November 2015 Surgeries Thread?
Comments
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Oh Frill so sorry your surgery didn't go as planned. Feel so fortunate that my surgery was a breeze by comparison. Unfortunately my first chemo has landed me in hospital. Healing hugs to all. Donna
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Day after durgery. Haf a tough night. Hate not being able to use anywY made it! Still groggy from meds.
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Diane, so glad you made it and I'm so sorry your night was difficult! My advice is to stay groggy! Don't turn down medication and move around very slowly! Every day gets better!
((HUGS))!
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TallnTerrific
I feel ya , you and Imare on the same time frame more or less. Sometimes I feel great then boom I'm having spasms tightness and hysterical again ... I feel night time is the worst !
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Jbl Mom I know what you mean. I think Thanksgiving with a great Star Wars movie marathon to prepare for the new movie in Dec sounds better than a lot of people and food. I am actually looking forward to it. My husband will fry a turkey. I will make stuffing andmy two boys will each make something they want to have. We will just stay cozy athome.
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The pins and needles on my upper arm drive me nuts - every once in a while a sharp spasm - but mostly just really annoying. That and the drain - I hate the drain. And I only have one, can't imagine what you girls who have so many do!
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Live4them, you hit the nail on the head. Nighttime is terrible especially as I have tried to wean off the narcotics. Now all of my old aches and pains are back to prevent good sleep in combination with the tight chest muscles. Also The more agile we get the more others forget that there is still a lot going on in our bodies.
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tallnTerrific I LOVE THE STAR WARS Moviefest with a low key thanksgiving dinner. I .might copy you
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Brithael, I have those pins and needles, burning and numbness on the back of my arm. It's painful! I have been using Aquaphor for Baby, and it stops for up to 12 hours. Put it on at night or anytime, don't wear your best clothes or pjs. When it was really bad I used Lidocane Plus tm. maximum strength 4% lidocaine, Then after many days of that I was getting leg cramps pretty bad. Not sure what from but I stopped using the lidocaine and things went back to normal in two days. At amazon each about $12. Worth it!!
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Brithael, you could also ask your doc for an Rx for Lidoderm patches for your arms. You place them only where the pain or tingling is--and you can cut them in half. They can stay on no longer than 12 hrs., and you can’t reapply until another 12 hrs. have elapsed. But they were great for my torn glutes last spring. I wouldn’t have made it through Spain last April without them (used Flector diclofenac patches or gel during the no-Lidoderm 12-hr intervals).
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Hi Diane,
Welcome home! The first few days are the worst, but each day does get a little better. Keep on your pain meds for the first few days, then you can wean yourself down. Rest as much as you can, and add in a little walking around the house to keep your circulation going.
Madelyn / Mominator
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tallnterrific
So funny I'm trying not to take my pain pills but at night I look like a junkie counting how many I have left , I'm terrified to run out and that my PS won't refill thinking I'm abusing . He prescribed 40 and I have about 10 left . In the morning I have no choice but to pop one as I can hardly move and at night I need another for sure , during the day I try to alternate with Tylenol or Motrin ... ... Can I get off this roller coaster ride now ?? I don't want to ride anymore .. I want a peaceful Thanksgiving with no spasms or tightness in my chest. 🙏🏻🙏🏻🙏🏻
And now my left nipple which usually feels like it's on fire is starting to get a faint red rash right around my areola 👀 Really ??? I hope this isn't a sign of infec
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You need to stay ahead of the pain, because that way you actually need less pain meds to bring keep your pain at a low level than to bring it all the way down from 10. I know of few doctors who’d cut you off this soon after surgery. Mine didn’t prescribe anything, but said to call in case I needed it. Fortunately, I didn’t--but a lumpy and SNB are like a hangnail removal compared to BMX with TEs.
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Live4them. I do the same thing, I also cut them in half. They never say how long you need them, just how many you can take each day. But if it gets really bad and you need them I would think they'd give you a new prescription. They did say stay ahead of the pain....
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Hey, everyone! I got home last night. I've decided that I needed a practice round and that's what this is - our practice round. DBF has been a complete champ, emptying the one drain (good practice), talking me through exercises, checking surgery site. He set his phone to get him up every two hours to give me different pain killers. I'm going to have to convince him that if I'm sleeping, no need to wake me up to take meds.
