Starting Chemo in October 2015

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  • jamigb
    jamigb Member Posts: 12
    edited October 2015

    Well that makes me feel a little better. I was looking at all these other people with very similar stats who are only getting 4 and 4 or just tc. Started wondering if there's something about my cancer I should know that I don't.

  • Artista928
    Artista928 Member Posts: 2,753
    edited October 2015

    MOs don't know for sure until they see the final sx path report. I fired my very first MO because he had a plan of chemicals based on what he saw PRE sx path-at my new pt visit. What? On film when he decided what he's going to do it was showing a 2 cm tumor. Then MRI showed 4 cm. I got rid of him cuz he wasn't seemingly interested in my giving feedback and in me. Then final path after sx, surg pulled out a 7 cm tumor. That changed the course of the treatment timing and also one of the meds (now taxodere). It's premature to say this and this without having the final path report if you've had sx. I trust the MO I have now. You'll be with your MO longer than any of your other docs so best to really like and trust them or find one that is a good fit. I'm so glad I tossed the first one aside and even though I"m a cash pt with this one, it's well worth it.

  • LivingThis
    LivingThis Member Posts: 38
    edited October 2015

    I have StIage Ic triple negative tumor with negative nodes. I will start chemo in next 2 weeks. I have to decide between AC and TC and I am having really hard time weighing my options between worries about the different potential long-term toxicities. My oncologist feels that either one is a reasonable choice. Length of treatment is different (AC would be dose dense every 2 weeks and TC would be every 3 weeks). I am not sure if I will be able to keep up my normal work schedule on TC...how did y'all make this decision?

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited October 2015

    I wasn't given any options. It was "These are the four drugs we're giving you. It's 6 rounds. You come in every 3 weeks."

  • LivingThis
    LivingThis Member Posts: 38
    edited October 2015

    What was your experience with the taxotere skittlegirl?


  • pselma72
    pselma72 Member Posts: 5
    edited October 2015

    My first dose will be 10.29. I will be given 4 rounds of Taxotere.

  • pselma72
    pselma72 Member Posts: 5
    edited October 2015
  • pselma72
    pselma72 Member Posts: 5
    edited October 2015

    Tshire, thank you so much, I am experiencing the same feelings (and more) but am going to do it - first dose 10.29.



  • ncsue927
    ncsue927 Member Posts: 57
    edited October 2015

    jamigb, I am getting the same treatment that you are. Only I am getting 6 AC every two weeks and then 12 Taxol. I, too, wonder why the big differences in treatments, but I totally trust my MO. Also, I want them to throw everything they got at me, as I don't want to do this again. Good luck with your journey.

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited October 2015

    Fine I guess. They infused 1L of saline then 2 anti-nausea meds back-to-back, then some IV benadryl, which made me a little loopy, then the 2 targeted drugs with a 30-minute wait in-between and then the two chemo drugs back-to-back. Infusion day went fine. It was just long. A little bit of a headache the next 2 days, which got really bad days 3-5 after infusion. Tired for that first week. Energy is better from week 1 to almost 2 weeks out, but I still nap mid-day.

  • twiggyOR
    twiggyOR Member Posts: 270
    edited October 2015

    Hello October ladies. I am in the September group and just stopped by to support you all. I will start by saying chemo is no fun but you will feel better mentally once you finally get treatment started.

    On hair loss, shedding started about day 12 and by day 16 I had large bald areas and buzzed what was left. I think I made it harder on myself by not taking control and buzzing it sooner but I just couldn't bring myself to do it until I had to.

    I'm part way thru my second cycle. Chemo (day 1) takes all day for me. Thus far days 2 - 4 I am fatigued but am able to work (office job). Days 5-6 were pretty crummy. Each day after gets a little better after that.. week 2 and 3 I am able to work a normal schedule. I don't think I'm as mentally sharp and productive but I'm able to keep up enough to get by. The third week I felt fairly normal last time.


  • AmyBeader
    AmyBeader Member Posts: 90
    edited October 2015

    cute wig PatRN!

    Thanks for the reassurance Twiggy. I'm in the chair waiting to start my first. Let's do this

  • Jackalyn3
    Jackalyn3 Member Posts: 15
    edited October 2015

    hello everyone! Well Thursday is my first treatment. I am scared beyond belief! Everyone keeps telling me I'm so positive about this and I do feel that way but so very scared. All of. your postings have been so helpful.

  • PatRN10
    PatRN10 Member Posts: 332
    edited October 2015

    Hope everyone who had treatment 1 today is doing ok.

    With regard to chemo choice, I had the same ? This summer so posted the question. Hope this thread helps a bit.


    https://community.breastcancer.org/forum/69/topic/...




