Plz Post your SUCCESS STORIES for holistic ILC treatment

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  • solfeo
    solfeo Member Posts: 838
    edited November 2015

    A few seconds ago solfeo wrote:

    Ironically, the only one trying to shout anyone down is the poster crying "hijack." When no one actually involved in the conversation was complaining.

    Linda's friend is in the investigation and decision-making phase. Most people wouldn't disagree that a positive attitude and belief in one's chosen path is essential, but it would be foolish for anyone to only consider evidence that supports what they want to be true (alternative or conventional), and ignore everything else. To make an informed decision you have to take a look at all sides: all of your personal aversions and risks, all the possible outcomes - all the available information. Would anyone suggest that a newly diagnosed person should make the choice to go all alternative without at least considering how they would feel if that plan should fail? I hope not, but apparently that might get one accused of hijacking around here.

    I decided that for myself, with my individual circumstances and risks, that I would regret not taking the tamoxifen if I should have a recurrence later. I know that anyone can recur regardless of what they do or don't do, but I made my decision based on the knowledge I have attained through research and asking questions of the professionals I have chosen to trust; reading about other people's varied experiences; and the amount of uncertainty and risk I am willing to live with. I shared my process with Linda's friend, not to judge or discourage her, but so my experience could be added to her collection of information and considered as part of her process.

    That doesn't mean I don't support alternative treatments. After 12 years of studying alternative medicine and applying it successfully in my everyday life, I have an entire library of useful information about holistic healing in my head. It would be a shame to shut me down on this board just because I chose to take the tamoxifen. I hate that the complementary and alternative boards are separate, because there is so much overlap and important information that will be missed by people who really need it, but I think I understand it has to be that way because adult humans can't behave. I doubt the intention was ever to squash reasonable, non-judgmental discussion.

    In my experience, holistic practitioners are just as likely as the conventional kind to be misinformed, under-informed, or complete and total quacks. But you can't know when they are wrong if you don't investigate what they say. Only looking at one side of any story is never how you get to the truth. There is someone in my life who does that with regard to my cancer and it drives me nuts.

  • abigail48
    abigail48 Member Posts: 1,699
    edited November 2015

    it's perfectly easy to read about any conventional therapies here if you have interest. in fact i've now regularly reading on the rads thread, not because I'm concidering the therapy but was interested in what those who have had it had to say. but there's one alternative & it would be best I think to keep it to that information. I'm the person who mentioned that the fora had been hijacked (yet again) by the conventional people

  • solfeo
    solfeo Member Posts: 838
    edited November 2015

    Well, abigail48, since the OP disagrees, as does the poster of the only holistic ILC success-so-far story, it seems like you could save yourself the stress of worrying about what other people are doing by not reading threads that bother you. A few posts up-thread pipers_dream makes a nice case for letting go of things you can't change, and I happen to agree with her that avoiding stress is essential for healing. Or maybe you could help round up some of the additional alternative ILC success stories that Linda and her friend are looking for, since they don't seem to be finding their way here on their own. That would be an awesome way to add something constructive to the conversation.

  • pipers_dream
    pipers_dream Member Posts: 618
    edited November 2015

    Abigail, the reason I'm not offended when people post about their mix of conventional and holistic tx is b/c almost no one on here is 100% holistic--not even me, if you include the ADHD meds as part of my tx, which I do. Each of us is different, no one on here wants to die, and each of us has a different level of comfort regarding the different tx modalities that we all have available to us. You and I don't seem to mind walking around with a tumor in our breasts, but that gives most people the heebie jeebies just thinking about it. Are you right and they're wrong? I think not. Or rather think of it this way: you're back to 32 years old and about to have a baby but the doc says that if you don't have a C-section you and/or the baby could die, but you're powerfully against the idea of operating on your body. What to do? I know what I would do b/c I did it and my daughter is a gorgeous 23 really smart young woman. I'm not a purist. I have no idea how things will shake out in the end but I do know that I won't regret any decision I've made regarding tx and I pray that no one else on here does either.

  • abigail48
    abigail48 Member Posts: 1,699
    edited November 2015

    that's fine but this forum isn't about a mix

  • pipers_dream
    pipers_dream Member Posts: 618
    edited November 2015

    Then it will be just you and me Abigail. No, just you, b/c I also have some conventional stuff. It's not specifically cancer tx but if I don't take it my social skills will deteriorate and I will get so depressed I'll want to die. I spent a greater part of my life wanting to die and now I want to live.

  • abigail48
    abigail48 Member Posts: 1,699
    edited November 2015

    gee I wonder if the conventional you take really helps........but what gives me the heebie jeebies is those photos of youngsters with no eyelashes & perfect teeth & the caption that they cured cancer

  • abigail48
    abigail48 Member Posts: 1,699
    edited November 2015

    my maternal aunt got breast cancer at age 18. she went on to have 2 daughters & they now have children & one has grandchildren. my aunt's cancer came back when she was 36 & it killed her then

  • abigail48
    abigail48 Member Posts: 1,699
    edited November 2015

    there are natural anti deppresents. st john's wort tea daily takes a while to kick in but it does eventually. I guess I began taking it when the biker went off with alatina girl for several months. at some point I realized I was no longer depressed. it's very subtle though. then at another point I stopped using it for no particular reason, possible when the biker returned. thai was all so long ago, in the 90ies

  • pipers_dream
    pipers_dream Member Posts: 618
    edited November 2015

    Abigail, when I don't take my meds I have no friends, or feel like I don't anyway. That's why I get depressed, not because I have depression. I'm very familiar with St. JW but it's for the serotonin deficient and my problem is dopamine, and believe me when I say that I've searched for years for a natural remedy. I know the adderall helps b/c I went off it this summer and fortunately I do quite well on a half dose.

  • abigail48
    abigail48 Member Posts: 1,699
    edited December 2015

    when i first got the shakes. probably 2010, I researched natural sources of l dopa. the best strongest source is endangered & forbidden. I fantisized taking amtrack to the az desert and asking the conductor to let me out briefly with my machete to hack a piece off of the nearest saguero; could I reach it, very prickly for sure, could it be dried, a decoction made, Havn't thought about it for a long time; I use nothing, the shakes havn't gotten worse nor are they constant. my temporary loss of certain usual words continues

  • BethinRI
    BethinRI Member Posts: 20
    edited January 2016

    I'm following. And taking notes.


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