pectoral muscle recurrence- breast to muscle tissue

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  • alcb70
    alcb70 Member Posts: 166
    edited August 2015

    I don't know if anyone is checking back in....but I have a lump behind (in) the muscle where my breast meets my armpit. I have an appt to see my oncologist Tuesday. Part of me is terrified, and part of me feels like this HAS to be something else. What...I have no idea, but something....I don't even want to think about cancer again. :( Please update. I can't find any information on having the muscle cut, and how that leaves things. It would affect my dominant arm. So afraid. :(


  • kareenie
    kareenie Member Posts: 339
    edited August 2015

    You can do this! Try to get referral to breast oncolological surgeon. I had neoadjuvant chemo (before surgery) to shrink the lump first. Then surgery and then rads. It is considered local/regional recurrence. In my case they just cut part of pec muscle and did not remove the whole muscle. Removed 8 more lymph nodes and hollowed out armpit and scraped down to ribs on side. Get some PT after surgery to try to keep range of motion. Get LE consultation for measurements and prevention.

    I hope it turns out to be something else... when I felt mine, I pretty much knew.

  • She
    She Member Posts: 503
    edited August 2015

    urrently waiting on pathology to see if the 7.5cm mass just surgically excised is a second recurrence of chest wall. I had a significant amount of pectoral removed 30 months ago, dominant side. I'm not sure if more muscle was taken this time. I'm not as strong as I was and did lose some range of motion

  • Chantal10
    Chantal10 Member Posts: 105
    edited September 2015

    I had a patch taken out of my pectoral muscle last suumer, not the entire pectoral muscle. Since I've had radiation, the patched part has gotten weird (as in a bit lumpy) and my implant is incapsulating. I'm lopsided now and it feels like an iron grip is squeezing my boob. My pet scans show NED (yay!) so it was considered a local reoccurrence. I'm supposed to see my PS to discuss options, but I'm waiting until I'm in the mood to talk surgery. I'm just so sick of it!


    I started Effexor today. I couldn't stand it. I'm a hot flashing bi-atch! Couldn't even stand to hear my own voice, I'm so annoyed! Haha wish me luck!

    She- what did pathology say? I hope you are feeling well tonight. Xo

    Alcb70- you will most likely have surgery, that sucks, I'm sorry. This all sucks! Please keep us posted. Good luck!
  • Lunalin
    Lunalin Member Posts: 63
    edited September 2015

    I hope your results are favorable and you can have peace. I had 90% of my pectoral muscle removed last November followed by rads. It was also my dominant side. I lost some strength and range and am currently in physical and doing well. It's amazing how we deal with what comes to us.

  • cgraziano
    cgraziano Member Posts: 2
    edited November 2015

    Hi all, I am following this thread because I recently found a marble sized lump above my implant to the right nearly under my arm pit. Had an ultrasound today and it doesn't look favorable, I am scheduled for a bx in a week. The solid lump looks to be in the pec. I am only a little over a month from my five year anniversary. Ugh.

  • KBeee
    KBeee Member Posts: 5,109
    edited November 2015

    sorry you are dealing with this. Keep us posted

  • DiDel
    DiDel Member Posts: 1,329
    edited November 2015

    I was/am in the same boat...I had a pea sized nodule on my mx side very close to where my primary tumor. I actually had three other small tumors in a different quadrant. Initially all my docs thought it was a sebaceous cyst and I put off having it removed for almost 2 years. Never in my wildest dreams did I think it was cancer. I almost fell over when I got the news and then everything I read says how rare it is. I had a CT scan and MRI and everything else was clear. I was denied a PET by insurance since nodes and organs clear but I am getting a bone scan soon I hope.

    I had the nodule removed and some skin..approx 7.5mm to get clear margins I had 5.5mm skin invasion and 2mm pectoral muscle. My BS presented my case to the tumor board and like many got a mixed decision regarding what treatment plan and staging. My BS called it a Metachronous Carcinoma and said it was stage I. But everything I read is stage IV but includes positive nodes which is not my case.

