Starting Chemo September 2015; join us!

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  • AnnieB43
    AnnieB43 Member Posts: 724
    edited November 2015

    image

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  • LindyC
    LindyC Member Posts: 231
    edited November 2015

    Who knew that sharing my meltdown would be helpful to you..lol..it's a little less humiliating. I tend to save my breakdowns for the shower but just couldn't hold it anymore...ugh, so embarrassing.

    I'm still on the steroid high..so happy to have some energy so have to make the most of it before the crash and burn.

    Have a great day everyone, free of SE and emotional chaos.

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  • Scotland219312
    Scotland219312 Member Posts: 237
    edited November 2015

    I have angered the poo fairy. I'm crampy as all get out because of Miralax and Colace, and she's mocking me. Steroid crash may be over, though.

    Cajun, I feel OLD and creaky. I kept having to tell my daughter to slow down on the ten minute walk home from the volleyball banquet at the high school last night. After that, I couldn't get off the couch. Driving the younger one to school this morning with painful knees and a manual transmission was delightful. I feel like I need a walker with a little seat so I can rest every few feet.

    Lisa, sorry you had a crappy day. Mixing health problems and ill-behaved relatives should be banned.

    On the bright side, I picked up my compression sleeves! No more bulky bandaging! For the first time in weeks, my arm fits into the sleeves of my clothes. And I can stop seeing the lymphadema therapist five days a week. No doctor appointments next week!

    Happy Friday, Ladies!

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  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited November 2015

    I asked if they could axe the Benadryl. They said would halve it and see if they could eliminate it. I wish they would eliminate the steroids. I am not feeling it today, just dreading that feeling of slow sickness creeping on. I feel angry. Just angry and irritated.

    Hope you ladies are having a better day. Hugs!


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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited November 2015

    Scotland glad you got your sleeves. As for the big C I found it a bit better this round with the steroids lowered. Maybe ask if they can do that next infusion.

    I do wish I could sleep at nite. So tired of waking up every few hrs to pee or have a head hotflash. I swear it's like my head is on fire.

    This morning I felt baby hair bumps on my scalp. I think they could be new hairs sprouting out maybe?

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  • twiggyOR
    twiggyOR Member Posts: 270
    edited November 2015

    Good morning ladies! I've been pretty quiet but I've been here regularly reading all the posts. I'm feeling similar to many of you. Tired of this crap, want to be done with this, and want my old life back. We are deep in the trenches now and just have to increase our resolve to get thru this. The end of chemo is in sight (if not already past). #FUcancer

    Today is day 5 round 4. I crashed hard yesterday and am planning on working from home as much as I'm able today.

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  • El_Tigre
    El_Tigre Member Posts: 520
    edited November 2015

    Cajun - it's Taxol day! I'm getting myself geared up with the steroids. apt @ 11...gulp

    I have also had my lash outs at my hubby, and luckily he was expecting some of them. I loath the mood swings during this stressful time and Lupron (i'm guessing) mood swings. I keep saying to myself its a good trade :). Also the meditation does reset my mood and the more I do it the more I feel at ease. & choclate that always helps ;)

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  • sailorgirl15
    sailorgirl15 Member Posts: 114
    edited November 2015

    Scotland - you and I are in the same boat! I had the same reaction to the first Taxol which I also had on Tuesday. Strange feeling to crash! But I felt great before that happened! Nothing tastes good but what's different is that I'm not hungry - so maybe I can shed a few lbs! I really feel bloated.

    My body aches and the poop fairy has been very lazy - like getting a dime under your pillow when you really would like a dollar!

    It would be hard to explain this to anyone else - so thankful you guys are out there and "get it."

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  • El_Tigre
    El_Tigre Member Posts: 520
    edited November 2015

    #FUcancer

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  • edwsmom
    edwsmom Member Posts: 346
    edited November 2015

    Yesterday's infusion (TCHP #4) was pretty uneventful. That said, I've been very weepy for the same reasons everyone else has shared - just so tired and mentally exhausted by this process. I feel so run down. I actually slept through most of my infusion - that's a definite first for me. My husband was in and out of the room taking work calls and I slept through it all, only woke when the thing started beeping to have the bag changed and then fell back to sleep after. Weird!

    Today I'm at work, taking it easy, not going to start anything big and hoping that next week is quiet due to the Thanksgiving holiday. Fingers crossed.

    I have a plan to try and manage the poop fairy this time since last time was SOOOOO bad with the Big C (a first for me since previously I've only had really bad D)

    I get my Neulasta on Sunday morning - ugh - and after that is when I usually crash for about 3 days.

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  • Artista928
    Artista928 Member Posts: 2,753
    edited November 2015

    Cajun- You may not want to axe the benedryl in pre meds. It helps with nausea so I was told no.

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  • El_Tigre
    El_Tigre Member Posts: 520
    edited November 2015

    Cajun & Artista - oh I need to ask about the Benedryl they only have me on the roids.

