Starting Chemo March 2015

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  • jumbledbamboo
    jumbledbamboo Member Posts: 158
    edited November 2015

    I have been ok. Freakin migraine attack but I got to sleep for a while lol

    I hate the you look great comments too when you feel like crap. Guilty of it

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2015

    You know you have been let back into the land of the living when people start telling you you look like crap and stop saying "you look great"! So there's that.

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    Oh, good, because someone said I looked pale yesterday.

  • eheinrich
    eheinrich Member Posts: 792
    edited November 2015

    Bekah, I also had to stop wellbutrin. It's been going ok though. Although now I'm temporarily off tamoxifen to see if that really is what's causing my leg/hip pain. Congrats on the exchange :) Mine is next month - I can't wait!!


  • Meme117
    Meme117 Member Posts: 194
    edited November 2015

    PB so happy you are healing, great news!

    Bekah your hair looks so cute! Fingers crossed for no SEs. Today will be my third day on tamoxifen. Here's hoping you like the ne boob size😉

    Katie too funny with the chocolate story, surprised the doctor didn't touch it first. Reminds of the movie with the little boy with stuff on his face and the mom touched and licked it to see if it was chocolate or poop, too funny. Are you going walking in the rain?

    Leigh I still have discoloration from rads and I finished 9 days ago. I have no open sores just like a concentrated tan that is slowly fading. I only had 2 small areas of open sores, one underneath and one collarbone, both healed within a few days. I also had googled and was so worried but turned out to be very manageable.

    Sharon so sorry about Andrew - big hugs💓. So nice you went for a ride on your horse. There's a horse farm that I drive pass almost everyday and I love looking at the horses. I've only riden once but have been thinking about trying it again. Sending you positive vibes!!

    I still need envelope hugs, boob gets a bit painful sometimes and definitely have scar tissue. Other than that feeling pretty good, doing the Y wellness program - tried Pilates for the first time. I really liked the class. Trying to eat healthy and change some bad habits. Eating more veggies, tried a watermelon radish and a turnip for the first time. Still eating too many carbs, love my bread😬 Planning a trip to Florida over Christmas break and planning to finally go to key west, wahoo

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    I can't wait to hear everyone's plans for the holidays. That sounds so nice! We normally go to my sister in laws an hour away but I might not go if I am itching and in pain (which I can't see any reason why I wouldn't be since I am now and I have 4 more zaps). I just don't want to spend hours in utter misery. I kind of feel like playing the cancer card this year is justified. I told my husband it wouldn't bother me a bit if he took the kids but he refuses. I think they will be disappointed though.

    Bekah: I hope you don't have one single SE from the Tamoxifen!! I am holding out hope for you. Your hair is cute!

    I might be the one person vain enough to still enjoy hearing I look good. lol. What's scaring me is that I am thinking my silver, curly short hair isn't so bad. Yikes! I did make an appointment to get it colored the week after Thanksgiving. They said it would be hard to get me in before and it's not like I am not wearing my wig anyway. I also didn't want to go to a crowded salon.

    Katy, I think you would be proud of me. I called the salon manager and told her my situation and asked if they could A) find me a private place to have my hair done B) not gouge me on the cost since it is only 2 inches long (they usually charge like $40 just to blow it out after color) and C) not have some 20 year old who would say something like "My mom DIED of breast cancer" or some stupid insensitive thing like that anywhere near me. She was wonderful and very nice. It felt empowering.


  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    Allison- indeed I am very proud of you. It is so empowering to ask. Simply ask for what you need. Somehow, somewhere along the road, many women, including me, were subtly or not so subtly trained by society not to ask for what we need. In fact, sometimes the message seems to be that it would be preferable not to have any needs at all. That was HUGE what you did. Not to mention brave. No need for bitchiness. Just some simple requests. Very well done

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    As far as Thankgiving, I am having two small ones here at home. My niece (not by blood but you've all heard of her and what she's done for me over the last year) is working producing the news for one of the Eugene television stations and can't get off. We are therefore doing a make-up Thanksgiving on the Saturday, a traditional turkey dinner. I think I'm going to get my tree (very) early since her BF will be here and they can get all my Christmas stuff down from the attic and maybe get the lights on and hang a few ornaments for the daily entertainment.

    My local friend, who is invited to the make-up dinner thought it was sad that we'd both be in our houses alone on the actual holiday, so we decided to have a festive non-turkey dinner that day. I do love to cook, and she knows I'm a weakling right now, so we will spend the day cooking together. And she'll probably do more than her share of cleaning up. She's from England, and often doesn't get some of the traditional things she loves, like parsnips and mincemeat pie, so those are on the menu, along with frenched pork roast (like a crown roast but with only two of us, not the whole circle- but same cut of meat).

    I hope I haven't literally bitten off more than I can chew!

    What is everyone else doing?


