Starting Chemo March 2015

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    Allison- I'm so sorry. I can't even imagine. I'm glad your doc was there to look into some solutions for the part she can fix. As far as the rest, a big gentle hug coming your way. Tears can be very therapeutic and cathartic. Sometimes they come at the strangest times. A lot of pressure builds up during treatment. You've been under stress of this whole thing for a very long time. I think you've showed real strength and class, being a wife and a mother, and above all, yourself. Please be kind to yourself now. You've earned it.


  • Carrie37
    Carrie37 Member Posts: 331
    edited November 2015

    I'm sorry Allison. I have found that my meltdowns come at the strangest times over things that seem small. It's all such an emotional roller coaster. Gentle hugs to you. I hope the doc helps you figure out things for the itching. I'm not looking forward to starting rads. Some of the Fall Rads forum made me nervous so I stopped reading.

  • Italychick
    Italychick Member Posts: 2,343
    edited November 2015

    Allison, you know what, you are absolutely right, you were probably sensing exactly what they were truly feeling. Honestly, we wouldn't want to be in our place if we didn't have to. But they were also probably looking at you with compassion, and between the two, it did you in if I had to guess. And it's okay to cry. One of the main reasons I don't let anybody go to anything with me is if I see that pity look, that's when I crumple. You cry whenever and however you want to or need to. You have been strong through this process, exercising, exploring ways to improve your health, doing everything you can. So nobody better ever look at you as weak or anything like that, or else they deserve an ass kicking. Give me names and addresses lol!

    And as everybody has said, crying lets out the tension. I think it's a main way we as women get rid of stuff because normally we always have to be so strong, particularly if we are wives and mothers with others depending on us. So we cry, blubber it all out, then stiffen our backbones back up, put our crown on, and go do what we do best, which is keeping the world righteous.

    I'm a sap - love all of you guys!

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    Thanks to ALL of you ladies. You are incredible and I love you!

    DH is being great.

    I made a poundcake (actually 2) from scratch. Gives me an excuse to bake, which I love but always feel guilty about eating the stuff. Our neighborhood organized and we are raising $$ and giving meals to our landscaper whose wife just died of BC. They have 4 kids including a 2 year old. Maybe I told you already? I really enjoyed making the pound cakes. It took my mine off ME doing something for someone else who had it worse than me. I was proud of how my community raised the $$. They don't need the meal after all since they got so much food but I might cook next week.

  • Italychick
    Italychick Member Posts: 2,343
    edited November 2015

    See? On went your crown, and you set out to make the world righteous! It takes a big heart to reach out and help others when you are going through something yourself. I don't know if anybody has said this to you, but I am proud of all of you! Every day - I talk about each of you all the time. Allison, you are Chicago, littleblue, you are the Montana fireghter tough chick, Katy, you are my Oregon buddy, Sloth, you are the Oregon animal saving lady, BB you are the Illinois lady, Avmom, you are the Canadian chick, Eileen, you are Lake Arrowhead, Sharon, you are the Aussie chick with vanna gogo, Bekah is the Central Valley chick, Maryellen, you are the questioner, Lee, chemo brain kicked in and I can't remember what I call you, and Carrie, you are the empathetic lady. And of course, Ksusan is known as the twerk lady! I know I left people out, but you all have nicknames. If I say something happened to Allison, Roger (my hubby), says which one is that and I say Chicago, and he knows who you are.

    You are all important to me, every single day

  • SueH58
    SueH58 Member Posts: 632
    edited November 2015

    Hey T - what about essential oils for Diane. Know anything about them?  My niece is really big on them. I just bought Frankencense and Myrrh but haven't tried it yet. Just another thought--everything's worth a try when u r in pain. 

  • Italychick
    Italychick Member Posts: 2,343
    edited November 2015

    Lol. I mix frankincense with DMSO as a carrier agent and rub it in my sore muscles, appears to work for me, DMSO is an out there substance which is why I haven't brought it up much

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    T- the feeling is entirely mutual.

    Allison- good for you. So proud. And so fond of you.

