Can we have a forum for "older" people with bc?

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  • ohiofan
    ohiofan Member Posts: 206
    edited November 2015

    Happy Birthday, Joan!!

    Hope everyone has a Happy Thanksgiving !!

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2015

    I'm wishing for all of you a wonderful, great time with friends, family or for whomever you share Thanksgiving with this yr. Be safe, and healthy and happy. See you all soon.

    Blessings,

    Jackie

  • Wren44
    Wren44 Member Posts: 8,585
    edited November 2015

    Happy Birthday, Joan!

    Happy Thanksgiving to all.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2015

    Do you realize that you have been given exactly what you need just so that you may proceed with the spiritual lessons and growth that you, you alone, need to master? Yes, life can be absolutely daunting, but you can have gratitude when you realize that you have just what you need.Gratitude is the virtue that shifts our energy in order to facilitate our great growth to the next levels. Without the hankering after what we don't have, we allow ourselves to receive from God just what we need. Then we have and use just what we need to, so that we're prepared for greater gifts and gains inside. -Michael Goddart

  • Teka
    Teka Member Posts: 10,052
    edited January 2016
  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited November 2015


    Hope everyone had a wonderful Thanksgiving Day! Count your many blessings!

  • TikkasMom
    TikkasMom Member Posts: 83
    edited November 2015

    Hello, I am now 63 years old and was diagnosed with IDC just before my birthday in October.

    I had a double mastectomy November 19, 2015. Had surgery again on November 24, 2015 to remove & replace clot clogged drain and also flush out fluid build-up.

    I see Surgeon later today for check up and hopefully to get pathology results. With holiday, may not have results till next week.

    Will keep you posted. Take care everyone.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2015

    I feel the capacity to care
    is the thing which gives life
    its deepest significance.
    image
    Pau Casals

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2015

    WELCOME TikkasMom,

    Sorry to have to meet you this way, but glad you found us. You sound like you are doing what you must to keep things moving along. Hope you have a good report from your surgeon today. Hope you will come back often to see us. We are a pretty good cheering squad and keep 'normal' life moving for each other here.

    It is raining here and will be for the next couple of days. We had a fantastic day yesterday. I made ( I couldn't find the recipe I really wanted ) a new cranberry dish yesterday and we all enjoyed it a lot. Maybe it will become ( though the old one is not out by any means ) a new favorite. The good part is that you use whole berry cranberry sauce and therefore don't have to worry about cranberries in season should you want to have it when cranberries are not in.

    I washed dishes ( during my cooking ) while I was preparing everything so did not have the huge amt. of counters full of dirty dishes that I've had in past years. I do have a dishwasher, but many things of odd sizes make it tricky and usually have had to do two loads for that reason. This yr. all we pretty much had were the regular dishes and sm. plates from after dinner pie. Great. Also, did my pans which I don't do in my dishwasher as most have copper bottoms.

    I am thankful for life, always.

    See you all later.

    Blessings,

    Jackie

  • Anneb1149
    Anneb1149 Member Posts: 960
    edited November 2015

    Good morning all

    Welcome Tikkasmom - so sorry you are here, but happy to meet you. I hope you will find, as I did two years ago, a very welcoming group of ladies, who will not only offer the kind of support only someone who has been there can, but also become close friends. You are free here to express your emotions without censure or judgement, and will always receive understanding and when needed, emotional hugs. We, as a group, have experienced just about everything there is on the cancer planet.

    Beyond that, although our lives run many different roads, we enjoy sharing them with each other. We stay away from politics. "Religion" as a debate topic is another one we try to avoid,although we are not afraid to say we are praying for a special circumstance, whatever that may mean to each of us. Just about anything else is open for discussion. Some of us garden, golf, fish, crochet, camp, or share recipes. I am one of the travelers. I feel like I am constantly move between my home of 38 years in Ft laud, Fl and my oldest daughter's home for the last five years in Atlanta, Ga, with side trips to my son just outside Charlotte NC, and my siblings in upstate NY. The only "schedule" really is my grand children's birthdays- I try to be with each one on their birthday.

