December 2015 Surgeries
Comments
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Oh Tasal, I hope there is someone who will be there to help you after surgery. I only had BMX, and I can't imagine being alone right now. Please find someone if you haven't already. If not, just make sure you have everything where you can reach it before you go in for surgery.
Many people with your type of surgery have stated that a recliner is best for sleeping in. If you have one you will probably use it for a while. Getting up is definitely difficult. Strengthen those leg muscles so you won't have to use your arms and abs so much when getting up and down.
I've only been home one night. I was most comfortable in bed using one of those bed chair cushions with a regular pillow in front of it. Tonight I will probably put a pillow under my knees as well.
Just have lots of pillows so that you can adjust as needed to find comfort.
I'm sure others will have some good advice for you.
Best of luck.
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MrsGreenJeans I'm happy to hear you are home now and beginning recovery. I will have my mother here with me in my home after my hospital stay. She actually went through the same procedure as myself (she was one of the first women to ever have an attached tram flap by the doctor who invented the procedure) though her surgery was over 33 years ago so things have changed and she doesn't quite remember all the little things. Wishing you all the best.
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I am wondering about undies too (I am having a DIEP) and as well how to get myself up out of bed or a chair... Yikes. I forgot to ask at my pre-op
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I found this, which basic means really big or really soft...
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Tasal, I am much relieved that your mother will be there for you. I hope you find some helpful suggestions as to your concerns.
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Thanks for that link NJ-Jen! Let me know if you've figured out any of the other questions I presented too. Are you getting silky pajamas? Haven't a horrible time finding any pants that don't have elastic waist that I can leave undone... Sending good vibes your way!!!
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MrsGreenJeans - Yes, I'm lucky to have her coming to stay with me for a bit. Hope you are comfortable and doing well.
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Surgery went well on Monday. I'm sorry it took my a bit to get online... I had Facebook while in hospital and was able to post to a couple of you, but couldn't get to the BSO site on my phone. I was trying my best to follow doctors orders and rest (hard for me!) while in hospital. I was up and walking around Monday night after surgery, and I took the meds they gave me in hospital as they made me do it... However, it was fine and it counteracted and got ahead of any pain twinges that may have wanted to start.
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Glad to hear Jerseygirl. I always found walking helped me post abdominal surgeries but I don't know how I am going to get up with both arms messed up. Bleah
Tasal, I just got cotton drawstring pajamas... I did not think satin and I hope I don't regret it. I did get button down. I did find cheap yoga pants at Walmart that were $10 and light and no elastic. Got a larger size. Hope to use this to come home from hospital.
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NJ-Jen - don't sweat the satin pj's as I've looked everywhere under the sun and then some and haven't found any luck finding any that weren't elastic waistband so I don't have them either. Might grab myself a knee length satin button up pajama shirt instead and forget the pants all together! Met with some gals today and they sold me not to worry about the undies as I'b be wearing some mesh things that the hospital would give me for the first few weeks. Wasn't happy when they told me about the compression pants from my calves to just below my breast. Apparently they think I'll be wearing that for 10-12 days (it does have a little cut out to go to the bathroom). Sounds horribly uncomfortable and I suppose my mother's going to be seeing more of my bits and pieces than I'd planned on- as I certainly don't think I"ll be able to pull that up with the bilateral and lymph node.... fun! I'm really horrible at these posts- but everyone on here reading this is in my thoughts and sending good vibes to you all. xo
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My doc said they would not do compression as it put too much pressure on the flap... I a, getting a diep and I though I would be getting all the compression stuff too... We shall see. I find the blow up booties annoying in the hospital and they keep me awake so I am always happy when I can walk and get those off
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NJ-Jen, I hated those blow up booties, too! They were such a pain! As soon as they told me to get up and sit in the chair or walk around, I was doing it...
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mastectomy December 17th,
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Is the left one, how many days do they normally keep you in the hospital? I live in Spain and here they tend to keep you longer in the hospital, like a week for a c section instead of the 2 days I stayedwhen I had my kids in the states.
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Konakona I had my mastectomy (Right) on a Friday afternoon and went home the following Monday morning. So 3 nights.
Thought it was a good length of time for me. I was ready to go home.
Good luck with your surgery.
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Konakona, I had bilateral mastectomy on a Wednesday and went home the next day, only one night in the hospital. The best thing about going home so soon was not being woken every 2 hours for my stats to be checked.
Lol, I loved the pressure boots, it felt soothing to me!!
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Oh wow, the swelling. The sports bra I bought was a little loose. Not anymore. And since my sentinel nodes were in my armpit, that area is tender with the bra right under it.
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I am being kept in 3-5 days but I may be longer mostly due to my other health conditions.
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thinking of you, NJ Jen. Hope all goes well
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Ok so I am more of a lurker as found the site later in my treatment so mainly been reading. I am have a mastectomy (left) on 12/29/15. Way to ring in the new year. Started with a lumpectomy in July but since no clean margins they recommend the mastectomy. I am currently not doing reconstruction so how long can I expect for recovery. How long before they want you to lift your arm above your head? They are also doing a ALND of the lymph nodes since the 2 removed in July were positive. I am hoping the chemo took care of anything left. Everyone has been so strong and such an inspiration. For those recovering good luck and for those with upcoming surgery I with think positive thoughts on each day.