  • slothabouttown
    slothabouttown Member Posts: 449
    edited November 2015

    Allison, I always had to give myself a pep talk before rads. The techs were the nicest people I've met throughout treatment but for me lying on that table with a couple of tons of radiation spitting machinery overhead left me feeling extremely vulnerable. And going there 5 days a week takes its toll. You did just fine shaking it off and then helping a family in need. Bravo.

    Tomorrow I fly to the east coast for a conference and I am scared to death of lymphedema and blood clots. I plan to compress myself like a sausage and wear some unattractive circulation promoting socks, and I took a baby aspirin. I don't know what else to do but throw caution to the wind and go for it. I keep trying to remember what kSusan said about taking some risks in exchange for maintaining a quality of life.

    Theresa, I like being that Oregon animal saving chick. I sure hope we rally to pull off that lake arrowhead trip, I have a feeling you'll be the life of the party.

    Also, it's a good thing I read my messages over before I post them because my autocorrect decided that I was wearing "copulation promoting socks." That would've made for a much more interesting conference!

  • Italychick
    Italychick Member Posts: 2,343
    edited November 2015

    copulation, circulation, either works for me lol!

    I so hope we get to have our get together. I really want to meet everybody and be a little crazy! I haven't had the nerve to really drink yet, like 1/4th of a beer, but for our party I will definitely make an exception. One shot, and I will be in lala land, but it will be worth it!

    I did add the Portland Michael Jackson thriller chick into your description, haha

  • eheinrich
    eheinrich Member Posts: 792
    edited November 2015

    Hahahahahaha!!! I love auto-correct - it's a silly one. That made me laugh really hard. :)

    I think I only have 2 TE fills after today's! Although seriously my TE boob is on a completely different plane than my regular boob. If they had eyes and glanced sideways they wouldn't see each other. I can't wait for bulky sweater weather - I think this year it will be on a single Tuesday in January.

    ((Hugs)) Allison. Great big tight bear hugs!!! JK. : D

  • shaz101
    shaz101 Member Posts: 718
    edited November 2015

    Theresa I hope you can get in for one.

    Katy, the ABUS might be good for you or others that have had a masectomy.

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    Sloth, you can do some gentle hand and arm pumping on the plane, and do leg tightening and lifts in your seat. Keep hydrated and have something to distract you. My wife says the sleeves/gauntlets look sexy, FWIW.

  • Italychick
    Italychick Member Posts: 2,343
    edited November 2015

    or raise your arms up and belligerently pump your hands in the air. That should be interesting with the copulation stockings!

    Ok, Ksusan, may have to go out and get some and make the hubby wear them! Just cracking myself up here

  • slothabouttown
    slothabouttown Member Posts: 449
    edited November 2015

    Another of yesterday's auto corrects courtesy of my new iPhone (haven't populated my dictionary enough yet)

    When referring to my co-worker Veronica and her willingness to pitch in while I'm gone this week I wrote to another coworker:

    "If you feel like you're falling behind, Erotica will help you."


  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015
  • Leighrh
    Leighrh Member Posts: 317
    edited November 2015

    I am so sorry Allison that you had a moment... Unfortunatly they happen! But I found this and I posted it on my Instagram... My new motto!!

    image

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2015

    Copulation Stockings...LMFAO. Sorry to jump in here. But, Where can I get some? I need to get laid in the worst way!!!!!! Also, I just flew and had no ill effects. Wore my sleeve and gauntlet, waved my hands in the air like I just don't care (which I don't) periodically, and stayed hydrated. Just do your Thriller dance in the aisle, Sloth, and you will be fine. Also, I read your post quickly and thought you meant your compression garments made you LOOK like a baby aspirin, which made me snort coffee out my nose. Good work!

    Doesn't copulation increase circulation? Also, it sounds like your phone needs to get laid also LOL.

  • pboi
    pboi Member Posts: 663
    edited November 2015

    Allison...sorry to hear about the meltdown yesterday. Sloth is right, just the process of it and having to go 5 days a week takes its toll. Hang in there. Did they recommend hydrocortisone for the itching? I had itching about halfway through and it helped, then it went away in a few days. How many more for you to go?