  • ThePrincess
    ThePrincess Member Posts: 424
    edited November 2015

    Sharon- I'm so sorry to hear that about Andrew - glad you're riding and running!

    Rebekah! That's some hair!!!!

  • eheinrich
    eheinrich Member Posts: 792
    edited November 2015

    I am having Thanksgiving in Arrowhead w/ 3 friends. This is the first year Alan & I haven't spent Thanksgiving together in 25 years. I invited him, but he made other plans. The girls aren't coming home. Blech. But it will be super fun anyway. Christmas, I'm assuming we will do our usual thing. I know Kelli will be home for a few days - not sure about Shana - working in hospitality can be tricky around the holidays. I love Christmas trees & decorating. Last year no one seemed interested. This year I am having a tree decorating get together - invited around 12 people although some have kids so that number is I guess actually higher. Time to start creating my own traditions....

    Still not really exercising. Gotta get on that.

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    We're having my mother and her husband and sister and her gentleman friend for Thanksgiving/Hanukkah. I sense Thai take-out in my future. Gluten-free + Zumba + new guest beds!

    At Christmas, my wife's mother and sister, maybe her cousin depending on who's in town. The nephew and his husband will be with the other family this year. We'll get the tree up around the solstice.

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    Love hearing all the plans.

    Leigh: I thought you were going to post a hair picture.

  • IndyGal35
    IndyGal35 Member Posts: 340
    edited November 2015

    Bekah, it's so nice to see you on the board! I've seen you on Facebook, but I loved seeing your smiling face here. :)

    Katy, I just saw your chocolate story, and I was laughing and feeling so bad for you at the same time. You'll have to post a Jack & Tutti pic for us soon!

    So glad we have some rads ringers coming up in the next week! Boy, it's so nice that we are graduating and getting past the last bits of these awful treatments!

    Thinking of you, Sharon. I hope that your support network stays very strong despite the separation.

    I'm getting my exchange with fat grafting on 12-15. I really, really, really didn't want any more recon, and I was almost in tears in the PS office today, but she really thinks that the swap with grafting and breaking up the scar tissue in there will help my pain and give me satisfactory results. So...we will see. She promised that this is our last ditch effort and that she'll yank them back out if I'm not happy or have any issues.

    What does the grafting look like? Do you have little needle holes in your belly? Is there a noticeable difference in your belly (anything like liposuction results) after you have healed

  • rleepac
    rleepac Member Posts: 755
    edited November 2015

    Indygal - I have two small incisions at either side of my lower abdomen right around the pelvic bone and they are maybe 1/2 cm ea and were closed with glue. I'm only a week out so I still have some swelling but I do notice a lessening of fat in one of the areas that was a little 'pouchy' before. Won't really know for another few weeks what results will be on the belly. HOWEVER...I can see a big difference on my boobs. I had implants before cancer and you could totally tell because the chest wall was flat and then stuck out like a balloon where the implant was. Now, he gave me cleavage and a nice slope down to the implant. Much more natural looking.

    I'm still bruised and swollen so they aren't 'beautiful' yet but I'm very happy with the fat grafting. The PS nurse said I have 'college girl boobs'!

    Thanksgiving we are spending with a wonderful family that we have become very close to over the past year as they have taken my teenage daughter in ANYTIME we needed help and they have just been the biggest blessing to us. Good people and we are so thankful for them that it only seems fitting to spend Thanksgiving with them.

    Katy, I can totally picture the chocolate debacle and it makes me giggle.

    2 days without Wellbutrin (and on Tamoxifen) and so far so good. If anything, DH says I'm more chatty {shrug}

    Bekah

  • Leighrh
    Leighrh Member Posts: 317
    edited November 2015

    Allison.... I keep forgetting to take a pic.... I am just now getting comfortable around the house with out anything on my head, and my youngest tells me to put my buff back on because I look like a man..... LOL At least he's honest!! I also have a little bald spot on the top of my head where this stupid wig sits... isn't that lovely!!! LOL

    Bekah... You deserve college boobs after all you have been through... LOL!!!!

    I am still trudging through rads... I hate to jinx it, but it's going pretty well. I have 4 more of the whole area and then 5 boosts, so single digits!!!!!!

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    I am glad you are having an easy time with rads. I guess I should have known I wouldn't but I was still cautiously optimistic. I figured it out about 2-3 weeks in when I remembered my reaction to the tanning bed 30 years ago.


  • eheinrich
    eheinrich Member Posts: 792
    edited November 2015

    Lee - we're exchange buddies! Mine is on the 14th. In terms of the fat grafting, I had some done when my ps put in the TE and I definitely saw a reduction in my belly flab. This time we are working on my love handles.

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited November 2015

    Katy, I read your story about the chocolate on your face when I was waiting for in my BS's office. I found the story hilarious. I hope you don't think I'm diminishing your anguish and I'm sorry you were having such hard time. The good thing is that it ended well. It had to be so embarrassing to the doctor.

