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Lnkeefe
Lnkeefe Member Posts: 1
edited November 2015 in Just Diagnosed

I was just diagnosed this month with IDC. I am really nervous and scared but very hopeful! The size of my lump I'm told is 1.4cm. I have opted for a lumpectomy followed by radiation. My surgeon informed me that either surgery option I choose has the same outcome as far as reacurance. I was also told to think of this as a "bump" in the road. Once I get over this bump I will be fine. The surgeon will also be removing some lymph nodes to have tested. I am trying very hard to stay positive based on the surgeon telling me that my type of cancer is "very treatable" but of course there is always doubt. Anyone have any words of wisdom former me? I have 2 girls 13 and 7 and Iam horrified to tell them. I know my little one won't really understand but I am very concerned about my 13 year old!

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  • Moderators
    Moderators Member Posts: 25,912
    edited November 2015

    Hi Lnkeefe-

    Welcome to our community here at BCO. We're sorry for the circumstances that have brought you here, but we're glad you've found us. You've come to the right place for support. Just know that you are not alone, and this community is here for you every step of the way!

    The Mods


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  • Englishmummy
    Englishmummy Member Posts: 337
    edited November 2015

    Ln, it really sucks to do this and is worse with younger children. I was dx in May, I have 3 children -12, 11 and 8. My then 10 year old son 'guessed' what was up before we were ready to tell them, but when he asked we told them that there was a plan in place and did not give too many details. My youngest was more worried over whether or not I would look the same. Thankfully no chemo or rads as I opted for a mastectomy. My eldest daughter just cried and she asked if I was going to die, to which we replied, " Everyone is going to die, but it is not my time yet." She was good with that. I feel a few airy details are better than raw, step by step details - at least for my 3, we said I was having surgery but didn't go deep into what it was - I'd had the life scared out of me and I didn't want that for them. I was told the same as you, very treatable....we HAVE to believe that. It does get better, you breathe easier. I am 6 months out and I feel more like me. Yes, it still occupies my thoughts throughout the day - I hope it'll lessen to the point where I can occasionally forget about it..people on here say it happens, they forget for a while, but in the meantime we have to carry on living, albeit with a greater appreciation for life and those in it. I'm going to add this to my favourites so I can be there for you should you need. Stay strong, the odds really are on your side.

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  • marijen
    marijen Member Posts: 3,731
    edited November 2015

    My 25 year old son just asked me how I was doing and wanted to know how big the incision was and if it was getting infected or still draining. That sure makes me feel good that he cares. He wanted to know if I wanted a ride to the doctor tomorrow. But I cannot, it's still draining about 100 cc a day - this is day 6.

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  • Meow13
    Meow13 Member Posts: 4,859
    edited November 2015

    My breast surgeon told me it is like climbing a mountain but it is turning out to a bump in the road. So far my treatment and recovery has been not too bad.

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  • Smurfette26
    Smurfette26 Member Posts: 730
    edited November 2015

    Lnkeefe the beginning of this journey is really the hardest.

    It may not feel like it now; but it does get easier.

    This forum is a wealth of information and an invaluable support.

    Hugs Donna.



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  • Lucky78
    Lucky78 Member Posts: 1
    edited November 2015

    I had a core biopsy and a week ago I got the call that it was cancer. Saw a surgeon who did a wedge biopsy to prove Paget's. The wedge biopsy is very painful. Why didnT he just go for surgery. Is there anyone who has gone through multiple biopsy when it is cancer just take it out.

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  • octogirl
    octogirl Member Posts: 2,804
    edited November 2015

    Hi Lnkeefe...my kids are adult but it was still hard to tell them... one issue is that treatment plan could change once they do the surgery and have more information that they will get from the surgery pathology report....so you might want to share minimal information now and let them (especially the older one) know that you are very positive, your doc is very positive and that you will keep them posted....obviously, you will want to let them know you are having surgery, but let them know it is outpatient and how they can help you (I bet there is a lot the older one can do to help when you are resting after surgery).

    I had a lumpectomy and the surgery itself wasn't that bad. There is a great thread called the Lumpectomy Lounge with some wonderful and supportive women, including some with younger children. i hope you will come over and join us there as you get ready for surgery! Lots of support, great information, and a few chuckles too, which we all need!

    HUGS!

    Octogirl

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  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited November 2015

    My cancer center has a kids support group and my oldest 2 seem to be benefiting from that. I have been as honest with them as I can and try to explain things in ways they understand. I really like the book "The Year My Mother Was Bald" or something like that for my oldest. It broke the process down into the different parts and let her read about it at her pace.

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  • Moderators
    Moderators Member Posts: 25,912
    edited November 2015

    Lucky-

    We wanted to welcome you to our community here at BCO. We're sorry for the circumstances that have brought you here, but we're glad you've found this community, and hope you find the support you need as you begin your treatment.

    Many of our members have undergone several biopsies during the diagnostic phase. Some biopsies are done just to determine malignancies, and then another done to determine type, staging, etc. It's important that your doctors have all of the information they can get, in order to come up with a treatment plan that is going to be the most successful for you and the cancer you have. We're sorry that this last one was painful, and hope your recovery is going well!

    The Mods

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  • MissMuffitt
    MissMuffitt Member Posts: 1
    edited November 2015

    Diagnosed  in August at 67 with DCIS, stage 0. high grade, ER+ and PR+, 1.9 cm

    Comfortable with plan for lumpectomy with lift in right breast and reduction for symetry on left breast. Surgery scheduled for December. Would appreciate any thoughts about the time span. Concerned about changes that could occur.

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