Petition Mammogram Guidelines American Cancer Society

Options
Schoggimonster
Schoggimonster Member Posts: 10
edited October 2015 in Advocacy

Hi,

Has anyone started a petition to sign to fight the new mammogram guidelines given out by the American Cancer Society this October 2015. If there is such a petition I would like to sign it as I strongly disagree with those new guidelines.

Thanks

Comments

  • grammakathy
    grammakathy Member Posts: 407
    edited October 2015

    I agree. My BC was missed in 2012 - actually it was seen but noted as an area that wasn't of concern. The next year, I was called back and the biopsy was positive. If mammograms were two years apart and BC was missed, you are looking at a four year growth time.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited October 2015

    I'm thrilled that Dr. Brawley and the folks at the ACS had the courage to change the recommendations!

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2015

    voracious,

    I think very highly of your comments and observations. Can you please explain why you're thrilled? I know you will give us facts, not just anecdotes 😊

    Thanks, caryn

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2015

    I strongly disagree with the new guidelines too. If there is a petition started to revise this disaster, please let me know.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited October 2015

    caryn....if you read Dr. Brawley's book, How We Do Harm or Dr. H. Gilbert Welch's two most recent books AND follow the late Dr. Handel Reynold's book, The Big Squeeze, you will completely understand my satisfaction.


    The easy answer is that for most women, here in The United States, POPULATION BASED MAMMOGRAPHY SCREENING SAVES LIVES, BUT NOT AS MANY LIVES AS WE ARE LED TO BELIEVE.


    The new recommendation brings us closer to Canadian and European recommendations. Coming during Breast Cancer Awareness month should make more woman pause and begin to understand why the ACS issued this recommendation. You will hear that it is all about insurance companies saving money and all kinds of conspiracies. All kinds of radiologists are going to thump their chests and declare the absurdity of raising the age for screening. But, the bottom line is that there is a huge fault line with respect to exactly how many lives are actually saved by population based screening mammograms. And if you accept the reality that mammography is not a good means of finding aggressive tumors in patients younger than 45, then MAYBE we can begin an articulation on finding a better way of finding cancer for that age category.


    You might ask, but we don't have a better means, so to be on the safe side, we should continue screening this category until something better comes along. But think about all of the wasted money being spent on a means of diagnosis that merely gives a false sense of security.


    And, you might be thinking that if we do diagnose breast cancer earlier in that category of patients, they might be spared unnecessary aggressive treatment. Well that would be terrific and worth every penny. But again, what the studies have shown is that for too many patients, screening mammography is picking up breast cancers that would probably not lead to death.


    What we need is better INDIVIDUALIZED screening. We are moving in that direction. And, what really excites me is that we are moving in the direction of blood biomarkers that will find cancer in our bodies BEFORE imaging can see it!


    The folks at the Rare Breast Cancer Lab at Sloan Kettering have already discovered a biomarker that discovers progressions of metastatic disease WAY before imaging discovered it and even way, way before patients get symptoms! What this discovery means is that treatments can change more quickly which translates into longer lives!!!


    The takeaway message is that population based screening mammograms save lives, but for some segments, it doesn't save that many lives and we deserve better! Hopefully, patients will understand their risks and understand better whether or not mammography screening is right for them. Screening should not be a one size fits all. Everyone needs to step back, understand their risk and make an informed choice.


    Lastly, I wish to say, population based mammography missed both my and my cousin's tumors.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2015

    Thanks voracious. I understand your point. I did not fall into that age group, but 13 months after a clear mammo, I was stage IV. An imperfect tool indeed

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited October 2015

    caryn....your situation also raises another important point that the radiologists fail to mention or explain in their chest thumping. If population based screening mammography was that effective, then we would have fewer Stage IV diagnoses right off the bat. But unfortunately, as you can see with yourself, you had a screening mammogram and 13 months later...BAM! You did everything right and yet you and so many others, according to the biostaticians, were wronged! My heart goes out to you and all our Stage IV sisters like yourself!

  • DKoelling
    DKoelling Member Posts: 3
    edited October 2015

    I just started a petition on change.org! Please sign and encourage others to do the same by sharing the link. Thank you so much!!

    https://www.change.org/p/american-cancer-society-r...


    Dvora Koelling

  • DKoelling
    DKoelling Member Posts: 3
    edited October 2015

    I just started a grassroots petition via change.org, and it is gaining momentum. Please take a moment to sign the petition and share with anyone else you think may be interested! Thank you so much!!

    https://www.change.org/p/american-cancer-society-r...

    Dvora Koelling

  • Denise-G
    Denise-G Member Posts: 1,777
    edited October 2015

    I bought into "don't get too many mammograms" stay away, you get too much radiation and will end up with breast cancer...My aunt was a radiation tech in the 1950s and 1960s.  She saw what harm being over radiated could do.  Unfortunately,  I listened to her.  I had a few mammograms, but not enough. When I finally felt the lump, I was Stage 3a, one node from 3c.

    And I wish everyone had the wherewithal to make an informed choice.  But they do not.  I have written a breast cancer blog for 4 years.  I have heard from literally thousands of breast cancer and non-breast cancer patients.  MOST all of the breast cancer patients I hear from had lumps that  were caught by mammography.  Of course, some don't.