    Thanksgiving was the first holiday dinner in this Fl home since my husband passed three years ago. I have been here with my daughter the past two thanksgivings, but since it was just the two of us, we did a small turkey breast, store bought mashed potatoes, stove top stuffing etc. This year we did the whole meal from scratch. It was a small group, 8 of us, including 3 grandkids, 2 daughters, one son-in-law and one mother-in- law. We had a very good time. Today, Christmas decorations are going up all around me, so I need to get myself moving and helping.

    Hope you all had a great day yesterday!

    Anne

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2015

    Speaking of recipes, here is what I did with cranberries this time. I usually make Cranberries In The Snow, but couldn't find my recipe -- ggrrr and so picked out one that seemed close:

    CRABERRY HOLIDAY SALAD

    6 oz. pkg. raspberry gelatin

    1 cup boiling water

    16 oz. can whole berry cranberry sauce

    20 oz. crushed pineapple drained

    1/2 cup chopped walnuts

    8 oz. pkg. cream cheese, softened

    1 cup sour cream

    1/4 cup chopped walnuts.

    1. Combine gelatin and boiling water in a large bowl. Stir in cranberry sauce and break up into gelatin mixture. Add pineapple and 1/2 cup walnuts and mix well. Pour into 9" x 13" pan. Refrigerate until set.

    2. Beat together cream cheese and sour cream and spread over salad. Sprinkle with 1/4 cup walnts and serve.

  • TikkasMom
    TikkasMom Member Posts: 83
    edited November 2015

    Good pathology results. Cancer small, all 5 nodes removed were clean.

    Will see oncologist but shouldn't need any chemotherapy nor radiation. Surgeon said Oncologist may recommend hormone treatment.

    So pleased........ Thanks for support

  • bonnets
    bonnets Member Posts: 769
    edited November 2015

    TikkasMom,

    Welome to the group. Glad to hear your results were good. A blessing to not have chemo or rads. Jean


  • Puffin2014
    Puffin2014 Member Posts: 961
    edited November 2015

    welcome TikkasMom, so nice you were able to get your test results today and not have to wait all weekend for them, I hate the waiting part.

    We spend Wednesday with Lew's son and granddaughter, got a FB message today that granddaughter has lice! And we snuggled with her all Wednesday evening while we watched TV. We just finished washing our hair with the special soap. Ugh.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2015

    Yay Tikka, for your very good news. Hope you have smooth sailing all the way now.

    Puffin, hope you have settled any issues for you both by a good shampoo. That's a bummer, but I think happens a lot now-days.

    Still raining outside. I don't know when it will settle down, but it never stopped today. Hoping for some breaks tomorrow so I can get out and feed the feral cats. I think ( I hope ) that it will stop on Sunday. That will be enough for me for some time.

    Jackie

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited November 2015

    It's raining hard and the temperature dropped 30 degrees this afternoon. Good thing I didn't venture out for Black Friday. I used to love to go just to people watch and for one or two items for the children that I'd seen in the ads. It was fun. But I don't buy much these days and everybody is grown and on their own, so I don't go out. Today I finished my Christmas cards. Tomorrow they will go to the post office. It was just too cold and rainy today.

    San Antonio has a lovely holiday Riverwalk Christmas Parade on the Friday evening after Thanksgiving where the floats really float. They are constructed on the regular river barges that usually carry tourists up and down the river. Some barges have small bands. Everything is lit up and pretty. Usually around 200,000 people come downtown to watch. This year it was cancelled at the last minute because the winds were too strong and the rain was coming down in buckets. What a shame. We will go to the Riverwalk at least once this holiday season. It's so pretty with bright twinkling lights hung in the trees. The barges have choral groups going up and down the river so there's music everywhere. Sometimes we take a barge ride even though we've lived here for nearly 30 years. It's just so pretty!

    image



  • TikkasMom
    TikkasMom Member Posts: 83
    edited November 2015

    Thank you bonnets and Puffin2014.

