Starting Chemo March 2015

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  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    Yeah, PB! With you in spirit. Take it easy and watch some bad TV or something.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    PV- fantastic news! Try to go slow and be patient with the exercise until that last drain comes out. They do seem to produce more fluid when you exercise and you're goal is to get it OUT! Doing the happy dance for you.

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    Pboi, yeah! My drains were dry but I had them in forever (maybe 19 days? I'd have to look).

  • slothabouttown
    slothabouttown Member Posts: 449
    edited November 2015

    congrats on a clean report and getting rid of that drain! Both are such good feelings!

    It seems I have angered the lymphedema gods with some weekend tomfoolery. I've tested the waters of the forbidden hot tub a couple of times with no ill effects but two soaks this past weekend have caused some issues across my chest and armpits. Hoping some MLD will take care of it and luckily, so far, no swelling in my arms or hands. I love a hot tub and hot springs, I told my surgeon I'd be taking that risk for sure, now I know ill have to pay a price.

  • Italychick
    Italychick Member Posts: 2,343
    edited November 2015

    Sloth, sorry, that sucks. We are freezing her in San Diego, a hot tub sounds so awesome. How do you identify issues across your chest area

  • eheinrich
    eheinrich Member Posts: 792
    edited November 2015

    I so want a hot tub for my new place. Had one at the old house. I love popping in on chilly winter nights. Sigh, maybe next year.

  • slothabouttown
    slothabouttown Member Posts: 449
    edited November 2015

    The truncal LE in my case is visibly noticeable at the base of my ribcage and across my back under my shoulders. Then right across my flat chest is where the tight feeling is most annoying. I had a whole gang of lymph nodes removed so I hope I'm an exception rather than the norm when it comes to hot tubs.

  • shaz101
    shaz101 Member Posts: 718
    edited November 2015

    pb, I'm so proud of you. You're doing great.make sure you look after yourself.

    Eileen your haircut looks amazing... but so do you!

    Theresa and ksusan I can't believe how fast your hair has grown you both look fantastic.

    I've been mising in action again. Andrew and I have decided to separate. He's found a place and will be moving on December 16. It'll be sad, but it's for the best. We will see how it goes after that.

    My GP wants me to keep an eye on my lump and go back if it changes between now and when I see the BS in January. I also have an indent about 1 inch under my armpit. It looks like someone has stuck a pin in there. It's small. I'm trying not to worry and I'm concerned that I'm becoming a hyperchondriac.

    On the GREAT side. I rode my horse!!!!😀 well ride is probably an overstatement. I go on and wandered around for 20 minutes. Felt so good. My running is getting better too. I ran for 18 minutes tonight without stopping. So proud of me ☺ I've entered a 5km race on December 6. Lol.

    Thinking of you all everyday xxx

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    Sharon: I am sorry about you and Andrew. It sounds like you are starting to get back into stuff that you love, so that's great.

    The one thing I never cared about was going into a hot tub. My skin is so dry, a hot tub makes me miserable after I get out. A hot springs sounds kind of cool though. I hope you are able to resolve it, Sloth.

    Just trying to make it through the rads. 6 to go. I seem to have finally gotten the itching under control to some degree but now my underarm is starting to really hurt. I think I can get through it though. The itching was the worst.

  • Leighrh
    Leighrh Member Posts: 317
    edited November 2015

    Good God... whatever you do.... do NOT google Radiation burns...... WHY do I do this to myself......

    Radiation is actually going ok... my skin is just turning funny colors..hence the trip down to the google,...... it really doesn't bother me. I have some itching up by my collar bone.. is that where yours is Allison? But that is the only spot that agravates me. My boob is sore.. feels heavy, but I can still wear all my regular bras, even tight sports bras for working out, and sleeping on it doesn't bother me either. I have 11 more and i am just worried about the colors its turning... hopefully the skin will remain intact!

    Good for you Sharron on getting back to the things you enjoy most!

    Hugs to all of you, I still think of you daily!!

  • eheinrich
    eheinrich Member Posts: 792
    edited November 2015

    Sharon, I'm sending big hugs your way. Even if things are for the best it doesn't make them any easier or less painful/sad.

  • slothabouttown
    slothabouttown Member Posts: 449
    edited November 2015

    Sharon,

    No words for what you're going through but I am thinking of you and so proud of your strength and grace. Keep with us and we'll help see you through as best we can, and keep running, such progress!

