Canadians in British Columbia

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  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2015

    Wren they didn't want to remove it. Davis took my case to a discussion board of surgeons in July also (I think to back her up a bit) they agreed it would not be beneficial at this time. Having said that the tumour has shrunk from four and a half cm to two so my oncologist reaction is you are doing something right. She has me on tamoxifen but I have cut my dose in half over the last few days and I think I will stop it completely eventually.  Never wanted to take it and now that I learn all I have about it I REALLY don't want to take it. But I need to make that plunge.

  • mikarae
    mikarae Member Posts: 163
    edited October 2015

    Good morning Wendy3 - Are you on any other hormonal treatment other than Tamoxifen?

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2015

    Nope nothing else Dr. Simmons did offer some bone medication that would have been given intravenously but I said no thank you after reading about it online. I feel amazing lately the tumour is a lot smaller and I have lots of energy and appetite which was a big problem in June and July. So something is working getting used to organic vegan cooking is a whole another ball of wax. Lots to learn. Mikarae get yourself some CDB capsules they contain no THC at all so you wouldn't get high just better. I may come to eat my words one day but as I've learnt in the world of cancer it's all about the now. I'm sad to see that so many people are so against alternative medicine. Why not do everything?

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2015

    Mikarae there is a place in Kelowna where you can get them if you are interested. PM me if you want that info.

  • BeachLife
    BeachLife Member Posts: 54
    edited October 2015

    Goldieone 1 Like Marian, I also had my sentinel node done the same day as the lumpectomy. It is interesting to learn a variation, I am wondering why there have to be two surgeries one day apart.
  • BeachLife
    BeachLife Member Posts: 54
    edited October 2015

    Wendy3 Glad to learn that Tam works for you and you can tell it does. I guess for most people it is hard to tell if it works. Do you have s/e? Exercise, nutrition and other life style changes not only provide us with a healthy foundation, but also give a sense of control. Excuse my ignorance, what is CBD? I am also interested in natural healing methods, I have seen two natural path doctors and a Chinese acupuncturist/herbalist. Take care!
  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2015

    BeachLife CDB are cannabinoids that are in the hemp plant more commonly referred to as pot. One can purchase the capsules without the THC so no funny business. Or you can also purchase the Phoenix tears which is hemp oil. The main thing is to get the CDBs from the indica plant. The other strain is a setiva which is the plant that makes you all goofy you don't want this one. I really believe there is something to this I was taking the oil all summer didn't notice much difference but with these pills I do. I may be proved wrong during the next scan ....we shall see I'll let you ladies know how it turns out for sure. I agree I have to be involved in this I need to be contactless doing something to fight this. Makes me happy knowing I'm giving my cancer a hard time lol. 

  • Goldieone1
    Goldieone1 Member Posts: 22
    edited October 2015

    Hi Marian and BeachLife,

    I don't know why they are doing the sentinel node biopsy the day before. I have to go on November 9 to VGH to the Nuclear Medicine department to get the dye. Then the next day I have to go to the BCCA to get a needle inserted because my surgeon, who is Dr. Noelle Davis, can't feel the lump. From there they will take me to VGH to have the surgery. I find all these so overwhelming. So many things happening.

    I would love to go to the pot luck but I will be staying for 2 weeks at my daughter's place in Maple Ridge where she will be taking care of me and I will be able to see my granddaughter every day. I live in downtown Vancouver. Hopefully next time I might be able to attend.

    I used to be active. Walking, exercising, biking etc, but since I got diagnosed I feel that I don't have any energy for anything. I even stopped cooking which is a passion of mine, but started cooking again this past weekend and I felt good.

    Will keep you all posted once I have the surgery in two weeks. Take care everybody.

  • Goldieone1
    Goldieone1 Member Posts: 22
    edited October 2015

    Wendy3,

    Can you get CDB everywhere? do you need a prescription from your doctor? What is THC? I have been reading a lot about hemp oil and stuff and thought that I should try it also as part of treatment.

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited October 2015

    Goldieone, in fact they may do the sentinel node biopsy at the same time as the lumpectomy. What have they said will happen after the dye injection as I don't see you saying there will be a surgery after the injection? Maybe the dye will still be there next day?

    The whole waiting game and trying to understand so much information in short order is exhausting. But do try to get even a bit of the exercise you used to get as it helps with fatigue. It sounds as though you will be getting good care after surgery which is so important.

  • BeachLife
    BeachLife Member Posts: 54
    edited October 2015

    Goldieone1: Apparently your surgeon has access to a different hospital from that of Marian's and mine. I am curious if the 2-day plan is due to technical reasons or clinical needs. Like you and others, I was also shocked with my diagnosis--I have been exercising and eating healthy (incl. lots of organic foods and supplements). But BC makes me to re-evaluate my life, for example, to work more on stress reduction, cardio exercise. Diet and exercise are very important in BC. I also live in D/T, can meet one day.

    You are lucky to have the love and care of your daughter. Take care and good luck!

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2015

    Goldieone1

    CDB are the cannabinoids in marijuana plant and there are many types. The THC is the part of the plant that makes people high. They are making the capsules without the THC so people can reap the benefit without the high part. What you will need is some paper work from your doctor that states what you have, your diagnosis and some ID. Because it still is not regulated by the government there are big differences in quality of the product and the type of stores where you can get it. You are in Vancouver so there are many stores...too many. Some of which are pretty shady unfortunately let's hope this changes with the new government we have now. If you are interested to know where I go private message me . I agree we need to try everything. Enjoy your daughter and granddaughter I envy you. My daughter is twenty and studying at UBCO no grandchildren for me for awhile I'd think. I plan on being there when it does happen though. 


