Newly diagnosed. A scared and confused

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clevelai
clevelai Member Posts: 7
edited October 2015 in Just Diagnosed

In August I noticed that my right nipple was chaffing and bleeding but I'd just finished a 10 mile hike and thought that was the reason. Thanks to my bff who insisted that I get it checked out I made an appointment to see my doctor. One thing led to another and my biopsy results came back positive for invasive ductal carcinoma grade 3. There is no family history of cancer so I was quite surprised. Although they did not find any cancerous cells in my lymph nodes the Radiologist said that she could tell that it was aggressive. She referred me to a surgeon. When you hear the word aggressive all sorts of images come to mind. None of them good. It's been 4 days and I'm still trying to an appointment to see someone sooner rather than later. This part of the process is especially hard because I'm waiting around living my head imagining the worse.

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  • brithael
    brithael Member Posts: 224
    edited October 2015

    Sorry you have to join the club that nobody wants to be a member of, but I truly understand. I was diagnosed about three weeks ago, just found my surgeon on Thursday and am scheduled for surgery on Nov. 5th. I also have IDC, grade 3, but I also have at least one positive lymph node. That grade 3 thing is scary. How big is your lump? What about your estrogen/progesterone receptors? Some things are good, some not so much. I feel much better since I found my surgeon and a plan is in effect. You will too. Read everything you can, it helps. Best of luck on this journey.

  • TikkasMom
    TikkasMom Member Posts: 83
    edited October 2015

    I too am new here. IDC Grade 1, no stage mentioned yet. ER+ PR+ HER- 8mm in size, spiculated

    Scary for sure. See Surgeon Wednesday 10/28/2015

  • JerseyRenee01
    JerseyRenee01 Member Posts: 221
    edited October 2015

    Just diagnosed as well on Wed, DCIS Stage 0, both hormones positive. It was my 1st Mammo. Saw microcalcifications in a linear branching configuration left breast. Then biopsy now told cancer.

    Seeing genetic counselor Wed & BS consult Thursday.

    Ladies, this is so scary for sure! My mind is so overwhelmed! The scary decisions ahead!

  • TikkasMom
    TikkasMom Member Posts: 83
    edited October 2015

    Welcome

    We'll all be OK!!

  • knittingPT
    knittingPT Member Posts: 156
    edited October 2015

    If it makes anyone feel better, when I first began my cancer journey (Sept 2014), my oncologist told me that a wait of 6 weeks to get started with treatment is acceptable. So, you don't have to rush! I had aggressive Stage III IDC and it was in the lymph nodes. I ended up doing chemo first and then surgery and radiation. I know it feels like things are caving in and you just want the cancer out of you as quickly as possible. It is okay to slow down and get all of the info before making any decisions. I think I had ultrasound, biopsy, genetic testing, CAT Scan, Breast MRI, and PET scan prior to any plans being made for treatment. That time was soooooooo hard but looking back, I am thankful that the doctors got the information they needed before offering up options. For what it is worth, I appreciated doing the chemo first because I felt like I was doing something, I could feel that the tumor was shrinking, and it gave me time to research/think about surgical options. Be careful what you read on here before getting your information. You will scare yourself silly about things that may or may not even apply in your case. Hugs to you all. The best advice I can give you is to breath in, breath out, breath

  • Lin43
    Lin43 Member Posts: 108
    edited October 2015

    Hello - and so sorry you have to join this group, but there is a world of wisdom on here that helped me when life seemed darkest, and I hope it will help you also.

    I am now 3+ years out from diagnosis with a very aggressive, grade three, hormone negative, Her+ diagnosis. I had 15 months of treatment, finishing in November, 2013. So far so good, and my oncologist at MD Anderson says that the first five years are the most critical for recurrence for aggressive cancers - we can relax a little more after that time period than those with less aggressive cancers.

    My Petscan found three tumors and at least one cancerous lymph node. I could literally feel the cancer grow from one day to the next. It was crazy! But one "good" thing about the more aggressive tumors is that they can be more responsive to chemotherapy than less aggressive tumors. You may even come out of chemo with a pathological complete response (pcr) or close to a pcr, and surgery and/or radiation may then be good insurance against recurrence.

    I did all three - chemo, mastectomy/axillary node removal, and radiation - because it was recommended, and because I did not want to find myself wondering if I could have done more. It wasn't easy, but many of us have done it and come out the other side alright. I have some permanent neuropathy in my feet from chemo, but I have my life!

    Prayers for you. Hang in there, remember to breathe deeply to help relax, and don't hesitate to accept support from everyone in your life. It is time for the focus to be on you!

    Thinking of you and wishing you the best as you begin treatment,

    Linda in Phoenix

  • Lin43
    Lin43 Member Posts: 108
    edited October 2015

    Forgot to second what knittingPT said...The most important thing during the coming weeks is to get the testing you need so they can personalize the treatment for you. Days or even weeks seem like a long time when you hear the word "aggressive", but it is ok, and most important to have testing to set the best treatment plan for you.

  • clevelai
    clevelai Member Posts: 7
    edited October 2015

    All. Thank you for sharing. I now have my appointments scheduled for Nov. 4th and am feeling a little better about things. These posts have really helped.

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