Hi, using only natural treatments, am done with Western path

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2015

    chef127,

    Thanks, but you know, I've been a real outlier in this whole stage IV adventure. I had a bmx because it was thought I was stage II. (Love my recon) Within 6 weeks of that a bone met was found. No chemo, and rads to the bone met with intent to kill, as I had no pain. I was already post menopausal, so anti-hormonals were a no brainer. 4+ years from dx, I wish that I could explain why I've done so well. I understand that I'm unusual and understand equally, that things can change in a minute.

  • marijen
    marijen Member Posts: 3,731
    edited August 2018

    sorry abigail I thought you were talking about oxidation. My mistake.

  • macb04
    macb04 Member Posts: 1,433
    edited October 2015

    Everything can have side effects, important to weigh the pros and cons of any medication, supplement or course of treatment. If I am not mistaken that is the rationale behind chemo, tamoxifen or aromatase inhibitors usage, that the side effects are outweighed by the benefits. That cost/benefit analysis will play out differently for every person. I have decided for myself that possible benefits of the natural supplements /substances outweigh the possible harms. Free will and all that.

    When I looked up Turkey Tail on Google I didn't use Google scholar, just plain old Google. Try both TURKEY TAIL AND BREAST CANCER, and TRAMETES VERSICOLOR AND BREAST CANCER .

  • marijen
    marijen Member Posts: 3,731
    edited August 2018

    macb04 I know that if I chose alternative methods only I'd get a whole lot of grief from my people. None of the choices are good ones because none work all of the time. It's brave of you to talk about it. Alternative also requires a great deal of discipline and resolve. My two cents anyways

  • Italychick
    Italychick Member Posts: 2,343
    edited October 2015

    macb04, thanks for the Google suggestion. I take a mushroom powder that has turkey tail, along with a few other mushrooms, can't remember what they are all. I take other supplements as well, coq10, magnesium, d3, k2, and a host of others. Hubby and I researched until we were sick of researching to try and find the best forms of things to take. Hopefully the alternative stuff will help everything else I've gone through.

  • macb04
    macb04 Member Posts: 1,433
    edited October 2015

    I agree Italychick, just keep looking for helpful supplements. I really find that Curcumin by Thorne Research is a marvelous antinflammatory that also helps with pain. I have a bunch of things that hurt me from when they threw me off the cliff, abruptly into menopause, and from surgical and rad damage as well . When I run out of it, (usually because I ran out of money first) I get miserable and sore after a few days. I have read that Curcumin has poor bioavailability which seems to have been solved by Thorne with that Meriva type of Curcumin. Could be placebo effect, except that my inflammation test, my last CRP was 0.38. Less than one is considered low risk, makes me glad that I can see a concrete result of my efforts at improving my health that I hope will translate into long life, beating the odds and seeing my girls grow up.

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2015

    Rose50 I'm so sorry that ,that happened with your treatment. Almost the same thing happened to me was already scheduled for chemo and then they got the results that I was stage four and hormonal receptive. Apparently chemo doesn't work for those of is with this type of bc. This however afforded me some time to research my situation a bit. I understand for those of you already in treatment (chemo or radiation) that it may seem flippant and flakey to feel like taking a different path. But I don't think we need to be rude or close minded to each other. This is for all of us it's information and support and we all need that. 

    Marine I have no idea how big it is I don't think very. Regular X-rays showed nothing MRI was inconclusive and the ct showed  two small spots. This is enough to give you a two year death sentence and a pat on the knee for being so understanding of the failures of the medical system. I had been telling the doctors about my "cyst" for three years. Anyway...

    I wish all a pleasant peaceful pain free evening.


  • Italychick
    Italychick Member Posts: 2,343
    edited October 2015

    macb04, yes I also take curcumin, since it is so antiinflammatory I figure it could help. And I think, based on what I have researched, that reducing inflammation is a big thing underlying diseases. Also vitamin e, borage oil, Berberine to reduce any insulin resistance, supposedly it has an effect like Metformin, which is now in trials for breast cancer

  • Tomboy
    Tomboy Member Posts: 3,945
    edited October 2015

    Rose50, I am sorry that treatment left you with alopecia and neuropathy, that well and truly sucks. My hair is thin from hormone therapy, but I would be horrified if treatment left me bald, and I wasn't warned that that could even happen. But I do have a pretty bad case of neuropathy, and nothing seems to really help, but soaking my feet in very, I mean really hot water! So hot that my feet are extremely red! And then I just really try to walk on them, even if it hurts, because it makes them feel better, when I stop walking, and put them up, with topricin liberally applied. Topricin is a homeopathic cream, and it really works for me, my boymanfriend swears it does nothing for him. But he puts on such a tiny amount! I do try and eat well, but I always did, altho I really love carbs, I am trying to cut them mostly out, it's really hard! And studying foods that fight inflammation. I take magnesium, D3, turmeric in my food, many dishes are good with it, and elderberry. I really need to try some other things to repair damage from treatment. But I knew I needed treatment. I am really struggling with the hormonals, tho- I am almost at the point where I may stop them, and just save them for if/when I progress. That's how much I hate them, that I am willing to become stage four, just to not feel those side effects...

