November 2015 Surgeries Thread?

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  • Live4them
    Live4them Member Posts: 65
    edited November 2015

    3:25am and I still can't sleep .. I'm on a pain pump so the nurse says I can't take any sleeping medicines because I might stop breathing .. And I definitely need the pain pump ... I'm in pain 😕

    Girls with upcoming surgeries enjoy your beds now !! I wish I had enjoyed my last night in bed a little more 😂

  • Thundergal
    Thundergal Member Posts: 12
    edited November 2015
    Live4them,
    I am so sorry that your in such pain right now! You must be exhausted from all of the anxiety of anticipating the surgery yesterday, and the raw emotions you've been dealing with since your journey began. cjafarm's suggestion yesterday about deep breathing might be something to try, not to relieve the pain, but to help keep your mind focused more on deep breathing than on the pain. Hang in there! You've got this, girl😊
  • Smurfette26
    Smurfette26 Member Posts: 730
    edited November 2015

    new__me and lovingisliving just saw your posts and I'm not sure with the time difference; (I'm in Australia); whether or not you have had the radioactive isotopes injected yet.

    Sorry to say that for me, that was the worst experience of my cancer journey so far. I was told it was like a bee sting; more like a bee sting amplified by 100 but it does subside VERY quickly.

    The technician told me that it's only a very small amount, approx .5ml. My surgeon then injected about 5ml of "blue" dye once I was under.

    Wishing you well with your surgeries. Hugs Donna.


  • TikkasMom
    TikkasMom Member Posts: 83
    edited November 2015

    Good luck Girl53 I am scheduled for November 19 without reconstruction. Keep us posted on your progress.

  • tamkay123
    tamkay123 Member Posts: 56
    edited November 2015

    Two more days until BMX with TE. I'm a little stressed that I don't have as much done as home as I wish I did but we've had a lot going on. Tonight we are going to try to explain to my soon to be 5 year old (November 27th bday) about mommy having surgery, etc. I swear I'm more worried about this than surgery. I was in the hospital for a week in July due to a staph infection and I think he still worries about mommy leaving since then.

  • Frill
    Frill Member Posts: 311
    edited November 2015

    TallnTerrific, lovingisliving I didn't get a chance to tell you last night, but I'm pulling for you today!!!!!!!! Lots of love and light and all your angels are around you taking good care of you right now.

    Free123, Mominator I hope y'all are having peaceful, relaxing days, but I bet they'll be like mine - at the darn hospital having tests all day. If not, I'm wishing you bubble baths and mani pedis!!!!!!! Y'all will kick butts and take names tomorrow! :)

    As for me, back on track for surgery on the 19th. Idk what was going on with hospital online scheduling. But I just realized that is just about a week away. All my okay-edness with everything I had last week has gone down the tubes. Back to tears when no one is looking. I still don't know what kind of bras to get - or does it matter. Not completely sure if I've been okayed on the surgery I'm guessing I want. I assume at this point I'm going to have to make all these decisions the day before. I'm a muller, not a last minute decision maker. I feel almost like the doctors have been like - because I've come in knowing something - like hey what about nipple conserving mastectomy - that all the other options aren't being presented. Or it could be I'm not hearing everything. I mean, the plastic surgeon didn't want to examine me at first because she was scared she was going to traumatize me more. I'm like......uh, I'm here. Shouldn't you check out my fabulous, perfect boobs before you hack on them? That made her laugh. (Yeah, I'll say about anything!)

    Ha ha! That's me, leave 'em laughing!

  • Scsa
    Scsa Member Posts: 26
    edited November 2015

    Live 4Them. - sorry you are in so much pain. I hope you feel better soon!

    Fearless 195- good luck today. I also have DCIS. I need to wait for pathology results for my next steps. Hope today goes smoothly for you.


  • Free123
    Free123 Member Posts: 84
    edited November 2015

    Frill, gosh THANK YOU! That means so much! And yes, I took my last bubble bath for a while last night! It will be showers and more showers for several weeks, but at least my PS does believe in showers, some won't let you with drains in (although I'm not expecting any with my exchange tomorrow, but I say, prepare for the worst and you're never disappointed…). Gave myself a nice pedi, even though it's not a cute purple like MissBee's!

