Starting Chemo March 2015

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  • ksusan
    ksusan Member Posts: 4,505
    edited October 2015

    Fist Full of Bacon

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  • ksusan
    ksusan Member Posts: 4,505
    edited October 2015

    Fist Full of Bacon

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  • Italychick
    Italychick Member Posts: 2,343
    edited October 2015

    just posted on Facebook, 116 year old woman who lives in Brooklyn eats eggs, grits, and four slices of bacon everyday, so suck it WHO and cancer

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  • ksusan
    ksusan Member Posts: 4,505
    edited October 2015

    Sausage Shed reading pig

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  • DavisD
    DavisD Member Posts: 338
    edited October 2015

    Theresa so happy for his good results with naltrexone. I have mine but she wanted me to be totally off these butrans patches I've been on for a couple years. Down to the lowest dose now 5mcg. They are in the opiate family so she wants to avoid any kind of withdrawal I'm still very hopeful but can't help but wonder about the skin crawling piece and tamoxifen/menopause..

    Have a great day everybody! Rain here in VA:)

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  • Lovemylab
    Lovemylab Member Posts: 80
    edited October 2015

    I also have appt for US tomorrow as my GP says why is your CA side chest so swollen? I say I have been ignoring it but she is sending me for US. I did let my MO know. It is like I have an expander in and am getting fills except that I DON'T! I had a great trip out to ID to see DD1. Too bad I got bladder spasms and peeing blood. GP says no UTI , cystitis from chemo. Last chemo was 8 weeks ago. Is this my new normal?

    Maureen

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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    I don't know why but i am not too worried about the lump. I think it is probably scar tissue. With grade 2 cancer, I don't see how I could have grown a cancerous lump so quickly after surgery and chemo. I am not changing much in the way of products or what I eat. I just can't live that way. I know people are eating lots of kale and broccoli. I guess since I have no idea what caused the cancer in the first place, I feel like changing everything is kind of pointless. Not knocking anyone who does. I just don't have the energy. I have made some positive changes. I am working out way more than ever and I think if I weren't in cancer treatment, I would feel fantastic and sometimes I do.


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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    Carrie: Have you visited the Fall rads group yet? It is extremely helpful. Hope to see you there. Try not to be nervous. It really is no big deal. Yes, you feel like a bit of a science experiment, but you just lay there and they put you where they want to.


    My rads team is wonderful. (I am so beyond glad I went to a different place to do it. I had so much negative energy around that other place).

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  • Leighrh
    Leighrh Member Posts: 317
    edited October 2015

    Allison, How far in to rads are you? I have lurked a little over on the rads thread but still trying to keep my head in the sand :). I am only 5 in.. 6 today and I have had zero problems, its really easy.. 10 min max that I am in the room and then except for Tues when I have to see the doc I am out.... Yesterday I saw the nurse and she went over all the stuff to do... loose bra's, aquafor etc..... so of course after that I started to feel a little, scar started to bother me a bit.... I really think its all mental, If i would not have heard all that I prob would still feel fine .. :) Doc and nurse told me I could put nothing on my rads side except Aquafor and 100% Aloe. Used the Aquafor last night of course even though I am not even close to pink!

    Prayers for all you ladies with lumps and bumps, I am sure it's all scar tissue or some other lovely side effect of our beautiful shit show that never seems to end!!

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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    Leigh: I have had 9 of 28 so far.

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  • Leighrh
    Leighrh Member Posts: 317
    edited October 2015

    Allison, i will follow you on the rads board since you are just a few ahead of me! I have 30... 25 more! We had this niftty little cancer policy with Aflac... that has turned out to be a blessing.. It pays me 200$ everytime I have rads... So running joke with hubs, everyday when I finish, I text him.. 200$... LOL! That money will go to a beautiful vacation in Mexico for hubs and i this summer!!! So Bring on the BURNS... LOL Just kidding,,, I dont wanna burn.... :(

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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    That's great, Leigh. BTW, how goes the hair and eyebrows/lashes?

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  • Leighrh
    Leighrh Member Posts: 317
    edited October 2015

    Hair is veeerrrryyyy slllloooowwwwwlllly getting there... lol I am hoping to have enough to go with out a wig by Christmas??? I really hate wigs now...

    Eyebrows are OUT OF CONTROL!! LOL I had to pluck them this morning!! I wish my head hair would take note! Eyelashes are good to, bottom ones are super!! Top ones are there but still pretty short, tons of mascara helps! I have ditched the fake eyelashes and that's a BEAUTIFUL thing!!

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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    That's great! I don't see being able to get rid of the wig until March, based on what I am reading. I just want my head to be warm during the winter.

