Intraductal Papilloma with Calcifications

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jcjeffery
jcjeffery Member Posts: 2
edited February 2016 in Benign Breast Conditions

HI!

I am 45 (okay...nearly 46) and have never had issues with my dense breast. I also don't have any cancer in my family. Then two weeks ago I had the call for a diagnostic mammogram. My diagnostic mammogram came back suspicious due to clustered calcifications. I had a biopsy and the results came back today as an Inductal Papilloma with Calcifications. My Radiologist recommend surgery so I have my first appointment with the surgeon on April 9. I'm so confused right now though. I've done a lot of reading online and I'm sure that has confused me more.

I know that Intraductal Papilloma is B9 so why do I need to have this removed? I'm also not sure if I have a solitary or multiple Papillomas. I have NO symtoms (nipple discharge) or even a lump. My biopsy incision is on the lower part of my breast and was told the calcifications were in the same area. Nothing near the nipple.

If I have the surgery, and they remove the Papilloma, will it then be tested for cancer? Will they remove tissue around where the Papilloma was located and test this too? Does this mean I'm not 100% clear of breast cancer? I have more questions now than I did before the biopsy and two weeks to wait!

Thank you for any information you can provide me.

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  • jcjeffery
    jcjeffery Member Posts: 2
    edited March 2015

    HI!

    First...yes I know I know I spelled Intraductal wrong in the topic title.

    I am 45 (okay...nearly 46) and have never had issues with my dense breast. I also don't have any cancer in my family. Then two weeks ago I had the call for a diagnostic mammogram. My diagnostic mammogram came back suspicious due to clustered calcifications. I had a biopsy and the results came back today as an Inductal Papilloma with Calcifications. My Radiologist recommend surgery so I have my first appointment with the surgeon on April 9. I'm so confused right now though. I've done a lot of reading online and I'm sure that has confused me more.

    I know that Intraductal Papilloma is B9 so why do I need to have this removed? I'm also not sure if I have a solitary or multiple Papillomas. I have NO symtoms (nipple discharge) or even a lump. My biopsy incision is on the lower part of my breast and was told the calcifications were in the same area. Nothing near the nipple.

    If I have the surgery, and they remove the Papilloma, will it then be tested for cancer? Will they remove tissue around where the Papilloma was located and test this too? Does this mean I'm not 100% clear of breast cancer? I have more questions now than I did before the biopsy and two weeks to wait!

    Thank you for any information you can provide me.

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  • mommy2lilfi
    mommy2lilfi Member Posts: 12
    edited March 2015

    hi jcjeffery, I wish i had an answer for you but i do not. I am just starting the journey of a possible intraductal papilloma. I saw a breast surgeon this morning who is sending me for an ultrasound and mammogram. I had nipple pain and discharge. I also have bc on both sides of my family, essentially every female relative.

    My obgyn initally saw me and told me that if it was an intraductal papilloma that the surgeon would want to remove it because it can hide other cancerous cells that may grow down the road or may be there. I am not saying that you should get it removed, that was my obgyns reasoning why it would be recommened. She told me that once it was removed it would be tested to ensure that it was benign. It is your body, so if you don't want to get it removed, you don't have to, but that you may need more frequent screenings.

    Other ladies on this site have responded to some of my posts and have told me that often one papilloma is not indicative of cancer. Of course, there are always execptions. I am not sure about calcifications. I will be going for my first ultrasound and mammogram sometime soon.

    The people on this site are wonderful and very knowledgeable, I hope this post bumps you so that other members can provide you more information. I am sorry I can't help more! Best wishes for a good outcome!


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  • Straitlover
    Straitlover Member Posts: 124
    edited March 2015

    They remove intraductal papilomas because it's possible for them to ahve both benign and malignant cells. Removing it, they can check the whole thing.

    Also, like the PP said, they can hide other cancers. That's what happened to me I believe. The rare type of tumor I had (low-grade adenosquamous carcinoma)can also come from intraductal papilomas, so it's best to get them out. I didn't have any calcifications, so I don;t know how that affects anything for you.

    I wouldn't worry too much right now. Just have it removed, they will do the pathology, and if it's all benign, they'll just have you come back for scans every so often, probably every six months. Good luck!


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  • luvdsny
    luvdsny Member Posts: 10
    edited November 2015

    I know this is an older thread but I would love some follow up from posters. I had a biopsy for a calcification in my right breast which were benign. However I am being referred to a surgeon for an Inductal Papilloma, I too am confused to know if I am "out of the woods" for malignant cells. Would love to hear about results or information on removal surgery. Thanks!

