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msbisa
msbisa Member Posts: 3
edited November 2015 in Just Diagnosed

I was diagnosed on November 4th with Invasive Ductal Carcinoma, Grade 3. Stage unknown but it has spread to my lymph nodes. I am 41 years old.

I had one cousin on my maternal side who died of breast cancer at age 32. Because she was my uncles daughter I figured the genetics came from her mothers side.

I don't know my treatment yet and all the what ifs are getting to me. I thought by talking about it with friends and family would help but it doesn't. Some were really supportive and some said things that made it seem like it is my fault I have breast cancer.

I'm having such a hard time concentrating on anything but cancer.


Comments

  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited November 2015

    Don't EVER think it was your fault. Many of us had lead a very healthy lifestyle, had no family history, no genetic predisposition and still got it. And nobody who hasn't gone through this will ever be able to really understand what you're going through.

    It's normal to be scared. We all were - and still are, we just lived with the fear for so long that it became part of us.

    Tell us a little bit more. How did you get diagnosed? biopsy? lumpectomy? mastectomy?

  • demarie
    demarie Member Posts: 20
    edited November 2015

    So sorry to hear of your dx msbisa. The first thing I want to say is that there is NO WAY this was your fault!!!! I could rant on this forever. People who have never heard the dx about themselves will never fully understand the feelings it brings up all at once.

    Once you have a plan of treatment in place it will get easier. Have you seen a bs yet? Please share with us a bit more, I am a bit of a newbie but there are a lot of ladies on here and I am sure there will be some chiming in soon.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited November 2015

    ok so there is no way in gods green earth is it in any way your fault!

    anyone that said that, stay away from them!

    now over the next few days you will be finding out the details of your treatment, this is a good place if you have specific questions

    BUT, over the next days, keep busy, take a hike, do things that keep you not worrying about this, you will get a plan and then things will be easier, really it will

  • Moderators
    Moderators Member Posts: 25,912
    edited November 2015

    msbisa, one day at a time. Breathe, breathe. We are all here for you, and completely understand where you are coming from. Family and friends are also affected, and sometimes really don't know what to say. Please keep us posted on what your doctors suggest for treatment. You are not alone!

    The Mods

  • msbisa
    msbisa Member Posts: 3
    edited November 2015

    Thanks everyone.

    I went in for a routine mammogram 9/17 and I got a letter to come back To take additional images and an ultra sound. After the ultrasound they confirmed it was a tumor and wanted me to have ultrasound guided core biopsy. I met with the surgeon and it wants me to meet with the oncologist to decide treatment. My appointment is Thursday.

    My own brother asked if I got breast cancer because I've traveled out the country. Others imply it's my eating habits.



  • proudtospin
    proudtospin Member Posts: 5,972
    edited November 2015

    well, brothers can be wrong too so just chalk him up to it one of those things like Black Holes and Nuclear physics that are perhaps not his speciaty

    now breath and enjoy the sunshine

  • msbisa
    msbisa Member Posts: 3
    edited November 2015
  • proudtospin
    proudtospin Member Posts: 5,972
    edited November 2015

    course if he can explain black holes to me~~~

    I just trying to maybe bring a jolly to your day

    note, there is another thread called CrazyTown, it is where we go when we are waiting for tests results etc.

    I want to invite you to join us

  • etnasgrl
    etnasgrl Member Posts: 650
    edited November 2015

    ((((Hugs))))
    This is NOT your fault....please, please, please know that!

    Now, take a deep breath and know that you CAN do this. It's SO overwhelming and scary at first, (I was just diagnosed on 11/05/15 and I am 41 as well), but I promise you that as the days go by and you receive more and more info on your cancer, you will feel better.
    The girls here told me the same thing and to be honest, I didn't believe them. LOL! But, they were right! Once I met with my surgical oncologist, I felt a lot better because at least now I had some knowledge.

    This is such a WONDERFUL place, full of really amazing women. Come here often! You'll find so much support and love!
    You'll be in my prayers!!!

  • MaxineO
    MaxineO Member Posts: 555
    edited November 2015

    This is the scariest time, I promise. Don't go down the what-if road and just focus on today. Or this hour. Or this minute. You are here now.

    I like what proudtospin said about brothers :) It's true. Women with every type of life style, diet, weight, height, occupation, age, parental status, breastfeeding choice...travel affinity...have gotten BC. It's no one's fault, just rotten luck.

    We are here to support you. I was node-positive, and I am almost at 5 years since diagnosis! Hang around and ask questions, lurk, or just soak in the good vibes. They flow like crazy around here :)

  • Bounce
    Bounce Member Posts: 574
    edited November 2015

    I thought I might add that the cancer gene in my family came from my father's side. No doubt about that.

    Depending on how much contact you have with unsupportive people you might want to rehearse a little sentence, something along the lines of: That remark is not helpful to me and is actually hurtful. I would appreciate your support in this time of difficulty. Thank you!

    Who knows? It might make them think a bit.


  • Englishmummy
    Englishmummy Member Posts: 337
    edited November 2015


    Msbisa, people say the stupidest things at these moments because they don't really know what to say and they are scared, for you and for themselves. They feel like they need to point to a cause as it alleviates their fear that it could happen to them, they quantify it in their mind , " I don't eat peanut butter like she does, so I am safe.". It is utter BS to think that you were in some way in control of this happening.