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  • Leighrh
    Leighrh Member Posts: 317
    edited October 2015

    You know, I always thought I'd wear this wig until my hair was longish.... Now, as soon as it looks like it could be an intentional really short hair cut.... I am ditching the wig! Even though I have always hated short hair. I just can't stand being so fake with this wig.... it always feels fake and I always feel like ppl are staring at me, that feeling has never gone away and Ive been wearing this for 7 months! And of course I am in La..... it doesn't get too cold here. Its almost Nov and today its 80ish....

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  • Italychick
    Italychick Member Posts: 2,343
    edited October 2015

    Maureen, my step daughter has interstitial cystitis and she has found relief from this product. I do it too when I feel any pee issues. It is anecdotal evidence, of course, but isnt all the good stuff? You drop one tablet in a liter of water, and as soon as it dissolves, chug it. Don't know if it would help you, but since it is just a water purifier, I do it because I figure it can't harm me.

    image

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  • eheinrich
    eheinrich Member Posts: 792
    edited October 2015

    My genetics panel came back negative too. I was glad to be able to pass that bit of reassurance on to my daughters.

    Ksusan, love the skeleton shirt. I will simply be wearing cat ears. No big plans.

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  • avmom
    avmom Member Posts: 324
    edited October 2015

    Those with limos and bumps - I will be holding my breath for you all. It's good to be so aware of any body changes, but super scary.


    I spent much of yesterday back at the clinic. I have developed an infection along my incision - not the whole incision, but a couple of areas, toward my armpit and right at the sternum side. It started out with just a little redness on the armpit side of my incision on Monday night, but the red area got quite a bit bigger overnight, so my son drove me to the hospital, and I ended up with a scrip for two weeks of clindamycin. There is also some deep bruising, so my incision is very tender just now. I was using almost no pain meds, but have reverted to a six hour cycle: eat something (required for the antibiotic), take pain meds, doze for a few hours, get up and do something, repeat. I'm back to see my surgeon tomorrow, and hope the drain can come out then.


    Gentle hugs
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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited October 2015

    thinking of all if you with lumps and bumps this morning. And appointments. Holding my breath and crossing my fingers.

    Great news on the hair and lashes Leigh! And here's to ditching the wig

    Allison AND Leigh- hope you continue to cruise through rads.

    Avmom- so sorry about the infection! I hope the meds clear it soon. It is early days yet to be off the pain meds, try not to worry. Hope the bracelet gets there soon to comfort you. Gentle hugs back yo you.

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  • eheinrich
    eheinrich Member Posts: 792
    edited October 2015

    Avmom, yikes! So sorry you have to go through that. Pain meds are your friend at a time like this. Keep ahead of it.

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  • IndyGal35
    IndyGal35 Member Posts: 340
    edited October 2015

    I've had 4 doses of Anastrazole (Arimidex) now. I had some bleeding yesterday, but it went away over night. My only other noticeable symptom is that I'm pretty sure I'm having mild hot flashes. They don't kick in until I start to move, then my body thermometer goes from icy to very warm. So far, so good.

    I'm so sorry for everyone still going through the fears of lumps and bumps. I still don't understand why regular scans aren't recommended for us. Thinking of each of you.

    Allison, you summed up my feelings on food/lifestyle pretty well. I have made some positive changes, but I realize more than ever that I need to enjoy the gift of life I've been given. If I want a bacon cheeseburger, I'm eating one now. Avoiding that stuff sure didn't keep me from getting cancer. I don't think indulging sometimes is going to increase my risk any more than eating kale did at this point.

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  • eheinrich
    eheinrich Member Posts: 792
    edited October 2015

    Leigh, where are you in LA?

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  • ksusan
    ksusan Member Posts: 4,505
    edited October 2015

    Avmom, hoping you have some relief today.

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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    Avmom: I am sorry. Sending you positive healing vibes.

    Leigh: That's exactly how I feel about the wig. I actually think my wig looks better than my real hair but I just feel like I have a dead animal sitting on my head when I wear it. I never considered short hair either.

    Do any of you know who Jenifer Griffin is? She is a survivor and she has REALLY short silver hair and she appears to be keeping it that way. (She is a news reporter).

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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    Just to share. She is pretty awesome, IMO. She was triple -.

    http://www.womenshealthmag.com/health/jennifer-griffin

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited October 2015

    That is an inspiring story. And her hair looks great. I just find it odd that she spends several sentences talking about healthy lifestyle, then recommends the LGFB program. I think her message was its great to still be able to look and feel good during treatment. But her endorsement of the program without any warning about the dangers of the cosmetics they give you in that program is dangerous, especially given her high profile. I'm looking for an email contact for her.

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  • Leighrh
    Leighrh Member Posts: 317
    edited October 2015

    Eileen, sorry... La... Short for Louisiana... no where near Cali... :)

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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    That's a great idea, Katy.

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  • avmom
    avmom Member Posts: 324
    edited October 2015

    thanks, everyone, for your good wishes. I'm hoping to be back on track soon.

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  • ksusan
    ksusan Member Posts: 4,505
    edited October 2015

    My doc says scar tissue. Whew.

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