Winter 2015-16 RADS

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  • Jabe
    Jabe Member Posts: 185
    edited December 2015

    starting today and mighty nervous though I know the actual process will be fine--just one more thing in this journey and it makes me a bit sad again. Trying to remind myself it's for lots of good!

  • Natejordlee
    Natejordlee Member Posts: 61
    edited December 2015

    Hello Ladies ! I should be starting in January , 5 weeks ( 25 treatments). I have my CT scan scheduled for December 14th to get my mold and markings done. Wishing you all the best !

  • Shopgal2
    Shopgal2 Member Posts: 649
    edited December 2015

    good luck today Jabe. Let us know on the sept boards how it went.

    Octo that sucks about the delay. I was wondering how it went for you yesterday.

  • KCinMN
    KCinMN Member Posts: 81
    edited December 2015

    Sloan - thanks for sharing your pics and experience. It's so nice to hear positive stories about treatment! We obviously never know how things are gonna go for each of us, but here's hoping we can all stay encouraged!

    Octogirl - I hope you slept in! :)

    Shopgal - cute avatar!!!

    Welcome to all the new ladies joining in!

    I had my Sim pushed a back a week later... They wanted to squeeze in another fill (tissue expanders) before I start. So that means I'll likely start my real treatments the week of Christmas (the 21st). Merry Christmas to me! Lol! As long as it does what it's supposed to do...

    Where does everyone go for their Rads? How far? I ask, only because I know some travel farther than others depending on where you live. And it's interesting to me, since we have to go daily!

    I have to drive about an hour each way. I'm in MN, and travel into Minneapolis. There are closer places to me, but not under my same network. Plus, I have to have treatment to midline and 'something else' (can't remember)which they don't always like to do at all places near me anyway... Plus, I like my Rad Onc a lot, so sticking with her... It wouldn't be so bad of a drive, except that we've hit WINTER and SNOW here. So it could make for an interesting 33 treatments.

  • El_Tigre
    El_Tigre Member Posts: 520
    edited December 2015

    KCinMN - I'm spoiled I'm in Portland and I work 15 min from the tram that goes up to the hospital where I'll get my rads. I wish every one was as close as I am, after reading how far some have to travel. But it's all worth it!

  • Molly50
    Molly50 Member Posts: 3,773
    edited December 2015

    I'm 4 treatments from finishing. Let me know if any of you who have had mx have any questions. I found it comforting when the summer rads ladies who had mx answered my questions. Because of the large field of radiation and number of bolus I had my skin didn't hold up as well as Sloan so I am glad you are seeing both sides of the equation. Even so let me assure you that this is all doable.

  • El_Tigre
    El_Tigre Member Posts: 520
    edited December 2015

    Molly - how did your reconstruction hold up? I have expanders as well and they say that my left side could shrink or move or even worst case reopen the incision.

  • octogirl
    octogirl Member Posts: 2,804
    edited December 2015

    Morning all! I slept till 6:30...which for me is sleeping in.....

    It is about 35 to 45 minutes drive each way to my rads location, depending on traffic....I live in a semi-rural area, and that is the second closest location to me. The closest is only a mile and a half....which would have been fabulous. Unfortunately, I was not completely comfortable with the RO, and my MO and his staff weren't at all enthusiastic....and encouraged me to go to the one I chose. I was happy with my choice until the last minute cancellation, but I guess stuff happens. Would have been nice to get some reason: I mean, if everyone of staff got the flu, that would be a good reason to cancel apts., but it is a little annoying to be cancelled with no apology and no reason.....all right, I am done whining. Will let you all know how the sim Monday goes.

    Fortunately, we don't get snow here, which is a good thing given it isn't a short drive...

