Just diagnosed
Just diagnosed with ILC, ER+, PR+, HER2-. Had a mammogram, ultrasound and biposy last week. MRI was done yesterday and showed 10+ positive nodes. I have mastectomy scheduled for Monday and I'm sure that will be followed by chemo. I have 4 kids and am scared to death. I would so appreciate it if anyone had anything positive to say to me. I feel like the walking dead.
Comments
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Hi Papaska4, and welcome to Breastcancer.org,
We're so sorry you have to be here, but really glad you found us. You'll find our Community to be an amazing resource of support, knowledge and advice from others who are going through what you are. You're sure to get some great positive feedback soon!
Welcome and please let us know how the mastectomy goes and the chemo too. There's some great support in the June Surgeries thread and the June Chemo thread.
We hope this helps!
--The Mods
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Hello papaska4 , another mom of four here just out of treatment for stage III with positive nodes. How old are your kids? This is doable, easier if you have a strong support system, don't be afraid to ask for help!! If you dont have a strong support system, there are lots of resources that you can take advantage of. Stick around, there are some great women here!
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dearest... i am so sorry your are joining our ranks. it is scary in the beginning for all of us. it does get better, once you start your treatment. and coming here often for support is extremely beneficial.
you are not alone, we've all been there.
many, many of us are out there way beyond our diagnosis , well, happy and bc has become only a fading memory...
trust me. you will be ok.
for me; i had 12 positive nodes and really crappy other stuff. that was over 10 years ago, and i am well and living ' beyond'
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Hi papaska4, I'm another stage 3 (lots of postiive nodes) mum of young children. I was diagnosed 4 1/2 years ago nearly now and my two were 2 & 4 at the time. I would reiterate what Jenwith4kids says. It is doable, hard work but doable & as she says don't be proud do accept all the help offered. Also be kind to yourself in terms of your expectations about what you do for them as a mum. Mine watched more TV than normal, ate probably too many fish fingers and didn't have clean school uniform every day but came through it happy & unscathed!! My friends did a cooking rota which was fantastic as it meant I didn't have to wast energy cooking when I felt awful, I could focus it on the children instead. Good luck.
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Wait until you have all your results and if necessary get a second assessment of your biopsy. You always have te choice as to whether to have chemo or not and if your ILC is VERY hormone positive maybe you can opt out of chemo, but it all depends on you and your path results. Taking a couple of weeks or even four to make a decision on your proposed treatment will not affect your prognosis but it will affect how well you cope with your treatment. Best advice I ever received was never make a decision based on FEAR, but on what feels right to you
Good luck
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Hi Papaska, I have just been diagnosed ILC ER+ (not sure about PR+ or HER). I am also having a mastectomy on Monday. I am scared and bewildered and shocked by all this. I will not know about my lymphs until after my surgery, (but surgeon has seen suspicious nodes on US). I too expect to have chemo. I know that I will be having radiotherapy. There are lots of positive stories on here of survival. It sounds like we have a similar diagnosis at the same time. I would be keen to share future experiences and decisions with you. We need to be strong and I will be with you on this journey if you would like. I am 44 years old with 2 children aged 6 and 8.
Listen to your surgeon and medical team, but, ultimately really believe in what ever treatment path you take. That is what will get you through this. We will get through this. As my surgeon said to me. "The odds are on your side".
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Hello Papaska....
Our path report is somewhat similar...mine most likely worse....
ILC with some mixed IDC..at least 8 cm...........in my skin...at least 17 nodes positive....nodes exploding with cancer.
My children were 7, 9 and 13 at the time.
That was 11 years ago last month..... I just went to my youngest high school graduation he's 18 now....
When I was first diagnosed it was difficult for me to find anyone that had a stage III diagnosis.... I just wanted to find some hope that I would be okay.
But now through various threads here you can find so many women....... many, many years out.
I thought the chemo and radiation was very doable....once done you can get back to the way things were and put cancer behind you...way behind you;)
If I can help in any way just let me know.
