New TNBC

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Nina-hope
Nina-hope Member Posts: 1
edited December 2015 in Triple-Negative Breast Cancer

hi all,

I was just diagnosed with triple negative breast cancer and the more I read about it, the more I freak out.

I had my surgery two weeks ago and starting my chemo next week.

I was acting very calm at first when I heard about my cancer, the doctors even said that I was lucky to detect the lump so early and the lymphnodes were clear. But i realized that TNBC is the worst and could recur....any one out there to calm me down

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  • avmom
    avmom Member Posts: 324
    edited November 2015

    Nina-hope, I'm no expert, but was diagnosed with Triple negative IDC in January. I understand the need to look things up, but be careful where you go on the Internet for information. Dr. Google is not generally your friend, and much information is old or inaccurate.

    TNBC is the focus of lots of research, and there are many developments happening all the time.

    There is a general guide to understanding triple negative breast cancer available at the triple negative breast cancer foundation site - www.tnbcfoundation.org


    Also, this site has good info and many links. If you set up your profile here, the site will recommend articles for you.


    While tnbc doesn't have long term targeted therapies available, like tamoxifen or Herceptin, my understanding is that tnbc can be very sensitive to chemotherapy. I did dose dense AC-T. It is no fun, but it is doable.

    You can do this!
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  • Moderators
    Moderators Member Posts: 25,912
    edited November 2015

    Dear Nina, we're sorry that you find yourself here, but we're glad you've found this wonderful, supportive community!

    In addition to the helpful advise you'll find here in the forums, the main Breastcancer.org site has a whole section about Triple-Negative Breast Cancer that will help you better understand the characteristics of this type of cancer.

    We're thinking of you! Please come back and let us know how you're doing.

    HUGS!!!

    The Mods

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  • KSteve
    KSteve Member Posts: 486
    edited November 2015

    Nina-hope - First of all, I wanted to invite you to check out the "Calling All TNs" thread and you will find a huge group of wonderful, supportive, caring, and funny women that are in the same boat as you, or were in the same boat at some point.  As you will see in my signature line, I was diagnosed over 5 years ago with a large TN tumor.  Avmom is right, TNBC is usually extremely responsive to chemo.  That is one "advantage" of an aggressive type of cancer.  Please feel free to ask as many questions an you want.  I'd be glad to share any details of my experience with you.  Just know that the beginning of the journey is definitely the hardest.  You will feel more "in control" when you start your chemo.  It's a long road, but you will make it through, one day at a time.  We're all here for you!

    Hugs,

    Kathy

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  • WendyB51
    WendyB51 Member Posts: 6
    edited November 2015

    I was diagnosed with inflammatory triple negative IDC 10/29/2015 .... I have just completed my first round of DD AC-T chemo only 7 more rounds to go!! I will be having surgery after I have completed chemo, then six weeks of radiation ..... are there others out there that are battling TN and inflammatory BC at the same time?

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  • Mamiya
    Mamiya Member Posts: 432
    edited November 2015

    WendyB51, I was diagnosed with TNIBC over the summer, and I am in the middle of a long schedule of chemo. There is an IBC forum on here but it's not as active as the "starting chemo in..." threads etc. where people are going through active treatment. There are other TNIBC survivors here. If you fill out and make your diagnosis and treatment fields in your profile public that will help others see what you are dealing with. Glad you found this place, there is lots of information and plenty of support.

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  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited November 2015

    Wendy, I was diagnosed with trip negative IBC four years ago and I am doing fine. Chemo has worked so well that I've been NED after 3 cycles. I have had a couple of new spots show up, but we've zapped them with chemo and radiation and they die right there. Am dealing with a new spot on T-7 and taking Xeloda. I could have done Abraxane again, but the onc thought that Xeloda (which is easier to take) might just do the trick.

    I have a lifelong treatable disease and I have had to accept that my days as a totally healthy person are over. You come to accept that and get on living a happy life.

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  • WendyB51
    WendyB51 Member Posts: 6
    edited November 2015

    Thank you .... your diagnose is the same as mine .... it is comforting to know that someone else is dealing with the same issues. Our chemotherapy appears to be different, but whatever works, right?? Can we keep in touch?

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  • Mamiya
    Mamiya Member Posts: 432
    edited November 2015

    Yes, we can absolutely keep in touch! I was supposed to have the same chemo you are having, it's a bit of a story, but bottom line is they are about the same anyway, mine will just take a lot longer than yours (short version: my doctor felt that in my case that would be a good thing if I was willing to tolerate it, he didn't think I'd have enough response in just 8 weeks). This thread would be a good way to keep in touch, or PM me. There is also a FB group for IBC you may want to join, PM me about that if you do.


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  • WendyB51
    WendyB51 Member Posts: 6
    edited December 2015

    How do I PM you? My chemo is for 4 months ..... is your chemo even longer? I hope you work your way through it so the holidays are still merry. I do go on Facebook alot .... keep up with my daughter and grandchildren, so I would be interested in joining that group. Talk to you soon.

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  • Mamiya
    Mamiya Member Posts: 432
    edited December 2015

    Click on my name (here) then click on "send member a private message"

    My chemo that I am on now will be a total of 18 weeks, but I am already 5 weeks in, so I will be done in less than 4 months. I already did 12 weeks of another chemo before that. It's getting old!

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