    My husband told me that once he had a patient see him for a second opinion. She had a dark "growth" at the bottom of her foot and she was going to have it removed by another doctor. It turned out to be just a dried up blood blister which fell off when my husband started examining it. So, those things do happen.

    Meanwhile, I still haven't had my MRI. My insurance has just denied for the third time – twice to MO's request, and most recently to the BS's request. My breast is hurting, the nipple looks inverted, the surgeon feels multiple lumps, the mammo is showing a bunch of calcifications, it is "PROBABLY benign". According to the insurance the mammo is normal and they want me to wait 6 months and repeat the mammo, and the MRI is not medically necessary.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    BB- haha! I told the story because it was too funny to keep to myself. I'm glad for all the smiles. I'm pussed off about your MRI tho. It's really seems like there is justification for following up but I am assuming the best case anyway.

    Bekah- college girl boobs and cleavage! Yay!

    Allison and Leigh. Thinking of you both. You're almost through Allison and I know you'll bounce back quickly. Leigh so glad it's going ok and you're soon to be getting your buff back.

    What a lot we've all been through! But together we are still standing.

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    Just wondering because I had a talk with my sister about it. Have any of you read Unbroken? Did I ask this already?

  • pboi
    pboi Member Posts: 663
    edited November 2015

    I'm a little over a week post op and healing well...back to slow exercise again too! Having a lot of trouble sleeping though...thinking about trying melatonin, so if anyone has tips on taking it, I'm all ears.

    I'll be hosting Thanksgiving at my house this year...but my family will be coming to help do the set up, cooking, and clean up. We will have about 15 people over. The kids are excited to "help" cook. My 7 year old is telling everyone he is in charge of making guacamole, something he thinks he can manage to pull off on his own

    Love hearing about everyone's plans. Wishing you all a wonderful Thanksgiving with your family and friends. Safe travels to those traveling next week.

    PB

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    I am glad you are doing well, PB. So cute about your son making the guacamole.

  • Italychick
    Italychick Member Posts: 2,343
    edited November 2015

    Allison I haven't seen you mention Unbroken before. I haven't read it. Right now I am into total romance trash reading lol, so if a book doesn't contain at least 5 descriptions of sexual acts, it probably isn't on my list right now.

    It does look like an interesting book....

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    It's a hard book to read but it is absolutely gripping. I read the description a few years ago and it sounded very depressing but I read the sample on my Nook and was hooked immediately. It is an amazing look at the human spirit and one that I think many cancer patients could get a lot out of. I learned more about WWII history than I ever learned from any other source. I thought of it because I recommended to my sister when she was here in Sept and she thanked me today because she loved it.

    I have never been much into romance novels for some reason. lol

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    My ND has me on 20 MG of melatonin. Knocks me out nicely, though I still wake frequently and tend to have 1-3 hours awake in the night.

    The plumber has come and gone, the two new sofa bed have been delivered, and the house cleaner will be done in an hour. Tomorrow the old bed and an armchair are being picked up for donation to a women's shelter for a client who needs them, and I'll don my sleeves and slowly put back all the furniture that had to be moved so the sofa bed for the guest room could be moved down the hall. Then I'll reshelve the books, but that's pure pleasure.

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited November 2015

    Pboi, I take 5mg melatonin right before bed, but I'm not convinced it's making much difference for me, personally. Maybe I should increase the dosage

  • IndyGal35
    IndyGal35 Member Posts: 340
    edited November 2015

    T, you are too funny! I haven't read Unbroken either, but I'll look it up tonight. I'm hooked on Game of Thrones right now. With my 30 minutes of reading per night and having to reread everything due to brain drain, I expect to finish the series sometime in mid-2017. :)

    Eileen, I'll be your exchange buddy any day! Hope this gives us the foobs we've been working for and gets rid of the pain from these crappy TE's.


  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2015

    T, is there a romance out there trashy enough to hold my stupid chemo brain on task? Please, share! I miss reading but can't focus any more!

  • Italychick
    Italychick Member Posts: 2,343
    edited November 2015

    littleblue, what is the task? I have all kinds of tasks going in my imagination

  • slothabouttown
    slothabouttown Member Posts: 449
    edited November 2015

    Re Unbroken, I saw the movie, does that count? I'm just starting to get back into reading again, finishing The Goldfinch which I started before chemo and had to stop reading because I couldn't concentrate. Also started crocheting an afghan and realized that my fit bit thinks crocheting is walking! Now I have to try to remember to take it off before I start working on the afghan.


    Pboi I take 10 mg of melatonin at night. I keep it on the nightstand and don't take it until I get into bed, finish reading etc. I think it helps.

    Today we went into a hoarders place and removed over 200 birds, hamsters, chinchillas, guinea pigs and tortoises. It was a 12 hour day with lots of steps. I'm exhausted but it was a great feeling of accomplishment getting so many sad lite animals out of that filthy environment.

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