SGAP decisions

annemturner
annemturner Member Posts: 1
edited May 2019 in Breast Reconstruction

I apologize if I'm asking for information that is elsewhere--I am not a big user of message boards, ordinarily.

I do, however, need some advice. In July 2014, I had a simple mastectomy on the right side, with immediate implant reconstruction on the right side, and a lift on the left side for symmetry. At the time, it was unclear whether my treatment would include radiation, so the implant was really a placeholder, and the surgery didn't really leave me symmetrical, either.

Now, with chemo and (yes) radiation behind me, I'd like to finish the reconstruction process. My initial desire was for a tissue reconstruction. After consulting with three plastic surgeons, however, it seems clear that I'm not a good candidate for DIEP (I don't have enough belly fat). Two of the three have suggested an SGAP surgery.

I'm wondering a few things from those of you who have had an SGAP, or have made a similar decision:

--How similar does the tissue reconstruction feel to the other, lifted breast? The implant feels radically different; how much of a difference is there with tissue?

--How happy were you with the contours of your butt afterwards? Again, was symmetry (in appearance and in feeling) an issue?

I'm grateful for any insight and experiences you can share. This doesn't seem to be a very common operation, and I'm wondering whether it's worth it.

Comments

  • digger
    digger Member Posts: 590
    edited July 2015

    Hi,

    I'm so glad you asked this question about the SGAP surgery, and I hope others who have had this less common tissue transfer reconstruction will chime in with information and feedback. I've got an implant that failed (after 6 years), and with too little belly fat, my PS has also suggested the SGAP. I trust my PS and know he's extremely experienced in all of these surgeries, but I'm terrified to undergo the surgery, which is scheduled for July 23. I did try asking a while ago for info from any other women on BCO who've had this, but I didn't get much response. On the plus side, I always hated the implant, even before it failed, and the tissue transfer is supposed to feel much more natural. If I'm left with a noticeable dent in my buttocks, the PS will do fat grafting. My greatest fear is that the grafted flap will fail, and I'll be left with a dented rear end and a flat one-sided chest. But I'm not sure what else to do, the failed implant needs to come out, so I guess I'll go ahead with it. I'll make sure to post my experience on here for others to receive feedback

  • cascader
    cascader Member Posts: 599
    edited July 2015

    hi ladies, you might want to look at the charleston or Nola threads , as many people have had the Sgap. I had the Sgap a couple years ago with Dr Kline in Charleston. I travelled from Seattle to have it done. I too had a failed implant and am a uni. Not on here much anymore, but you can PM me if you want with any questions. I am very happy. No regrets .

  • besa
    besa Member Posts: 1,088
    edited July 2015

    I had a unilateral DIEP and then went back 4 years later for prophylactic ns sGAP on the other side. The reconstructions are my own tissue and just feel like "me." Feel free to PM me if you like. As cascader said there are many women on the NOLA in September thread and Charleston threads with sGAP reconstructions.

    When it comes to sGAP reconstruction or lumbar flaps (a slightly higher donor site) make sure you have someone who does this in high volume. When I checked in the DC metro/ Baltimore area I did not find anyone who did this specific surgery more than about 15 times a year. I traveled to NOLA because the physicians there do hundreds/year. I am happy with my outcome.

    There are also ps who can "stack" a DIEP reconstruction - connecting blood vessels to use both sides of the abdominal flap which can sometimes offer a thin woman the option of using this donor site. Again you may need to travel to find a p/s who is able to do this specialized surgery.

    (The topic of fat grafting and sGAP reconstruction was addressed on Dr. Dellacroce's (a NOLA docs) web site- see link below. Just one ps's experience to consider.)

    http://members.boardhost.com/plastic/msg/134335709...





  • digger
    digger Member Posts: 590
    edited July 2015

    Besa and cascader, thank you so much for all this information, it is so helpful. I have felt very alone going into this SGAP procedure, so your comments are very comforting. I had no idea there were so many other women with SGAPs on the Charleston and NOLA threads, thanks for pointing me in the right direction

  • digger
    digger Member Posts: 590
    edited August 2015

    Just reporting back in after having my SGAP surgery on July 23rd. The procedure literally and figuratively kicked my butt. A 10 hour surgery, followed by a second operation 2 days later in which all of the incisions were re-opened again on account of too much bleeding. But I'm now 3 weeks out, still in a lot of pain, but hopefully moving forward. I tire incredibly easy, but do go on short 20 minute walks a couple of times a day. The incisions on my chest and my buttocks seem to be slowly healing. Much of the pain is from my rear end. It's absolutely impossible to sit or lie down without putting pressure on the incision, which goes clear across the cheek. The new breast does already look much better than the reconstruction I originally had with the implant, which failed due to capsular contracture. Can't say yet whether I'd highly recommend this SGAP surgery. If in another month or so I'm pretty much healed and feeling more like myself, I'd say a definite "yes," but for now, it was an incredibly major, and painful, surgery to go through, so still doubting myself whether or not it was a good idea.

