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Anonymous
Anonymous Member Posts: 1,376
edited December 2015 in Just Diagnosed

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  • Kiks1
    Kiks1 Member Posts: 254
    edited November 2015

    Hi everyone, I was just newly diagnosed a few hours ago and am petrified about the unknown. I have a quick question for you ladies out there. My lump, measuring 1.9 x 1.5 is found on the right breast and so far (fingers crossed) ultrasound has not picked up any swollen nodes as yet. However, I have arm pain on the left arm and am so afraid that it might be arm mets. It hurts when I move it in certain ways. I have had it for about 3 weeks and to be honest I was moving around some heavy stuff but do not recall that I felt any sprain. It does not hurt when I sleep but it has not improved much either since 3 weeks ago. What are the symtoms of mets to arm? Sorry if this sounds paranoid but it is really bugging me since I am hoping for the best prognosis.

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited November 2015

    Hi Kiks1, although one can certainly have mets to the bone(s) in the arm, it doesn't seem likely since you have recently done some heavy lifting and......mets to the bones in the arm is more unusual that in other places like the hip, femur, vertabra, ribs. Also, bone mets that cause pain typically hurt regardless of whether you are active or at rest.and have been reported to cause more discomfort when one is sleeping.

    But a cancer diagnosis makes us " go there" and there are really no rules when it comes to cancer. So first, I am going to send out a big hug to you and a few suggestions. 1) always disclose pain that lasts longer than 2 weeks to any/every doctor you are seeing. During our last house move, with all the packing/unpacking, I developed tennis elbow even though I know I didn't feel a sprain or an event that would have caused it. Several sessions of OT and a wrist brace took the pain away but it took a long while and I remember worrying about mets too! 2) take OTC pain medication....aleve or ibuprofen. I also used a topical pain reliever and that really helped a lot (icy hot??_and 3) and alternate with heat and/or cold for your arm until you consult with your doctor. Lastly, try, try not to worry.

    Love and hugs, MsP

  • Kicks
    Kicks Member Posts: 4,131
    edited November 2015

    Your Dr(s) are who should have already been told of the pain as it has lasted over 2 weeks.

    When you say 'arm pain', what/where do you mean? How long has it been since you had a Bone Scan, CT/MRI or PET scan? Depending on your DX, these are usually done before starting TX to be sure what 'all' might be going on throughout the body.

    Even after a DX and TX - every 'ache and pain' or other issues are not always associated with BC in any way.

    Talk to your Dr.

    Kicks


  • Kiks1
    Kiks1 Member Posts: 254
    edited December 2015

    Ms Pharoah - Thank you for your encouragement, I guess worrying wouln't get me anywhere.

    Kicks - I was just told of the results of the biopsy several hours ago. Will not see the drs till 12/8 and I will, of course, voice my concern than. Just curious if anyone here knows a little something more that's all. A week ago I knew nothing about breast cancer and I am still trying to wrap my head around it. My arm pain is along the humerus of my left arm, and it is only pain when I tense my muscles and move it in a certain way. Of course it hasn't help that I was stressed the last few days. I have been paying more attention to it. My lump is on the right breast.

    I am 49 and what scares me is that I lost my father 29 years ago to brain cancer. He was 49 and he passed within 3 months of dx. I didn't have time to say goodbye.

  • Beatmon
    Beatmon Member Posts: 1,562
    edited December 2015

    Kiks, rest assured that we have all done the exact same thing and usually it has nothing to do with the diagnosis. But, our minds can't help but go there. You will be getting a quick education and will feel much better once you understand a little more and have a plan in place. If you don't feel 100% in tune with the oncologist keep looking. There are so many women on these boards that you can turn to for help and support. I don't know what I would have done without them. I'm so sorry that you have had to join us

  • Kicks
    Kicks Member Posts: 4,131
    edited December 2015

    We are each unique and do not have the same diagnosis. ALL types of BC (DCIS, IDC, ILC, IBC) are not the same There are different TX plans and prognosis. Some are ER/PR+, some HER+ or any combination of the 3 or triple negative.

    About 2 yrs post DX, I developed a 'hurting' spot along my upper left arm when I moved arm - not all the time. (IBC with pos. nodes was on right.). Talked to my PA at 2 weeks and was sent for Scan soon just to be sure nothing was 'going on' though she was sure there wasn't. Nothing showed on Scan so went to Ortho Dr. He too was sure that it was nothing to worry about - probably I had succeeded in doing something to a muscle attachment site. He sent me to PT. A few weeks later, 'it' was gone and no issues at all in the yrs since.

    Find out what is going on but do not jump to conclusions. Remember that we are each so UNIQUE and there is no 'One Size Fits All' when it come to our individual DX or how we deal with what we have to.

  • Kicks
    Kicks Member Posts: 4,131
    edited December 2015

    A couple of ideas cor when you see your Dr (will it be a Surgeon or a Chemo Dr first?) - get a note pad, write down in it every question you have. Leave some space to write down his/her replies. Make a copy of all questions and give it to him/her as sometimes a Dr can answer several questions in one answer. Use your smart phone to record the appt so if necessary you can replay it later to be sure what was actually said.

    Be sure to start NOW getting copies of 'everything' and file it. (This was IMPRESSED to me by the Radiologist who did my mammo, US and biopsies. I have boxes full of papers/reports that I can go back to IF I ever need to.)

    Hope that give you some ideas.

  • Kiks1
    Kiks1 Member Posts: 254
    edited December 2015

    Kicks, I will seeing a breast surgeon, radiology oncologists and an oncologist. Thank you so much for your advice as everything seems so overwhelming at this point. I will try to gather my composure and wits around me and educate myself well before the appointment.

    Beatmon, thank you for your kind reassurances, trying to keep positive is probably thd hardest thing to do.

    Hard to see my family so down as well.

  • Kicks
    Kicks Member Posts: 4,131
    edited December 2015

    That's great that you will be seeing your entire TX team as it is important that all are included from the 'git go'. The entire plan should be coordinated, not 3 individual TXs without the others being involved as to the best plan. Surgery is not always the best first line TX. Neoadjuvant Chemo (Chemo pre-surgery) is SOP for IBC but it is becoming more common for other types also to get the cancer to shrink and get better margins so surgery results are better and often less invasive. Same goes for including the Plastic Surgeon in the TX Plan if immediate recon is an option/being done as this can be effected by further TXs. There are many who have surgery without ever seeing a Chemo or Rads Dr because the Surgeon never suggested they seek a complete TX Plan before surgery. Remember - they are all Specialist in their field - very basically, Surgeons cut, Chemo Drs do Chemo and Rads Drs do radiation individually but they should be a team working together, not individually, for the TX Plan. Not only will you see them individually but they will undoubtably take your case to the Board for input from other Drs at the Facility or if one (or more) is on the Board at other Facilities it may be taken to them too (mine was).

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