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2015

    Italychick my nature path put me on metformin and my oncologist said those trials were inconclusive and that I shouldn't be taking a diabetic drug for cancer....what to do. 

    Have any of you ladies tried Chaga tea another  mushroom with huge benefits.

  • leggo
    leggo Member Posts: 3,293
    edited October 2015

    Hi Wendy. Here's a good thread about metformin. A lot to read, but it might help you come to a decision.

    https://community.breastcancer.org/forum/73/topics...

    Rose, taxotere left me permanently bald as well. No warning whatsoever....and when I complained, I got a shoulder shrug.

  • macb04
    macb04 Member Posts: 1,433
    edited October 2015

    Hi ,

    Tomboy,there is research about treatment of diabetic and chemo induced neuropathy ( and PREVENTION OF CHEMO INDUCED NEUROPATHY ) by use of the following 2 amino acids, Acetyl L Carnitine ( ALC) and Alpha Lipoic Acid (ALA). An ounce of prevention and all that, , .....anyway. Saw a study about ALC that was from 2013. Put the following into regular Google for details ACETYL L CARNITINE AND PREVENTION OF CHEMOTHERAPY INDUCED PERIPHERAL NEUROPATHY. Sorry, still having ongoing computer problems and can't paste links using my tablet.

    Would like to bring up my experiences when I took tamoxifen for 9 months. I had insomnia, quite severe when I had always been able to sleep fairly well. The thing that bothered me the most was the frightening, out of control eruptions of rage I would have for even small things. In these rages I broke my pressure cooker, my tablet (not this one), and my cell phone. I screamed and yelled at my family. The final straw was when I frightened my then 9 year old daughter and made her cry. I figured out that if I took L-tryptophan, then I was able to sleep ok, if I took a substantial dose. Then it clicked and I put the following into regular Google, TAMOXIFEN AND RAPID TRYPTOPHAN DEPELETION. I was never told that it is a known efffect that tamoxifen causes depletion of tryptophan, with resultant mood swings. Tamoxifen has actually been used in neuropsychiatric research studies to cause rapid depletion of tryptophan. I only found 2 studies mentioning that , because it was deemed too possibly toxic to use. Wow, that was the kicker for me. Then I looked up the effects of tryptophan depletion, bunch of studies on that, like in the prison population for violence and "anger management issues ". Hmmm . I was starting to feel like I was losing my mind, the onco was no help, just said some woman are a "little moody" on tamoxifen, then she'd say"have a prescription for Xanax" I feel lucky I didn''t do anything violent ( except to some very expensive inanimate objects) while on their mind altering drug.

  • Italychick
    Italychick Member Posts: 2,343
    edited October 2015

    Wendy3, that's why I'm trying the Berberine. It's a natural alternative. And it seemed to help keep my blood sugar stable all through chemo. My doctor said Metformin would push me too low and make me feel bad

  • Theresanne
    Theresanne Member Posts: 90
    edited October 2015

    Hello ladies! God bless you all. Lousy we belong to huh? Anyway..I was diagnosed 12/11... lobular, stage 2a..no lymph node involvment. I did have a double mastectomy, (prophylactic right)..TAC treatment..but radiation not recommended. Currently on Femara...howver..I have added to my protocol...whole foods plant based vegan diet not even processed vegan. No sugary drinks...only purified water and unsweetened organic green and chamomile teas. No juice. Alot of berries for antioxidant qualities and another peice if fruit daily...I take about 3000mg Vit D3, sulphorophane (component found in broccoli), curcumin, maitake /reishi extracts. Tons of raw greens daily. the only grains are organic steel cut oats and sprouted wheat breads. very little olive oil as my only fat. No alchohol... NO added sugar of any kind. alot of walking, spending time with my three dogs...and alot of mindfulness and prayer..the best I can do right now..the rest is in God's hands..you know..I guess im nit alternative..so sorry...more comlimentary...but good luck everyone...

