Has anyone changed Dr's?

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  • pandorashealth
    pandorashealth Member Posts: 14
    edited October 2015

    Why not have him do the surgery and then switch afterward? You don't need to tell him that before the surgery. Dealing with post-surgery medication is often done by an MO anyway, so it would be totally reasonable to say your MO is dealing with that part of your treatment.

    YOU need to take care of YOU.

    Edit: LCIS does have a "watch and wait" option that many doctors use. But you need to make that decision for yourself; research the latest studies and then choose what you can be at peace with.

  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited November 2015

    Hi InStitches:

    Regarding your post-menopausal friend with DCIS, it is frustrating that she received a referral when you cannot get one. However, it is not surprising to me that tamoxifen was prescribed to her. It is conceivable that the same thing would be recommended to you by an MO. As noted above, tamoxifen is routinely prescribed to post-menopausal women with DCIS in the risk reduction setting. In post-menopausal women, consideration of a variety of factors, including risk/benefit profiles, will be factored in when choosing from among tamoxifen, raloxifene, or an aromatase inhibitor (either exemestane (Aromasin) or anastrozole (Arimidex)) for risk reduction purposes. Very generally, the guidelines favor tamoxifen over raloxifene in this setting (although in any particular case, this may not be so). Moreover, tamoxifen is FDA-approved for risk reduction purposes (the labeling of the drug reflects use in the DCIS setting). As for the two aromatase inhibitors, while considered an available option under the guidelines based on the MAP.3 and IBIS-II studies, they do not appear to be FDA-approved for breast cancer risk reduction (based on the quote I provided above). However, I think in view of your diagnosis of both LCIS and DCIS, you are looking for a more in-depth discussion of whether an aromatase inhibitor might be a suitable or even preferred choice in your particular case.

    Do you know if the MO is requiring a referral because of some practice within their office, or because your insurance requires a referral? In the latter case, you could contact your insurer to explain that the breast surgeon has made a recommendation for endocrine therapy, but that you would like a second opinion from an MO, and what steps do you need to take to get one.

    BarredOwl


  • 614
    614 Member Posts: 851
    edited October 2015

    Dear InStitches:

    I would call your BS's office and specifically ask for a referral to a Medical Oncologist.  The office can recommend several MO's if they so choose. 

    Sorry about all of the worry and concern due to the changes to your breasts.  I hope that your anxiety levels lessen before your next round of tests in January.

    Good luck.

  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited November 2015

    ". . . Then I called both my BS and RO office to ask about getting the referral. Finally, the nurse with my RO office called me back and said that was in the BS's court and that apparently he was not going to refer me to an MO."

    Like InStitches, I initially read this as a refusal emanating from the BS's office following a direct request to the BS's office for a referral. But I think 614 has a point. It is an assumption on the part of the nurse from the RO's office that a referral is not forthcoming. It is worth another call to the BS's office to inquire, since the ball is still in his court. Inaction (so far) on a request for a referral is not the same thing as a refusal to refer.

    Good Luck!

    BarredOwl

  • InStitches
    InStitches Member Posts: 80
    edited October 2015

    actually the problem has nothing to do with my insurance. For some reason I do not think the BS wants to refer me to the MO and when I called the BS office I never got a straight answer on this. It was the nurse from the RO's office that communicated to me the news that the BS was not going to refer me. I did call the MO's office directly and was told he only accepts new patients that are referred.

    I will talk with my Gyn tomorrow and am considering looking for a second opinion. It all seems very strange to me. I know I will be working with my medical team closely for many years. With LCIS that increased risk never goes down.

  • marijen
    marijen Member Posts: 3,731
    edited July 2016

    Why can't your GYN refer you

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2015

    Institches I changed my oncologist after one month sometimes it doesn't fit we are people it needs to be a positive working together. After mine found out I was stage four he lost interest..

    Wendy

  • 614
    614 Member Posts: 851
    edited October 2015

    Dear Wendy:

    I am so sorry that your first oncologist treated you that way.  Some doctors have truly awful bedside manners.  I am glad that you found a new doctor.  Good luck.


     

  • Alittleknowledgeisdangerous
    Alittleknowledgeisdangerous Member Posts: 18
    edited October 2015

    Where are you, InStitches? Is there a major cancer center near you? You are entitled to second opinions and if there is a major center anywhere near you....Johns Hopkins, Roswell Park, Mayo Clinic, call and see what they can suggest. If you can't get to one, call anyway for suggestions.

    By the way, both my breast surgeon and my MO recommend Aromasin for my LCIS. And both say I need the other, even though they work out of competing practices.

    And another thing....for some reason, I have no copay for my aromasin. Apparently, the insurance company wants me to take it, too. .



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