The post surgery list - oh my gosh, I can't say how helpful every thing I bought from that list was. DBF was looking at me funny with some of it, "A grabber?" And then this morning I was using it to pick up dog food bowls. Having a blanket, a good pillow, and a seat belt cover made things way more comfy. Satin pjs, a step stool. I think my favorite thing is the neck pillow I got. I HATE sleeping on my back, much less sitting up, but this pillow makes it tolerable.
One of the PAs told DBF that my dogs were therapeutic. They have been taking their jobs seriously!
Tomorrow I'm sneaking off for a mani pedi. I'd rather suffer and not take my other pain pill and be able to have nice hands on Thanksgiving. It's bad enough that the first time I'm meeting DBF's family is like this. At least I can have my nails done. I ordered a poncho to go over my sweater - hoping that will hide the weirdness. Also, I've tried to find something I can make so I don't come empty handed. DBF says all his ex ever brought was a cheese ball. My thought is all the more reason to at least try to make something. I found a corn souffle recipe that only has a few ingredients, no real blending. I think I can handle it except for getting it in and out of the oven.
Because of my weird surgery, no TEs and MX on one side, I think I just have a boob flap or something hanging off me. I've decided it's best for my mental health to just not see it. I'm going to keep my eyes closed in the shower.
Stay ahead of the pain - I was in a bad car wreck and dealt with constant pain for a long time. Don't suck it up and don't let yourself get in pain. It's so much easier to maintain.
Sleepy, sleepy. Going to put up all these vitamin packs I made, grab that awesome pillow and take a nap.
Big gentle hugs to everyone!!!!
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Hi all, I was in ER last night due to large clots blocking a drain causing fluid build up/swelling and pain in chest. I hadn't had any pain till then. In ER again this morning as drain insertion opening leaked all over bed. Slow dripping from insertion site. Thought they would have to go back in but not bad enough. Swelling/fluid build-up way down since last night. Surgeon on call met us there this morning.
All seems good now.
Hope everyone is improving daily. Take care
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Hi Everyone, I am now 12 days post right mastectomy. I had my first post op shower yesterday! My 2 drains were removed on Wednesday and I also got my path report: Stage 3, 6cm x 5cm x 3cm tumor removed with clear margins. The 3 lymph nodes taken were all clear. Excellent news! Last night I slept my first night through since the surgery, but still have to sleep in a semi-sitting position. I did amazingly well emotionally my first week post op, but now it's hitting me. Very weepy day yesterday wondering if I'll ever feel sexy or like "me" again. Just got up the nerve to look at myself in the mirror and the incision is gnarly, puckered and has a dent on one end. I'm still very black and blue. It feels so strange to have only one breast. My TE has a small amount of fill in it so I have a hint of a breast there... feel like my nickname should be Stumpy. I can't tolerate my soft post op bra yet, so I'm going commando for now. Hoping my underarm stops hurting soon.
Thank you everyone for sharing your stories. I am sending hugs and love to those having surgery this coming week.
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TikkasMom, I'm so sorry you're having a difficult time with your drain! I had constant, slow weeping from my drain site but nothing like what you describe. So glad you received prompt medical attention. Sending you gentle hugs that your swelling decreases and you have no further complications.
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Frill, I couldn't bring myself to look at my chest until about 11 days post op. Definitely wait until you feel ready. There is so much to cope with mentally with the cancer and surgery, there is no need to stress yourself more. And immediately post op there is extra swelling and bruising so we aren't really seeing an accurate picture until more time passes. For now, pamper yourself, nap, and snuggle your dogs!
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Hi all. Still new-ish here though I have been lurking and reading since my biopsy in Oct. I'd like to thank contributors. The discussion has been helpful to me. Two thoughts/questions now:
1) Status-post lumpectomy, I have positive a positive margin and need to go for reexcision. I wish my HMO offered intraoperative margin assessment but they don't. So I'm kind of stuck. Anyone else had intraoperative margin assessment (like frozen section or touch prep)? Can you comment on whether it was helpful? I so want this phase to be definitively over and hate not having access to these options.