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  • Liza12345
    Liza12345 Member Posts: 13
    edited November 2015

    HEY, just read your post and I had just had a lumpectomy on Monday to remove a papilloma. I have also had calcification removed a few years back, ( which was benign) . My surgery took out a chunk and left me with 12 stitches and glue and believe me it is sore. Just got the call today that all was benign and I am relieved. My surgeon told me that he would cut out the papilloma and cut until there were clear margins so my incision was bigger. Mine started with a mammogram which showed NOTHING!!!! however my ultra sound (which I get every year) showed something. I had to do a biopsy which came back atypical cells (never heard of that before), so then I was told that I needed a lumpectomy. This benign tumor, I guess you would call it, was deep into my breast and could not be detected by feel or mammogram. I believe your surgeon will want to remove this papilloma and you should be fine. Fine also with the calcification. My calcification looked like 3 grains of salt and that is why they have to remove because if they are in a cluster the doctors want them out of there. Good luck and please let everyone know your progress. I hope this info has helped you a little bit. Liza1234

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  • luvdsny
    luvdsny Member Posts: 10
    edited November 2015

    Thank you Liza12345 for your reply. Everything I am reading says it's "standard protocol" for a lumpectomy with these papillomas. My biopsy pretty much removed my calcification, so that is good. Not looking forward to a surgery but ready to put this behind me. I will report back, these boards have been so helpful!

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  • Liza12345
    Liza12345 Member Posts: 13
    edited November 2015

    My question is after the biopsy and lumpectomy and findings of papillon benign, will there have to be a follow up of medicine?

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited November 2015

    I doubt it, since any medications would depend on the hormone-receptor & HER2 status and grade of the tumor--none of which would be tested in a benign tumor.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2015

    Liza--no medication needed for the benign papilloma, but if you had atypical cells (ADH or ALH), they may recommend tamoxifen (to decrease your overall risk). Talk to your doctor to figure out your risks versus benefits of taking preventative meds. (it's different for each person, as we all have different risk factors).

    Anne

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  • luvdsny
    luvdsny Member Posts: 10
    edited November 2015

    To follow up, I met with my breast surgeon today. She is wonderful and answered so many of my questions I had. I will be having an excisional surgery on Monday. I was told a pathologist will be present and if they see anything in the cells taken they will then do a lumpectomy while I am under sedation. I should have some finding Monday and final pathology report due on Tuesday. If no cancer is found I will be done and will have a follow up 6 month mammogram. If cancer cells are found (she explained a very small percent) we will discuss options at that time. Ready for this to be over!

    What a roller coaster ride this has been. My heart goes out to all those dealing with this, the waiting is awful!

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  • tlb01
    tlb01 Member Posts: 1
    edited November 2015

    Hi. I am very new to this and just finding my way. I came across this and the comment of the roller coaster ride is something I could relate to.

    I went for my routine mammogram on October 21. They found a cyst and what they said was calcification. On that day I had a fna of the cyst. The next day I returned for a vacuum assisted core biopsy. Pathology came back with intraductal papilloma. The core biopsy removed two complete and one partial.

    I was referred to a surgeon the following week and on November 4 I had a hook wire localisation and surgery. Two days later I got the all clear.

    The pain wasn't too bad but I have found some slight swelling under my arm this week which is two weeks out. I am exhausted but I'm pretty sure it has something to do with what my body went through in such a short time.


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  • luvdsny
    luvdsny Member Posts: 10
    edited November 2015

    Welcome tlb01! So sorry you have had to take this crazy roller coaster ride but happy to hear you got good news! Thank you for sharing your story and your recovery. I have been wondering about recovery time frame. Did your doctor mention anything about lifting? My surgery is Monday and wondering about planning for a Thanksgiving dinner (which I am cooking).

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  • ts2320
    ts2320 Member Posts: 6
    edited December 2015

    I'm glad I found this one. I just got my needle biopsy results back and they said everything was b9 but they found a papilloma. Now he tells me I need to have a excise biopsy on the area. I'm so confused. I thought they were b9. I fell like I'm going crazy. Suppose to be getting a call back frim breast surgeon tomorrow.

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  • trish01254
    trish01254 Member Posts: 128
    edited December 2015

    I had two removed The first they found lcis lurking in the sample tissue. The next one they found dcis. That is why they like to remove them. Good luck to all.

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  • Straitlover
    Straitlover Member Posts: 124
    edited January 2016

    There's a chance that the papiloma can have both benign and malignant cells, so the whole thing needs to come out so they can check it all. They can also hide tumors on scans, so that's another reason for them to come out. Finally, the rare kind of BC tumor I had can develop from papilomas, so that's an even better reason for them to come out!!! :)

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  • Brina05
    Brina05 Member Posts: 3
    edited January 2016

    I had my mammogram 12-16, diagnostic mammogram, US and core biopsy 12-29 and found out today Intraductal Papilloma was found. I am scheduled to see the surgeon on Friday. I am thankful it was not cancer, but wish it was all over.

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  • Mrsdennis16
    Mrsdennis16 Member Posts: 4
    edited January 2016

    Congratulations Brina05!!!

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  • Supportive
    Supportive Member Posts: 81
    edited February 2016

    just want to add that every single breast calcification to a cyst to fibroadenoma... if you search google you will find someone that has had an evolutional malignancy from within one of them

    They remove it yes but from what i can tell it is one of the better outcomes from a biopsy on a lump so be thankful for that

    On top of that from the very small % that do a vast majority of malignancy is very treatable and from what i have read is low grade or in situ. But yes dr google... if you search for it you will find it. Let us all trust the experts we choose and ask diagnosis questions with the experts else we will all go crazy

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