    Since there are so few women on BCO who get SGAP, I did want to share my experiences for others to follow, in case anyone else was interested in the SGAP.

    Just a note to Besa, I did receive your PM, but every time I try to respond, it says I'm blocked and you no longer receive PMs. So I apologize if you think I'm rude and haven't responded to you, but BCO isn't letting me! Hope you're well.

  • peacestrength
    peacestrength Member Posts: 690
    edited August 2015

    digger, thanks for sharing your story. Please let us know how you are. I'm considering SGAP

  • shiane2
    shiane2 Member Posts: 12
    edited August 2015

    Digger, just reading your post has been so helpful. I am going to be having surgery hopefully in next month or so, but am torn on whether to have SGAP or DIEP. My PS says DIEP is his first choice as it not as lengthy of a surgery, still tough, but less time under anesthesia, but I don't have a lot of excess abdominal tissue and the results will be a very small B if even that, and on my breast that underwent radiation and lumpectomy, PS says I'll probably need an implant in addition to flap to give the breast volume-I was trying to avoid implants altogether but may not be able to. And then there is always the recommended latissmus dorsi flap recon, but I am thinking muscle sparing is a better option? I know you are still in the process of healing, but do you feel happy so far with the results, both the breasts and the buttock area post op? Do you feel that you will eventually be able to resume your usual activities? I'm a weekend runner and aerobics girl and wondering if SGAP limits mobility for good or just while healing as in for a few months. Anyone that has had either or both types of procedures, I would appreciate any information you have as these are some of the toughest decisions I have ever faced.

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited September 2015

    I had bilateral delayed sgap last August 2014.My surgery was 14 hours,one side failed.It was not my dooctors fault,they are very skilled.It was the non cancer side that failed and I really think my having a port and so many infusions affected veins and arteries on that side.I have very noticeable dents on my butt...which could be fixed but I am just not ready for more surgery,they don't really show in clothes though.I was doing pretty well until a month out,I did not have a lot of pain.Apparently the month of antibiotics affected my gut badly,I am just now recovering from that.Being one sided is very uncomfortable and I am giving serious thought to having the reconstructed breast removed.It does not feel like my breast,it feels heavy and pulls my chest muscles.I am still trying to find a comfortable bra....One thing I would not do again is travel for surgery,unless I could stay in the area for about a month.I flew home a week later and it was exhausting. I am 62,but had a lot of energy at that time.I know there are many women who have one side fail and go on to have successful surgery,but I will not risk another flap....and do not have a site I want to use.I know if my surgery had resulted in two breasts,I would likely have gone on to stage 2.I just never dreamed I would be in that small percentage that fail....

  • digger
    digger Member Posts: 590
    edited September 2015

    Well, it's been a while since I last reported in, and I'm now about 6 1/2 weeks out from unilateral SGAP surgery. Most of the worst pain is gone now, the breast and rear still hurt a bit, but definitely tolerable. I'm back in a regular bra and my skinny jeans, moving a little slower than usual, but feeling good. My reconstructed breast looks very good to me, a couple of hard spots, hopefully that's okay and not necrosis. My rear is definitely smaller than the other cheek, but in my skinny jeans, my husband promises you wouldn't notice. Unclothed, the donor side of my rear is most definitely smaller and flatter, and the scar reaches across the entire cheek, but I'm okay with it. I don't think I'm going to do anything else with that cheek, I know some people would do fat grafting from elsewhere on the body to fill in the flatness, but I'm okay with it. I see my PS next week for a check up, and hopefully will get the all clear to engage in more aerobic exercise. For now, I'm walking a couple miles a day to make sure I don't lose too much muscle. I am starting PT this week to help with my range of motion on the arm affected by the reconstruction. All in all, I'm pleased with the SGAP, much happier than I was with the implant. I expect to be back on the ski slopes by the winter, so that's great! I know that there are risks involved with any of these flap surgeries, but hopefully I'm past the worst of it. If, for some reason, I'm faced with losing my other breast, I would probably opt for another SGAP, even though it's a really, really tough surgery and recovery. If it works, it's permanent. Please feel free to ask me any other questions, I'm happy to help.


  • besa
    besa Member Posts: 1,088
    edited September 2015

    digger-so good to hear you are doing well!

  • shiane2
    shiane2 Member Posts: 12
    edited September 2015

    Thanks so much for all the great information, it helps to hear real stories more than any amount of information you can read about all the different surgical options for recon. I am still working through insurance issues, and still vacillating between DIEP and maybe LSGAP when I finally approach my surgery date. I have heard so many differing opinions and this is truly one of the most daunting decisions I have ever had to make, but for me, I think LSGAP or SGAP may be the best as my rear is where most of my excess tissue is, but from what I understand this is the lengthier surgical choice, more hours in the OR, maybe 2 separate surgeries instead of one, so what a tough choice. Again, thanks to all the wonderful women who share their stories, this site is truly a blessing for those of us faced with so many difficult situations and choices.