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  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited November 2015

    Honestly, I'd take nausea over cracked out. I told them to pull the zofran too. I hate that stuff. I am wearing the Sancuso patch though. No reaction to the Taxol, whew.

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  • Artista928
    Artista928 Member Posts: 2,753
    edited November 2015

    If you can stand Ativan, that's also one for nausea as well as to relax you. I hate it so canned it in my pre meds.

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  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited November 2015

    el tigre, wishing you a smooth infusion day!!! Big hugs for my chemo buddy. :):) I'm almost done.

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  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited November 2015

    The guy next to me who is 72 had metastasis of his colon cancer 4 weeks after ringing the bell and he is taking his Taxol and other meds like a champ!

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  • El_Tigre
    El_Tigre Member Posts: 520
    edited November 2015

    Cajun - Awesome you had no reaction to Taxol! Good to hear! Nice fix with the patch :)

    Thanks Chemo buddy.... we shall see how this ride will go. I hate the waiting.


    I hear ya all on the Zofran - headache city on that crap

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  • mom2boo_and_buzz
    mom2boo_and_buzz Member Posts: 149
    edited November 2015

    Good luck to everyone today - either getting treatment or handling SE's! Sending the poop fairly to those who need her , luckily things are normal at my house.

    The surgery to put stents in my tear ducts is scheduled on 12/1. Chemo is moved from 12/2/ to 12/9 so that puts my last chemo at 12/30. I'm going to ask him about moving that one to after the first of the year if it doesn't pose any risk to me. With the Herceptin and Perjeta co-pay cards that would save us a lot of money!

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  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited November 2015

    el tigre- have they offered you the Everolimus trial? It might be worth asking if you plan to take tamoxifen of AIs after treatment ends.


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  • El_Tigre
    El_Tigre Member Posts: 520
    edited November 2015

    Cajun - I saw you mentioned that earlier. I believe we are still weighing the +/- between Taxomifen and Aromatase inhibitors. I apologize if these are the same. I have not gotten my drug vocab down yet :) We will def be asking about that. There's another trial they are doing that I "may" qualify for but we won't know until today hopefully. Oh man I think I could lift a car right about now. I'm in the buzzing head zone.

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  • Artista928
    Artista928 Member Posts: 2,753
    edited November 2015

    Zofran didn't do much for me. I got prochlorperazine instead and it works better for me. Get this if you haven't tried it.

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  • El_Tigre
    El_Tigre Member Posts: 520
    edited November 2015

    prochlorperazine 10 mg Tab ohhhh i have that already on my meds list.

    sweet!! I think that is what i take when i travel the next day. Yes I'm nuts I went to a few Oregon Duck football games the next day after AC. Worked well :)

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  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited November 2015

    Thanks for the tips ladies! Tamoxifen is given pre-menopause and aromitase inhibitors after. I will be taking AIs from 10 years to life, egad. Commencing early menopause in 7 months and counting.

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  • El_Tigre
    El_Tigre Member Posts: 520
    edited November 2015

    I need to double check with doc. Maybe she is thinking the lupron induces menopause then she would lump the AI with that. I would say my memory is chemo shot but I was like this before LOL

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  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited November 2015

    final report for Kim. I feel pretty normal. Got 25 mg of benadryl, steroids, 141.6 mgs of Taxol and pepcid. Was told I could not travel for thanksgiving as WBC and RBC will run chronically low going forward. My request for neulasta was denied. 11 more to go!

    Tiger, what trial are you referring to?




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  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited November 2015

    Lupton to suppress ovaries pre menopause?

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  • El_Tigre
    El_Tigre Member Posts: 520
    edited November 2015

    yes i get lupron shots to hault my eggs producing estrogen since my cancer bastard is hormonal. It was explained to me it's like a synthetic meno. I just started it when i started chemo i heard it takes awhile for it to take effect but I had no period this month, it's the little things. hmm I could fake PMS still :).


    The trail, if I qualify (trying not to jinx it HA) would be Herceptin for a yr and the double blind portion is a protein that could act like a vaccine against the target of the HER2 nuetral aspect of my tumor. I'm a "1" offically so I have those receptors floating around somewhere. I hope I qualify since herceptin is $$$ and my ins. might, lol HAHAHA won't cover it. If we qualify it's like doubling down on the cancer. Well i hope it is. Ya never know.

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  • El_Tigre
    El_Tigre Member Posts: 520
    edited November 2015

    lupron is mainly used for men's prostate cancer. Every time i have gotten the shot they mention that and i'm the first to request it. Makes me nervous and giggle at the same time since it's a shot in buttcheek

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  • AnnieB43
    AnnieB43 Member Posts: 724
    edited November 2015

    I'll be getting Lupron and AI unless I decide on the oopherectomy

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  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited November 2015

    interesting. Now I want to check my her2 results when I get home.

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