Starting Chemo March 2015

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  • shaz101
    shaz101 Member Posts: 718
    edited November 2015

    I'm off for my run with my running group tonight. Week 5. Three, 5 minute runs. I'll be thinking if you all when I'm struggling to breathe! Theresa bring your bike and dinky me.

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  • avmom
    avmom Member Posts: 324
    edited November 2015

    Oh, Sharon, how thoughtlessly insensitive some people can be! It may be that the bakery lady remembers you for your gorgeous hair, but it seems to me that if your hair was loooong, and now it's short, it is either because you wanted to cut it all off, perhaps to support a loved one, maybe even a loved one with cancer who is enduring chemotherapy, or that you prefer it that way for some reason (in which case the kind, supportive comment would be to say something nice about how you look NOW), or some illness or other tragedy, like maybe chemotherapy as part of cancer treatment (like really, my impression is that to most people, a woman whom previously had glorious long hair who is now either bald or close to it, has CANCER, and might not want to discuss it with casual acquaintances) so maybe no comment at all would be appropriate. FFS, indeed.

    FWIW, half an inch is just a little bit longer than 1 cm, so our hair is about the same length. My stylist didn't touch the top, but layered it With the clippers so the sides and back are very short. My hair isn't coming in curly at all, but it was getting to the point where it would flip up at the top of my ears, which looked a bit strange. It's very, very short, but it looks a bit like an intentional haircut.

    Ksusan, Im not much for jewellery, so I don't have lots of big earrings. I do have a pair of pretty big sterling silver "dream catchers"' so I'll try them.
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  • slothabouttown
    slothabouttown Member Posts: 449
    edited November 2015

    AVmom I love the story behind the charm and the connection to this group and I agree that it should vacation with you and add some incentive to let it all go in favor of some sun and fun.

    You all know I just got back from the Midwest for work and a short visit with family. In a span of 5 days I was called "sir" 11 times (by strangers.) Short hair and no boobs, I can't blame anyone for the mistake. It did make me wonder if folks out here on the left coast are better at gender identification or worse at inserting "sir" and "maam" into conversation.

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  • avmom
    avmom Member Posts: 324
    edited November 2015

    Hey, Sloth, I have the short hair and no boobs, too, so we shall see what people call me in Cabo. I do have the added "allure" that comes with a sleeve and glove on one side for my active lymphedema. Perhaps I'll find a 20s style flapper dress and a fascinator, to emulate the Downton Abbey look, though my feet can't handle the pumps. I'm stuck with only a couple of pairs of "sensible" shoes, as my neuropathic feet can't bear anything with a heel, and my balance is poor. DH has commented that there's no way I could pass a field sobriety test, cuz not only can I not stand on one foot, it's a challenge just to stand with one foot in front of the other, heel to toe. I have been practicing, with exercises from my therapist, but I'm not there yet.
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  • Meme117
    Meme117 Member Posts: 194
    edited November 2015

    My first week without one medical appt - wahoo! Going to visit my cuz for the weekend, she was my rock during chemo. On a sad note we will be visiting our uncle who is fighting throat cancer which is now throughout his body😥 He's only 65. If this round of chemo doesn't work the prognosis is not good. We're going to try to bring him some fun and laughter, gonna have to pinch myself to hold back tears.

    Theresa I love love the limo photo, you all look fabulous!! And I love your positive attitude, I'm on the way to thinking the same.

    Avmom I love the charm such a great choice. Have a relaxing enjoyable time in Cabo.


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  • IndyGal35
    IndyGal35 Member Posts: 340
    edited November 2015

    I love the charm!!! I'm excited for it to travel on vacation as well. The best part of the bracelet is that it carries each of us with it, so...we all get a vicarious vacation out of the trip. :)

    Lesbian hair. Ha! Yep! Mine is about 1.5" long. I'm trying to decide if I should get it cleaned up, but I'm so excited to have hair now that I don't want to trim a single strand.

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  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    Poodle hair: describes mine to a T. Exactly 3 months PFC today. Also mad that in spite of the fact that DH is one year younger, I have way, WAY more gray than he does.

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  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    I think the coasts have a better concept that gender may be more nuanced than "long hair/girl, short hair/boy." Earrings and a necklace help (I used to get misgendered all the time even as a woman with large breasts).

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  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2015

    Sloth- sounds like you and I have the same haircut! I've just been trimming up the back and sides, letting the top grow as it will. It is nice now that I get checked out by women LOL- very validating. No boobs here either. And no period. Soooooo....my gender expression on any given day is pretty fluid. Totally convincing teenage boy, or mildly convincing woman, depending on my outfit. Its not what I chose, but I hope it disturbs narrow minded folks! :)


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  • eheinrich
    eheinrich Member Posts: 792
    edited November 2015

    Love the charm! Happy travels to you and it, avmom.

