Starting Chemo March 2015

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  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    I have some hip pain with tamoxifen. A warm sitz bath and a memory foam pad under it help a lot for sleep.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited December 2015

    I just noticed Sharon's pic is at the top of the page, in the banner for the donation drive.

    Anyone else see this? Or is it a blasted cookie of some kind?


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  • DavisD
    DavisD Member Posts: 338
    edited December 2015

    Katy I have some similar concerns about Tamoxifen and only took it for about a week...I was having serious hot flashes, more so than usual. I also struggle with the mood issues but mine is more on the depression side..I think I was also just scared of what it might do to my mood. I am also only 25% ER/PR positive so I just wonder if it is really even worth it. As far as the discussion about quality of life...you know I talked about the very same think about a month ago. You really understood me and that meant so much. Please know that I believe you will pull out of this, for what that's worth. I'm doing my version of "praying" that your liver issues will resolve and your mood will be lifted. You are loved and respected here :)

    Sharon-so glad you got good news! Keep wearing those dresses, you are pretty!

    Karen-I'm sorry I can't remember when you will know something but I'm sending you my most positive thoughts. I can't believe you're having to deal with this....

    Bekah-It sounds like you're back on track. This past year has been a blur for me and I can't remember parts of it either!

    ksusan-good point

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  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    Hello Amy. Great to see you back here.

    Thanks everyone I hope this every one else gets good news this week too. I feel flat/exhausted today. I think it's just because I've been so stressed.

    Katy. Much heart breaks reading that, I know how much I DON'T want to do chemo again. I wish I could do something to help.


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  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    lol yes katy you may well have seen it. There is a thread asking for a photo and blurb for use in promoting BCO.

    https://community.breastcancer.org/forum/135/topics/834934?page=6#idx_165

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  • avmom
    avmom Member Posts: 324
    edited December 2015

    (((((Katy)))))

    There are no words, but I do understand what you are feeling. You are cared for by so many here, and have cared for so many of us.

    I'm trying to crawl out of this hole as well. I think it is important to give yourself time to heal. This year has been a crucible, and recovery takes time.

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  • KBeee
    KBeee Member Posts: 5,109
    edited December 2015

    I was in a bad place mentally this afternoon after DH left because he was out of town both of the last times I was diagnosed. It was like déjà vous. After a 4 mile walk and a craft project, I feel a bit better. The other side of this concrete piece is a fall decoration. I have been meaning to paint a snowman for a long time. Art therapy........ Done. Wednesday is my appointment. I will get no answers then. Most likely, he'll either do a fine needle aspiration (biopsy) or schedule a surgical one. Pros and cons to each. Anyway, at least I will be a step closer to answers (it's hard to write Christmas cards when I don't know if I should say I am cancer free and looking forward to saying goodbye to 2015, or please pray this is not my last Christmas..... writing Christmas cards was on my to-do list this week, but it's been put off for a bit.) Tomorrow I have blood draw to send to see if I have the same genetic variant that my mom has. I'll find out in a few weeks. December will be full of surprises...just not the ones I was anticipating.

    image

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  • SueH58
    SueH58 Member Posts: 632
    edited December 2015

    Sharon - I'm so thrilled for you. What great news!

    Kbee - I really think the same news will be coming your way this week. I'm so sorry you're so stressed. I'll be waiting for the good news, so you can write your cards and report you're cancer free!

    Katy - What can I say? I'm so sorry for the emotional twist this has all taken on you. You are always in my thoughts and prayers.

    I was searching for a document today and came upon "Cancer Tips." It's so surreal that it was something I put together (as a result of all your advice). It's so wierd that it's a non-emotional memory. I wouldn't expect so. I guess it's nature's way of helping me to move on. Looking forward to putting 2015 behind me. We have celebrated New Year's with our best friends for probably 30 years. This year they promised to watch the grandkids, so we are on our own. I am sort of thankful - I think I will be very reflective this year and see the year out without a big hoopla, but a sigh of relief.

    What is everyone else doing for New Years?

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  • so-she-did
    so-she-did Member Posts: 202
    edited December 2015

    Wow, Karen, you have some talent! I had a vacuum assisted core biopsy done in my doctor's office. It is a middle ground between a fine needle biopsy and a surgical one. Might be something to consider.

    Sharon, I saw your picture as I logged on! Awesome!

    Katy, I started taking large doses of magnesium for depression after reading some scientific journal articles about the effect magnesium has on clinical depression. I don't know if it would be effective or even recommended at all for your individual situation but it might be something to run by your MO. The bonus is that it has really helped with hot flashes.

    Did Santa Yoga tonight at the hospital gym with my girls. They loved having Santa and his elf doing yoga poses with them.

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  • KBeee
    KBeee Member Posts: 5,109
    edited December 2015

    Amy, I was thinking about asking for that, of course it means surgeon letting radiologist do it.... Wonder if ego will get in the way. I will ask for pros and cons of each though and will want to know why he recommends one thing or another.

