Androgen Receptor Testing & Treatment

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  • usafmom
    usafmom Member Posts: 778
    edited November 2015

    I really hope the red helps you feel better asap. Your in my continued prayers

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  • dlb823
    dlb823 Member Posts: 9,430
    edited November 2015

    Glad to hear that, Hope! You should feel like a new woman by evening! (((Hugs)))

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  • Bestbird
    Bestbird Member Posts: 2,818
    edited November 2015

    Hoping your energy improves and that you feel much better!

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  • Hummingbird4
    Hummingbird4 Member Posts: 331
    edited November 2015

    Thinking of you and hoping that you feel much better after that!

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  • artistatheart
    artistatheart Member Posts: 2,176
    edited November 2015

    Feel better Hope!

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  • oriole
    oriole Member Posts: 72
    edited November 2015

    Hope, I am thinking all positive thoughts for you Hope! We should be getting beautiful fall weather and my wish is for you to enjoy it with your wonderful family!

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  • oriole
    oriole Member Posts: 72
    edited November 2015

    Hi Hope,

    Just checking in to wish you and your family a good weekend. As always, positive thoughts being sent your way.

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited November 2015

    Same here Hope. Wishing you a good week-end and sending hugs.

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  • Kjones13
    Kjones13 Member Posts: 1,520
    edited November 2015

    hey Hope! Hoping those red bags did the trick and you are feeling better! Think of you often and pray. Sending hugs

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  • Mel26
    Mel26 Member Posts: 67
    edited November 2015

    Hi Hope.....thinking of you, and sending healing thoughts your way.

    Melanie

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited November 2015

    Hope - thinking of you! Do check in when you feel up to it. Sending love and hugs

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  • artistatheart
    artistatheart Member Posts: 2,176
    edited November 2015

    Hope, Sending loving wishes, we would love to hear from you soon.

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  • Moissy
    Moissy Member Posts: 550
    edited November 2015

    Hope - Sending well wishes that those bags of red have sent strength into every part of your body.

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  • 3Holly
    3Holly Member Posts: 223
    edited November 2015

    Ditto Hope, I am thinking of you and praying for you often!

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited November 2015

    Hi hope. Thinking of you. Hoping you are OK.

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited November 2015

    Thinking of you, Hope!!!

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  • Hummingbird4
    Hummingbird4 Member Posts: 331
    edited November 2015

    Hi Hope, Thinking of you and wondering how you are. Hope you are feeling much better and are out enjoying yourself. If you get a moment and are up to it, please let us know. Wishing you a very Happy Thanksgiving!

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  • oriole
    oriole Member Posts: 72
    edited November 2015

    Hope, it is such a beautiful day here on our central California coast. I just want you to know that I am so grateful and thankful for all of your posts on the Ibrance/Affinitor/Bone Mets boards. You have helped so many of us as we go through these treatments. You and your family are in my thoughts and prayers.

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  • usafmom
    usafmom Member Posts: 778
    edited November 2015

    Thinking of you Hope! I pray you have some good quality time with your family over the Holidays

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited December 2015

    Hope, getting a bit worried about you. Praying you are well. Miss you!

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  • pearlady
    pearlady Member Posts: 882
    edited December 2015

    Very worried about you Hope. I sent you a PM and got no response. Praying we hear from you soon.

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  • oriole
    oriole Member Posts: 72
    edited December 2015

    Pearlady, I tried to reply to your PM and it said you are not taking personal messages. Is this correct?

    Thinking of you, Hope!

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  • artistatheart
    artistatheart Member Posts: 2,176
    edited December 2015

    Someone on another thread saw a post from Hope elsewhere (like another blog) on Dec 1st! Sorry I forget what thread but will try and backtrack to find it.

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  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited December 2015

    It was GG27 and the thread is called Concerned about Hope. She said she saw a Facebook post and surmised that Hope justwants some time off BCO to forget about bc for awhile.

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  • artistatheart
    artistatheart Member Posts: 2,176
    edited December 2015

    Thanks Shetland!

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  • Woodylb
    Woodylb Member Posts: 1,454
    edited December 2015

    Ladies,

    I have Hope on facebook, two weeks agoshe was going to a game with her family and last week she posted best pictures of her. I sent her a message , i got no reply and she always replies. I believe she is taking some time off from BCO and spending time with her family. I hope we soon can hear from her personally and know she is ok.

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  • Romansma
    Romansma Member Posts: 1,515
    edited December 2015

    I am so sorry if I've worried anyone. I needed some time away to collect myself. I did not go back on Xtandi as my doctors were worried about the side effect profile. It wasn't an easy drug, for sure. The consensus was that Xtandi did work to stabilize my bone mets, however, I had progression in other areas. Since I've been off Xtandi, my tumor markers are increasing fast, I have some lymph nodes that are getting quite large, and a few areas on my neck and skull that are getting much bigger. The pain is definitely increasing in my extensive bone mets along with numbness in my hands, but most worrisome is my blood counts are falling drastically and requiring transfusions and Procrit to maintain. Earlier this week my labs showed that ANC and platelets are in the danger zone too. It seems that this sneaky ILC has decided my marrow is a great place to hang out and take over. The only thing left to do is to try and break up the party with some combo chemo. ILC doesn't tend to respond as well to chemo, so it may or may not work.

    I have been given a choice to make, chemo or hospice. I am taking this time over the holidays to make this choice. Many of you know, I'm not a fan of chemo for me, specifically because I have ILC. I don't want to have my last months filled with doctor appointments, IVs, needles, and chaos. It's a tough choice. Without the chemo, time is very limited, for sure. With the chemo, it may still be limited, or it may give me a little extra time. Anyway, I guess this is why I've stayed away from BCO. I know everyone wants to help, but this is such a personal decision I need to make. I started out on this treatment break with the thought that I wanted some quality time with my family. As it turns out, my instincts may have been right on. I have tried to be 'in the moment' with my family and spend as much one on one time as I could with each of them. I've mended some issues that had been barriers and I feel as close as I ever have to each of them. Staying away from BCO and researching treatments and all the other things we spend our time on had to take a back seat during this time. So, I truly am sorry if I worried you. This forum and many of you have been so important in getting me through some very hard times.

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited December 2015

    Hello Hope, I can't tell you how happy I am to hear from you! I also understand that a break is sometimes necessary and beneficial. You're facing a tough decision, but whatever you decide will be the right decision for you. I'm glad you're spending quality time with loved ones and making the most of it. Wishing you a happy holiday season! Thanks for checking in, we all love you dearly.

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  • Romansma
    Romansma Member Posts: 1,515
    edited December 2015

    Thank you Linda! You have always been so generous with your kindness. I hope you have a wonderful holiday season too! You deserve it

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  • jobur
    jobur Member Posts: 726
    edited December 2015

    (((Hope)))

    Just sending a big hug and lots of understanding. My thoughts are with you.

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