    Lice are awful, be sure to spray car, furniture etc. Been there, done that year's ago. Good luck

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2015

    People who take the risk make a tremendous discovery: The more things you care about, and the more intensely you care, the more alive you are. This capacity for caring can illuminate any relationship: marriage, family, friendships--even the ties of affection that often join humans and animals. Each of us is born with some of it, but whether we let it expand or diminish is largely up to us. To care, you have to surrender the armor of indifference. You have to be willing to act, to make the first move.
    Arthur Gordon

  • ohiofan
    ohiofan Member Posts: 206
    edited November 2015

    Great news, Tikkas Mom!  Wish you continued good reports.

      When I taught the school nurse would do head checks and I always itched like crazy!  Power of suggestion!

    We had a wonderful Thanksgiving with my side of the family...just too much to eat.  The scale at my RO appointment this week definitely show that my appetite has improved!

    Best wishes to all!

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2015

    Normal day, let me be aware of the treasure you are. Let me learn from you, love you, bless you before you depart.

    Mary Jane Irion

  • lindab142
    lindab142 Member Posts: 105
    edited November 2015

    Welcome TikkasMom and NaNa, the group here is very supportive and nice and a safe place to "vent".

    Happy belated birthday Joan.

    Had a great Turkey Day with friends, slept a lot on Fri. and yesterday I went to services and to see more friends in the afternoon in Chicago. We're about 50 miles west. DH said he didn't want to travel that far, so I left him at home. He and his brother went out to eat. BIL found 1 place to look at so far (jumping for joy). He really knows he's leaving, so I'm pretty pleased that DH laid it out for him.

    I'm looking online for cell providers, AT&T is too expensive and we don't have a text package and they want $30 more a month. Might have to stop by a place tomorrow. Guess it would be good to go today for Black Friday sales, but I just wanna relax at home.

    Tues. I go meet the Radiation Oncologist. I'm pretty nervous but want to hear what he's got to say. Also, gotta check insurance (HMO) and see how much they pay for.

    Gotta be brief today, have a pile of papers and stuff to go through and I think I need a nap.

    Have a great last day of the holiday weekend,

    Linda


  • sailorgirl15
    sailorgirl15 Member Posts: 114
    edited November 2015

    hello ladies!

    I just found all of you and although I do not want to think of myself as "older" I think this is great fit.

    I have felt in a different category than most of the chemo Sept 2015 group, which has been great but must are 35-50. I'm 62 and when I was still 61 I felt 10 years younger....but a few days before my birthday, the week I retired from teaching, I found out I had BC. (This was this past May 26th)

    I had a lumpectomy in early July and started chemo in Sept. Four AC completed and after Tues I will have two Taxols left. I can see the end in sight (Jan 30) but am hoping I keep some energy thru the holidays.

    My question is whether radiation on top of chemo is necessary. I just cannot get my head around it. I see the RO Wed but if all the cancer was removed (both the surgeon and the MO said those words- "you have no more cancer") and I have chemo running full force through my poor body to "kill" any escapees, why do I need to radiate the empty hole? I did get the PA at my MO's office to agree that rads are only for local issues. Can't I just watch my boobs with mammos and jump on it if there is something suspicious?

    Is this (radiation after chemo) just protocol? One size fits all? If I was 10 or 20 years younger, I'd probably figure overkill is good but I'll be on AI's for a long while too. I had a PET scan and MRI of my breasts and nada evidence of any other cancer. (So thankful)

    Any thoughts on this? It is a totally different issue for my sister and friends who did not need chemo - but doesn't chemo kinda trump radiation?

    Thanks ladies!!

  • gardengumby
    gardengumby Member Posts: 7,305
    edited November 2015

    hi ladies. Hope everyone had a wonderful Thanlsgiving!!