Jacqueline -
Papaska4 - i only had one node but they found 7 cm during lumpectomy and almost that much during mx .... like jacqueline i found the tx doable if not fun ... dh and i walked every day at least a mile though he had to hang on to my hand as i felt a bit unbalanced ... one bad side effect was i ate everything in sight ... sigh ... 11 years this month since dx .... have appt with onc to see if i can go off the arimidex ...
as others have said take it one step at a time and "keep on swimming, swimming, swimming ...."
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Sorry you have to be here but you will find quite a few of us with similar diagnosis doing well. You have a lot of info being thrown at you right now - it will actually be a relief (hard to believe but true) once you get started with a treatment plan.
We have all been as scared as you are now so we get it.
I don't come here often - too busy livin' life - but feel free to email me mkibbetson@gmail.com, find me on facebook "mary Ibbetson"
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It's been 9 years for me & I still remember the shock and horror I felt when the news kept getting worse & worse (you have BC, you had 10 positive nodes, it was in your skin, you will need chemo, radiation, oophorectomy, arimidex, etc).
My surgeon told me the only thing that would ease my mind was the passage of time. Well, time has passed! I still feel the anxiety but it's more bearable - and the women on these boards have helped me so much.
Here's hoping we can do the same for you - Julie
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Sugarplum, how has your back been? Did it get better. As I was reading your post on another thread I thought that's exactly what I have been having the last three days. Something else to worry about. Oh dear.
I hope yours is better.
Artsee
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Me too, just received my pathology report few hours ago... 20/24 lymph nodes positive, lymph/vascular embolization present.. want to cry but can't
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faith71, we're so sorry that you joined us here... but wanted to say welcome! We're sure you'll find our community a very supportive and helpful place full of knowledge and great advice.
Warm (((HUG))),
The Mods
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faith, i too had many positive nodes, lymph and vascular invasion, no clear margins after my last surgery, bc in ducts, lobes and nipple. initially scared the bejesus out of me.
it is now over 10 years later and i am well, thankful and laugh hearty every. please keep in mind nodes are the gatekeepers and you will be ok, don't google as lots of incorrect and outdated info there. you will find lots of support and good information on these boards.
we've all been there and can help.
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Faith, my mom just had her pathology report given to her last week, 22/33 Lymph nodes with cancer. It is a big number. The doctors are confident that everything was removed. She will have chemo, radiation and then some hormonal therapy. It is a lot to take in but she is looking at it from the stand point of the fact that the nodes caught the cancer, if they hadn't, who knows?
Hugs to you and to everyone going through this.
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Thank you everyone for your support, still coming to terms with this ordeal.. have not slept well since the bad mammogram report last month.. had a mastectomy last week then the final pathologist report yesterday.. cried together with husband last night and he told me we fight this together.. i'll be having appt with my oncologist next week and i'll keep this thread updated..
Thank YOU all once again, i'm touched..
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Faith, I'm so sorry you're enduring this. It was a terrible time for all of us, and we get it...the stress, fear, insomnia, shock. There were many times I cried uncontrollably in my husband's arms while he just kept saying, "we'll get through it, we're going to be fine." Well, we got through it. And we are fine. You will be, too.
As a nurse, I'm a firm believer in "better living through pharmacology." If you can't sleep because of anxiety, ask your doctor for medication that will help. Right now, restful sleep is crucial to your recovery and well-being! If you're struggling with anxiety and depression, consider an antidepressant.
You're among friends here who have all needed lots of support from time to time. We'll be your raft. Climb on and float for a while.
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Thank you so much sbelizabeth, everyone here has been so nice, writing with tears in my eyes now... i'll be there for sure cos i want to be fine eventually for my loved ones.. did sleep better last night, wishing everyone here a good weekend..
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Faith71 you are in my thoughts. We are all here for one another and will do this journey together.
Many hugs
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All those who were recently diagnosed...I remember that scary time too (just a few months ago for me! Dx in February of this year). I thought I'd never sleep again and was amazed I could produce so many tears. It felt like I was sleepwalking through a horrible dream.