    I felt like that had to be a mistake moving you to Thanksgiving Day surgery! I would think all the high-ranking drs and nurses had the day off! Ha I think in the end you'll be glad it's sooner. But DO ask questions!! Obviously you aren't afraid to speak your mind so just keep on and get the answers you need before you go under. Measure twice, cut once, as they say in carpentry!

    Thank you all so much for the well-wishes!! Blessings and prayers to you as well~

    Freeland

  • new__me
    new__me Member Posts: 128
    edited November 2015

    Live4them, Congrats on completing surgery! You made it to the other side i an sure you will feel better in a day or so. Warm hugs, soothing thoughts and prayers for a swift recovery.

  • IrishEyes39
    IrishEyes39 Member Posts: 47
    edited November 2015

    Update:

    Double mastectomy with lymph node removal was on the 3rd, so 6 days ago. Just got pathology results, but HER2 is +2 so waiting on additional tests to determine if I'll need chemo.

    For those about to have surgery, my experience:

    Pain is manageable after the first day or two. It is not as bad as I feared. The breasts themselves are numb, so the incision area doesn't really hurt. I'm pretty sure most of my pain is from the TEs and under my arm where a lymph node was removed. Take your meds BEFORE the pain gets bad. It seems much easier to prevent it from getting bad than to stop it once it takes hold.

    SO easily fatigued with activity and even after talking for more than a minute... Not sure if that is the trauma from the surgery or from the TEs or just because I have asthma. Right now, this is my biggest obstacle.

    I HATE the drains and will beg for their removal when I see the surgeons tomorrow. For those of you who have already had drains removed: How badly does it hurt?

  • IrishEyes39
    IrishEyes39 Member Posts: 47
    edited November 2015

    Smurfette: Agreed. The radioactive injection was insanely painful and the worst pain I have felt so far. I cried. They said it would "burn a little" but it felt like my skin was actually on fire.

  • new__me
    new__me Member Posts: 128
    edited November 2015

    Irish, so happy to hear from you and to hear how everything went! I am scheduled for the same next week. Comforting to hear pain is manageable. interesting about fatigue and possible asthma connection. I have asthma too Can't wait until surgery is done! Make sure you rest and sleep so your body heals. Sending warm hugs and chocolate thoughts

  • katykids
    katykids Member Posts: 132
    edited November 2015

    irisheyes, the pulling of the drains wasn't so bad. I was pretty numb in the area when they pulled the first two 7 days post op. But I took a pain pill beforehand--just in case. They just told me to take a deep breath. Same with the other two drains, two weeks later, pain pill and deep breath. I felt like it was over before I knew it.

  • Frill
    Frill Member Posts: 311
    edited November 2015

    Y'all won't believe this......my phone rings at 5pm. I'm mopping, or vacuuming, or something, so I think - it's not the hospital, screw it. Only it was 4:57 and it was the hospital with my test results from the MRI biopsy. The nurse that called will explain the results, but Lucy Lawless wants me to come in tomorrow or Mon (4 hour drive) to meet to discuss surgery options if at all possible.

    I'm trying to tell myself that it doesn't matter. I decided on BMX and implants to get awesome new tatas, at least I think that's the best decision. It shouldn't matter. But what if it's even worse than they thought.

    However, after tomorrow I should know what kind of bras to get, and that kind of thing.

  • Mominator
    Mominator Member Posts: 1,575
    edited November 2015

    Hello ladies,

    I'm taking a break from packing to say hi!

    I went in for my marking 5:00 pm local time. I love my doctor. He was all over me with that marker. First he drew landmark lines down my mid-line and the inframammary fold on both breasts. Then he started on rightie, my larger breast. Two mostly crescant-shaped incisions above my nipple, with keyholes for my nipple, and about two inches between the incisions. Looking down, it looks like the batman sign. He made similar marks for leftie, although just slightly smaller so that they will match for size.

    I should mention that I am currently 36C or D, although I was 38DD before I lost about 50 pounds. Both my breast surgeon and the plastic surgeon have mentioned that I have "pendulous" breasts. My PS made a point of "warning" me that he could not reconstruct me as large as I am now. "Thank goodness" was my reply.

    Anyhow, I'm feeling much better now that I have a general idea of what I'll look like post-op.