  • slothabouttown
    slothabouttown Member Posts: 449
    edited November 2015

    Leigh and Allison, you're in the home stretch with rads. Hang in there! I was surprised how quickly everything healed up once I got past the 2nd week after my last treatment. I hope you have the same experience.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    Sharon- sorry to hear about this, but I know it's been an issue for awhile so probably best for it not to drag on. I'm SO GLAD you got in your horse! I know that must have been very healing for you! And wowzer in running a 5k! You go girl!

    Allison - counting down the days now. I'm so glad it's almost done. You've been very strong.

    Leigh- you're just behind Allison! Hoping you can see the finish line with clarity.

    Yesterday I went to my 6 mos derm check. I've had lots of different skin cancers and a significant family history. I really like the doctor but I always wait forever to get in. So almost two hrs in the waiting room and they come get me. I'm nervous because they always seem to find something. He asked how chemo went, how I am feeling. Naturally I had a mini meltdown. He looked at my face and mentioned something he didn't like cuz it was growing horizontally. I didn't remember it so he showed me in a mirror hmmm. He got to my chest area and as everyone does when they see it he asked a few questions about why this and that were done the way they were he was very kind and I could tell he felt sorry for me i started crying again in and said I found it awful to look at. That I probably hadn't noticed my face because I hate to look at myself now.

    So we had this discussion about just taking it off now or watching it. I debated, considering I'm in my 100% phase of insurance paying, he was offering to do it right then (so no hours wait another time). I am so sick of all this so I said ok and asked the nurse to hand me my purse and I took a clonazepam and an oxy in the spot. I know a shotin the face was going to hurt. I'd had a large incision nearby about 2 years ago. They took me over to the surgical suite. I know this nurse pretty well and we chat for a second, she's trying to get me to lie back and relax. Tears streaming. So she starts to sterilize the area, using some solution and dabbing it in and rubbing, and she says, "oh look, it came out!"

    The nurse was laughing. I was laughing, crying, and so embarassed! It must have been a smear of chocolate or something I missed. The doctor must have been a bit embarassed too but he took it in stride, muttering something about his fantastic new melanoma cream! I high-tailed it out of there and this time I am back on the one year sched. You can bet I'll wash my face more carefully!

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    So wait, your face was just dirty?

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    um....yes? Hides face in shame.

    I was waiting so long in the waiting room I got hungry and had a protein bar in my purse so I ate it.

    It had some chocolate in it. It took me the longest time to figure out when I could have possibly got something on my face. I felt I must have looked at my face before I went out, haha. Laugh's on me

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    Well, I know you feel stupid but YEAH for not having to have shots in your face! I am sure you feel the same relief I felt when that creepy white thing on my tongue fell off before I had to have it surgically removed. I wasn't any more excited about shots in my tongue than I know you were about your face.

    I am sorry you are having a hard time. Have you met with your psychiatrist lately?

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    Leigh: I googled desquamation after Karen said something about it. DON'T, I repeat, DON'T do that. The itch is on the top of my chest toward the center and to the left of the top of my breast near my arm. I think the steroid is going to get me through though. They want me to do those rags with the water and the powder stuff but I haven't had time to mess with it yet. I have a system in place and I am having trouble incorporating that in it.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    Allison, yes, a shot in the tongue would rank right up there.

    And yes, I see my shrink regularly, usually every 3-4 weeks. I am just fragile still, worse than when I was going through treatment. Exercise helps, and I try to stay on schedule with that, but rainy season has arrived. I wouldn't do a gym even if there was one near, but I stopped going to yoga (because of some annoying disrespectful old codgers), and I'm thinking maybe I should swallow my issue and go back. The Furry Friends outings with Jack help a lot too. But even with all of that, I am often awoken in the morning by a pain in my gut, somewhere between a knot and nausea. It's the first thing I'm aware of in the morning. Not a nice way to wake up. I am very slowly weaning off of my anti-anxiety meds, I don't think it's related, but I sure picked a bad time to stop. But I need these meds as part of my long term "psychiatric tool belt", and they won't be helpful for break-through issues if they're part of my daily plan.

    My shrink actually thinks that for me, I'm not doing too badly, considering the stress and triggers of the last year, and already, less than a month away, my first cancerversary. I suppose that my body may have hijacked me, and this upcoming anniversary is the culprit. The mind works in mysterious ways

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    Congratulations on successful treatment of your choconoma!