    I still have another week to wait to talk to my Onc to see what he is thinking. He is at a different hospital than my BS so I think he is presenting to tumor board too. I am praying chemo in not in his regimen. I have literally been stressing for two weeks over what my treatment plan will be I do rad onc consult in 2 weeks.

    I ended tamoxifen after 3 years because I was having terrible migraines and none of the usual side effects to indicate Tamoxifen ever worked for me. My BS said he thought the Tamoxifen failed me so now that I am 49 and still premenopausal he wants to shut down my ovaries and put me on AI's which I have been having on and off meltdowns over. I am very afraid of what the ovary shutdown will be like and I cannot believe I am on this ride again. I am glad I found this page to see I am not completely alone.

    I am confused about what they radiate if the muscle and tissue is removed. Do they do whole breast radiation? I worried about how it will affect my recon.

    I say if you have something suspicious have it removed immediately don't wait even if its nothing get it out.

    Any words of encouragement much appreciated .. I feel scared and alone in what the future holds.


    Diane

  • lovetodance1
    lovetodance1 Member Posts: 62
    edited November 2015

    diane, did that nodule grow in time or remained the same?.thanks

  • Chantal10
    Chantal10 Member Posts: 105
    edited November 2015

    I'll start by saying cancer sucks! ok, now, I am sorry you are dealing with this!! I started this thread last year because wtf, this is was not supposed to happen (again), right?!! So, I had the 3 surgeries to clear the area and finally got clear margins, they removed a patch of my pectoral, not the whole thing. Diane, I am very sorry to say that in my case, they did recommend chemo (my BIGGEST nightmare to hear) and radiation. I also had no dirty lymphnodes- and a clear PET and Bone scan. I had not 2 years previously done either chemo or rads since I had a very early stage cancer that was said to never come back (ha!), I also was not taking tamoxifen at the time. So, I did 4 rounds of chemo and then 35 sessions of radiation. Unfortunately it did screw up my reconstruction. I am pretty bummed about it. What it did was create capsular contracture and so my right affected implant is tight and has squeezed up about 1.5 inches higher that the other implant. It looks much more round and "fake" than the other which now is lower because of time and gravity. The radiated boob is constantly tight feeling as if I am forever flexing my pec. I know take tamoxifen daily. I am 44 and have not had my period since last November when I started chemo. I guess I am officially in menopause now. My waist is a little thicker and my skin dry, but not having my period is not a problem, what a pain it was all these years anyhow! ;) The good news is I have had 3 PET scans this year, one just last week, and a bone scan... and all are clear! I do struggle with PTSD from it all, but I started an antidepressant recently and giving it a shot. My kids are 6 and 8 and they are growing like crazy and so I live to keep up with them. I wish you all the luck. We are here if you need to chat. xo

  • DiDel
    DiDel Member Posts: 1,329
    edited November 2015

    thanks for the response..

    My nubbin did not grow..actually when I was super stressed it got a little bigger but shrunk down. Another reason we thought it was nothing.

    When my BS went back and looked at my previous MRIs he said it showed up in 2012 as a pinpoint and he said the radiologist probably thought it was a mole it didn't change in 2013 and in 2014 I was denied an MRI by insurance (thanks OBAMACARE) but I noticed it in spring of 2014. I had gotten scratched by a cat and loaded it with Neosporin and even made my ps give me a rx for anitbiotics. We tried creams and everything and then he said it had to come out. He said since it was on my mx side he had to do it in an OR to avoid possibility of infection. Because I am self employed and have a $5000 deductible I just kept putting it off knowing that it was gonna cost me $2000. In my defense lots of other things consumed my money like home repairs, car repairs and puppy repairs. Lesson learned I will put myself atop the list of priorities.