    IrishEyes: Thanks for the update.

  • new__me
    new__me Member Posts: 128
    edited November 2015

    Mominator, Warm wishes and prayers for you tomorrow. I hope all goes well. You are doing the right thing having the prophylactic BMX and Oopherectomy. Take care.

  • HopeFaithCourage
    HopeFaithCourage Member Posts: 156
    edited November 2015

    I'm having a total hysterectomy Nov 23rd. I started having episodes of bleeding like periods even though Chemo has killed my ovaries. Ultrasound showed thickened endometrial lining and fibroid tumor which is non cancerous. I was told doc wanted surgery done asap. I don't know why. I'm scared of pain. I already have chronic pain and wear and 75 mcg fentanyl patch. I'm scared of the surgery because I am opioid dependent. I don't know if that makes my surgery more dangerous or not.

  • new__me
    new__me Member Posts: 128
    edited November 2015


    Hope Faith Courage i had a robotic laproscopic hysterectomy in Sept. Ovaries, tubes, uterus, cervix. Surgery took 3 hours and recovery was not too difficult. Amazingly little pain after. Stayed overnight in hospital due to catheter. Everything was pulled through my vagina so i only had 4 little incisions on my belly for the robot arms and camera. have you checked out Hystersisters.com yet? Excellent site and very helpful. I don't remember if it is .com or .org. sorry. Anyway there is nothing to worry about if you have the same surgery i did. If you are having open abdomen surgery then the oncision is more invasive.
  • Smurfette26
    Smurfette26 Member Posts: 730
    edited November 2015

    IrishEyes39 I did take some pain relief before having my drain out. I didn't feel a thing. It can sting a bit without pain relief.

    My surgeon doesn't like drains left in for longer than a week. I wasn't going to argue. Couldn't wait to get it out.

    I found I tired very easily too. Just having a shower really wore me out. Thank goodness I was allowed to shower with drains in.

    Frill so glad things are moving along for you now.

    Moving along for me as well. Had my first chemo yesterday. Three to go and got great news from the Radiation Oncologist. He is not recommending radiation for me. So pleased.

  • Frill
    Frill Member Posts: 311
    edited November 2015

    I just got the DX - the satellite areas are cancerous, so MX is the only option. Good thing I'd decided that's what I wanted to do for cosmetic reasons.

    Even though I'd pretty much decided, now it's all real and whoa, it feels like I'm hit with a ton of bricks all over again. Plus, I'm worried about cosmetic looks afterwards. Really worried. I don't know if I have to have radiation or not. I basically just want this done and over with as fast as possible.

    Ugh. Ugh. Ugh.

  • TallnTerrific
    TallnTerrific Member Posts: 114
    edited November 2015
    Live4them,
    Tomorrow will be better. I know that has been my experience. On my surgery day (also nov 10, also bilateral with TEs) I thought I was dying. It was very painful and I couldn't move at all without pain, lots of it. That was yesterday. Today I walked quite a bit, ate some food and figured out a few moves to get out of bed. Getting the anesthesia out of your system is the thing that will make those anxious moments subside. Have your doc get you a script for Valium too. A lot of the pain is caused by your muscles tightening in your chest to protect you from damage. Meditation will help if you do that, and of course I will send you all kinds of loving thoughts since I am in the same boat.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2015

    Hi TallnTerrific, I'm glad to hear you're doing better today. My surgery went well, but they did find one positive lymph node so they went ahead and removed the rest. I hope it is the only one. I had a hard time after anesthesia. I was scared, dizzy, and very tired. I have a low tolerance for medicines, so I was kind of expecting this. Otherwise, pain is minimal. But now I understand how annoying the drains are. I'm still tired but I can get up and do small things around the house. Luckily I have my husband and son to help me. Prayers for everyone having surgery this week. Best of luck!

