Surgery Next Week

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Eliz1973
Eliz1973 Member Posts: 46

Hi All,

So I have spent the past month hoping this was a mistake and that it was not really happening. Not a very mature approach, but hopeful....

I have Stage 1 breast cancer and I am 42 years old. No family history, negative BRACA1 & 2, no lumps to the touch; just "bad luck" says the dr.... Good news; we caught it early and its hormone responsive. Somehow I do not feel "lucky" about a double mastectomy and a sentinel node biopsy. I have read and cannot agree more that there is not an easy cancer... It all stinks!

I'm nervous for this procedure, I'm disappointed that I cannot have reconstructive at the same time and I am frustrated that this has moved into my life and taken up space. My daughter is a senior in high school, her sister a junior, and their brother 12. I have thought of how wonderful this time would be with my girls for years and now this... Definitely not part of the plan!

My mom is my hero, my right hand and and my nurse. She will stop her life, move in and take care of myself and my children through this valley.

I am excited to see what I will learn and how I will grow from this experience. What does God have in store for me? That is exciting.... And Scary...

In my mind I can't help but think; how will it look? How much pain will I be in? How debilitating will this be? Additionally, what if the lymph nodes are positive? What if the cancer has spread beyond he tissue?

I know al of these questions cannot be answered with certainty, but I also know, someone has to be feeling/ or have felt the same way I am.

Through all the fear and uncertainty where to you find the positivity and the strength to fight, be strong and be that ideal influence to your children during a tough time in life?

Thank you for listening and allowing me to lay it all out.....

God Bless All of You in this Fight

Elizabeth

Comments

  • Kiks1
    Kiks1 Member Posts: 254
    edited December 2015

    Elizabeth, BIG HUGS to you. I understand your fear completely. I am in the same boat. I have my surgery scheduled on the 17th next week for BMX. My oncologist didn't say it was early stage but he is hopeful ( as I am) that it will turn out to be. So nervous. I hate tests but I hate getting results even more. So far the us, mri, and petscan shows no lymph node involvement or evidence of spread and the mass is about 1.9cm but I am still worried that surgery will show much more. What if the lymph nodes are affected and so what if they aren't. That is still not a guarantee of no recurrences. I am ER+ but only weakly PR+ ( found out it is only 1%) and the HER status is still not in yet, it is Grade 2 and I have a ki67 score of 8%. Still trying to digest everything.

    Like you, my daughter is a junior in high school and just 3 weeks ago we were planning college visits. I am 49 and I see so many much younger that are affected ( how do they deal with it, so much stronger than I). I had no family history and in fact my 79 year mother is still healthy and my maternal grandmother pass when she was 101 in her sleep. My Dad did pass away at 50 but from a brain tumor ( do not know if there is a correlation).

    I am also nervous about the surgery. Don't know what to expect- how painful, how will I react. I have chosen not to have reconstruction ( just a personal choice) since my breast are of little importance to me. Keep wondering how my life will change. Will I be able to really, really, laugh again. When I look at my daughter, will I always be sad? I think that is the hardest part for me. I am so frighten. Please keep in touch, maybe we can walk this road together.


  • Eliz1973
    Eliz1973 Member Posts: 46
    edited December 2015

    kiks1, I would love to Hug u! My surgery is also the 17th next week. I am ER+ too. I know I will be taking estrogen inhibitors the rest of my life. I have been told tomoxifin for 5 years. Any radiation and/or chemo plans are up in the air until we get lymph node results.

    I too look forward to the day I can really laugh and not have this cloud hanging over myself and my family. I have a friend who overcame stage 3 about 3 years ago and she has told me it takes time, but eventually you wake up and it's not all you see. It just feels like right now it swallows up your life and that is all consuming.

    I read a really good article about a survivor who went into surgery saying, "Let the healing begin!" She said it was the first thing she said after she woke from surgery and it gave her the courage to face it all on a positive note. Every moment of everyday and every pain she felt was one step closer to being healed! I thought that was so brave and positive. :)

    I look forward to hearing how this goes for you and your family. Thank you for letting me know I'm not alone and crazy! God Bless you in this journey

    Elizabeth


  • BethL
    BethL Member Posts: 286
    edited December 2015

    elizabeth- if you haven't already, look on the December surgery thread. I went through this 10 years ago at the age of 38 with 4 boys ages 14, 13, 5 and 2. I had a lumpectomy and rads. My 2 youngest were too young to u derstand, and don't remember. I thought they were spared, now I'm dealing with a 2nd go round. And their dad and i divorced a few years ago. My 2 oldest are on their own so its just us 3. Had bmx last friday and tissue expanders placed. I thought I would wake up with some fill, but it turned out the skin was too tight. So the tes were placed but no fills yet. Hard to look at, but we are stronger than we give ourselves credit for. my mom is staying with us another week and I know this will pass. I keep saying by summer.....

    Hugs. You're not alone.

  • Eliz1973
    Eliz1973 Member Posts: 46
    edited December 2015

    BethL,

    Thank you for the encouragement! You are so strong to have to face this twice. It's too much for anyone to have to deal with once! God Bless you in your recovery. Please keep me posted with your healing process.

    Elizabeth

  • rovnic13
    rovnic13 Member Posts: 26
    edited December 2015

    Hi Elizabeth,

    So sorry that you are going through this. My thoughts and prayers are with you.

    I know exactly how you are feeling. I found my cancer through self breast exam. It seemed so surreal to me and it was like a whirlwind. I found out in June that I had cancer, very early stage, bilateral mastectomy with tissue expanders in August and tissue expander exchange surgery 12/10/2015. I am recovering now.

    I am 49 yrs old with 3 children 24, 22 and my 18 yr old daughter who started college this year as well. My husband and my children are my life! I am so blessed to have him by my side. He has been my rock.

    I must admit I never have said why me? I just wanted to take care of this and get the cancer out of my body.

    I have had several breakdowns. Fear was tremendous for me. I didn't know if I could actually go through with the surgery. My head was spinning out of control. Thinking about everything that I have, could happen, could go wrong. I was a wreck!

    I have no clue where it came from but you do get this strength. I didn't want the cancer to defy my life. I went to work, continued with my daily activities. The strength became stronger. I think I didn't want my kids freaking out so I down played the entire process for them. I lived for them.

    I was in the hospital overnight for the bmx. My husband stayed with me. The pain was pretty bad. Each day you do feel a little better. It's amazing when the dr. says 6 week recovery because by the 6th week you do feel so much better.

    I will say, the first time I saw myself I lost it for about a half hour. I was a mess. The more you look in the mirror and know the cancer is gone the more you get used to it.

    The tissue expanders were uncomfortable. Not sure if I would have done the reconstruction process looking back now. To late now. I have the permanent implants and recovering all over again. The recovery this time around is nothing compared to the bmx recovery but it's still recovery.

    I look back now, amazed I went through this all. You have to be positive, I was very positive. I LOVE LIFE so much. There is so much I want to see and do. I think this is what keeps me going.

    Wishing you and Kiks1 all the best on the 17th. You will both be in my thoughts and prayers.

    You will laugh again. I guarantee it!

    XOXO

  • Kiks1
    Kiks1 Member Posts: 254
    edited December 2015

    Rovnic, thank you so much for the kind reassurances. Every step of the journey has been challenging. Thank god for xanax! 

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