2) I am getting some push by both medical and non-medical people around me to "just" have a mastectomy vs lumpectomy - not for medical reasons but because they think it will provide a better cosmetic outcome and make them feel better. This is absolutely not my choice and I am slightly horrified that this suggestion is being pushed without a medical basis. They seem to be saying you are so lucky you can get a free boob job. I know, intellectually, that I just need to ignore them but it really wares on me hearing it. I have read in other forums on this site that others seem to have had similar experiences. Just wondering if others have been through this.
On a more positive note, my SL node was negative and so was my contralateral breast (once I finally convinced them to mammogram it). Those were a big, big relief. Learning the hard way how aggressively one has to be one's own advocate....
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One more question: For those of us who usually shave under our arms .... What do you do about hair growth at the site of an axial incision? Embrace your inner femennazi and let it grow? When did you feel it was healed enough to start shaving again? I've even managed to cut myself with an electric razor but I guess I could try it. Thx.
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Hi Lumpie, Welcome to the community. We hope that you will find support and information to your questions and concerns. Here is some information on our site about Re-exicisions after Lumpectomy. We look forward to hearing more from you. Keep us posted. The MOds
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Lumpie, this is a very personal and individual journey and I don't think it's fair for people to say what we "should" be doing. My heart was set on lumpectomy but since I had lymphatic invasion and a very large tumor, I realized for my own peace of mind I needed a mastectomy. I don't ever want to go through this again. But my doctors certainly would have done lumpectomy if that's what I decided. And my family's only job right now is to support me and my decisions. Perhaps some of the comments you're getting are founded in their concern for you or their lack of understanding of the recommended treatments. Stick to your guns and try to have patience.
I have not been able to shave my right underarm since a week before my surgery and it's driving me nuts! But I figure since I can't lift my right arm very much anyway, no one is likely to notice! Congrats on the clear SL node!!
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Hi Lumpie! I hate you're having to deal with all this- and hairy armpits to boot! Ha yes that was an issue for me as well, as I have no doubt it is for most ladies on these boards. A week or two after my mastectomy I tried an electric razor but since I can barely walk and chew gum at the same time, that was a bust…
I finally had to do it sitting at my little make-up chair looking into my magnifying make-up mirror at my arm pit so I could see exactly what I was doing! I did make sure my razor wasn't too new or too old so there would be less chance I would cut myself. So far so good!
Best wishes!
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Dear Lumpie,
I asked my husband to shave my armpits the first time, but now I have reached the point that I can do it for myself. I may miss a few hairs but it gets the job done.
On the lumpectomy, I think it is odd that they are pushing you to do the Masectomy unless they are worried about the size of your tumor or the depth of it. My surgeons preferred lumpectomy at the outset, but as the information kept changing (from diagnostic mammo to 3D mammo, to breast MRI, to PET scan) they decided a BMX was recommended for health reasons. Their preference for lumpectomy was based on recent studies that there is no difference in survival rates and the mastectomy is much more difficult surgery. Did others get that information too? -
Hello Ladies,
Just dropping in to say I made it through surgery on the Nov 17th!!
I had a double mx with immediate reconstruction, with a free flap from my abdomen. The plastic surgeons incision was shaped like a lollipop, my nipples were not spared, however the skin and tissue from my abdomen match pretty nicely. There is some swelling and chest pain, breathing is okay but my chest just feels soo darn tight sometimes. I willl practice inhaling with spirometer, that should help things wake up.
I have six drains that feel like little children lol!!! These thing are annoying and I cannot wait until they are removed. I empty them and record the amount of drainage twice a day.
Unexpected things that happened before and after surgery.
1) My menstrual cycle came on the DAY of surgery. How nice.
2) After surgery, my hemoglobin level was low therefore I needed some blood, got two bags on the second post op day. The doc told me I'm "naturally anemic" and recommended iron tablets. Im also taking black strap molasses. This really has me concerned because if during chemo my hemoglobin is low what in the heck will happen?
3) Was given Percocet and immediately became superwoman, I cleaned my hospital room without any pain, talked to friends in the phone till 1 am and then went to sleep. In my dream I built a spaceship.
Overall I'm pleased with the outcome. My final path report should be in next week maybe. I stayed the hospital from the day of surgery until yesterday. I'm now resting and praying at home.
I think of all of you when I'm alone and you all will be in my thoughts! Best wishes to everyone!
