Just diagnosed 3 years after bmx/SNB

Hi all - I've been reading the LE forum for last few years thinking I might have LE but was told by my MO/BS/PS during follow up appts that my nerves were "regenerating" or it's "just scar tissue". Background dx DCIS/LCIS/ALH nsbmx July 2012 (had 4 recon surgeries, have implants and lots of scar tissue) 2 SNB taken out each side. Cancer side was the right and ever since the bmx the right under arm and armpit have been consistently bothersome (pins & needles) and my rt. breast always itches in the same spot, it really itches, not a phantom itch, plus my chest has been horribly tight all this time. Fast forward March this year, woke up in the middle of a Sat. night w/ painful left breast, it swelled, got hot. The right breast had it tooalong incision line. Thought I had IBC or infection all weekend, saw BS Mon first thing, dx as cellulitis, BS stated I don't have enough breast tissue left for IBC (not sure I agree). Oral antibiotic resolved it although the breasts are still pink and some spots hardened. Ever since the cellulitis + the summer heat my symptoms got worse, tingling down right arm to fingers, random stings in arms, feel fullness under right arm. At BS appt a few weeks ago I asked 3 times if it was possibly LE, was hoping to get a referral to a LE therapist & he insisted it could not be LE since I only had SNB; he blamed my implants. Days later saw PS, he said the problem was from lymph node removal & he referred me to a wonderfully qualified LE therapist at a big local hospital with 3 LE therapists on staff without me even asking. Had my first appt yesterday and I absolutely love my therapist, she explained the lymphatic system, lymphedema & she laid out my treatment plan. She dx me with preclinical LE because left & righthands/arms measured the same; but when she did MLD she felt lymph fluid and tissue build up under my armpit and upper arm and she felt how my skin there is thickened compared to the lower right arm. As she did breast MLD she noted that both have orange peel. Got fitted for a sleeve and gauntlet and we ordered them from lymphedemaproducts.com right there. Got a Swell Spot pad to wear under my camilsole (haven't been able to wear a bra for over a month now), it provides some comfort. I will get MLD twice a week for the next 5 weeks; then I have a vacation with flying, so treatment just in time! So here I am....3 yrs 3 months later with a dx and a plan to keep this condition from getting worse and hopefully get me feeling much better. Thank you all for this active forum, it really helped me. Jill