    Sloth you are so funny! Hope all goes well on your flight today.

    Diane...thinking of you and hoping your pain is better.

    After all the surgery, chemo, and rads and adjusting to Lupron and AI, other than the persistent insomnia, I'm finally coming to a place where I'm feeling pretty ok again. I feel like my body is slowly healing. But...I feel like there is this big giant in the room coming to knock me over again, cuz I'm having my surgery next Wed. I don't want to start this all over again, when I'm just starting to feel better...just feel like hiding somewhere

    PB

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    PB: I am glad you are feeling better. What surgery are you having? Forgive me for not remembering.

    I put on some Benedryl cream yesterday and that didn't help at all. I have been using the Calendula and Blue Emu cream and they seem to be helping. It's funny but my back is barely even pink but my chest is very pink and itchy. I will be ok. I think it was just all those extra people in the room that tipped me over the edge.


  • pboi
    pboi Member Posts: 663
    edited November 2015

    Allison...have you tried 1% hydrocortisone cream? You can use that as long as it is not an open wound. What did your RO suggest?

    I'm having a prophy left mx and oophorectomy next Wed. I was BRIP1 gene positive. I'm a little more anxious after hearing about Avmoms prophymx. It's not common to have bilateral BC, but it does happen.

    PB

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    Re: Getting laid: My ND offered the option of nasal aerosol oxytocin as libido-enhancer, FWIW.

    I have libido, but also have fear of torso and arm pain. Plus, what was that about avoiding repetitive arm motions? I'm not wearing sleeves for, ahem, certain activities.

    ETA: Though wouldn't that be a fun letter to the insurance? "Sorry, the fake lady-lube, in conjunction with the need to wear sleeves for repetitive motions, resulted in unsightly stains and a replacement sleeve is needed."

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited November 2015

    Sloth - I was on my treadmill this morning reading your post and when I got to the "copulation promoting socks" I just started laughing out really loud. It was hysterical.

    Theresa - I like how you remember us all and I admire your memory! To me you are "Theresa who bikes" - my Mom who is in her late 60s often bikes 40-45 miles a day. Also, I remember you by "Italy", because that is my favorite place to go on vacation.

    Tomorrow morning I'm going to have the mammogram and ultrasound on which my insurance insisted. I'm planning on heavily drugging myself with Xanax for this occasion. Yesterday I saw my PCP and she said that if my MO is not successful getting an MRI approved, she will advocate for me. Made me good.

    OK, back to work for me.... Have a good day, All!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2015

    Ksusan- can you get a black sleeve lOL? Wont show the stains! Really, oxytocin nasal spray? Do you give it to yourself, or your partner, I wonder? sounds kind of like roofies....

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    Roofies might work, too, though who would remember? Yes, I have bitchin' black sleeves, though my next pair will be something like this:

    https://s-media-cache-ak0.pinimg.com/236x/41/48/c9/4148c98f4793250942aa4a54a7dd26f0.jpg

  • shaz101
    shaz101 Member Posts: 718
    edited November 2015

    omg. You ladies crack me up! I'm so grumpy this morning. It was just what I needed.

    PB I'm happy you're starting to feel normal again. I am too now that I've started running. My joints still hurt and my arm is like a balloon but I don't care anymore. Fuck cancer!!!!

    I'm working longer days now. I'm tired but I feel like I need to push through it to get normal again.

    PB So sorry you have surgery again. But we can all understand why, and I am sending love your way.

    KATY, get out of that hole and join us. I know your hiding back there somewhere. Don't make me come in after you! Love you to bits. Big hugs xxx

  • shaz101
    shaz101 Member Posts: 718
    edited November 2015

    littleblue that video made me smile big time.

  • DavisD
    DavisD Member Posts: 338
    edited November 2015

    Allison-I experienced much the same thing. You are so exposed with arms over your head,breasts exposed and strange people giving the machine a go!! Ugh. I still remember dissolving in tears and apologizing at the same time. Hang in there. Before long it will be history. You're not alone:)

  • SueH58
    SueH58 Member Posts: 632
    edited November 2015

    T, what is TMSO?

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