    Octogirl

  • Creativevintage
    Creativevintage Member Posts: 76
    edited December 2015

    KCinMinn, I get my rads at work. I work at Mayo Clinic Jacksonville. I get my rads at 8:00 every morning and then go right into the office. I have made arrangements to work part time if I start to get fatigue. Yesterday was my first treatment and I was a little suprised that my treated breast was a bit sore and achey last night. It's too soon, isn't it? Maybe it was just referred pain from my SNB site. It was healing nicely, but it is a bit sore today and the lump that was slowly going away has gotten a bit bigger. I am getting my treatments laying on my stomach and I had to lay on the table with my arms out in front of me for over an hour and a half yesterday.

  • gargengirl09
    gargengirl09 Member Posts: 46
    edited December 2015

    Hi all,

    Started my radiation on Monday. 33 treatments in all, so I'll finish in mid-January. Fortunately, it's only about a 15 minute drive. I'm getting radiation to three spots; where the tumor was, where the lymph nodes were removed under my arm, and above the tumor site (chest/neck area).

    Creativevintage-I also felt some soreness after my treatments, especially in the evening. The Radiation Oncologist said that occurs in a small percentage of people. It felt like an internal sunburn? Crazy description I know. :-)

    Mdoc-hope you are feeling well. So great that you had dinner made for you! If it weren't for friends and family bringing us meals throughout my chemo, we would have lived on cereal! I am also a twin. I have a fraternal twin sister! She's been great through this!


  • Molly50
    Molly50 Member Posts: 3,773
    edited December 2015

    El Tigre, so far my TE hasn't moved. It has created some extra irritation when my skin started getting really red probably due to shrinkage. It pokes me in the most sensitive areas near my underarm but even that feels better this morning. My PS is following me closely at this point. My incision has held up beautifully. I used calendula cream for two weeks prior to radiation to soften up my skills because it looked so ugly after the bandage came off.

  • El_Tigre
    El_Tigre Member Posts: 520
    edited December 2015

    Thanks Molly, I'll try that. My skin is slightly tight but fully healed at this point. Maybe I can soften the skin in case TE migrates north lol.

  • Molly50
    Molly50 Member Posts: 3,773
    edited December 2015

    Of course that should have said soften up my SKIN. Ugh my phone always autocorrects me!!

  • marijen
    marijen Member Posts: 3,731
    edited December 2015

    Molly, I turn that function off, on computer, phone, and ipad. I thought you meant scars.... : )

  • mdoc524
    mdoc524 Member Posts: 336
    edited December 2015

    Hello All - been offline since Sunday - got that Nasty Upper Respiratory Virus last week that got worse over the last few days - finally got antibiotic ... love all the sharing on the thread - thank you all!

    Welcome Welcome Barbara, Zelda33, CreativeVintage, El_Tigre, sbeddows123, rhp268 & natejordlee -sad that you are here and to see so many in a few days but glad you found us .. we will get thru RADS together.

    mfanders - hope all went well today and so hope the accelated 3-4 weeks plays out for you! Hugs!

    Jhmom0f4- not sure if you found alcohol-free aloe - if not I recommend Amazon - did you start this week - hope all went well!

    PattyMeg - I had BMX in May and left side dropped low during chemo so I wear Front Zip close Danskin Sports Bra's 24x7- hoping these will not be an issue during RADs - will find out soon! Let me know if you find out anything

    CreativeVintage -thanks for sharing how Day 1 went for you and it is OK to get emotional - I try and tell myself that everyday as I try to show everyone how strong I am almost so that I forget I am human and this really stinks!!

    RearviewMirror - thanks for sharing - hope it get better for you!

    Sloan15 - how brave to share your pic .. thanks so much - good to know it is not so bad- Congrats on finishing!

    El_Tigre - got the same nerves about reconstruction and rads here too.. I had my BMX in May so fully healed but my left side dropped and PS said he won't touch anything until 3 months after RADS so I will be living with my TE's for a full year .. hoping RADs does not do too much perm damage ... I am not working now as I finish chemo but I plan to work full-time thru RADs

    Octgirl - stinks you were rescheduled and waiting/wanting treatment to move forward I think is one of the hardest parts. My chemo was delayed 2x for complications so good reason however I would have ended chemo before Christmas and due to delays I have to go straight thru the holiday with it .. stinks but could be worse I keep telling myself.. hope you have no more delays!!

    sbeddows - good luck with your BMX on 12/14 .. I did not find it as hard as I thought it would be..