  • Cdwind
    Cdwind Member Posts: 4
    edited October 2015

    Hi everyone

    I was diagnosed triple negative stage 2a invasive ductal on August 18th. Had my first surgery sept 18th, found out that I also have DCIS. I didn't get clean margins had to have second surgery on the 28th. Good news not in the nodes. My port will be put in on the 16th. Doc wants to to do 4 rounds of docetaxel/cyclophosphamide. Plus steroids. I have read a lot Of posts of women also getting taxol. Is there a standard regimen for tnbc?

  • CinderellaNC
    CinderellaNC Member Posts: 36
    edited October 2015

    I think if you have nodal involvement they will use the dense dose AC and then the course of taxol. If you have no nodal involvement they will give you the option of the four rounds of TC. I have just completed over a week ago my fourth and final round of TC. I can honestLy say the SE's were really not bad. The whole thing was easier than I expected. I never needed a neulasta shot and never had nausea. You will lose your hair and have some side effects but likely very manageable ones. I think the AC dense dose for four treatments followed by twelve weeks of taxol is a harsher more difficult regimen. Looking back I am glad I was able to avoid the Adriamycin or Red Devil as it is called. I am also a triple negative but my tumor was smaller and grade 2 , no nodes involved. I will be having a bilateral mastectomy on November 10th and passing on radiation provided the MRI I have tomorrow of my breasts turns up no unpleasant surprises. I am trying to be optimistic about that and not anxious but with everything in this cancer battle you take it one day at a time, count your blessings, stay strong and as positive as you can. You will get great support from the people on these forums. They give good advice, understanding, empathy and make you realize you are not alone in having a diagnosis of breast cancer and it is a very survivable , treatable cancer. Good luck to you

  • Andraxo
    Andraxo Member Posts: 410
    edited October 2015

    I'm back at work - it's one week since first chemo (TC).  Like twiggyOR, I'm definitely not as productive at work, but I'm getting by.

    Days 3.5 -7 sucked.  The first two days were so great that I was a little too optimistic that I'd sail right through and rock it.  Plus I can't even remember the last time I was sick - it's been years - I'm super healthy and active otherwise.   So much skull and bone pain all over - under any other circumstances I would've been in the ER thinking I had meningitis!    Likely it was a combination of the anti-nausea meds in my IV and the Neulasta shot - both have headache as main side effect.  The body pain is gone, but I still can't shake the headache day 8.   I'm still happy though!   1 down, 5 to go!  

    Somehow I still had a window each day where I felt good enough to exercise - either weight lifting/plyo or 4-6 mile slow run - that was the best part of the day!   My appetite is great and keeps the mild nausea away.   I want spicy foods!   Thankful it is green chile season here in the southwest - Yay!    My mouth and tongue feel strange though.  Cottonmouth but oversalivating at the same time, sore throat, but so open sores that I can see/feel.

    Just reading some of the questions above in the thread.  I had many nodes involved and was given the choice of 6 rounds each of either AC or TC.  Not fun to have to choose between two evils: cardiomyopathy (with Adriamycin) or peripheral neuropathy (with Taxotere).  I already knew I did not want Adriamycin before I even met with oncology (hazard of working in healthcare in a hospital - so much info from your peers and able to be researched easily).  Was super scared about the neuropathy going into this (need fine dexterity for work and for sports too) but I'm trying the cold mittens/slippers and taking 3 supplements advised by oncology.  Hoping for the best!  :)

    Planned my chemo around vacations.  Once the oncologist said I could still go on my Panama trip in December (it will be a 10 days after after my fourth chemo) we worked backward from there to determine the chemo start date.  Yeah, that's probably crazy, but I'm still living and enjoying life as much as I can!

    hugs to you all!

    Andra xo

  • homeschool4us
    homeschool4us Member Posts: 255
    edited October 2015

    I as all prepared to start chemo.on Thurs and they called and moved it to Friday because my MO went out of town on an emergency. Sigh....

    And you guys are scaring me about adriamycin! Why is it worse than the others? I don't have a choice. 😕

  • DurhamGirl
    DurhamGirl Member Posts: 100
    edited October 2015

    Starting first of 6 rounds (one every three weeks) of TCHP (not sure how this is supposed to be ordered!) tomorrow. Anxious to get moving with this and a bit anxious about it overall.

    Do any of you watch Orange is the New Black? I am feeling like Piper Chapman in the first episode, when she was preparing for "self surrender" to the Department of Corrections. She knows that it is going to unpleasant but necessary all at the same time. I feel like I am preparing for self surrender to the Department of Chemo. Despite how out of control things feel right now, I'm trying to maintain a sense of control over the only thing I can control--my mental state.

    Anyway, good luck and lots of healing to all of you!

