Waiting is getting on my nerves

Options
Suetois
Suetois Member Posts: 20
edited November 2015 in Waiting for Test Results

I'm waiting to hear from the radiologist who did my core biopsy. That was over a week ago, but it takes 5-7 work days to get results, and we're in the military system, so the recent federal holiday is slowing things up. Today is realistically only the second day that I could expect to hear anything. The thing is, all of this originally started with a screening MRI back on Sep. 10th, so it's been dragging on for well over a month. I was informed the day after the first MRI that something was of concern and I'd need to come back for further testing. At first I wasn't concerned at all because I knew MRIs have a lot of false positives, but as I've moved through the testing process I've gotten a little more concerned. I had no idea it would take so long to get an answer. I've been told that whatever they're looking at is about 7mm, so it's still pretty small. The ultrasound couldn't see anything, and my surgeon couldn't feel anything. (I'm high risk because I have ADH, so I go in for a manual exam by a breast surgeon and alternating mammograms and MRIs every six months.) However, whatever they're seeing on the MRI was concerning enough to trigger a needle core biopsy. Since that's only recommended for BI-RADS 4 and up, I'm assuming I'm in that category. I realize that BI-RADS 4 patients are quite unlikely to have even DCIS, but due to the fact that I have ADH and other risk factors, my personal lifetime risk for developing breast cancer is 37.4% That's high enough to freak me out a bit. The waiting is getting on my nerves. Sigh. I really hope I hear something today and that I'm worrying pointlessly.

Sue

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2015

    Suetois-

    We want to welcome you to our community here at BCO. We're sorry for the worry that brings you here, but you've come to the right place for support. The waiting is truly one of the hardest parts of this entire process. We're crossing our fingers that your results come back benign, but either way, the community is here for you!

    The Mods

  • Suetois
    Suetois Member Posts: 20
    edited October 2015

    Thanks for the support. :-) I didn't hear anything today--and I really thought I would. I guess no news is good news, but I think I'm going to start twitching if I don't hear tomorrow either. Well, no. If I don't hear by noon tomorrow, I'm going to make a call or two to find out what's going on.

    Sue

  • Bunnyhuggr
    Bunnyhuggr Member Posts: 57
    edited October 2015

    A wait that long would sure get on my nerves too. I hope you get good news tomorrow! Please keep us posted

  • Suetois
    Suetois Member Posts: 20
    edited October 2015

    So I called and they got back to me with the pathology report. The verdict is a radial scar (a small complex sclerosing lesion) plus atypical lobular hyperplasia (in addition to the atypical ductal hyperplasia that we already knew about). Because all of this means there's still an increased risk of some LCIS hiding in the area, and because they like to be conservative, I'm going to have to have another needle localization biopsy so they can take the area out and take a closer look. The clinic nurse will be getting back to me to schedule that. The good news is that today's results are benign. Yay!!! The bad news is that I get to have more surgery and wait some more.

    Sue

  • Bunnyhuggr
    Bunnyhuggr Member Posts: 57
    edited October 2015

    Sue, I'm so glad you got some good news! That's got to be a big relief!! :) Sending out prayers that the good news continues to come your way :

  • Suetois
    Suetois Member Posts: 20
    edited October 2015

    Still waiting. I saw the BS yesterday for about 5 minutes. I asked for a copy of the pathology report, which the doctor had one of his minions get for me after he'd left the exam room. I was given the patient's version of the report which has essentially no information on it other than the names of the findings. I've been given real path reports in the past, so I know they're actually much more detailed. So that was irritating. I also asked about the cosmetic impact. The doctor told me that he'd be taking about half of a tennis ball's worth of tissue, but couldn't tell me the location of the resulting dent without looking at the "pictures" which he hadn't done. This is concerning because I already had a similarly sized biopsy on that breast. I wear a size A bra, so that much tissue creates a very noticeable deficit. I also asked about risk and was told not to worry as only about 15% of these biopsies come back positive. In my mind, 15% is fairly significant--not to mention that my research here and elsewhere online leads me to believe that the doctor minimized the risk by nearly half given that the core biopsy showed atypia. The 15% rate is for patients who don't have atypia I think. My final concern was the anesthesia issue. My previous biopsy was very unpleasant as they only used a local anesthetic and it wore off partway through the procedure. I don't want a repeat of that experience, but I'll be taking that up with the anesthesiologist in a couple of days. I'm also supposed to see a MO about going back on Tamoxifen again. I took it for 5 years after my first biopsy, but that was over 15 years ago, and as I understand it, they now know that the effectiveness wears off over time.

    The actual procedure is scheduled for Friday, Nov. 6th--followed by the 5-7 business day wait. Because Veteran's day is smack in the middle of the following week, I can't expect results until sometime between the 16th and 18th of the week after that. All of this started on Sep. 11th when I got the callback from the screening MRI. It will be more than two months, and the waiting is making me crazy. I wish this would just be over.

  • Sierra
    Sierra Member Posts: 1,638
    edited October 2015

    Sue: I saw your post here today and just wanted to send you light and love on your journey, Im only on the odd time, dont have a puter.. so hoping things work out for your Waiting is so very trying! Hugs, Sierra

  • Suetois
    Suetois Member Posts: 20
    edited November 2015

    Thanks, Sierra. I'm waiting again. I had the incisional biopsy done this past Friday. We're expecting the path report to be available a week from tomorrow. All went well with the surgery. I have another 2-inch scar to add to my collection. It's too soon to tell what the final cosmetic result will be. The only negative thing so far is that I had general anesthesia and reacted to the muscle relaxer they used. Apparently, sometimes it makes your muscles ache for a couple of days after the procedure. It's called Sux myalgia. I felt like I'd run a marathon--just super stiff and sore all over--but now I'm back to normal. I feel pretty relaxed about the outcome, but I'd still like to *know* sooner rather than later.

  • Suetois
    Suetois Member Posts: 20
    edited November 2015

    I just got my incisional biopsy results. They got all the atypia and everything else they found was benign. Yay! I was pretty sure everything would be fine, but you never can tell. It was worth waiting 2 months and 5 days to hear it be official, though. Now to get the incision healed up properly. Then this will all be over.

Categories