  • Live4them
    Live4them Member Posts: 65
    edited November 2015

    TallnTerrific, I had surgery Monday it was about 10 hours .. Good news is that my lymph nodes tested negative and Dr thinks I should be ok without chemo. Pain yesterday was off th charts , I think not sleeping and anxiety made it 10 times worse . I was discharged last night and took a Xanax along with my pain meds( had permission from dr) and I slept almost the whole night only getting up 2 times .. Drains are still draining those don't bother me much . Today have gotten in and out of bed and recliner alone , still hurts like hell when I do that but I can do it lol ... Now my real trauma is when I see myself in the mirror .. I had direct to implants .. Wholly molley are my Tata's ugly . I have cried every time I see them . My husband says to give them time and they look fine but he's just being nice . I look like Frankenstein , has anyone had horrible looking things that turned out normal at the end .. I had skin and nipple sparing . Nipples doesn't look to happy hope they last . My doc says I can shower so that's my goal for the day also hope to get my guts moving . It's the little things in life . Thank you ladies that have sent me kind words I would be lost without the forum .. I hope reconstruction wasn't a mistake and that they just go thru transformations

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2015

    I had my right mastectomy and TE inserted yesterday. The pain has been terrible. I woke in Recovery crying from the pain. I was discharged 4 hours after surgery (for some reason it's day surgery where I live - ridiculous) and I had a horrible night last night with pain off the charts. I wept all night long and finally drifted off at 5:30am. Tylenol 3 doesn't begin to touch it. I have two drains which are collecting thick red discharge. Ick. I have a binder on, which is getting stained with blood and other fluids from my drain insertion site. Plastic surgeon told me to remove nothing until I see her next Monday, so I will call the office tomorrow to see if I can wash it and change the dirty gauze pads. It's strange and upsetting to me how concave the right side of my chest is. I am not enjoying my journey so far...

  • Frill
    Frill Member Posts: 311
    edited November 2015

    Sugar and spice: I'm so sorry you are in so much pain. Communicate very strongly how much pain you are in. Tylenol 3 isn't what you should be getting right now. MX isn't day surgery here, but still, it seems crazy that's it's just an overnight stay. Keep strong. We're all here pulling for you. Stand up for yourself. If you hurt, by God, you hurt, and make them fix it!!!!!!!!!! You don't deserve to suffer. No one does. We love you and are here for you. You are in my heart tonight and are helping me see that I need to focus on others rather than me. **huge hugs**

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited November 2015

    Sugar and Spice, here in the States you’d have been an in-patient and probably on a morphine or Fentanyl pump, not oral opioids (and the oral ones you’d have been prescribed would likely have been stronger than Tyl. #3). You need to be an advocate for yourself and stay ahead of your pain--it’s much easier to keep your pain at bay from a 3-4 level than to try to reduce it from a 10. (I didn’t get an opioid Rx after my lumpectomy, but after both of my total knee replacements was given excellent pain management both in-hospital and once transferred to rehab). Don’t be afraid you’ll be dismissed as a crank or a drug-seeker, since only YOU know your pain.

  • debiann
    debiann Member Posts: 1,200
    edited November 2015

    Live4them, I had flap reconstruction not implants, but I had the exact same reaction the first time I saw mine. But after a year and two revision surgeries I am  very happy with their appearance and amazed at how well the scars fade. It takes a while for things to settle into place, it will get better. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2015

    Sugar-and-spice, I'm so sorry you're having a tough time. By far the drains have been the worst part of it for me. The one for my underarm is draining so much more than the one for my breast and I dread having to 'strip' them. The whole process makes me uncomfortable and it is painful, even when someone does it for me. Don't hesitate to give your surgeon a call about the pain. Thankfully I am getting by with Tylenol #3 but I have to take it exactly every four hours or else I can barely move. I think the first few days are the hardest for us but it will all pass. I'll be thinking of you and keep us posted with how you're doing.

  • letsdothis15
    letsdothis15 Member Posts: 10
    edited November 2015

    Sugar and Spice- I hurt for you! Please call and get a stronger pain medicine- you can't focus on healing if all you feel is pain! I have decided on implants and I have read it's just an overnight stay! I thought THAT was bad! We will be thinking of you- hang in there!

    TallnTerrific and Live for them, loving is living- thinking about you all too!

    This thread helps me but also makes me nervous- but like you said, FRILL- It helps me think and concentrate on others and not dwell on my own pity party (which trust me, I am having!)

    Sweet dreams to all!

  • HopeFaithCourage
    HopeFaithCourage Member Posts: 156
    edited November 2015

    new me thank you for your response!

    For of those of you b hurting I'm so sorry :(

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