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welcome duzy- so instead of thinking how you're ringing in the new year, think of it as leaving all bad behind with a fresh start! Sorry you're having to go through this, especially after having to go through surgery already this year. I had bmx and node removal with tissue expanders dec. 4th and came home 3 days later. I tend to take a long time coming out of anesthesia, I think most are around 2 days. I have 2 drains on each side and was told to not lift my arms until they came out. I'm guessing I've got another week or 2 before they come out, but many have had theirs removed much sooner. So recovery seems to be varied.
Glad you decided to join in. There are many great women here who can help.
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BethL - Thank you for the welcome and the information. I agree what a better way to look at it as leaving this behind and starting 2016 with a fresh start. I will still have radiation after surgery but I understand that is not as bad as the chemo treatment. Best of luck on getting your remaining drains out and healing well.
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Duzy, welcome... I agree with BethL, look at it as leaving all of the bad behind...
I did not have reconstruction, had BMX on Nov. 30th, drain came out on Friday... That said, I'm told to go slowly with the exercises, doing them several times daily, until I can reach over my head. They don't want any incisions opening up, especially since I have them glued, not stitched, and they took the steri-strips off when they took out my drains...
Go easy on yourself and rest as much as possible.
To all of my warrior sisters having surgery today, prayers going up!!!!
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Duzy, welcome, and best wishes to you. I am in Michigan as well! I will add you to the upcoming surgery list in the other December thread.
I had BMX with tissue expanders on 12/2. Went home the next day. It is my understanding that recovery is quicker when there is no reconstruction involved, so hopefully your recovery will not be too long.
I don't do well with anesthesia, so it was 9 days before the effects wore off enough to begin feeling like myself. With reconstruction you are under anesthesia much longer, about 6 hours for me. Each day (after the first few) I was able to move my arms a bit more. Last night was the first time that I took a shower without my husband's help, I could finally reach the top of my head to shampoo my hair!! (well, with one arm, anyway). I still can't reach things that are high up in my cupboard, but I have been able to lift things that I probably shouldn't have.
I still wear out easily, and haven't left the house except to go to the surgeon's office. But I do have problems with lightheadedness that not everyone gets.
As others have stated, recovery is different for everyone.
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MrsGreenJeans, Isn't that first shower without help a blast!?! It felt go good not to have to ask for help getting out of the shower, and the new exercises they gave me help me dry my back, so that was great, too! I, too, have better use of one arm than they other, since I had sentinel and axillary node removal on right side along with the mastectomy. That part I'm not liking so much. The weird numb feeling under my arm, and having to ease up when reaching or picking things up with that arm...grrr... Still. I'm cancer free, and moving forward toward rads and finishing Herceptin, so I'll take moving slowly to get where I need to be. I don't have hair, only peach fuzz, as I had chemo before surgery, but being able to reach up and wash my fuzz was great!
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MrsGreenJeans - Thank you for the information. I think I will have a little bit easier time since I am only doing the left side with no reconstruction. Unfortunately my left is my dominant hand so that will be a little harder. I did just realize there were two December threads so I will be sure to follow everyone on there. Everyone provides such positive input. What part of Michigan are you from?
Jerseygirl2 - I believe the surgeon said she will use glue also so I will remember that. Do they give you the exercises to do when you check out from the hospital? How far out are you from Chemo. I had a different regimen but I am 4 weeks this week and can just start to see some dark shadows and a little bit of fuss in the back.
I hope you both take it easy and continue to get stronger each day.
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Myright arm keeps trying to go to sleep. I think it is from swelling cutting off circulation from the node incision. Anyone else have that?
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My arm doesn't go to sleep, but the under side from my arm pit half way down to my elbow is very numb. I had a sentinel node biopsy 10 years ago and had the same thing happen. Most of the sensation came back, but not all. I would mention this to your doctor, but assume it's probably under the normal umbrella. Make sure you're getting good blood supply. When you press on your nail beds, do they refill immediately? Check next time your arm falls asleep. May need to elevate your arm on pillows, especially when yours sleeping. I have found that under my arms gets swollen over night, feels weird-like huge balls of cotton under them.
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I'm in Michigan, too.
After my first MX in July, I woke up in the hallway on the way to recovery and started having conversations with random people (or so I'm told). I only had one drain, and it was out within a week--I was lucky.
I'm still feeling pretty hit from chemo and hoping that I get some strength back before they put me under again. . . . Also hoping for only one drain and quick healing before rads!
Has anyone had scar revision surgery? Any ideas whether they'll stick a drain back on that side, too? I sure hope not!
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Duzy, I had chemo first, as my tumor was 7cm, so they did that to shrink it. My last chemo was Nov. 10th and I have a lot of fuzz on my head right now, and it seems to be coming in fast, however, I start Herceptin only on the 21st, we'll see it it slows growth or not. The exercises they gave me were when I got my drains out. Until I went in for drain removal, they didn't want me to raise my arms higher that straight out to the sides, and nowhere above my head. With the exercises, they want me to progress slowly so that I won't impede progress, but gain strength and range of motion. I have rads next and need to be able to raise my arm over my head without a problem...
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