  • macb04
    macb04 Member Posts: 1,433
    edited October 2015

    wow, I am sorry I missed that about the ALC, but every thing I might say is helpful, please double check everything and do your homework. I was looking at the older data too much, and not enough with the newer info.

  • Momine
    Momine Member Posts: 7,859
    edited October 2015

    Wendy, as far as I know, the metformin trials showed that metformin slowed some kinds of BC but accelerated others. I would want an expert on this to make a recommendation before I started taking it.

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2015

    Momine I stopped it after a month I didn't want to be taking so many drugs. 

    I have just recently started taking CDB capsules it's been about a week and a half..I don't want to ginx anything but I feel amazing. My appetite is back my mind is clear and my energy is way up. My tumour is way down is size . I just wanted to share that with everyone I really believe there is something to this little plant that if we get by the hype it may have something to offer us.

  • barbiecorn
    barbiecorn Member Posts: 437
    edited October 2015

    I will be four years on Feb. 1st - bilateral mascectomy - HER2 positive - not very promising, I know...but I chose not to do chemo, Herceptin nor Tomoxifin....I do natural hormone blocking...supplements, juicing, etc. etc. yes, the girls who post on the main stream breast cancer topics are not very receptive to alternative...I had some hostile people on here when I first got diagnosed...I just wanted to say to all of you who are going the alternative route to think positive about what you are doing....God Bless You All!!!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2015

    barbiecorn, I am one of those main stream BC people who will do whatever I need to do using main stream treatments. But I absolutely respect those of you who go alternative totally or partially as your decision. I have sent newbies who were not decisive over to both the complementary and alternative threads as I feel everyone should explore. Please do not feel we main stream folks are all hostile. I guess sometimes it may come across that way when written (and, yes, sometimes people may very well be hostile but that is their problem, not yours).

    I frequently browse the alternative threads as you never know what I may learn from all of you.


  • abigail48
    abigail48 Member Posts: 1,699
    edited October 2015

    I'd like to see a contents list of various caendula creams & lotions. been having difficult nights & it could help, I think things will change for the better probably when the weather cools

  • Lily55
    Lily55 Member Posts: 3,534
    edited October 2015

    What are you using as natural hormone blockers please?

    For those of you don´t know I refused chemo but allowed myself to be bullied in to rads and regret it, EVERY time I see the Onc I am reminded I did not have chemo and am therefore HIGH risk, hows that for hypnotic suggestion?!  I know in 50 years time chemo and rads will be seen as barbaric and counter productive treatments

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2015

    Lily55 a natural blocker that I've been using that is totally safe to use with all treatments is indole-3-carbinol. It's derived from broccoli apparently also grape seed extract which is more for the immune system and chaga tea of course for building white blood cells. Always good to be doing something proactively along with everything else. As long as it doesn't hurt the other treatment you are on which these won't I also take Curcumin to get ride of any inflammation in the body and it supposedly kills the mother cells. We shall see all sounds great doesn't it.

  • abigail48
    abigail48 Member Posts: 1,699
    edited October 2015

    if I understand correctly that indol3carbinol is the stuff wich causes cancer in processed meats


  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited October 2015

    Is Curcumin and Tumeric the same thing?

  • Italychick
    Italychick Member Posts: 2,343
    edited October 2015

    curcumin is an extract of turmeric, and allegedly has a lot of anti-inflammatory properties. Turmeric has other things in it, called tumerones, that are beneficial as well. I take curcumin and turmeric because it is hard to get enough curcumin just through turmeric.

  • wrenn
    wrenn Member Posts: 2,707
    edited October 2015

    I've been taking turmeric capsules for a couple of months and joint pain is gone...may be coincidence.

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2015

    Abigail48 lol no the stuff in meat is called nitrates a chemical preservative totally different animal this comes from broccolli. 

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2015

    The turmeric thing is interesting I took Tumeric for years and still had sore knees. I just started taking Cucumin three weeks ago maybe and my knee pain is gone and the swelling is gone. Weird

  • leggo
    leggo Member Posts: 3,293
    edited October 2015

    Both turmeric and curcumin are inheritently bad at being absorbed unless you add pepper (piperine). Either way, you can add lots of pepper if you're using turmeric in your food or buy supplements that usually contain piperine if you use curcumin supplements. Without pepper, I doubt very much it does anything. Jmho.

  • wrenn
    wrenn Member Posts: 2,707
    edited October 2015

    I usually check with Andrew http://www.drweil.com/drw/u/QAA400915/Curcumin-or-Turmeric.html :-) I put curcumin in soup and casseroles but use the turmeric supplements. It's hard to pin down what is helping what but it probably works on the placebo effect too. I think I am doing something good and my body responds.

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