Starting Chemo September 2015; join us!

What is a ooph?

Oophorectomy is ovarian removal. They take the tubes too.

Anyone know how big of a predictor Ki67 is for recurrence? Mine is 50.

hi

First dense dose of Taxol. In the books. No allergic reaction. The benedryl was strange. I was so sleepy then BANG! Woke up when they started the taxol. Not a fan on the 3 hr infusion. Hopefully minimal SE. I did ok in AC but this is a different beast.

tiger, with no reaction, they might cut out the benadryl. I'm not getting it next time. Congrats on getting another one done!

thanks Cajun. They listed all the reactions, I swear I felt them coming on but nope. Whew! No reaction cancer buddies

They said I could have reactions next time but after that I should be good.

I'm not trying to live to 70 or 80. I just want to see my kids into adulthood.

Artista- so many have never had it reoccur too. Even if someone gets stage IV I know some have lived with it for years. One Co worker had lived with it successfully since 2000.

I have a hysterectomy scheduled December 28th. I am not excited about it. I have gotten some second opinions and its still a very hard decision. If I did not have a history and risk of ovarian cancer I would be more likely to go with Lupron for a year because it is reversible and the SOFT/TEXT study showed that many women quit AI. Permanent decisions are very difficult. Without other factors I would be comfortable finding out how my body felt on Lupron and AI. One thing I will say about the SOFT/TEXT study with Lupron there is still time to see how it plays out. I think they are still recording data on the participants and who knows they might decide that robbing a woman under 50 of estrogen is a really bad idea. On the opposite side if the risk of ovarian cancer is low then there is benefit to trying the AI without doing something permanent.

In my situation I have ovarian cancer family history( moms side very young sister), a bad gene( Dads side palb2), Two different kinds of breast cancer( one in each breast) and I am young(42). My MO said regardless he would want me on Arimidex because I am "not a round peg in a round hole". So its Lupron or OO/hysterectomy. I admit I am concerned about Arimidex and the nasty side effects.

I still am thinking about the hysterectomy vs oophrectomy. I consulted a gyn MO and he told me that stage one ovarian cancer is almost always found by accident. Its hard to not feel like I am making the decision out of fear. It will be years before they find out more about PALB2 or the other genes. My doctor said probably 10-20 years before we know my real risk for ovarian cancer if ever. Because my diagnosis is bilateral there really isn't even a study that directly applies to my situation. Its hard to make a decision that I feel I can be at peace with.

Trying to put a number on recurrence can drive me crazy. If a woman does Chemo she is probably higher risk or she wouldn't have done Chemo. It sucks but it is what it is. Being a BC feels like having a bounty on your head sometimes. There is always that shadow over your shoulder no matter how many years go by or how much a person tries to understand the treatment options.

I plan on spending some time now that I finished TCH trying to resolve this surgery. There are some other factors. One is right now I have a lot of support. This is a good time if I am going to have the surgery. My MO wanted me to have it 4 weeks after Chemo I think my risk of ovarian is 20% or something like that. .

I appreciate you guys talking about all of this. It helps keep me off the ledge so to speak.

I freaked hearing my KI 67 was 80% and that I was grade 3 --- but my MO said that such rapidly dividing cells are also the most sensitive to chemo. So fingers crossed, all the rest of you ladies with high numbers!

Southern..glad to hear you're doing better. That's all we can hope for these days, to be able to cope until its over.

I'm on day 3, post #2 Taxol infusion. Yesterday was great, riding the steroid high, I was able to accomplish quite a few things. Today the joint pain is settling in. So far, its manageable but I get to give myself that nasty Neulasta shot later this afternoon. I'm ready with the heavy duty narc med, just in case. I'd rather just sleep away the weekend than feel anything.

On a positive note, no neuropathy yet. After my first round, I had tingling on day 2 only then it went away. I'm hopeful.

That is my understanding too. Tamoxifen and AI's are to suppress estrogen.

Nice mix Annie! Will have to try I have some elephant skin going on. My left shoulder above my node removal, mostly.

Day after round 1 of weekly Taxol and feeling good! Out and about with the family.

Arista, I've made some plans in case. I have a good friend in ministry who has promised to ensure that my kids are taught the gospel. My husband will sell the house, move where family is, and find a new church. We are going to work on paying down the mortgage. That said, I have a friend who was diagnosed stage 2 who had a stage 2 recurrence 6 years later, so it's not always mets, but I'm aware that the risk that I am dying is there... Today and every day. I want my life to be a testament to God's grace even so.

Cute kids Cajun!