  • eheinrich
    eheinrich Member Posts: 792
    edited November 2015

    My exchange surgery is scheduled for 12/14. Yay - keeping cancer confined to 2015.

  • pboi
    pboi Member Posts: 663
    edited November 2015

    Thanks everyone! So tired today, insomnia is the worst!

    Sharon...so sorry to hear about you and Andrew. Hugs!

    Allison and Leigh...hang in there with the rads. Agree with Sloth...very quickly about 2 weeks after my rads side effects were nearly gone.

    Katy...what a story, glad it turned out well.

    Eileen...glad you have a surgery date. I so understand about getting it done now. I want to get this behind me and hopefully turn a new leaf in 2016!

    Thinking of you all... and appreciate all your support and encouragement 💕

    PB

  • eheinrich
    eheinrich Member Posts: 792
    edited November 2015

    Hang in there Katy. We are all here with you. (((hugs)))

    Hey by the time we all get together I bet we won't have to give gentle hugs but can give big bear hugs!!!

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    That shall be my goal. Bear hugs all around!

    E- so glad you're getting it done before year end. Good riddance 2015

  • Italychick
    Italychick Member Posts: 2,343
    edited November 2015

    I've never had a reason to celebrate the new year as much as I do 2016.

    Katy, I scared myself with chocolate, not as bad as you did. I don't remember the exact details but looked down to see a growth on my chest, hello adrenaline rush! Big glob of chocolate! But sorry it affected you so much.

    My husband taught me how to give big enveloping hugs without squeezing the person to death. Makes you feel that rush like good sex does lol!

    Allison, I have pretty much quit googling everything. Most of it is wrong, and leads me to believe death is imminent.

    Pboi, I think read you are getting your drains out! Woohoo!

    Sharon, sorry about the break up, and wishing the best for you.

    Grandkids just left, I'm beat. But they were too. The four year old was laying his head on the kitchen table saying I really want my bunk bed lol. My kids love grandma day. All three grandkids go home completely trashed, and I cook my kids dinner to go. My daughters two babies fall asleep on the way home, sometimes one block from my house. So the parents all go home and get adult night on Tuesdays. The two girl cousins hugged each other a bunch today and kept saying I love you to each other, melted my heart. Hope I'm around long enough for them to remember grandma

  • eheinrich
    eheinrich Member Posts: 792
    edited November 2015

    2015 can suck it!!!

  • rleepac
    rleepac Member Posts: 755
    edited November 2015

    Hi gals. I had my exchange surgery with fat grafting last Friday. Everything went well but they had to really be aggressive to find some fat on my belly. At 100 pounds, there just is t much there. The belly hurts worse than the boobs at this point. I haven't been able to see them yet because they are still wrapped in gauze. I will see them on Thur when I go for my post-op visit. I don't even know what size implants I ended up with. DH and I were so happy to have surgery behind us that neither one of us asked LoL.

    I'm supposed to start Tamoxifen tomorrow. I'm a little nervous because side effects seem to the the norm for me. Then I get a call from my primary doc tonight and she says "meja...I have bad news. You can't take Wellbutrin anymore because it decreases the efficacy of Tamoxifen". I love that she calls me 'meja' - it's a Hispanic term of endearment like a mother would say to her daughter. Anyway...she wants me to stop the Welbutrin and double the Lexapro. This makes me really nervous because it took years to get me on the right combo and now cancer is going to derail my mental health (again). Sigh...I guess I'll be a good little soldier and see how it goes.

    Here is my most recent hair pic from last week. I've since colored it a little darker but you get the idea.

    image

    Bekah

  • rleepac
    rleepac Member Posts: 755
    edited November 2015

    image

    Don't know why my pic didn't load right the first time?

  • jumbledbamboo
    jumbledbamboo Member Posts: 158
    edited November 2015

    Katy that would happen to me. I completely feel for you. Oh gosh the relief tho!

    Bekah you look great!

    Sharon, I am terribly sorry to hear about your break up. I am sure it is incredibly painful. I am glad though that you got to ride your horse.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    Amber- how are you feeling? Thanks for commiserating with me.

    Bekah you do look great. But I know you often do even when you don't feel so great. Sorry about losing one of the players on your team. But Wellbutrin is definitely contraindicated with Tamoxifen. I hope you can find a new mix that works for you and that, for once, you are spared the SEs.


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