    I am dying that I have another week to talk to my oncologist. Being self employed and single adds to my stress. I just keep having ups and downs mostly downs .I just can't believe I am back in this place. I haven't told anyone but my one sister because I don't really know much. You know I feel like I don't want to say anything until I know my treatment plan. Plus this time around if I have to do chemo I have two cats and a dog I just don't know how I would manage on my own. I am beside myself...I don't know how I am going to get through the holiday tomorrow.


    Thanks for listening

    Diane

  • KBeee
    KBeee Member Posts: 5,109
    edited November 2015

    I am sorry you are dealing with this. My cancer came back with a tumor on the pec muscle and another a few inches away in the soft tissue behind the pec muscle. This was 17 months after BMX. They did take out a chunk of pec muscle. I still have good strength and range of motion, but I work at it daily. I had radiation to chest wall, axillary nodes, supraclavicular nodes, and intramammary nodes. My reconstruction is ok so far, but I just finished rads a month ago, do I do worry about it. My doctors here and at Mayo all consider it s local/regional recurrence and not stage 4. Thinking of you. I know how hard this is

  • DiDel
    DiDel Member Posts: 1,329
    edited November 2015

    Thanks Kbee gives me comfort.

    My PS said because it was outside the breast pocket far enough away from the implant that radiation shouldn't affect recon but I was thinking I might have extensive radiation as well. Don't see radiation oncologist for another week....pass the ATIVAN.

    The odds have not been in my favor the whole time but I never thought I'd get this "rare" recurrence.

    I appreciate the support ladies..

    Diane

  • Chantal10
    Chantal10 Member Posts: 105
    edited November 2015

    Not to say this will happen to you, because it might not, but I didn't have any problem (beside the burn and peeling) with my reconstruction until about 4 months after rads was finished. It's like it happened over night. Weird. I told my ps and rads doctors and they said it probably happened gradually... but not sure about that.... In my opinion My recon went from just fine, to tight and high in a flash.

    The waiting is the worst part! Be generous with the wine tomorrow. Xo

  • lovetodance1
    lovetodance1 Member Posts: 62
    edited November 2015

    weird it barely grew, it looks yours was right under the skin.we're you able to grab it and move it around?y something similar happened to me but right over lateral implant area not cover by pect muscle. Fixed over capsule over implant.Ultrasound showed nothing and it has not changed in over 2 years. Only 2 mm on prophylactic non cancer side. Surgeon said scar afte MRI and ultrasound were OK.

  • lovetodance1
    lovetodance1 Member Posts: 62
    edited November 2015

    Didel, sorry for asking but was it fixed or were you able to move it or grab it? Looks it was under skin very superficisl so rads may very well not affect recon.Do you have saline implants?Weird it did not grow because even slow growing cancer would have grown some..good luck

  • DiDel
    DiDel Member Posts: 1,329
    edited November 2015

    it did not slosh around but i didn't think it was a tumor in the skin. It started to turn red in the last couple of months before it was removed. Literally last thing in my mind was that it was BC.

    And I have silicone implants but the tumor was just outside (top)breast pocket

    Hope you ladies had a nice Thanksgiving.. I'm gearing up for black Friday... But tomorrow morning not at midnight..


    Diane

  • DiDel
    DiDel Member Posts: 1,329
    edited December 2015

    so after much debate with Dr's I've agreed to radiating the tumor area and that's it . Like KBeee they wanted to do extensive radiation which just seemed excessive. I told RO he would have to meet with BS and MO and go back to the drawing board. I said after 7 reconstruction surgeries I'm finally happy and feel good and for my sanity and fear of zapping lungs I would not agree to his plan. After discussing it with other Dr's they agreed but here's my dilemma slash question my RO said my ps has to give the all clear because I have abscessed stitches which are still not healed. They wanted to start rads Jan 4th but my ps said incision site wouldn't be helected until February at the earliest. My RO is gone until after Xmas and I just don't know if I will not fall outside the acceptable range of time since surgery. The skin still looks raw and I'm just finishing antibiotics

    Question is am I no longer able to get rads if incision isn't healed??


