A Look at Charitable & Non-Charitable Organizations

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015


    Cam00205Bluebird144…NJJoined: Apr 2013Posts: 393

    13 hours agoBluebird144 wrote:

    Knitted Knockers Charities is a non-profit that exists to provide free patterns for knitters and crocheters to be able to make knockers and help mastectomy patients get freeKnitted Knockers made by volunteers.

    I love my Knitted Knockers! They are light and soft and warm. Unlike my silicone prosthetic which is heavy and cold when first worn, then it later causes me to sweat.

    I wear my knitted knockers inside a regular bra or tucked in the pocket of a mastectomy bra. They are beautiful, and a godsend to those of us with an uneven mastectomy scar.

    image

    Knitted knockers website:

    http://www.knittedknockers.info/

    Fall down seven times, stand up eight.

    Surgery 09/09/2009 Prophylactic Ovary Removal (Both)Chemotherapy 02/06/2013 Adriamycin, Cytoxan, TaxolSurgery 07/19/2013 Mastectomy (Both); Lymph Node Removal: Sentinel Lymph Node Dissection, Axillary Lymph Node Dissection (Left); Reconstruction: DIEP flap (Both)Surgery 08/20/2013 Reconstruction (Right)Surgery 08/28/2013 Mastectomy (Right)Radiation Therapy 10/14/2013 3-D conformal external beam radiationSurgery 01/24/2014 Reconstruction: Tissue expander placement (Right)

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2014


    Hi, popping in. I was posting with another member. I thought sharing the below information may be helpful to you Winking.

    The link www.needymeds.org is to a web site started by a Social Worker and a doc. It is a tricky site to use. The first page leads to a several hundred resource pages. But I think this first page, does not project the wealth that lies beneath. Be patient when following the links within the site. There are sections that are disease and drug specific. The specific page then links to lists of organizations that provide monetary or other types of assistance.

    Register first and do the request for assistances form. Reason: the request for assistance form is filed. If you apply to 1 or 20 organizations/companies, the forms don't need to be repeatedly filled out.  The system is designed to pull information from the original form. There may be a few particulars that need to be added to a companies/organizations form.

    All the pharmaceutical companies have patient assistance programs. All the drug manufactures are listed there

    The other way to reach drug manufactures is 1. call the manufactuer patient assistance number(goolge keywords: drug name and manufacturer, then to webpage>>>patient assistance. Very time consuming.

    There is so much more on www.needymeds.org. It took a bit of time to wander through the whole site. I've shared a telephone walk through with many friends and relatives. I even called healthcare facilities to tell them about this link.

    For completeness, there are many ways to get financial assistance for whatever you need. There are organizations that will do things for you i.e volunteers that buy groceries, drive, install handrails, build wheelchair ramps.

    How to find the info besides from the link above?  FIND the SOCIAL WORKER(SW).  It's there job to know these things :)  Talk to all of the following 1. cancer center SW,  2.hospital SW, 3. Insurance companies SW, 4. County SW. 5. church outreach leader.

    I requested from my insurance carrier, a consult with a SW. That one appointment with the insurance carrier Social Worker, led to grants totaling $10,550. The meeting with the cancer centers SW, led to coverage of neulasta  for $4000.00.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2014


    Bump

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2014


    Bump

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2014

    bump-------------we are into Pinktober---------------the Breast Cancer Action group out of California has established a great way to evaluate an organization for charitable giving based on solid questioning of what applies to breast cancer. 

    If you choose to evaluate an organization please use their questions. They do lead to answers. 

    Not all organizations function to lead to research. Prime example is BCO. BCO is a teaching and communication site- the questions only minimally apply to them. Also, a charitable organization like Mothers Grace. It takes five years before a 501c3 can be entered into Charity navigator evaluation. 

    The questions have limitations. Perhaps the makers of the questions didn't think of this. I've sat in many meetings. Times we would say "Well we didn't think of that one".  Off to diner >>>>>>>>>>>>>>>Hugs & Health sassy

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    Bump

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  • glennie19
    glennie19 Member Posts: 6,398
    edited August 2015


    bumping,, Pinktober is coming.

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  • lulud471
    lulud471 Member Posts: 89
    edited September 2015

    noooooooooooo I don't want pinktober to come


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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    sas-schatzi wrote:

    Cheerleading for BCO. They are our home, our resource, we gain so much by being here. They have costs. Let's help.

    They make periodic requests by email. They're is the donation link in the header. An easy way for those that do online banking is to set up a donation on a predictable basis.

    We need to do this. They take care of us. Let's make sure we take care of them.

    You don't have to send a check. Do it simply in your online banking. But if you are still stuck on checks.........

    To donate by mail, please send your check payable to Breastcancer.org to:
    120 E. Lancaster Avenue | Suite 201 | Ardmore, PA 19003

    link to BCO Our biggest advocate

    https://community.breastcancer.org/forum/110/topic/834331?page=1

    Link to the mainboard donation page

    https://secure3.convio.net/bco/site/Donation2?df_i...

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    Bump

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited October 2015

    Great thread, Sas. Thank for all the time you devoted to make things easier to evaluate and challenge.

    Your pinktober thread inspired me beyond my wildest imaginings. I'd like to thank you and call attention to the fact that the thread has nearly 15,000 posts! It started with one. Yours.

    Hugs to you

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    JackB, well not this thread.....That's why I redid the topic box. It wasn't right. Now it's broken up into charitable and non-charitable. Pick a charity or pinking group and see if the material in the topic box allows you to evaluate them?

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