    I hear from so many young women in their 30s who have lumps, want a mammogram, and cannot get one and get turned away.  But yet sitting in the chemo infusion area, I have met countless young women in their 20s and 30s with Stage 4 breast cancer because no one would listen to them.  One young woman's cancer ate through her spine before someone would check her for breast cancer.

    I agree mammography is not perfect.  My own sister had extremely dense breast and her breast cancer was not caught until Stage 3C.  She is going through chemo now.  My 80 year old mom diagnosed Stage 1 found her own lump because at age 70 she was told "you don't need any mammograms."

    I TOTALLY DISAGREE with the ACS guidelines.


  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2015
  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited October 2015

    I agree with the guidelines because the statistics support it. Large scale, randomized studies just don't back up population-wide mammograms beginning at 40. That's not to say that those at higher-risk shouldn't get them earlier, nor should ANYONE with a suspicious symptom ignore it. (The new guidelines specifically say that this is for normal-risk women.) However, these guidelines fit the data better. I have too many friends who think that having a yearly mammogram will save them from BC. We really need to focus more on prevention as early detection just isn't working like they thought it would.

    http://www.nejm.org/doi/full/10.1056/NEJMoa1206809

    "Screening can result in both the benefit of a reduction in mortality and the harm of overdiagnosis. Our analysis suggests that whatever the mortality benefit, breast-cancer screening involved a substantial harm of excess detection of additional early-stage cancers that was not matched by a reduction in late-stage cancers. This imbalance indicates a considerable amount of overdiagnosis involving more than 1 million women in the past three decades — and, according to our best-guess estimate, more than 70,000 women in 2008 (accounting for 31% of all breast cancers diagnosed in women 40 years of age or older)."

    "(the data) suggest that mammography has largely not met the first prerequisite for screening to reduce cancer-specific mortality — a reduction in the number of women who present with late-stage cancer. Because the absolute reduction in deaths (20 deaths per 100,000 women) is larger than the absolute reduction in the number of cases of late-stage cancer (8 cases per 100,000 women), the contribution of early detection to decreasing numbers of deaths must be small. Furthermore, as noted by others, the small reduction in cases of late-stage cancer that has occurred has been confined to regional (largely node-positive) disease — a stage that can now often be treated successfully, with an expected 5-year survival rate of 85% among women 40 years of age or older. Unfortunately, however, the number of women in the United States who present with distant disease, only 25% of whom survive for 5 years, appears not to have been affected by screening."

    Also check out what they say in the Results section. There has been a MUCH larger increase in detection of small (mostly DCIS) cancers than there has been a reduction in late stage cancer. If early detection is the key, this should not be the case. It's not even close, either.

    http://www.bmj.com/content/348/bmj.g366

    "During the five year screening period, 666 invasive breast cancers were diagnosed in the mammography arm (n=44 925 participants) and 524 in the controls (n=44 910), and of these, 180 women in the mammography arm and 171 women in the control arm died of breast cancer during the 25 year follow-up period."

  • modmod4
    modmod4 Member Posts: 8
    edited June 2022

    Hey all! Thought you might all be interested in participating in this campaign, supported by BCO:

    You know our stance on the new ACS guidelines and we heard what you had to say.

    Help us mobilize the entire breast cancer community around this "For 40" Campaign -- sign our Pictition with your Facebook photo if you believe women deserve a mammogram at 40. Don't wait, it could be too late. #40SavesLives

    http://pictition.com/BCO40

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2015

    Hey all! Thought you might all be interested in participating in this campaign, supported by BCO:

    You know our stance on the new ACS guidelines and we heard what you had to say.

    Help us mobilize the entire breast cancer community around this "For 40" Campaign -- sign our Pictition with your Facebook photo if you believe women deserve a mammogram at 40. Don't wait, it could be too late. #40SavesLives

    http://pictition.com/BCO40

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited October 2015

    Let us not confuse population based screening mammography with DIAGNOSTIC screening mammography. DIAGNOSTIC screening mammography saves many, many, more lives.


    Moderators....it is very apparent that you "speak" on behalf of breastcancer.org which was founded by a radiologist who in subsequent years of founding the organization has become a breast cancer survivor. I wish all of those sisters who sign petitions favoring earlier age screening well. That said, I'm going to advocate for better awareness so women can make better informed decisions AND I will advocate for prevention, better means of diagnosis and most importantly for a cure.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited October 2015

    I too agree with the new guidelines

  • coraleliz
    coraleliz Member Posts: 1,523
    edited October 2015

    I think the new guidelines are a step in the right direction.

  • Pessa
    Pessa Member Posts: 519
    edited October 2015

    w

    What evidence-based information is there about prevention. All I am aware of is the recommendation to avoid alcohol. What else is there that studies have demonstrated

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2015

    I'm having mixed feelings at this point. The emotional fighting the rational. So, no strong opinion yet

  • Schoggimonster
    Schoggimonster Member Posts: 10
    edited October 2015

    Thank you for starting a petition. I just signed it, and will share it on my FB also

Categories