Now it's October and I know this sounds eyeroll-inducing, but I am happy just about every day. And I'm still in treatment! Believe me, treatment is no fun and I have my self-pity moments, but I am so grateful that I'm getting treatment. The treatment part is temporary, and we can do ANYTHING temporarily! Keep that in mind. And know that you will laugh again, feel joy again, and have those moments of calm and peace in your life again. If you need a little help with all that, don't be afraid to ask your doctor about anti-anxiety meds! A life saver for so many of us in the overwhelming beginning stages (myself included!)
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I was diagnosed on Sept 09 2015 but the stage was unsure, now due to mammary node involvement, the stage given to me is 3b. Node involvement is expected.
My heart sank heavily, I will be starting chemo in two weeks, I have prepared my mind for a mastectomy and reconstruction even though my breast surgeon is confident about a lumpectomy. I just want them off. My tumor is hormone receptive and I'm not sure if the chemo will shrink it that much. But I will remain positive.
Most days I have hope but today with the news about possible nodes, it just made me sad. The MO said that metastasis is likely if recurrence happens in the future.
Most of my family thinks is early stage and its not, the cancer being locally advanced hurts me to my core.
I have been thinking of my life in fragments now... its bad. How can I have some hope? its soo hard.
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Hi Jinx 27, I am sorry that you are here but trust me this is the best place where you can talk your heart out. This time of your journey is scary and upsetting but it will get better as you travel it. I used this forum ever since I was diagnosed since Feb 2015. You can find similar experiences and ask many questions that will relieve your anxiety. I went through chemo, BMX and now going through radiation with the help of so many sympathetic member. My prayers and hugs for you. Hang in there.
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Hugs to you Jinx 27.. it gets a little better with time.. i'm starting on my chemo in 2 weeks (total of 12 sessions for 5.5 months).. i still weep every now & then but important thing is to stay positive and to know that our loved ones and members in this forum are always here for us.. keep the faith!
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Just got the pathology report today after bilateral mastectomy Oct 21st .. nodes positive (3/3 sentinel only), grade 3 ,tumor was 9 cm, no margins possible, cells in chest wall... ER+(80%), PR+(2%) HER2 neg ...
I feel like a walking zombie. I recorded the meeting on my cell phone with the SO so I could listen to it again later when the shock wears off
Mind is spinning but am thankful for this board to just let it all out ... need to have auxiliary surgery, radiation , chemo .. the question now is really what order to start
Trying to breathe and stay calm ... wake me up from this nightmare !!!
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LilNutmeg, we've all been there. At first, I felt like I was drowning in shock, disbelief, fear. But things will settle down, and you will have a team of professional cancer fighters to help you navigate through this. For myself, I actually felt a little better once active treatment began.
It's like "cancer radio" playing in your head, 24/7, isn't it? We're here for you. -
Thank you sbelizabeth for your positive words ... very much appreciated
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hi lil nutmeg.
Sorry you're joining us, but you will find an enormous amount of reassurance, good infor and comfort. I was dxed with stage IIIC bc, no clear margins on chest wall and 12 positive nodes. both my sentinel and axillary nodes were completely replaced. lymph and vascular invasion, etc. etc. etc. As a nurse with a who had worked in oncology, i was absolutely floored.
That was 10 and a half years ago, and I am well. This road is not an easy one, but doable. We've all been there. take one day at a time. and come here often. you are not alone. there are fantastic ladies here and all will help you get through.
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I had stage 3 and a lot of nodes positive. It is two years later and I feel better than I did before. You can do it. You can do it.
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Just an update that I'm into my 6th out of 8 chemo session next week and so far so good no major side effects whatsoever.. shaved my head last Saturday & got myself a mushroom bob wig.. a note to all newcomers here, things do get better with time & support from loved ones it's true!! I was a walking zombie myself just a couple of months back but now life goes on & just want to finish my treatment.. all the best to everyone here!!
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