    Diane

  • Chantal10
    Chantal10 Member Posts: 105
    edited December 2015

    hi Diane, I can see why your doctors would want the incision area to be completely healed, rads can burn skin and compromise further healing so if it's not already a healthy area, i can see where it would create a larger problem- potentially not healing at all. The waiting game is terrible but I am sure after xmas your rads doctor will help you with scheduling. good luck woman!

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2015

    This extra time gives you time for a second opinion as far as the plan and timing. That may ease you mind.

  • DiDel
    DiDel Member Posts: 1,329
    edited January 2016

    thanks ladies I am good with the plan...I refused whole breast radiation, supraclavicle radiation, sternum radiation and axillary radiation. It seemed extreme for a 5mm tumor. I also had a friend who did all that and 20 years later developed lung cancer. since she couldn't do rads her surgery was extensive and her prognosis poor.

    I was afraid to have to wait my rad onc would say the window was shut and that rads was no longer an option so looks like I will not be able to start rads till February which is fine with me. I will also be doing Zoldex and Aromasin...another form of torture I am not looking forward to but from everything I read this sounds like the only solution to shutting this cancer down.

    Wishing you all a very Merry Christmas!! Here's hoping the new year brings nothing but good health and all things good to all of us here. Thanks for your continued support.


    Hugs to all

    Diane

  • ehall
    ehall Member Posts: 663
    edited August 2017

    I know this a an older thread but hoping someone is out there with advice. In 2007 I had a bilateral mast with lat reconstruction for DCIS at 44 years old. Lots of reasons--age, family history, lowest chance of reoccurence, cosmetic, etc.

    Fast forward to 2017. Three weeks ago found 3 1/2 cm lump in same breast. Unltrsounds, MRIs, CT scans, biospys, and second opinion at MD Anderson confirmed cancer, Can't really determine if recurrent or new cancer but nevertheless its back. E+, P+, and HER2. Fast growing and aggressive but treatable. It is in pec muscle too. Started aggressive chemo yesterday (Prejeta, Hercphin, Taxiere, and Carbo). In 6 months--drs plan to re-evaluate if tumor is shrinking for removal.

    Oncologist believe we need to remove entire reconstruction and start over. Surg and Plastic surg not sure this is necessary. All agree need to wait for scans after chemo to better assess. If total reconstruction removal is done and radiation is given--only option appears to be DEIP for reconstruction which is a HUGE surgery.

    Anyone had similiar experience and only had recurrenttumor and pec muscle partially removed with good outcome medically and cosmetically? Any thoughts, ideas, suggestions, are welcome!

  • bevin
    bevin Member Posts: 1,902
    edited August 2017

    ehall, I have no experience with this but wish you well and wanted to send some support. Praying all goes well with you. I am certain others who have faced this will be along soon to give you advice and input.  Keep us posted

  • ehall
    ehall Member Posts: 663
    edited August 2017

    Hoping you're still around the site..your situation sounds like what I'm facing now. Did you have reconstruction and did dr remove your reconstruction during chest wall and pec muscle excision

  • logielass
    logielass Member Posts: 1
    edited January 2018

    Hi Ive just joined so hope you are still in the forum.

    My daughters just discovered that her HER2 cancer is in two lymph nodes in the perctoral muscle where she had her mastectomy. The doctor says he would not have removed them at the time of the surgery because its just not done. (UK)

    She is now having an MRI scan to see if its spread and they are talking about micro surgery to remove the nodes.

    Im terrified its spread elsewhere

    logielass

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2018

    Dear logielass,

    Welcome to the community. We are sorry to hear of your daughter's recurrence and glad that you reached out to our members. This particular thread while active a few years back has not seen recent activity. You may want to start a new topic to see if you can enlist some others' experiences. You can also attempt to Private Message those who have posted here. Let us know if we can be of help. The MOds


  • KBeee
    KBeee Member Posts: 5,109
    edited January 2018

    Hoping it has not spread. With my recurrence, they took just a small piece of the pec muscle. They were able to get clear margins

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