    Katy, hoping getting off the Tamoxifen really helps you to start feeling better.

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  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    I have bloodwork coming up at the end of the month, and nobody was planning to check my ALT/AST or Vitamin D, so I've asked to add them. Very uncool not to test ALT/AST after a few months of tamoxifen.

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  • rleepac
    rleepac Member Posts: 755
    edited December 2015

    I'm having a rough night, physically. I've been trudging along without any breast or arm pain since MX in Aug but tonight I think I overdid it. I don't know exactly what I did but my right breast and axilla is killing me! Mostly near the scar from the SNB. I'm not worried it's anything more than 'doing too much' but I do hope it doesn't progress to lymphedema.

    Please send prayers (or good thoughts if prayers aren't your thing) for my pain to go away and that it doesn't progress to LE.

    Beka


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  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    Do you have some anti-LE exercises to do? Gently opening and closing your elevated hand, gentle elbow pumps, dry brushing.

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  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    Man, what a whirlwind of insanity life is. Got home and daughter called, her father in law was found dead in his car of a heart attack. We have no idea how to tell the grandbabies, the boy Jack is 4 and 1/2, and he is going to have a hard time with it. I went over, she was crying, kids were upset because mommy was crying, sheer insanity. I have no words right now. I get a cancer diagnosis, her dad has a stroke, grandma hospitalized several times, and father in law dies, all in the same year. I feel terrible for her

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited December 2015

    T- I am so very sorry to hear this. I am thinking of you and your family tonight.

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  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    bekah, I'm sending you some pain reducing vibes. I'm hoping for you that LE doesn't develop.

    Theresa that is just so tragic. I'm so sorry.

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  • so-she-did
    so-she-did Member Posts: 202
    edited December 2015

    Sorry Theresa. When it rains, it pours. I will be thinking of your daughter and her family.

    Karen, my BS did my vacuum assist using ultrasound guidance. No radiologist involved.

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  • KBeee
    KBeee Member Posts: 5,109
    edited December 2015

    T, That's horrible. I am sorry your family is dealing with so much.

    Bekah, I hope the pain resolves. It is frustrating always wondering if LE will develop.

    Amy, Thanks for letting me know your BS did that. I will definitely ask

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  • avmom
    avmom Member Posts: 324
    edited December 2015

    (((((Theresa))))). I am so sorry to hear of your family tragedy.. Take care of each other

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  • Trvler
    Trvler Member Posts: 3,159
    edited December 2015

    Oh, Theresa. Wow. I am sorry.

    Bekah: I am hoping the pain is better this morning.

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  • eheinrich
    eheinrich Member Posts: 792
    edited December 2015

    T - I'm so sorry. What a cluster f*ck 2015 has been......

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  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    Seriously, isn't that the truth.

    Thanks everyone for your wishes and sympathy.

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  • rleepac
    rleepac Member Posts: 755
    edited December 2015

    T I'm so sorry! What a horrible loss. My DD was nearly 5 when her grandpa 'Cappaw' passed away. She took it pretty hard and cried herself to sleep for weeks because her grandparents were her daycare. Cappaw made her pancakes every morning and would run through the house slaying dragons with a clothes hanger. But kids are resilient and after a few weeks she did very well. She still misses him but it didn't destroy her.

    My prayers are with you and your family.

    Beka

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  • rleepac
    rleepac Member Posts: 755
    edited December 2015

    My breast/armpit still hurts this morning. It's like a burning pain. I'll try some of the LE exercises and hope for the best

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  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    I'm so sorry, Theresa.

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  • pboi
    pboi Member Posts: 663
    edited December 2015

    Theresa...I'm so sorry. Thinking of you and your family.

    PB

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  • IndyGal35
    IndyGal35 Member Posts: 340
    edited December 2015

    Geez, Theresa. What an awful year. I'm so sorry it just keeps piling on. :(

    Thinking of you guys today

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  • rleepac
    rleepac Member Posts: 755
    edited December 2015

    That's it! I've had it! I'm done!

    I'm so sick of feeling like I'm 100 years old!!!! I'm trying to get through a whole day at work but my body is revolting. My back, hips, and knees hurt. My head hurts. My stomach feels unsettled and this just sucks!

    I'm going to take a nap. Life will be better after a nap.

    Carry on...

    Bekah

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  • eheinrich
    eheinrich Member Posts: 792
    edited December 2015

    I think of naps as rebooting. Sort of like when your internet goes down so you unplug the router and then it works again.


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  • pboi
    pboi Member Posts: 663
    edited December 2015

    Bekah...so sorry you're having such a tough day. I know exactly what you mean about feeling 100, and I'm only in my 40s! I have insomnia issues and am so tired today, doubt I could nap and shouldn't in hopes I can sleep better tonight. Hoping a nap helps you feel better.

    PB

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