  • steelersluver
    steelersluver Member Posts: 112
    edited October 2015

    besa, Did you rule out the Drs at Mercy and Johns Hopkins in Baltimore when you were researching? My PS does not perform SGAP and planned to refer me to Baltimore or Philly, so I am curious to know the results of your research if you are willing to share. Thank you!

  • besa
    besa Member Posts: 1,088
    edited October 2015

    Steelersluver- for whatever it is worth, this is just my take on things. How I personally made my decisions about who I wanted to do my sGAP surgery and a little about my take on a bilateral sGAP reconstruction if that is what you want. I hope this post is not too long...

    I ruled out the microvascular ps at Hopkins. Compared to other options in the area -to me they seemed to be young, stayed for a relatively short time and then moved on. I considered two other ps in the DC/Baltimore metro area - Bernard Chang at Mercy and Nahabedian at Georgetown. (Both Chang and Nahabedian had worked at Hopkins and then moved on.) At the time I asked (2011 -2012) both Bernard Chang and Maurice Nahabedian were doing about 15 GAPs/year.

    Bernard Chang at Mercy would have been my first choice if I had had the surgery done locally. He did not seem to do nipple sparing (which was what I wanted- my sGAP was prophylactic.) Though it was not relevant to me I don't think Dr. Chang does bilateral sGAP reconstructions so going to him for a bilateral reconstruction might require two stage I surgeries. (As an aside, my understanding it that there is a microvascular breast reconstruction fellowship program at Mercy.)

    The other option was Nahabedian at Georgetown. He had done some revisions for me on my (on a very problematic DIEP side- DIEP was done locally in Maryland). I felt he was sometimes rushed when dealing with me. I had had a previous reduction on the future GAP breast. Dr. Nahabedian told me that nipple sparing was not possible because of the reduction- the nipple would surely die. I think Dr. Nahabedian does do bilateral sGAP reconstructions - but because of the length of the surgery I am guessing his surgical residents might be playing a relatively big part in a bilateral reconstruction.

    II did not research the Philly sGAP ps. If I was gong to travel I decided it would be to NOLA.

    I knew the NOLA docs were doing multiple 100s of GAPs/year and I knew they were doing nipple sparing on previous reduction - generally without a problem. At NOLA I would have two senior very experienced ps working on me at the same time - so my time in the O.R. would be shorter. There would be no residents or fellows participating in my surgery. Generally the woman who had used these docs gave them rave reviews and two separate physician friends who were helping me with this research independently recommended them. I had a negative experience with my local DIEP reconstruction in Maryland. My DIEP side, and this ps's work on my contralateral side for "symmetry" required many revisions.(Turned out the ps was very well trained but had done few DIEPs after finishing training.) I was willing to travel to stack the cards in my favor. For me NOLA turned out to be a good decision.

    So just my personal feeling about things...

  • steelersluver
    steelersluver Member Posts: 112
    edited October 2015

    Thank you besa. This was great information and was very helpful. I appreciate you sharing. I have already had the BMX and the implants are failing, which is why the SGAP is a consideration. I am fairly sure I am going to try the fat grafting first (staying away from the area I'd need for SGAP) to see if I can get enough relief that way. Chang at Mercy was the PS I had been wondering about, so it is good to hear he was doing 15/year five years ago since it likely increased. Charleston SC is my other consideration, and I have a call in for info from a doc there already. I'm fortunate to have the luxury of time to make a decision.

  • JMJ532
    JMJ532 Member Posts: 181
    edited April 2019

    Digger, I am not sure if you are still on the message boards but would be curious how you are doing now? I had an SGAP in 2008 and starting to have pain in my buttocks now. Wondering if this is normal for those years out?

    Thanks,

    Jen

  • Sara208
    Sara208 Member Posts: 27
    edited May 2019

    Hi everyone, I’m five weeks out today from a unilateral SGAP surgery. My surgeon was Dr. David Chang at Univ. of Chicago. He did an outstanding job. I’ve had seven unnecessary reconstruction-related surgeries due to bad plastic surgeons who seemed hell-bent on destroying me. I finally did my research and am very glad I did. I’m still sore in the buttocks and am limping noticeably and uncomfortable in pants (spring is skirt-season!), but I’m recovering and walking about 2 miles a day. I’m sort of afraid to look at myself from behind—I know my left butt is flat and the scar is big, but it was worth it. I was really terribly disfigured by my mastectomy/failed reconstruction scar. I couldn’t wear any kind of open neckline at all. So far so good, no complications and I look good in a bra. Next step is seeing about matching up the other side..

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