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Glad you're doing well Jinx27 a/k/a Superwoman...
Don't overdo it.
Hope all the other Super Women here see good progress as well. My pathology results are due Monday after Thanksgiving. Will share after my appointment.
Appreciate all the support I get here. Take care everyone...
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Hi all, I hope you're all doing well and looking forward to Thanksgiving! We definitely have a lot to be thankful for this year.
On Saturday I had my first post-surgery shower! It was so good to feel actual water on my body, not to mention feeling clean! Jinx27, congrats on a successful surgery! Be sure to take some sort of pain med on schedule (even if it's just Tylenol instead of the Percocet you were prescribed). I missed my pill two nights ago, and it was NOT a good night. Almost two weeks out though and I'm feeling okay. Still not at my previous energy level, but I'm getting there. It's not as bad as I had imagined.
TikkasMom, praying for a good pathology report for you. Hang in there!
Sugar-and-spice, no bra for me either. I feel liberated. While I didn't have reconstruction, I'm feeling okay being one-breasted. I was scared away from reconstruction, but personally, I didn't want to prolong my recovery especially when there were a lot of unknowns in my situation. My main priority was to get the cancer out of my body. Down the road, I might consider it, but I would hate to have drains/pain/etc all over again!
Has anyone here been recommended chemotherapy? If so, what type? I'm struggling with the thought of losing my hair, feeling like crap, and all of the other things that come with it. But then again I want to stay cancer free for as long as I live. I'm going to see another oncologist sometime in the next couple of weeks, pending my oncotype results.
Best wishes to everyone! -
Lumpie - My boss' wife had the attitude you described, "Yay, think of it as a way to get new boobs!" I think she was trying to be comforting. My bf even said that I had been talking about getting a boob job. A BMX isn't a boob job. I keep fussing with the PS saying, "Can you please let me have *something* good out of this?" Go with your gut as to what feels right for you. No one who hasn't heard this news before can understand, but your friends and family care for you and are trying to do their best to make you feel better. Even when I *try* to make this like a boob job my PS bursts my bubble over and over lol.
First shower last night - I only had to wait 48 hours post-op. Thank goodness for this site, I at least had a name badge neck clip thing (name is escaping me) when DBF took the bra off me and the drain dropped. I caught it, but we weren't thinking, we were ready though because I just bought what y'all said to! And I never thought I'd say thank goodness for 20-400 vision. Lol, at first I had a sleeping mask over my eyes. DBF is so patient, he never even blinked. When the drain thing happened, I realized I couldn't see that far down anyway, really, so I didn't need to even close my eyes, just not focus downwards. Even glancing down it's all a skin toned blur anyway. At one point I forgot I was supposed to keep my back to the shower - again, something I remembered more from y'all than from instructions. Anyway, it feels sooooo good to be clean. The little things.....
The hospital bra they gave me leaves a lot to be desired in the attractiveness and comfort department. But it has a loop for the drain. I'm going to go through the stack I got and see if any will work. I can sew a loop on any of them.
Sugar-n-Spice Lots of naps, and pampering - I'm sneaking out and driving to get a mani pedi this morning. Lol, it was the one thing I didn't get to do before surgery. I'm catching up on knitting and watching movies.
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Hi Everyone, I had my first fill in my TE this morning... I did NOT enjoy that at all. I am only 6 weeks into my journey and I already feel so poked and prodded and can't imagine another 15 months or so of this. I'm really not a strong or brave person and find going to the dentist a little traumatic so this is very difficult for me. DH is trying to understand and does well most of the time... but in my really low moments he is completely at a loss which often leaves me feeling utterly alone and unbelievably unhappy. Last night I was horrified by the appearance of my incision which is very gnarly, puckered and dented. Both PS and BS say it looks great. I feel like Frankenstein.
Lovingisliving: I expect chemo, the meds are listed below. I have ILC with lymphatic invasion, 6cm tumor. I had my mastectomy the same day as you and just received my path report. My nodes were all clear and I had clear margins so I am hoping he tells me chemo is no longer necessary, although that is highly unlikely. I expect 6 months of chemo and another 9 months of herceptin. A very long journey indeed. I have never had short hair so I can't imagine being bald 8 months or so.
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