Chemo timeline-- which days do you feel best/worst?

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jonep
jonep Member Posts: 8

Hi everybody!

I will be talking with my doctor about my chemo schedule this Monday. He said that I need to have four rounds of chemo, in addition to hormone therapy and that I should start soon, as I had my surgery, a total mastectomy of my left breast, about a month ago.

The thing is, when I was diagnosed, we were in the middle of planning our wedding in December. Everything is all ready for the wedding, except for me as the bride haha. I want to know how I can schedule my chemotherapy in a way that I can enjoy my wedding and feel great during the ceremony and reception.

I have come to terms with the fact that I will be bald on my wedding day and right now, I just want to be able to enjoy it and have a good time with my family and friends.


Comments

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited November 2015

    jonep, I love your positive attitude! Congratulations on your up-coming wedding. I had 4 rounds of TC and days 4-7 post-chemo were usually the worst for me. So, usually, towards the end of the second week, I felt pretty good. Mostly very minor SE's for me. Your medical team will help schedule it so you can enjoy your wedding. If you have to go a little longer between rounds, they are usually okay with a few days. Your MO will probably check your blood prior to each round, to make sure you're okay for the next round. Make sure you stay hydrated and if you get the neulasta shot the day after each round, you might want to take 24 hr Claritin for a day or two prior and a couple days after to relieve any achiness you might have. Best wishes in your recovery!

  • jonep
    jonep Member Posts: 8
    edited November 2015

    Thank you so much! I'm just feeling a little bit anxious, as I live in Japan and I can't speak Japanese at all. I feel like I need to know my options on my own, rather than depend on the translations. Here's hoping all goes well :D

  • ruthbru
    ruthbru Member Posts: 57,235
    edited November 2015

    Are you doing chemo every two or three weeks? That might affect when you feel the worse. Generally, you feel worse the first week after chemo & better after that. If you are having every two weeks (dose dense) you will have Neulasta shots and then you don't have to worry so much about getting sick. If you are doing it every 3 weeks, then you will have to check with your team on the timing because I know your blood counts will drop midway between cycles & you do then have to worry about infections etc. (I did dose dense so am not sure about the timing of all that, but your doctors can advise you).

    If you are thinking of a wig, go get one ordered now so that it will match your current color/style etc. Usually the hair goes two weeks after the first infusion. What it did was; I went to a centre that specialized it wigs for people with hair loss, ordered the wig & made an appointment to pick it up when I went in for my second infusion (I was on the every two weeks plan). The beautician shaved my head for me (you could tell it was ready to start falling out because it felt very brittle and dead), and then fitted the wig perfectly to the size of my head. It matched so well that you really couldn't tell the difference (I met up with an old friend who knew I was doing chemo & her remark was, "Well, it least you didn't lose your hair.") So, that might be something to consider anyway.

  • Mamiya
    Mamiya Member Posts: 432
    edited November 2015

    Jonep, it would be helpful if you told us what chemo you will be having as there are wildly varying side effects and schedules depending on that.

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited November 2015

    I am on a 3-week cycle with a Neulasta injection on the day following infusion. My infusions are Wednesday and Saturday and Sunday are my worst days. Monday is also pretty bad, but starting to improve. By a week after infusion I can cut out the anti-nausea meds. If you are on a 3-week cycle, planning the wedding during or after week 2 should be when you are feeling the best.

  • jonep
    jonep Member Posts: 8
    edited November 2015

    Thanks for the feedback. :) I start chemo on Friday. The doctor said we'll be doing four rounds of Taxol and Cytoxan. I'll have my second round on December 4, then my wedding on December 30. I guess I just have to take it easy on mingling with the guests on the wedding, because of the infection risk.

    Oh one more thing, I'm a little shy to ask the doctor since my manager at work is my translator: what about the honeymoon? How safe is it to have sex?


  • ruthbru
    ruthbru Member Posts: 57,235
    edited November 2015

    If you go to the BCO Homepage, there is a whole section on sex under the Day-to-Day Matters. If you feel up to it, it's fine to have sex. (Some doctors recommend a condom if you have sex in the first couple days after chemo as the drugs leaving your system could irritate the penis....I never felt good enough in those first days for that to be an issue!). Just make sure you have the contraception covered as you definitely don't want to get pregnant while on chemo.

  • jonep
    jonep Member Posts: 8
    edited November 2015

    Thank you! (and I'm sure my fiance will thank you too haha)

  • ruthbru
    ruthbru Member Posts: 57,235
    edited November 2015

    I edited my post so re-check it.....

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited November 2015

    We were told to use condoms for the first 3 days following infusion.

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