  • Andraxo
    Andraxo Member Posts: 410
    edited October 2015

    cracking up about the Orange reference DurhamGirl! Yes! That is what it felt like the week before chemo....like I was about to self surrender. I was eager to start so I could just be done with it already, but at the same time I didn't want to go. So hard to maintain any control.

    Hope it goes well for you tomorrow!

    Andra xo

  • Artista928
    Artista928 Member Posts: 2,753
    edited October 2015

    There is no exact rhyme or reason as to what you will get in terms of chemicals for chemo. I have 1 node involved and I'm getting AC/Taxotere. There are many factors that go into what your regimen will be. Your age, tumor size or what it was, ER+?, HER2 status, etc. So no real way to tell until you get with your onco and she reviews your path report and labs with you.

  • CancerinMN
    CancerinMN Member Posts: 3
    edited October 2015

    I start chemo next Tuesday, October 20. I am feeling pretty apprehensive, but I am hoping to get through it well. I am keeping busy this week with getting stuff done before starting chemo - wig fitting, MUGA, port placement, teeth cleaning, as well as a birthday party for my step-daughter. I keep my fears at bay pretty well, except when I go to sleep. Then they come out to play. Not very happy about that. I am hoping the start of chemo actually brings my mind a little peace.



  • peculiargirl
    peculiargirl Member Posts: 68
    edited October 2015

    tomorrow is AC Round 1. DurhamGirl, I LOVE it -- the one thing we CAN control is our mental state!! I'm really trying hard to stay positive. I'm so blessed to have 900 hours of sick leave built up, a very understanding boss, good insurance, prayer warriors all over the world, a husband who is my hero, a cancer center 30 mins from my house, plans for dinner with our granddaughter tonight, an appt for reiki after that, and I feel really blessed that I've found you all, as well. Thanks for sharing your experiences!

    CancerinMN, my worst time is in the middle of the night. With my MO's approval, I take an ES tylenol PM every night at bedtime - it really helps.

    Have a great day, everyone!

  • DurhamGirl
    DurhamGirl Member Posts: 100
    edited October 2015

    Just got back from round 1. Everything went smoothly...no reactions or anything else unexpected. Accessing the port was super easy. I know some people use the Emla cream, but I didn't need it. It's so much easier than trying to access a vein.

    I know this feeling of well being is a bit misleading and the next week could be tricky, but I'll take the good times as long as I can!

    I hope everyone is doing well and staying positive!

    DurhamGirl

  • Jackalyn3
    Jackalyn3 Member Posts: 15
    edited October 2015

    Im starting tomorrow! Very nervous!! Hope it goes as as smoothly as everyone else.

  • LivingThis
    LivingThis Member Posts: 38
    edited October 2015

    Thanks PatRN - I really found it helpful to read your questions and the responses you got as well as reading the experiences of others on this thread. I know that no two people have the same experience. I am still having trouble with the decision - one day I am more afraid of neuro effects and the next day more afraid of heart problems...I also realize that serious effects are not common but I am paralyzed. I called Dana Farber today but no callback yet to set up appointment for second opinion. I don't want to delay the start of chemo in case I could finish by Christmas so I may not take the time to wait for the 2nd opinion. It is ironic that I would not even be making a choice if my nodes were positive - then it would be AC-T automatically. Sigh...I am leaning toward AC and will ask to be followed by cardiac oncologist. I just started a new job and I hope I can keep up . Best wishes to everyone starting chemo this week

  • AmyBeader
    AmyBeader Member Posts: 90
    edited October 2015

    Day 3 for me. Had the Neulasta shot yesterday, and was achy all over last night. I think the Claritin helped. Today is okay so far!

    I have not watched Orange is the new Black yet. We just finally made it through all of Breaking Bad, which was great! Better Call Saul is a spin-off and it's pretty good too.

    I have been trying to get back into some pleasure reading, but I keep reaching for cancer stuff instead. Hopefully this urge will diminish. :)

  • Autumn121
    Autumn121 Member Posts: 29
    edited October 2015

    Hi Everyone,

    I'm joining the ranks of the October 2015 chemo group and thought I would say hello! My chemo is scheduled to start next Thursday, October 22nd. I will be doing 4 rounds of A/C, once every three weeks, then 12 weekly treatments of T. I have been reading the message boards, and am getting things ready at my home, and picking up things that I may need. I am mad, scared, nervous, ready to get going, and all of the other emotions in between. I look forward to staying in touch with this group as we go through this part of the treatment together!

  • homeschool4us
    homeschool4us Member Posts: 255
    edited October 2015

    At a routine ob visit yesterday, we found out our baby had died sometime.in the past week. I was 13 weeks plus 2 days pregnant. I delivered a beautiful baby boy last night. I start chemo tomorrow. I honestly don't know how to cope anymore. This is too much.

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited October 2015

    I am so sorry for your loss. :(

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