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2015

    SailorGirl -- welcome. I'm mainly jumping in to make sure ( sometimes we are slow here ) you know that someone is reading here this afternoon. Not sure I can answer your questions satisfactorily, but I do think most people who do radiation do it because there could be a stray cell or two lurking around. It is just a little more insurance that you have done everything possible to eradicate ALL that you can. The lumpectomy with clear margins would have gotten the largest part ( tumor ) of the cancer and removed it. The Sentinel node or nodes if clear tell you that it is VERY likely the cancer did not exit the tumor site, but there is nothing much to tell you that a stray cell didn't perhaps get into some area around the operative location.

    This is why so many do the radiation and many of us take a 5 yr. pill as well. I took Arimidex. It was explained to me this way --- if you didn't do ALL you could right at the beginning, you'd be likely so remorseful for 'allowing' the illness to regain another foothold. You and your Dr. ( and you can always get a second or even third opinion ) are the only ones who can truly decide. Everyone it seems has a slightly different reaction to chemo, rads, 5 yr. pills, or whatever they choose to do.

    As for myself, I wanted to do all I could right from the get-go to eradicate as much area as I could from any growth or re-growth. These are the things that have had a proven track record for people.

    I don't necessarily look on chemo as trumping radiation. I look on it as another tool ( like buying extra insurance ) so that you are taking less chance than you otherwise might. I did the rads ( radiation ) and the 5 yr. pill because I didn't want the shadow of "what if" sitting on my shoulder for the next five yrs. or so which is about what it takes to claim you really are NED. It is a personal choice. I was much more confident doing those things than I would have been had I not done them.

    We all do what we need to feel confident that we have covered all our bases. We support any and all no matter which choices you make. Hope to see you come often.

    Blessings,

    Jackie

  • Wren44
    Wren44 Member Posts: 8,585
    edited November 2015

    Welcome Sailorgirl. It seems like lumpectomy and radiation go together. I was scheduled for radiation, but opted for a mastectomy after a second tumor was accidentally found. It wasn't on the mammogram at all. It was the sneakiness that made me decide on the mx. They decided I didn't need rads after the mx had great margins. I was 71 which might have figured into the decision.

  • sailorgirl15
    sailorgirl15 Member Posts: 114
    edited November 2015

    Thanks Jackie and Wren!

    I know that lumpectomies w/o chemo seem to include rads but I'd love to see research for those of us 60+ with lumpectomies, small tumor and only 3 lymph nodes (which were in a little clump, the other 3 including two sentinels were clear) who had full shot of chemo. I wonder if other countries do it differently? I did read some info where they discussed 1-3 nodes vs 4+ nodes. Seems some docs look at these cases differently and treat them differently.

    I also get that the radiation is necessary for one cell that might be roaming, but I am pretty sure chemo is taking care of those rascals! (And if not, that's pretty misleading because that's why they told me they do chemo.)

    I agree that I want to do everything to make sure but I also wonder if some of this over the top!

    I love your responses and will keep you posted as to what I learn and what I decide.

    Thanks again. Looking forward to caching up with more if you.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2015

    This is probably not a bad time to refresh on how things went for me. I had a bruise on my lt. breast stretching from mid to upper, inner portion. Being a mite older I gave it 6 wks. but it didn't really change much. Got me worried. I went to have it checked --- and whamo -- out of the blue. Well, in the beginning it was determined that I had a Papillary tumor. It was not lg. and this type of tumor is a non-aggressive slow, a rather indolent tumor. My Dr. said if all went well during the lumpectomy to remove it -- I would maybe be given a week of radiation.

    I love my surgeon. During the operation --- she lifted out the dead tissue from the bruise but something didn't feel right to her. She kept checking around the spot and lo and behold, a second much larger and much more aggressive tumor was found. That obviously changed my pathology big time. Along came 6 months of chemo and 7 full weeks of radiation. That is what fostered my determination to THROW the book more or less at my cancer. It turned out ( always scary to say the least ) to seem much bigger, meaner, and a whole lot sneakier than I could have imagined.

    There are many ways to treat cancer actually and I do think a lot of Dr.'s choose certain protocols for their patients based on the numbers of factors that seem the most prominent in your case. Still, you have every right to ask as many questions as you need too until you are satisfied that you have enough answers to make a cogent choice about your care.