    For the record (just as seachain said) :I had Z-E-R-O family history, my entire adult life I did not smoke, ate a totally organic, close to vegetarian diet, drank green tea, ran at least 4 miles a day/6days a week and did weightbearing excercise, maintained a super healthy body weight, breast fed my children whom I had prior to the age of 30, took a vitamin D supplement for years, had a low stress life, donated to charity, helped the homeless and I got Bilateral BC, yes both sides also at 41! Oh, and genetics turned up nothing. It just happens, it is crappy, unfair and so, so scary but it happens. People have all kinds of ignorance about BC - I had a friend who told me I should insist on chemo and radiation, despite 2 oncologists agreeing neither were necessary, she still wouldn't have it - like she knows better than Dr's that have practiced for years? She still rattles on about how SHE would have done everything available - I hope she never has to make that decision or walk this path.

    When I was Dx in May, I had a 'good friend' inform me it was because I had my 3 children too close together! Really??? Another wished me "Happy Birthday" and hoped I'd live to see 42? They just say silly things, disengage brain/open mouth. I distanced myself from them, because I needed support (just as you do) not a finger pointed at what I did wrong (in their mind). Forgive people their ignorance, know that it makes them uncomfortable, and if they still persist - let them go. You decided to take action on something that at your age, you could have brushed off 'knowing' it was nothing. Don't feel bound by what (others or you think) you did wrong, be empowered by what you did right. Stay strong. The people on here are brilliant!

  • Ridley
    Ridley Member Posts: 634
    edited November 2015

    msbisa -- as others have said -- some people just don't know enough about cancer and they said stupid things. Ignore them.

    As for not being able to think about anything else -- that's normal during this stage -- it totally sucks. If you are not sleeping or having anxiety attacks, etc please go see your primary care doc -- short term use of the right meds can help.

    Remember that it will get better. I found once i had a treatment plan, my anxiety started to drop, but I was a mess for a good while.

    Come back to these boards and ask your questions, etc. These women understand what you are going through and will give you great advice.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited November 2015

    there is a great magazine called CURE that you should get a copy of, this months copy that I just got in the mail has good info exactly for someone in your situation, I am sure you can down load it online

  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited November 2015

    Ok so you DID have a biopsy, as it's the only way to determine the type of cancer and the grade. How did they figure out it's in the lymph nodes?

    I know it's scary, but you can do it. All of us here went through this at one point or another and many of us still do. You will discover a strength you didn't know you have. And believe me, you CAN do it. Believe in yourself. You are the most important person in your life right now. This has to be your mantra for all the time you will have to go through treatment.

    Now, just to get you prepared - you will hear worse. There are a few threads around about the stupidest things we've heard during our journey. From the time of the diagnosis on, whenever someone claimed to know exactly WHY I got breast cancer, I would recommend them to apply for the Nobel prize, as it was obvious they knew more than the whole medical community about what causes cancer. Whenever they would say "if I were you, I would... (fill in with totally dumb suggestions)" I would tell them with a big smile "whenever you will get cancer, feel free to do whatever you want. Until further notice I am the one who has it and it's MY decision on what to do". Yes, it was snappish, yes, most of the time I was rude, but it wasn't half as rude as the comments and statements that were thrown at me, and it really helped detoxify my life, as the toxic people didn't take kindly to my remarks and slowly disappeared.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited November 2015

    People who opine that it was somehow your fault are engaging in a form of magical thinking---a way of denying that it could happen to them. The thought that BC can strike at random is so terrifying to them that they put it out of their mind and grasp at any straws (even imaginary) that would reassure them that they're immune. Forgive them, they know not what they say.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited November 2015

    Cure magazine is FREE, comes out quarterly. I think you can go online to subscribe. This issue is all about bc, it's a good issue.

    Until a person hears their name and cancer in the same sentence they have no idea how your foundation rocks off balance. You hope they never do. But you did.

    So toxic people need to be edged out of your life. Even the rah rah go warrior people. It needs to be ALL about you, getting you through this. Support, tissues, dinner, driving, just being. Don't be afraid to ask for help.

    And it really does get better with a plan!!!!

  • solfeo
    solfeo Member Posts: 838
    edited November 2015

    Welcome msbisa! I have found that the less talking about it I do the better. Just a few select people who are truly supportive get the day to day rundown of what I'm going through. Not that I mind talking about it so much, but other people find the situation very uncomfortable and really don't know what to say, which usually turns into an awkward encounter for both of us. So I save them the trouble of having to insert foot in mouth, by not bringing it up unless I absolutely have to. Of course I don't look like I have cancer (no chemo) so I can get away with keeping things very private.

    For those times when you can't avoid those less than supportive comments, you might want to check out this thread, where laughter is the best medicine. Some of the stupid stuff folks say is pretty freaking funny when sharing with people who really get it.

    I will say though, I've really learned something from all this. Such as what an idiot I was every time I opened my mouth when my aunt had BC several years ago, but I had no idea at the time. I don't think most people do it on purpose.

  • clevelai
    clevelai Member Posts: 7
    edited November 2015

    Msbisa, focus on the positive and try to limit the number of people that you share this information with. When I received my diagnosis in October, I knew really little at that point about my condition. Everyone is different and youll need to learn more about YOUR type of cancer. If youre feeling well start out by telling your family and friends that you're fine. Mentally you may feel different but try to wait for more info before getting too worried. I worried way too much and wished that id slowed down and remained calm. I know that its easier said than done but it will help in the long run. Fear sets in because most folks know very little about cancer. It is highly treatable even if it has started to spread so dont panic. Take the time to find the best doctors that you can. Get an MRI and take any tests that they give you.

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