    Jabe - hope all went well today!! HUGS

    KCinMN - sorry you were pushed out a week ... I live in snow area (about 50 miles north of Philadelphia toward the PA Pocono Mountains) and will be traveling 30-40 minutes each way to RADs .. funny I was just thinking the other day when going for chemo to same loc - if we have same winter as last 2 years it will be interesting trying to get there everyday... makes me nervous.

    Molly50 - hope your last 4 treatments go well!! Sorry not so great for you! I had BMX with TE's - are there any tips or things that are different for those with TE's ??

    gargengirl - hope all went well with your start on Monday - hugs to you! Twin thing - very cool!! My twin brother is my BFF!! How am I feeling - my standard answer is "hanging in there" with 5 Taxol treatments left - has been pretty rough (Allergic Rash to TaxolNeuropathy, Extreme fatigue, Stomach - eh, Allerbut so glad I am close to the end! Just do not want anymore chemo delays so fingers crossed!

    Have a great rest of the week!

    Mary

  • Jabe
    Jabe Member Posts: 185
    edited December 2015

    hi all! I had my first radiation today. It was easy and they had even scheduled me with the massage therapist who is there on Wednesdays which was AMAZING! My breast does feel a bit sore, which surprises me, but it sounds like others have had the same thing. Trying to figure out whether to keep this cut up t shirt under bra or try a camisole with shelf-bra under the bra or none. It feels a bit chafing right now. Recommendations

  • PattyMeg
    PattyMeg Member Posts: 56
    edited December 2015

    El Tigre, my cousin worked through her rads. She is on her last week; two more days to go! The first few weeks were no problem for her, but the last two have been rough, with fatigue and skin irritation, but she got through it. I'm planning on working, but I think I will see how it goes. I teach at a Head Start preschool, so a lot of picking up kids, sitting of the floor with them etc., If it gets too difficult towards the end, I will take a little time off. Good luck! Patty

  • Molly50
    Molly50 Member Posts: 3,773
    edited December 2015

    mdoc524, I have found the most important thing with rads and TE's is to keep on top of the ROM stretching. The skin shrinkage over the TE can make your pecs pretty tight. Jabe, I ended up buying a cotton bra that goes over my head two sizes too big so that it was just enough support to not flop around but no chaffing. I was wearing just a stretchy bra and it was leaving marks under my breast. The tech told me it was going to be a problem. I also did the cami under a bra which helped. At night I used large men's white t-shirts to bed so the aquaphor doesn't ruin my clothes.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited December 2015

    Dunno if I mentioned it here or on another thread, but the brand of alcohol/dye/fragrance-free 100% aloe gel I use is “Fruit of the Earth." 1/2 liter for eight bucks at the cancer center's pharmacy.

    I live on the far north side of Chicago (w/in city limits). Evanston is the next town, immediately over the city line. I went to NorthShore Evanston Hospital's branch of the Kellogg Cancer Center. It was 20-30 min. drive north of me, depending on traffic & weather. (The only route was over surface streets, with traffic lights--Evanston, though a suburb, has urban streets). I had only 16 treatments, so I was never too tired to drive; since it snowed only on the weekend, I didn't have to call an Uber or use the CTA train (3 bl. between both the hospital and home and stations--would have required a change of train at the city line). There is a much closer hospital, with free parking, in Evanston only 10-15 min. away (along the same street), but I preferred the integrative approach of having my entire cancer care team at one hospital (despite having had to pay for parking). The closer hospital doesn’t really have a cancer center.