    I did get a haircut. I'll take a pic later after I shower. I had poodle curls in the back and a hair lump on top of my head. Sounds like we all got the same sort of clean up. Sides, back short, top monkeyed with but not cut much.

    My hopefully last TE fill is on Tuesday. I'm meeting w/ the PS to discuss and schedule surgery. They say to wait 1-2 months after final fill before surgery. 1 month puts me a week before Christmas. Waiting until after the holidays puts it in 2016. I totally wanted all of this contained to 2015, but I guess not as much as I want to be up and about and playing holidays, especially since the girls are coming home for some parts of it.

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  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    That's the haircut!

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  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    Eileen, Did you ask if the surgeon works those pre holiday weeks? I think many of them will take it off so it might not be an option.

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  • jumbledbamboo
    jumbledbamboo Member Posts: 158
    edited November 2015

    AVmom I am thinking about you!

    Italy you crack me up! the meat is done now thank goodness. I got soem much needed rest and for whatever reason the night was quiet.

    It is getting cooler here so my muscles are just balls of pain. I never knew that my daily life would be so painful or that I would have to learn to cope with it at this level. Oh, I can bitch and moan but it does nothing. Actually, that's not true. Talking about it helps. There is an internal voice that tells me no one cares. Messed up I know and I need to get over that crap and quick. It's hard to change that internal dialogue. It's a mean thing and a liar, but it is persistent.

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  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    It you ever need muscle, Theresa is the one!

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  • Italychick
    Italychick Member Posts: 2,343
    edited November 2015

    Lemme at 'em!

    image

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    Some interesting news on the Lymphedema front!

    http://www.prnewswire.com/news-releases/eiger-biop...


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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    Sending brainwaves to PB- she had her prophy mx on Wednesday. Anybody hear anything?


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  • eheinrich
    eheinrich Member Posts: 792
    edited November 2015

    Katy, you are so good at keeping track of us - I feel guilty that I'm less good.

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  • SueH58
    SueH58 Member Posts: 632
    edited November 2015

    Avmon - many big, gentle hugs for you. Have a great time in Cabo, and I hope the bracelet brings you comfort and support whle you're there.

    I am on day for of Anastrozole. So far, so good. For those of you having side effects, how long did it take for them to kick in?

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  • slothabouttown
    slothabouttown Member Posts: 449
    edited November 2015

    Nothing says, "don't fuck with me" like a green skinned muscle bound lady mutant with extremely sensible athletic shoes.

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  • Italychick
    Italychick Member Posts: 2,343
    edited November 2015

    Well I thought littleblue would like it haha. I can kick anybody's ass online, in person, well, I'm a softie and I hate hurting anything.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    E- we all are good at different things. You're much better, for example, in the owning huge lakeside properties for retreats and such....anyway, I miss my share of details. 💗

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  • pboi
    pboi Member Posts: 663
    edited November 2015

    I'm here! Thank you Katy...you are so sweet to remember.

    I had my prophy mx and oophorectomy yesterday. So far staying ahead of the pain and have a lot of help here at home with the kids.

    Feeling very discouraged though, been working so hard these past few months recovering from surgery, chemo, rads... and was feeling almost back to my old self before this surgery. Now feel like I have to start all over again...sigh...feel beat up and crappy today...having a pity party for myself today I guess...

    PB

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    PB- your shit sandwich was stacked pretty high. Because you worked so hard to recover from what you've been through already, you will bounce back better than you would have otherwise. Congratulate yourself on what you have done right. You've done everything in your power to exercise when you didn't feel like it, and more. I am very proud of you. Keep your chin up. Be proud of yourself. And keep staying in front of the pain.

    Right now is time for healing. Let yourself do it. Keep saying nice things to yourself, ok?


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  • pboi
    pboi Member Posts: 663
    edited November 2015

    Sue...I have so far not had many side effects on anastrazole. I have insomnia but that seemed to have started with chemo so not sure what to blame that on. About 2 months in, started to notice my hips and knees ache a little. My MO said you'd usually notice side effects by around 3 months. Hoping you won't have any at all!

    PB

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  • pboi
    pboi Member Posts: 663
    edited November 2015

    Thank you Katy, you made me feel better! 💕 And tomorrow I will start over again...perhaps a walk to the mailbox!

    PB

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  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2015

    Love it T! I'm currently looking for an appropriate theme song....

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  • jumbledbamboo
    jumbledbamboo Member Posts: 158
    edited November 2015

    PB I'm thinking of you. I hope you get some rest tonight. That is a lot at once. Be easy on yourself.

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  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    PB: Great that you are not in much pain! Is this the last treatment? I totally get the feeling like you are ok a little again and then having a new thing to do. I am hoping this is your last.

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  • SueH58
    SueH58 Member Posts: 632
    edited November 2015

    pboi - I'm with Katy--you're going to be your old self again before you know it. Sending good vibes and big hugs your way for a quick recovery. Thanks for the note on anastrazole.

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