    I wish all a peaceful night😊

  • BeachLife
    BeachLife Member Posts: 54
    edited October 2015

    Goldieone1 (Sorry my post above was deleted by accident) I am still curious if the two-day plan can be fit into one so you do not have to go through some of the things twice, one day after another. Exercise and diet are very important to BC, I was also walking and eating healthy (lots of organic foods and supplements) before my diagnosis, but have since re-evaluated my life style, and made adjustments incl. a new water filter, no more non-stick cookware, more stress reduction, cardio, and eating the right foods for my system (no wheat family, dairy, shell fish etc. for now).

    You are very lucky to have the love and care of your daughter (and your granddaughter!). I also live in d/t, can meet ou easily. Take care!

  • Goldieone1
    Goldieone1 Member Posts: 22
    edited October 2015

    Marian, What I have been told is that I do have to go to the date before the surgery to nuclear medicine to get the dye. The next day I have to go and have this fine-wire localization inserted and then they take to the do the surgery. I guess that is when I will have both, the lumpectomy and the sentinel node done. I think I was a bit confused about all these names, but this is more likely what will happen. During surgery they will also inject me with a blue dye as well.

    I'm happy that I started exercising again this morning. It was only 20 minutes but at least was something. It felt so good. I will continue this. I think it is the only way that I can get my mind out of this whole thing in the mornings when I'm getting ready for work and stuff.

    Wendy3, I will PM you if I can figure out how to do it. If you don't hear from me is because I didn't.

    BeachLife, it would be awesome to meet and share experiences. I think after the surgery and recovery will be good for me. Let me know if you want to go for a coffee after November 23.

  • BeachLife
    BeachLife Member Posts: 54
    edited October 2015

    Goldione1 Please PM me when you are ready to meet, I walk a lot along the sea wall. Good luck!

  • Goldieone1
    Goldieone1 Member Posts: 22
    edited October 2015

    BeachLife, will do. Thank you!!!

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited October 2015

    With many new friends here in our BC/BC thread starting treatment and/or surgery, I am wondering if we could/should think about postponing our get-together scheduled for Nov. 21 to January. That way more women may be able to attend. Thoughts/comments?


    Marian

  • wrenn
    wrenn Member Posts: 2,707
    edited October 2015

    I think it's a great idea. January is always better for me because I don't like this time of year. Many people start to get 'holiday' busy in November as well.

  • Goldieone1
    Goldieone1 Member Posts: 22
    edited October 2015

    I would love that idea so that I'm able to join you all for the get together!!

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2015

    Sounds great Marian count me in.

    Wendy

  • BeachLife
    BeachLife Member Posts: 54
    edited October 2015

    Sounds great, Marian! Thank you for hosting it. Happy Halloween everyone!

  • Ossa
    Ossa Member Posts: 919
    edited November 2015

    sounds good Marian Look forward to seeing all our breastfriends again, Good idea to postpone so we can have more ladies attend

  • Carrie61
    Carrie61 Member Posts: 56
    edited November 2015

    I would be able to attend in January but not in November, so works for me too!

    carrie

  • Ossa
    Ossa Member Posts: 919
    edited November 2015

    Carrie, I am so sorry to see your new diagnosis


  • koshka1
    koshka1 Member Posts: 678
    edited November 2015

    I'm good with January :) 


    kosh

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited November 2015

    OK, it is official. Our get-together for women in BC is postponed to January, 2016 from November 21. This way we will have many more women who are able to come and I look forward to seeing old friends as well as new ones.

    Marian


  • Wendy3
    Wendy3 Member Posts: 1,012
    edited November 2015

    Thanks Marian for opening your home to us it's very much appreciated. Looking forward to meeting some people that understand how difficult things can get.

    Wendy

  • hugz4u
    hugz4u Member Posts: 2,781
    edited November 2015

    Hi all. There is a lympedema conference this Saturday at the children's hospital in Vancouver. You have to pay (50 $ I think) register to attend. Google BCLA to register.(. British Columbia Lymphedema Association )This is where the top notch lymphedema experts will be this weekend. I am going because I need to learn more about breast cancers dirty little secret.Lymphedema. I have it and it's not fun. You can reverse it if you are early ,early stage one. Not me. I'm stuck with it and it's life changing but Ia getting smart and educated in it. Yup ..I daily wear those annoying compression sleeves and gloves that are necessary to keep swelling at bay and I get my lymphatic system drained on the affected quadrant by a professional lymphedma therapist See you there









  • Goldieone1
    Goldieone1 Member Posts: 22
    edited November 2015

    So it starts today. I have my injection and scan at Nuclear Medicine this afternoon and tomorrow I will have the lumpectomy and sentinel node biopsy. I'm so nervous about this whole thing. And then the wait starts. The terrible wait.

    Hope everybody had a nice weekend. Take care!

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited November 2015

    Goldie, I will be thinking of you these next two days and will be hoping for the best of course. The "waiting game" as I have always called is rough and all I can say is try to stay busy and as positive as possible. Once you are up and about after the lumpectomy, plan some fun things that will help to take your mind off the wait/thoughts that are bound to happen.

    Marian

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