  • marijen
    marijen Member Posts: 3,731
    edited December 2015

    Fruit of the Earth Aloe Gel at Amazon - 24 oz for $8.73. Thank you Chisandy, it's in my cart.

  • Shopgal2
    Shopgal2 Member Posts: 649
    edited December 2015

    I also will be trudging thru the winter weather to rads. I live in the suburbs and will be traveling about 45 min to rads into the city. I am lucky that my sis lives in the city and can bunk with her if the weather gets bad.

    Good to see sept chemo ladies here. And really good to hear from our fall rad sisters with lots of advice. Keep it coming ladies!

  • Peabrain
    Peabrain Member Posts: 268
    edited December 2015

    All my doctors are about 5 minutes from my work (it WAS easy to duck out for a quick appointment) but 40-60 minutes from my house since I am not working during all this. In Southern CA I don't have snow, but we do have construction and traffic 😀

    Maybe if I'm able to drive myself, I'll time my rads close to lunch and have lunch with work friends. I am hoping I might feel like a normal person again now that chemo is nearly done

  • Shopgal2
    Shopgal2 Member Posts: 649
    edited December 2015

    Peabrain glad to see another TN gal here. Are you planning to work during rads? I am on a leave from work, finish chemo next wed, and am wiped. I am not sure about going back to work yet.

    Hey ladies any advice on what time of day to do rads if not working?

  • El_Tigre
    El_Tigre Member Posts: 520
    edited December 2015

    Patty - thanks. We shall see how it goes :)

  • biscuits
    biscuits Member Posts: 3,304
    edited December 2015

    Hi ladies! I would also like to know if others are working full time through the rads. I have kept up my full time schedule during my chemo infusions, only taking the day off of the actual infusion, as I am there for 4 1/2 hours. I understand that you might get quite fatiguedfrom the rads after the first couple of weeks...maybe scheduling the rads after work each day might be prudent? Your thoughts?

  • keepwalking
    keepwalking Member Posts: 147
    edited December 2015

    Hello ladies. Well, it looks like I am joining you here. I just found out that I do not need chemotherapy (yay!), and I will meet with the MO on Wednesday to set me up for RT and to start tamoxifen. I am so happy to get moving on things finally! I have been lurking here and on the Fall 2015 group and getting some great tips. I will let you know when I have a date to start. My BS (who is also the Breast Cancer Center director) had mentioned doing the short protocol so I will also see if that is still the case.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited December 2015

    Mazel tov, Rina! Any reason why they’re having you do Tamox rather than an AI?

  • keepwalking
    keepwalking Member Posts: 147
    edited December 2015

    ChiSandy - I am not certain why my MO chose tamoxifen, since I haven't spoken with him about it yet (just over the phone for the good news and to set the appointment), but I was kind of expecting that I would receive it instead of the aromatase inhibitors. I already have osteoporosis in my hip and osteopenia in my spine along with cholesterol readings that are either at or above what they consider to be the normal range (although my ratios are great, so I am personally not so concerned about that). I am wondering if I would be a candidate to start on tamoxifen and then change to AI at some point.

  • StefLove
    StefLove Member Posts: 322
    edited December 2015

    I went for my x-rays today and the nurses informed me that I'm scheduled to start TOMORROW instead of Monday! Eek!! I guess I get it over with quicker, right??

    biscuits, I'll be working full time throughout this. I worked full time through AC +Taxol/Carbo so I'm hoping that I can hold up with radiation too. I know many others have too! Other than tomorrow all of my appointments are between 7am and 8am so I have enough time for the 30 min drive to the office.

  • mdoc524
    mdoc524 Member Posts: 336
    edited December 2015

    Welcome Welcome keepwalking - sorry you are here but glad you found us! Great news for you on No Chemo - not fun! Let us know how your apt goes and when you are planned to start!

    Steflove - good luck tomorrow!

    Jabe - great to hear your day 1 went well .. let us know what you do with camisole vs t-shirt and which work best ..

    Mary

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