Complex Sclerosing Breast Lesion

That is an unusual story . I'm sure glad for you that your condition is benign. They also found that benign condition along with my ADH upon biopsy last March. I don't really understand how these two problems could be confused by pathology and it certainly was not the case for me. Two different pathology groups came to the same conclusion about my results . I hope you get some piece of mind on this

That sounds good to me.

I have a worse condition than that and they are not recommending strict surveillance. I would prefer the surveillance. Your docs are being very cautious and that is probably a good thing

Yikes Anne

Yours is absolutely no reason to even consider PMX if it is just what they are telling you . Read this stuff with caution as it doesn't necessarily apply to you and will freak you out .... Even mor

I would not recommend LD flap reconstruction to anyone. There are so many potential life-time side effects it's not even funny. I'm on disability because of it. I know some people didn't have any issues, but others, like me, had a lot. Look in the "breast reconstruction" forum, I've posted a "potential side effect" thread there.

Ddw79, I understood that you had sclerosing adenosis. It is not the same thing as radial scar/complex sclerosing lesion. Sclerosing adenosis is benign

here too, two spots of scelorsing adenosis .

B9. Thanks

My understanding is that a complex sclerosing lesion (which is just a radial scar that's over a centimeter wide) is a benign condition, but having either one increases your chance of eventually developing cancer by about 1.5-2.0 times--so it's a risk factor. Also, they are *sometimes* associated with LCIS or ILC at the edges of the lobules (I've read everything from 7 or 8 percent of the time up to 30% depending on whose study was being looked at--with the higher numbers being associated with atypia at the same time) which can be missed because core biopsies only sample a small area of the lesion. Therefore, many doctors feel the prudent course of action is to do an excisional biopsy to remove the entire area so it can be checked. That said, the lesion/scar is considered to be a benign finding unless further examination finds something to the contrary--which is usually doesn't. Because of that, some doctors feel that close monitoring with more frequent exams/screening is an appropriate course of action. My own surgeon is doing an excisional biopsy on my radial scar this Friday because I do have atypia.

I have prominent sclerosing adenosis but my MO is not concerned since it is a benign condition.  I will be having 3D mammo's/sono's alternating with MRI's every 6 months because I was diagnosed with pleomorphic invasive lobular carcinoma and bifocal pleomorphic lobular carcinoma in situ.  The invasive tubular carcinoma is not even a factor.  I am being monitored every 6 months not every 3 months.  I feel that the surveillance gives me peace of mind and I look forward to it.

Good luck.

Sherryc

Did you take the drugs during the 14 year period? I'm still wondering if I should do that and trying to get the enhanced monitoring . I also have ADH and radial scar et