds ago homeschool4us wrote:

    I'm on day 5 of my first taxol herceptin and perjeta cycle. I thought I'd post how I've felt each day.

    Day 1: Infusion day, nauseous before theu even started, probably nerves but it lasted into the night. I took zofran.

    Day 2: Feeling so fabulous and NORMAL. Normal is a big thing when you don't feel that way often. This evening though, the soles of my feet and the palms of my hands started feeling like they were burned and there were blisters on both little toes.

    Day 3: Still feeling pretty darn good, just slightly more tired. The burning is still in my hands and feet, but just slightly.

    Day 4: Crash. Super tired and as the day went on, developed flu syptoms, chills, achy head and legs. The aches were quite pronounced. This could be a first dose herceptin thing from what I have read though.

    Day 5: Flu symptoms mostly gone, ut the tiredness is awful awful. Sleep doesn't seem to help.

    That's where I'm at so far. I really hope my days 4 and 5 are not like this everytime because it really sucks. The first days were great though. Hoping I go back to great before my round 2

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  • homeschool4us
    homeschool4us Member Posts: 255
    edited December 2015

    Tina, I hope you feel well for Christmas too. So glad you are almost done!

    Mamabexar, wow! You made it to 11 and that is great!! I hope you get back to normal soon. How are you feeling right now?

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  • MamaBexar
    MamaBexar Member Posts: 102
    edited December 2015

    Homeschool- I am feeling very tired but not sick. I am sleeping about 14 hours a day.

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  • TinaB71
    TinaB71 Member Posts: 17
    edited December 2015

    @homeschool4us , many thanks for you nice post☺

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  • PatRN10
    PatRN10 Member Posts: 332
    edited December 2015

    Hello everyone.

    I hope all the hospital ladies are on the mend. Finished my last TC on 12/10 but this one hit hard and just back to work today. Still so tired but I needed to get out of the house ;0). Hope everyone has a great week!


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  • Jclc83
    Jclc83 Member Posts: 246
    edited December 2015

    Pat congrats on finishing chemo!!!

    Round 4 hit me hard too and I have two more to go! Now I have a cold on top of it. Tomorrow I have a body scan.Sad to say that I forgot what feeling good and being happy feels like. Soon, though, soon.

    Happy holidays to all.

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  • PatRN10
    PatRN10 Member Posts: 332
    edited December 2015

    Jclc83, Best wishes for the scan and that you feel better from the cold.

    Heart

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  • Kimmer33
    Kimmer33 Member Posts: 386
    edited December 2015

    hi all!

    Just an update on me - pneumonia is improving and antibiotics finished and was able to have my 2nd taxol infusion last friday. I had an allergic reaction 11 mins into the infusion, so that made it super interesting. Other than a bit of bone/muscle pain today, and some fatigue, not feeling bad at all.

    I hope all of you have a great Christmas, with thoughts of a healthy and stronger new year!

    Kim

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  • TinaB71
    TinaB71 Member Posts: 17
    edited December 2015

    hurra, war mein letzter EG gestern. Ich bin so glücklich, dass das erste teil ist zu Ende.

    Ich wünsche euch viel kraft und Frohe Weihnachten für Sie und Ihre Familie.


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  • homeschool4us
    homeschool4us Member Posts: 255
    edited December 2015

    Yay for your last chemo, PatRN!

    Jclc83, I really hope you get a good day soon. ((Hugs))

    Kim, so sorry about the reaction, but glad you are starting to feel better.

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  • homeschool4us
    homeschool4us Member Posts: 255
    edited December 2015

    2nd taxol done amd no reactions. However, my port did not behave at all. It added an extra hour to everything because they couldn't get return blood flow.

    I also found out my herceptin and perjeta are only every 3rd week. How I didn't knownthis, I have no idea!

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  • ncsue927
    ncsue927 Member Posts: 57
    edited December 2015

    This last dose of AC has really set me back. I had my last dose two weeks ago, so I thought I would be feeling pretty good this week and I was very excited about that as my son was here from NY. I started running a fever a week ago, my MO put me on Cipro and Amoxicillin. That tore up my gut and I had the big D with avengence. And after almost a week, I still had a fever. I have had every single side effect this past two weeks that I have had the entire time on AC. Plus one that I didn't have before. I finally got my white count back up and today my fever seems to be gone. I had blood cultures drawn today to see if I have a line infection and I did a c Diff culture today, which I'm guessing will be negative now that I don't have a fever. I just can't seem to get past this last hurdle of AC! My MO assures me that the weekly Taxol will be nothing compared to what I have been through. I sure hope he's right!

    Happy Holidays to all. I hope you all have days of feeling well with minimal SEs.

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  • biscuits
    biscuits Member Posts: 3,304
    edited December 2015

    Celebrating the best Christmas gift of all...today was my final TC infusion! Woo-Hoo! Now I can think about moving on in a few weeks and starting the rads process. Hoping all is well with all the ladies and wishing all a Happy Holiday with few, or no, SE's

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  • Jclc83
    Jclc83 Member Posts: 246
    edited December 2015

    congrats biscuits!! A great holiday present indeed.

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  • Smurfette26
    Smurfette26 Member Posts: 730
    edited December 2015

    That's great biscuits. Congrats.

    I had number 3 yesterday. 75% done.

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  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited December 2015

    Woot, biscuits~! I hope you have the loveliest Christmas ever.


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  • Jclc83
    Jclc83 Member Posts: 246
    edited December 2015

    You're almost done Smurfette. Time flies when you're having fun! Happy Holidays.

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  • biscuits
    biscuits Member Posts: 3,304
    edited December 2015

    Smurfette: You've turned the corner! You are almost there. Hope this is an easier one for you. Number three infusion wasn't bad, but everyone is different, so hoping for the best for you

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  • Smurfette26
    Smurfette26 Member Posts: 730
    edited December 2015

    Thanks for the encouragement and support Jclc83 & biscuits. Need it, feeling a bit flat this morning after a restless night.

    Having a very quiet holiday. Just hubby and I. My son lives 2 hours away but he and his family are heading down the coast to have Xmas with his partners family this year. It's their turn. My daughter lives 4 hours drive away. We were planning on having the holiday with them but have cancelled our plans as I will be more comfortable at home if I'm not feeling well. We all shared a beautiful family day together last Saturday as it was my grand daughters 2nd Birthday and have another family get together organised for my daughters B'Day later in January so not missing out altogether.

    Wishing everyone a happy and safe holiday season. May you share a joyous and peaceful time with those you hold dear. Love and hugs to all, Donna. xx xx

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