Stage IV NED crew : let's support each other

Great research - please consider signing on!

the MBCproject, a collaborative effort between researchers, doctors and patients launched at the Broad Institute of MIT and Harvard as well as Dana Farber Cancer Institute.

The URL to join the MBCproject is MBCproject.org

This group was made to keep people up to date with the Metastatic Breast Cancer Project. We respectfully ask that people share knowledge, but not solicitations for fundraising.

The Metastatic Breast Cancer Project is a research project focused solely on metastatic breast cancer. Our goal is to generate a comprehensive set of data that will be stripped of personal information and shared with the entire research community so that all scientists can take part in the discoveries made possible by direct patient engagement. Some of the initial studies that we are launching will be:
• patients with extraordinary responses to therapies
• patients who have metastatic disease from their first diagnosis (de novo metastatic disease)
• young people with metastatic disease
• patients of racial and ethnic groups that have been underrepresented in genomic studies to date.
Our first study will focus on patients with extraordinary responses to therapies. Dr. Wagle and other oncologists have learned how to better match patients to certain drugs, how to repurpose drugs that were otherwise considered "failures", and how to design new strategies for targeting cancer. Here's a recent article, which examines how we are approaching treatments differently as a result of these important discoveries: http://ow.ly/OQ6lD. New clinical trials have already started based on the discoveries from these patients. The key here is that patients who have had extraordinary responses are very difficult to find at any one medical center, but by casting a wide net across the US, we might be able to identify enough patients who are willing to partner with us to make very meaningful discoveries.
Our research will be carried out at the Broad Institute in collaboration with Dana-Farber Cancer Institute. In addition, we are conducting this initiative in direct partnership with patients, and with a number of advocacy organizations that focus on metastatic breast cancer such as the Metastatic Breast Cancer Alliance, the Metastatic Breast Cancer Network, Avon, Living Beyond Breast Cancer, the Young Survivors Coalition, and the Inflammatory Breast Cancer Research Foundation.
When we launch this project in a few months, we will reach out directly to patients across the country and ask them share a portion of their stored tumor samples, their medical records and their voice. Our scientific investigations will start with a focused group of patients, but we will expand over time based on the patients who sign up to allow us to contact them. We would love to hear from anyone interested in this project. Please feel free to reach us at info@MBCproject.org, or on twitter, @corrie_painter and @Nikhilwagle using the hashtag ‪#‎MBCproject‬

Caryn

Thank you!

Survey done and dusted!

Scan yesterday....results tomorrow. Praying I get to keep my NED status!

Thank you Boo! I will definitely report on the results.

Thank you Linda!!

Teasros, thinking of u and praying for NED!

Sending hopeful hugs and prayers!

Thank you Cafelovr and KiwiCatMom!

yay Linda and everyone.......and yay me.......clear pet and have crossed one year from completing treatment! Caryn, Linda, Heidi and many others, you give me great hope for continued success!

Kiwi...Congratulations! I have added you to my "List of Inspiration"

Way to go Screech and KiwiCat! It is a great feeling!

Sending strengthening hugs, Boo!