    I erred on the side of doing all I could because I felt like I got hit twice --- having two very different tumors, growing nearly right next to one another, and only the non-aggressive one was ever seen or known about until the lumpectomy. I guess from how things came about I saw cancer as totally sneaky and not to be trusted at all. I also knew very few people who had ever had it --- and no one in my family. Far as I know, I'm still the only female of my family who has had breast cancer. So, if I had it all to do over again --- I wouldn't hesitate to do exactly what I have already done.

    Jackie

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2015

    Doing nothing for others is the undoing of one's
    self. We must be purposely kind and generous, or we
    miss the best part of existence. The heart that
    goes out of itself gets large and full of joy.
    This is the great secret of the inner life. We do
    ourselves the most good doing something for others.
    image
    Horace Mann

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2015

    GG, hope your Thanksgiving was fantastic too. We are finishing up the last of the left-overs. It's all good though. I indeed truly enjoy those second and third 'meals' that re-cycle the things that didn't get eaten. I think I mentioned making soup from the boiled bones -- so the first of the yr. and beyond, when I want a taste of our Thanksgiving meal, I'll pull out some of the soup with a little of all of the meal ( including sm. pieces of dressing ) in it and have the whole experience over again.

    It is once again drizzly out of doors, but hoping that is all it does. Also praying with all my mite that it is almost time to have some sun. Just going to have to buck up and keep going till that old sun gets here.

    Already have breakfast done -- most days if we don't have eggs and toast we have steel cut oatmeal. I can get it from Aldi's and it is not nearly as expensive as the 'regular' grocery stores. I usually pop some raisins in it just before it is done along with some chia seeds or some flaxseed meal. I'm into some healthy eating trying to balance the less then healthy things that find their way into my pantry. I try to catch the little elves that put it there but have not been successful....sigh !!!!

    Hope you are all going to have a marvelous Monday.

    Blessings,

    Jackie

  • Anneb1149
    Anneb1149 Member Posts: 960
    edited November 2015

    Good morning all,

    Sailorgirl, First let me say welcome to our group. I had the same questions as you even though our diagnosis were different. I had stage 3 IDC which was HER+. And I had triple the normal amount of cells. My cancer was so aggressive, my team at Emory University in Georgia decided to do chemo before surgery. When they did the CT scan after the chemo, I was NED. There was no question in my mind that I would have a double mastectomy anyway. But the need for radiation at that point confused me, and my family. I asked the RO why, explaining that I was not trying to back out, just didn't understand. Her response is they do not treat what is there at the time, they treat what was there at your diagnosis. They are doing everything possible to destroy the area where the cancer started, so it has no where familiar to latch on again.

    We are all free to make our own decisions, and each case is different. Although my children were a great support to me, this was the first ever major issue I had to handle on my own. My husband of 42 years had passed 13 months earlier. During his many years coping with diabetes and all of its ramifications- eye problems, heart problems, kidney failure, etc, we made decisions together. Now i was on my own. I just knew I wanted as much time with my children and grandchildren as possible, and decided not to leave one stone unturned in pursuit of that. One granddaughter was only 3 months old at the time of my Dx, and I wanted to get to know her. Two years later, I am still NED, and I have two more grandchildren on the way- one in March, another in June, which will make a total of 8, but my youngest son is getting married in June, so who knows how many more?

    Talk to your Drs, look for threads here that give you other women's stories, pro and con, then go with your gut. You know your body better than anyone else. I am sure there are women on every side of this issue- those who had radiation, and have remained NED, those who didn't have Rads and remain NED, and those that made the same decisions and have had a re-occurrence. Which decision will give you the most peace of mind?

    All of us on this thread. will support whatever decision you make, and will listen to your concerns, fears, etc. We will also rejoice in every step you take to bring your "normal" back, although it will be a different normal than what was. Educate yourself as much as possible, then trust yourself and your doctors. The only real caution I would give you is to stay away from Dr Google- that tends to cause more confusion. Use sites like this one, where there is solid medical information, and lots of individual real- life stories.

    Anne

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