TRIPLE POSITIVE GROUP

I am doing well, just trying to stay quiet and hope that my drains are at 30ml on Monday, so I can lose them!  I don't have much pain, not enough to take any meds. We are all cautiously optimistic that this can work - it is my last try.

jersey - thanks!  I am doing well!

Yay, SpecialK!!

Congrat Special K!! Wow, I don't feel so bad that I had to have 3 different implant surgeries. My final ones still shifted, but since the implants are round it is not as noticeable..... My nipple reconstruction worked....apparently they fail more often than succeed...and have to be redone. Next up, nipple tattoo's...scheduled for Feb.

I truly hope the rest of your reconstruction goes smoothly!!!

Twiggy I don't believe I got a nuelasta after my last chemo. Wish I had. Got serious case of shingles 2-3 months after my last chemo.

Oh geez - need advice. I started chemo last week, strictly due to my her2+ status. Then today in the mail, my original oncology office (I switched) sent me a paper copy of my oncotype results. OMG it says I am Her2 -. My oncotype result is 13. ER score is 9.8 positive. PR score is 8.4 positive, and Her2 score is 10.3 negative. What on earth do I do now?!?! I really don't want to keep doing chemo if I don't have to! My Her2 score was originally done by IHC and was equivovcal (2+). Then the FISH test they said was positive (2.0). What do I do? I am calling the doctor's offices in the morning (new and old) as it is 5p here and basically phone line is answered until 4:30 (of course)!

Sammy - I agree with Lago - you need to be sure nothing was mixed up, but if the results are all really yours, FISH trumps the initial test. It is SO frustrating when they do this - convey confusing info when you can't contact anyone to clarify. We have enough real stuff to worry about without having to stress over poor information!

Lago - I am encouraged about your eventual improvement in neuropathy!!! I know there are no guarantees, but it helps to know it did happen to someone! Thanks for sharing.

Ang - yayyy! Love the survivor stories!

Re people with no AI side effects - there are actually quite a few. Sula on this thread has had none so far, at least as of last time I talked with her. There is a thread for older women I looked at, and there were many on AIs with no issues. I'm guessing those of us who were pre-menopausal or on HRT at diagnosis and thus went from 60 mph to zero abruptly have more trouble.

TTfan I was surprised too. As I'm sitting keystroking this message I realize that I currently don't feel any neuropathy in my heel. Granted there are times when I get a little discomfort due to weather but right now it's 100% fine.

TTfan,

Yep still doing fine on the arimidex. My docs think because I was thrown into chemopause 25 years ago back in my 30's nothing much would change and so nothing has....so far.

Thanks for the replies about my Her2 status. I don't know - still waiting to call. However, basically I have had 3 tests on it - 3 different results (IHC = equivocal, Fish = positive, oncotype = negative). I am not convinced you guys. I have honestly had this gut feeling that I am not her2 positive. I will let you know what I find out.

My friend kayb has a post with a survey gathering data, approved by the mods.  Here it is:

https://community.breastcancer.org/forum/73/topics/838506?page=1#post_4581053

Boy, do I wish that the info on carboplatin had been available back in August when I started chemo. I took all six rounds of it, and I'm convinced that it's the one causing my fatigue/anemia, 3 weeks PFC!

Do any of you have a guess for how long it will be before the heavy legs, anemic, gross feeling goes away? My MO said six weeks. . . And six weeks PFC, I'll be back on the operating table for my prophylactic MX. I hope this isn't a mistake.

One more thing, given all this talk about pathology: I had two tumors, and only one was tested. Should I ask my surgeon to test the other one, or just let it go?

I'm another one that doesn't have side effects from an AI (Anastrozole). Granted I've only been on it since April so who knows what will happen down the road. I was premenopausal (getting Zoladex) until September when I had my ooph.

KateB79, I agree with you, wish I had the Carbo info in late July when I started chemo... I, too, am convinced it's partially responsible for my fatigue/anemia and also what led to a blood transfusion at round 4/5.... I think the Taxotere is responsible for my PN in my feet and finger tips... Grrrr... I will say that at 6 weeks PFC I felt great, then had BMX, but it's a totally different recovery, as SpecialK mentioned, so you'll be right as rain in no time! Although, you've had one go around in theMX arena and know what to expect.

I was reading through my Pathology report yesterday (I had just requested it from the MO) and was wondering about Lymphovascular Invasion. Has anyone been diagnosed with this? I have isolated tumor cells (largest being 0.11mm) that are present in sub capsular sinus and in a lymphatic immediately adjacent to lymph node. It also states - Left axillary sentinel lymph node: One lymph node containing isolated tumor cells. (I am quoting directly from my Pathology Report.) I am confused because I was told my sentinel lymph node was uninvolved. My MO didn't seem too concerned about this and mentioned something about the possibility the isolated tumor cells could have actually moved during surgery. Has anyone heard of this? I'm thinking about getting a second opinion on my whole treatment plan. I like my MO but feel I need to have my whole diagnosis and treatment re-evaluated. My staging is pT2 pN0 (i+) (sn). I wasn't staged with the normal I, II, II, A, B, C. Very confused and was hoping someone could shed some light on this particular topic. Thanks so much.